Large study (av age 45) shows people with #LongCovid are 4.48x more likely to have a Major Adverse Cardiovascular Event (stroke, pulmonary embolism, heart failure) & 53% more likely to die. True regardless of age, BMI, vaccination, variant. Risks last 3+ years from infection. 1/

Jaime Seltzer It's ME(Jaime) at #MillionsMissing: "[Imposing Medicaid] work requirements in order to receive assistance is going to make so many people sicker. It's going to make so many people lose their lives. We need to fight against it with everything that we have." https://youtu.be/VGmix8XT14s

"België kan slechts een geloofwaardig zorgmodel voor #LongCOVID e.a. #PAIS uitbouwen door het achterhaalde biopsychosociale kader los te laten en de zorg volledig te baseren op actuele biomedische inzichten." Goed stuk @f-v-w.bsky.social🙏 #LangdurigZieken #MEcvs www.knack.be/nieuws/gezon...

WBUR: 'The scope of long COVID is bigger than we think, Mass. researchers say' “I think Long Covid is a serious national and global problem that demands attention from governments and international bodies" - Dr. Ziyad Al-Aly www.wbur.org/news/2026/06...

“I don’t think I can think of another condition that would be treated this way.” Dr Anna Brooks, Liggins Institute. A powerful opening to Zoe Madden-Smith’s award-winning RE:News documentary on #MECFS

Important #LongCovid finding of auto-antibodies in patients directed to neural tissue, and then, by transferring the antibodies, recapitulated the disease symptoms in mice @cellcellpress.bsky.social @virusesimmunity.bsky.social cell.com/cell/abstrac...

1/ Belangrijk interview in Knack met Carmen Van Looy @notrecoveredbel.bsky.social en immunoloog @johanvawe.bsky.social (KU Leuven). Ze schetsen de realiteit van #LongCovid, de zware impact op patiënten en de dringende nood aan een wetenschappelijk onderbouwd zorgbeleid in België. #LangdurigZieken

Orthostatic Intolerance Testing Made Clear: Tilt Table, Active Stand, and the Passive Stand batemanhornecenter.org/orthostatic_... This blog post discusses orthostatic intolerance, a "hallmark feature" of ME/CFS and Long Covid, and the three tests used for diagnosis. #MEcfs #LongCovid #pots #OI

Background Myalgic encephalomyelitis/chronic fatigue syndrome ( #ME/CFS) is a severe multisystem illness marked by post-exertional malaise (PEM), cognitive dysfunction, autonomic disturbance, and impaired physiological resilience. Historically, the absence of validated biomarkers, heterogeneous

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases. www.dutchnews.nl/2026/05/dutc... #LongCovid #PASC #PostCovid #PostCovid19

ME/CFS and Long COVID research often misses the sickest individuals. Many severe individuals are housebound or bedbound, so research that needs clinic visits can end up studying the people well enough to travel.

"Eén op zeven #langdurigzieken is jonger dan 40. Die groep groeit sneller dan gemiddeld, blijkt uit #RIZIV cijfers. Fréderic kreeg op 36‑jarige leeftijd #LongCovid. Elke inspanning kost hem enorme energie, werken is geen optie meer, hoe graag hij dat ook zou willen." www.hln.be/video/produc...

Join the Thompson Institute/University of Sunshine Coast's crucial study if aged 18-65, healthy OR living with #MECFS, fibromyalgia or fatiguing illnesses. Must be able to travel. 👉 Visit zurl.co/evgAN#MECFSfor more details.

De #langdurigzieken waar niemand over spreekt: De #LongCovid patiënten.⚠️ Ondanks @sciensano.be het aantal zwaar getroffenen schat op 60.000 gevallen in België, en er duidelijke forse toename van het langdurig zieken is sinds de covidpandemie. #Covid19 #NietHersteld

1) 🇬🇧 Good news from the UK: the government is investing 4.75 million pounds in the study "Sequence ME & Long Covid" It will allow the sequencing of 6000 ME/CFS samples previously collected through DecodeME. The project is led by the University of Edinburgh and Action for ME.

'INIM May 2026 Research Seminar Series: Causes of Symptoms and Symptom Persistence in ME/CFS and Long COVID' 'Dr. Anthony Komaroff presents "Causes of Symptoms and Symptom Persistence in ME/CFS and Long COVID' www.youtube.com/watch?v=7TFj...

