~Q & A Capstone Episode~ Interview with Dr. Peter Rowe ~ premieres today ~ Monday, 6/29/2026 @1pmET tinyurl.com/RoweMECFSped... 6th and final episode of Evidence-Based Pediatric ME/CFS, an updated video guide for #pediatric #MECFS #RoweMECFSWebinars

Q & A Quote 6/24 “[Pediatric ME/CFS] was a tremendous unmet need. There were patients who were often not getting to school; the older ones couldn’t get to college; the young adults were unable to work. I thought this would be a completely worthwhile way to spend my time in medicine” -Dr Peter Rowe

All Resources Now for Episode 2 - Pediatric Orthostatic ME/CFS: a Focus on Management ~Slides~ tinyurl.com/RoweSlidesME... Final webinar, a Q & A capsule interview with Dr. Peter Rowe drops: Monday, June 29th #MyalgicEncephalomyelitis #NEISVoid

~Coming Monday 6/29/2026~ "If you understand ME/CFS, you'll have an incredible knowledge base for all of medicine" --Dr. Peter Rowe Q & A Capstone Episode Evidence-Based Pediatric ME/CFS Webinar Series Sharing a quote a day ahead of the episode premiere!

Slides - Transcripts - Sources Now available!! Joint Hypermobility / EDS in Pediatric ME/CFS with Dr. Peter Rowe (episode 3) * * * * 📢Coming Soon 📢 Capstone Q & A with Dr Rowe ~ an hourlong interview with pioneer of pediatric ME/CFS

Recent Advances in Biomedical M.E. Research, and Why This Field Needs More www.linkedin.com/events/recen... Thurs, May 14th 1:30 EDT (assuming I did the math correctly)

Closing out Maryland's second day on the Hill, we were at the office of @alsobrooks.senate.gov meeting with staff And talking up the NIH ME/CFS Research Roadmap

Some #MillionsMissing photos. Overdid it and have one more day to go. So will be sustainably adding alt text Thurs or Friday - with sincere apologies as to capacity to not get it all up at once.

MEAction had an excellent meeting with Senator Graham’s office yesterday about funding the ME/CFS Research Roadmap. Thank you to MacKenzie Hand (in video) & all advocates who joined us in DC - we met with 8 Congressional Offices in partnership with #NotJustFatigue #MillionsMissing

This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org#MillionsMissing#FrailAndFurious#pwME #LongCovid #MECFS

@repwalkinshaw.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your VA constituents are counting on you. #MEAwareness #MECFS #VA11

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/157943/ #MECFS #MEAwarenessHour

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: https://ow.ly/2hKo50YySls #MECFS #MEAwarenessHour Solve M.E. #MEAction Network

@repjohnnyo.bsky.social ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

@vanhollen.senate.gov @alsobrooks.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

@slotkin.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS

@peters.senate.gov Please support our 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP #MEAwareness #MECFS

@duckworth.senate.gov 9M Americans, myself included, have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding levels have not increased since 1996, despite COVID causing a rapid rise in cases. #MECFS #AdvocacyWeek2026 #MEAwareness

@duckworth.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

@duckworth.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

@durbin.senate.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

@durbin.senate.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

@quigley.house.gov 9M Americans including myself have ME/CFS. There are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing the number of ME/CFS diagnoses #MECFS #AdvocacyWeek2026 #MEAwareness

@quigley.house.gov Congress directed NIH to develop an ME/CFS Research Roadmap. Please fund it with $50M in FY27 so we can finally move from plan to action on diagnostics and treatments. #MEAwareness

@quigley.house.gov ME/CFS research at the DoD has been a lifeline for patients and veterans. Please keep ME/CFS eligible in the Peer Reviewed Medical Research Program in FY27. #MEAwareness

@beyer.house.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA-08 is counting on you! #MEAwareness #MECFS

@markwarner.bsky.social As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS

@kaine.senate.gov As a constituent with ME/CFS, I’m asking you to support 3 asks for FY27 Appropriations: • $15.4M for the CDC ME/CFS Program • $50M for the NIH ME/CFS Research Roadmap • ME/CFS in the PRMRP Please support all 3—my whole family in VA is counting on you! #MEAwareness #MECFS

Congressional action could make all the difference for people with ME/CFS. Reach out to your Members of Congress today → solvecfs.quorum.us/campaign/157... #pwME #MEAwareness

@durbin.senate.gov 9M Americans including myself have ME/CFS and there are still no FDA-approved treatments. Please support $15.4M for the CDC ME/CFS Program in FY27. Funding has remained the same since 1996, despite COVID increasing ME/CFS diagnoses! #MECFS #AdvocacyWeek2026 #MEAwareness

@alsobrooks.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@repkweisimfume.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@vanhollen.senate.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

As a constituent I ask @raskin.house.gov to consider these FY27 appropriation asks for #MyalgicEncephalomyelitis. ~For 30 years the CDC budget has not changed ~PRMRP does non-duplicative research in the CDMRP ~AT LEAST $50 MILLION for the NIH research roadmap (which is a well-thought out plan)

@eleanornorton.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your DC constituents are counting on you. #MEAwareness #MECFS

@repjohnnyo.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@elfreth.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@repaprildelaney.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@hoyer.house.gov FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

@repkweisimfume.bsky.social FY27 appropriation bills 3 asks: ~$15.4M for the CDC ME/CFS Program ~$50M for the NIH Research Roadmap & ~ME/CFS in the PRMRP. Please support all 3 in the FY27 appropriations bills. Your MD constituents are counting on you. #MEAwareness #MECFS

Tuesday March 17th is the last day to get HB27 & SB392 out of their committees. #Maryland - if you have the capacity- please contact your legislators!

Submit Written Testimony Alert! Tuesday, Feb 10th ONLY! 8am-6pm ET SB 0392 Long Covid Innovation Grant & Loan Program Submissions are required to have a my MGA account NOT required to be a Maryland resident Please see linked 🧵 for details #LongCovid

This exact link www.youtube.com/watch?v=8Yyp...

Continuing to highlight each episode (and make sure their slides get shared on the early episodes) Episode 4: Biomechanical Manifestations in Pediatric ME/CFS YT: tinyurl.com/RoweMECFSped... #thoracicOutletSyndrome #MyalgicEncephalomyelitis

Neuroanatomical Considerations in Pediatric ME/CFS Monday, December 15th at 1pm Dr Peter Rowe's 5th #Evidencebased #Pediatric #MECFS webinar series #MedEd #MedSky Provider-oriented & patient accessible #livedexperience panel Available online at: Youtube.com/@MEActMaryland #Neuroanatomy

Community is caregiving. Sending you all a virtual hug today. I appreciate you all 💜

I think the best thing I’ve ever done when it comes to my doctors’ appts is creating a FUNCAP timeline. My husband and I sat down together and filled it out for different points in time. It paints a clear picture of #MECFS and the dangers of post-exertional malaise.

TeamBlueZoo's cutest member protests for Healthcare reform Things are so scary, that no dressing up was required Because the facts are the facts & they look dire Affordable health care (ACA) has expired #SaveMedicaid #ADA @meactnet.bsky.social

Let’s be clear. If the federal government doesn't make changes to health care during this shutdown, then a lot of Americans WILL lose access to our healthcare as we know it. We are joining in coalition with other orgs aimed at protecting Medicaid in FLIPPING the Narrative. We need your help!

Today is the day after Halloween & this pumpkin is not scary ... Not like Medicaid cuts are scary for millions of Americans - they're life and death. #savemedicaid #aca @meactnet.bsky.social