I love that SUFS is doing this!

Our next Clinician's Roundtable: Sleep Dysfunction & Breathing Mechanics with Avram Gold, MD, Assoc. Prof. of Medicine Stony Brook Friday March 6, 2026, 12 pm ET (US) Please share with clinician, researcher, patients networks! Will be recorded 🧵 Registration link with more about Dr. Gold below:

Romantic date night idea: Make the switch together from Audible or Spotify to Libro.fm, where every audiobook purchase supports your indie bookstore 💓

Wir zeichnen ganz bald die neue Staffel MAITHINK X für euch auf und wollen dieses Mal über das sehr wichtige Thema ME/CFS sprechen. Hier ein Aufruf, dem ihr gerne folgen könnt, wenn ihr das mögt. Oder markiert einfach Personen, von denen ihr wisst, dass sie etwas dazu zu sagen haben. Danke euch! 🙏

Hey Jon Stewart @weeklyshowpodcast.bsky.social I‘m #oneofthetwo still masking because a mild covid infection in 2022 has had devastating effects on my health. Hope to see you talk to a #longcovid #me/cfs expert on your show soon.

Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further 1/

#bestofblaetter: www.blaetter.de/ausgabe/2025... Auch gut sechs Jahre nach Ausbruch der Coronapandemie werden an Long-Covid-Erkrankte noch immer stark benachteiligt – sie passen nicht ins Bild einer an Wettbewerb und Leistung orientierten Gesellschaft.

STAT News: 'I have long Covid. Don’t call my chronic disease a ‘journey’ By Peter Swenson, professor emeritus, Yale University 'Like an estimated 20 million Americans, I have an incurable post-acute infection syndrome that goes by the name of long Covid...' www.statnews.com/2025/11/25/c...

📰 Die Zeitschrift Psychologie Heute hat einen Artikel zu ME/CFS veröffentlicht. Die Autorin Denise Schiwon ist selbst von #MECFS betroffen und arbeitete vor ihrer Erkrankung als Onlineredakteurin bei Psychologie Heute. (1/2) 👇 www.psychologie-heute.de/gesundheit/a...

Unglaublich guter, detailierter Text einer Autorin, die an #MECFS erkrankt ist. Wer noch offene Fragen zu dem schweren Krankheitsbild hat, unter dem nun weltweit Millionen leiden, findet hier Antworten. Nach wie vor wird die Medikamentenforschung blockiert. www.psychologie-heute.de/gesundheit/a...

For several years, I have spent my time busting terrible and even fraudulent research into ME, ME/CFS, Long COVID, etc. If this crowdfunding works out, I will do one more in the spring and then retire from Berkeley. If you'd like to support my work, here's how: crowdfund.berkeley.edu/project/47768

An ME/CFS Erkrankte sind gleich auf doppelte Weise mit ihrer Verletzbarkeit konfrontiert: Sie werden verletzt durch die Erkrankung selbst, aber auch durch den gesellschaftlichen Umgang damit: www.blaetter.de/ausgabe/2025...

When you find out about Libro.fm, an alternative to Amazon-owned Audible that’s 100% employee owned, a Certified B Corporation, and shares profits with 4,000+ independent bookshops 😍

To the millions we serve, A statement from our founder on the devastating closure of the HHS Office for #LongCOVID Research & Practice. Within, find an action network to easily write @SecKennedy @POTUS & Congress & a volunteer form. longhauler-advocacy.org/so/ebPNEWBYA...

Here I react to the shameful encounter between American leaders and media and the Ukrainian president. No doubt there were more, but I saw five failures on our side: of hospitality, decency, democracy, strategy, and independence. Please watch and share. snyder.substack.com/p/five-failu...

Here’s an opportunity to help some kids and get some cookies 🍪 digitalcookie.girlscouts.org/scout/sixk34....

Bochum bleibt stabil.💪

🛟 That last-ditch chemo trial your family member was hoping to be in 🥙 The investigation of a food-borne illness outbreak in the next town over 🧠The study looking for preventable causes of Alzheimer’s 🧪The assurance that TAXPAYER-PAID-FOR studies & data collection see the light of day

Musk's censorship algorithm on Twitter reduced our audience by about 95% since he bought it. So we moved over to blue sky. Help us build another great following right here where the skies are clear and the water is fine ;-) Please do Follow Retweet & repeat

Der Weg in den autoritären Staat ist gesäumt mit Leuten, die Dir raten, es jetzt aber bitte nicht zu übertreiben.

Bald jährt sich die 🇷🇺 Vollinvasion der Ukraine zum dritten Mal. Entgegen aller Voraussagen, ist die 🇺🇦 nicht gefallen. Trotz aller düsteren Prognosen dürfen wir nicht aufgeben. Ich habe zum zweiten Mal einen Fundraiser für Evakuierungsfahrzeuge für Kyiv Defenders gestartet: bitte teilen & spenden!