Steekproef was bij jongeren met psychische ziekten. En dan proberen ze dit door te trekken naar alle #langdurigzieken? Ik hoor weinig oplossingen, enkel geroep. 🇳🇱NL media: '90.000 mensen ernstig beperkt door #LongCovid'. 🇧🇪BE media: 'Forse stijging #burnout sinds 2020' www.hln.be/binnenland/k...

The neoliberal myth "you can all make it if you would just try" is an inherently violent one, psychologically, socially & physically. Instead of hyper-individualism, we need an ethics of care based on a recognition of our shared reality: our vulnerability in this world. 4/4

Long COVID advocates interrupted a recent research conference in Paris. We spoke with the two organizations behind the action that went viral on social media. "We will attack all the projects...that psychologize Long COVID," they said. thesicktimes.org/2026/05/05/l...

That one day a week when you - as a patient with severe #MEcfs or #LongCovid - can briefly leave your home feels increasingly alienated from your own neighborhood over the years. This confrontation further reinforces the sense of loneliness. #MillionsMissing #NotRecovered

#MEAwarenessMonth 🧵 Death from ME haunts me every day. It has been five years since Maeve was admitted to hospital for the second time after she became unable to sit up or chew. Unless you live with ME, and the terrible stigma surrounding it, it is hard to imagine what the illness can do. 1🪡2

Psychiatry has caused a lot of delays and damage in the field of #MECFS. A lot of work needs to be done to undo harm from theories such as patients excessively resting, being afraid to exercise, or perpetuating their illness. Dr Nina Muirhead, interview in The Times (2020)

To everyone in the UK saying that the ill and disabled fake it to get lots of benefits, quit your job lie get all the medical evidence and go for it. You'll discover it's a nightmare and not even the ill and disabled are able to get what they need without years of fighting, some never get it.

A new study suggests potentially helpful medications used by myalgic encephalomyelitis/chronic fatigue syndrome specialists may be underutilized to treat ME/CFS in #PrimaryCare @grachstephanie.bsky.social @mayoclinic.org @mayoclinicgimfl.bsky.social @meactnet.bsky.social doi.org/10.1370/afm....

Hearing the stories of people with #MECFS who took the Decode ME results to their doctors and for the first time were believed is incredibly powerful. Sonya Chowdhury CEO of Action for ME on BBC Lifeline and how they are building on this work to move closer towards treatments.

40.000 leerlingen met #LongCovid in Nederland, maar in België heerst radiostilte. Wegkijken lost niks op terwijl het aantal #langdurigzieken verder stijgt. Onderzoek naar Long Covid en #MEcvs is geen luxe, maar bittere noodzaak.🚨 @vrtnws.be ⬇️ www.aob.nl/actueel/arti...

1/ The worst doctors are those who think they know everything already. But in fact, most doctors know nothing about #dysautonomia and even less about the thousands biomedical findings of #MEcfs & #LongCovid🧵

I really think every article about Long COVID should mention ME/CFS, but it’s an even more jarring omission because the picture is from an ME Action protest. @meactnet.bsky.social This article also does not make it clear that people are continuing to develop Long COVID from reinfection.

"If you get #LongCOVID in the Netherlands, there's really just nothing." Fen has Long Covid and can sit upright 20 minutes a few times a day. She's critical of the treatment options, the shortage of places in the Long Covid expertise centers and the cessation of funding. youtube.com/shorts/hpVDo...

"If you get #LongCOVID in the Netherlands, there's really just nothing." Fen has Long Covid and can sit upright 20 minutes a few times a day. She's critical of the treatment options, the shortage of places in the Long Covid expertise centers and the cessation of funding. youtube.com/shorts/hpVDo...

From the US Dysautonomia in Long COVID is Prevalent and Could Explain the Frequency of Symptoms www.clinmedres.org/content/clin... Screenshot from latest Science for ME weekly update #LongCovid #dysautonomia #POTS

You can try to ignore the truth, but the elephant in the room is only getting bigger and more powerful. The reality of #MEcfs, #LongCOVID, and other #PAIS cannot be dismissed. In the end, scientific truth always triumphs over denial.🙏 #MillionsMissing #NotRecovered

Transferring IgG antibodies from patients with #LongCovid to mice recapitulates many symptoms www.sciencedirect.com/science/arti...

Article: Chronic diseases misdiagnosed as psychosomatic can lead to long term damage This happens to nearly all myalgic encephelomyelitis patients. It’s brutal, but validating and important to see the harm named and studied. #GreatestMEdicalScandal www.cam.ac.uk/research/new...

The crazy Professor Paul Garner, who ignores thousands of biomedical #LongCovid and #MEcfs studies, is also coming to speak. Another dark day for science. #OpinionBasedMedicine

"Ondanks gebrekkig wetenschappelijk bewijs is de vraag naar zuurstoftherapie bij #LongCovid en #MEcvs patiënten groot en de wachtlijsten lang. Het bewijst nog maar eens hoe deze patiënten verloren lopen in onze zorg."⚠️ #HBOT #LangdurigZieken www.knack.be/nieuws/gezon...

"Terwijl Duitsland #MEcvs en #LongCovid erkent als een van de grote gezondheidsuitdagingen van deze eeuw, blijft België vasthouden aan een achterhaald beleid. Patiënten betalen daarvoor een zware prijs." Mijn opiniestuk @knack.be⬇️ #LangdurigZieken #PAIS www.knack.be/opinie/me-cv...

1/ "POTS en #MEcvs zijn de meest voorkomende fenotypes van #LongCOVID die kunnen leiden tot aanzienlijke invaliditeit en functionele beperkingen. De exacte mechanismen van deze aandoeningen, afzonderlijk of in combinatie, worden nog steeds onderzocht."

1) Dr. Danilo Buonsenso in the Lancet Infectious Diseases: "... prevention of infection alone will not be enough to reduce the public health impact of long COVID. Finding a cure for long COVID needs to become a top research and health-care priority."

3 years ago @ahandvanish.bsky.social, @lisamccorkell.bsky.social, @julialmv.bsky.social and I published a review on #LongCovid. Since then it has been downloaded nearly 2 million times and is #4 of >500,000 papers published since by @altmetric.com www.nature.com/articles/s41...

"Ernstig zieke ME/CVS-patiënten liggen uitgeput in een donkere kamer omdat elke zintuiglijke prikkel hen nog zieker maakt." "De Belgische regering straft liever de allerzwaksten in plaats van te luisteren naar hun verzuchtingen." #MEcvs #LongCovid #OnzichtbaarZiek #DWW www.humo.be/meningen/de-...

“Veel patiënten met #MEcvs zijn letterlijk onzichtbaar geworden en kunnen niet meer functioneren in de maatschappij. Sommige kunnen niet meer buitenkomen en liggen 24/7 in bed. Het is belangrijk dat die mensen blijven gezien worden.” #DWW #OnzichtbaarZiek

Geld voor longcovidonderzoek raakt op, wanhoop bij patiënten groeit Goed artikel van Sander Zurhake #NOS #PaisProtest #NietHersteld nos.nl/artikel/2592...

After some hardcore protesting in Germany!! Well done‼️‼️🇩🇪🇩🇪 "The coalition plans to invest 500 million euros by 2036 in the fight against #LongCovid and chronic fatigue syndrome (#MECFS)." www.spiegel.de/politik/karl...

Dit hebben we ook nodig in België! En dan niet alleen voor long covid maar ook voor ME/cvs, POTS, etc. Want de dingen waar covid toe kan leiden zijn niet nieuw. 1/ @groenbe.bsky.social @bartdhondt.bsky.social @conner-rousseau.bsky.social @vooruit-nu.bsky.social www.volkskrant.nl/wetenschap/s...

"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...

‘Frank Vandenbroucke had onderzoek naar #MEcvs beloofd. Nu wordt onze uitkering afgenomen.’ ‘De reden waarom mensen ziek worden, doet niet ter zake, een zondebok voor de begrotingstekorten vinden is het enige wat telt.’ #LangdurigZiek #ChronischZiek www.humo.be/meningen/lez...

‘Het idee dat #langdurigzieken een “gat in de begroting” zijn, is niet alleen onmenselijk, maar economisch absurd.’ ‘Afgaand op de manier waarop het debat vandaag gevoerd wordt zullen vooral patiënten met verwaarloosde aandoeningen (zoals #MEcvs) de prijs betalen. www.knack.be/nieuws/gezon...

Volgens een Duits rapport over de kosten van #mecfs en #longcovid samen bedragen deze jaarlijks 60 miljard. Dat is meer dan de ergste natuurramp in Duitsland sinds WW2 De grafiek toont de enorme schade sinds Covid in 2022 "voorbij" werd verklaard. mecfs-research.org/costreport-l...

Goed nieuws! De Nederlandse ondertiteling is toegevoegd aan 't interview van @davetuller1.bsky.social met NOS-journalist @zurhake.bsky.social over de dwang en drang van behandelingen met CGT/GET bij kinderen met ME/PAIZ. #kidswithME Veel kijkplezier, en ook graag delen!! youtu.be/WFxTpuGuiI4?...