🎥#Trailer #ChronischKrank #ChronischIgnoriert Bitte reichlich streuen - Sendetermin 25.02.2025, um 22.35 Uhr, auf arte, ab 24.02.2025 in der arte Mediathek online abrufbar. "Der größte Skandal ist eigentlich die schiere Menge an Patienten" youtu.be/s_TrZVuqi-k

Der Platz vor der Oper ist wieder voll, #hannover steht wieder auf. Gegen die #afd, gegen #rechtsextremismus und für die #brandmauer! ✊🏼✊🏼✊🏼 #wirsindmehr #noafd #stopptdieafd #merz #union #cdu

Heute vor 80 Jahren befreite die Rote Armee das Konzentrationslager @auschwitzmemorial.bsky.social Anlässlich des heutigen Tags des Gedenkens an die Opfer des Holocaust möchte Euch Außenministerin @abaerbock.diplo.de etwas vorlesen: #WeRemember

Better link protectdemocracy.org/how-to-prote...

Singing the song everyone with #MyalgicEncephalomyelitis #MECFS knows by heart: "Is this still #PEM? Or new med side-effects? Perhaps a new infection though I haven't left the house. (Or a secret 4th disaster.)"🎶

Wieder ratlos. Habe mich bei einer Studie zu Mangelerscheinungen bei Long-COVID angemeldet 👇 Ich ahne böses. I mean: ich hatte die Covid-Infektion 2023 und nicht in den 1990ern. Ist wie in der Reha, wo man mir eine schlechte Kindheit einreden wollte, weil ich ausm Osten komme 😂

A big thank you to Theres Luthi for this highly insightful article about #ME and #LongCovid. It highlights the stigma & misattribution of psychological causes for ME, the harms of graded exercise therapy, and the far-reaching impact of this misunderstanding on those now living with Long Covid.

A Ukrainian teenager, living on her own in New York City, has something to say to the Russia embassy staff.

Thank you to the Vienna Philharmonic Orchestra for donating €25,000 to ME/CFS research via @weandme.bsky.social, as part of their iconic New Year‘s concert, broadcast by over 90 TV channels worldwide. #pwME #pwLongCovid www.heute.at/s/muti-dirig...

1/x Danke für dieses Stück über täglichen misogynen Kackmist. Dass es @ardenthistorian.bsky.social und @rebekkaendler.bsky.social innerhalb von Stunden gelang, so viele Menschen hinter der Recherche einer klassischen "Karriere" eines sexistischen weißen cis-Mannes zu vereinen, gibt mir Zuversicht.

This is an excellent description of how #MEKills from malnutrition. The Warburg effect accounts for so many presenting symptoms in #VerySevereME. Thanks to David Putrino, Amy Proal and the Cohen Center at Mount Sinai for joining the dots and making them public. www.youtube.com/watch?v=U7TC...

Todd Davenport's #UniteToFight2024 Vortrag gibt es nun auch mit deutschen Untertiteln. @sunsopeningband.bsky.social Herzlichen Dank an Ruth Brannan @flowerkraut.bsky.social für die Übersetzung und @annette121020.bsky.social fürs Korrekturlesen! 🙏

‚Inconvenience’ does not describe the appalling lack of medical care for this patient with severe ME by their NHS Trust. #pwME #pwLC #longcovid #severeME www.bbc.co.uk/news/article...

The words you choose and how you use them matter. We try hard to get it right and our PPIE reps have provided such valuable insight into all of our patient facing and study training materials. No doubt we will get it wrong sometimes but we will always correct ourselves if that is the case.

Repost if BlueSky is now your primary social media site.

‘I was in denial about it’: actor Matt McGorry on having long Covid

I’ve been seeing some classic Monday morning quarterbacking as the necessity of #COVID19 lockdowns are being discussed once again. As usual, we’re seeing a lot of hyperbolic statements and attempts to create conversations around comparative suffering which is always just a 1/

It's only right that my first post here is sharing Scotland's map of named ice gritters. You can follow where they all are in real-time. Some favourites this year: Sir David Attenbrrrrrr Stone Cold Steve Frostin Lord Coldemort You're a blizzard, Harry www.traffic.gov.scot/gritter-trac...

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/

I post a lot of good news about dogs on Twitter but A lot of people asking to also post here now. Struggle to find the time but if I get over 20k followers here I'll find a way to post daily. 🎤 Mic check. Is this thing on?

Hi I'm Ben I have autism and I’m new to #BlueSky. I didn’t want leave X but values and political views left me no choice. I’d like to rebuild my 50k community on here. Can you please help and kindly repost this so I can meet new friends and find old ones? Thank you! 💙

Wow. This essay on Long Covid, by a patient who is a specialist in data visualization, is brilliant and powerful. Hats off the author. Gift link. www.nytimes.com/interactive/...

I wrote an op-ed for the NYT about what reporting on long COVID has meant to me—how I approached it, the impact it had, and how it taught me to be a better journalist. This piece is sort of a manifesto for a journalism grounded in compassion, rigor, and care. www.nytimes.com/2023/12/11/o...

Who wants a black 3M Aura? More would benefit from excellent protection if this respirator was available in black. We've written to the CEO of 3M and provided a template letter for you to do the same. Please repost if you want to make safety stylish. johnsnowproject.org/insights/ope...

Nach 1,5 Jahren Long Covid, etlichen Arztbesuchen und viel Ratlosigkeit habe ich versucht, meinen Zustand und meine Erfahrungen mit Menschen und Ärzten zusammenzufassen Das ganze Video findet Ihr hier: www.youtube.com/watch?v=enTr...

Long Covid folks: What researchers, journalists, experts on Covid and/or Long Covid are already here on BlueSky? If I wanted to follow such, who would you suggest? I’m thinking of, like, a science-y, research-y Covid feed. (Please re-post for more visibility!)