People would be so shocked if they knew out of the 4.5 % unemployment so many of them cannot work. It makes mutual obligations and the low rate even crueller.

We help a lady dying of cancer. She's still on jobseeker and yes, she has to do mutual obligations. For $400 a week.

Ghost Daughter My mother, she held me when I was a babe. When I was wee and I couldn't breathe, she looked after me. She was there to hold me, there to enfold me, there to stand by me and comfort me. 1/4 #MECFS #Poetry

If you just tax wealth that does nothing except lower wealth which still leaves people at the bottom. You must address both

I’m going to explain this because it seems I didn’t do a good job and some people are misunderstanding. The way we address inequality and poverty is through redistribution. You lift up the poor while lowering wealth. So the gap in the middle becomes smaller.

Learning to live with a wheelchair is about realizing that bodies take space. Physically, accessibility, independence. And learning to live with ME/CFS is a lot about realizing that bodies can also take time. Recovery, fatigue, pain. #wheelchair #me #cfs #disability

The Labor government keeps banging on about social cohesion but on of the things that damage it the most is inequality between the rich and the poor. In fact the wider the gap the less social cohesion

Proud day eh @markbutlermp.bsky.social, @albomp.bsky.social? Could have taxed gas companies, decided instead to hit people with Down Syndrome. www.theguardian.com/australia-ne...

I love this! So much insight and actionable advice!

Kafkaesque NHS appt today - Arrive at hospital - no blue badge ♿️ parking free - no other parking free (empty bays) either - blue badge holders parking elsewhere getting parking ticket fines - we ring the dept to say we will be late, I’m deafblind so can’t be dropped off alone Continued

The contrast between the number of media requests I got when rich people on a cruise were facing a deadly, but contained outbreak versus now that some of the poorest people in the world are facing a deadly and devastating epidemic is just so so stark and it just really annoys the hell out of me.

neurodiversity incudes personality disorders, trauma, schizophrenia, bipolar, dementia, epilepsy, migraines, down syndrome, and more. it includes anyone with a mental, emotional, or neurological difference.

My book - The Women in Whites: A History of Women's Cricket in England - is coming out on 1 June 🎉 I'm holding a virtual launch at 7pm BST on Wednesday 3 June to celebrate. I'll be chatting about the book & happy to answer questions about it too! For the Teams link, please reply below or DM me 😊

I speak to many folks everyday and when we think of long COVID we aren’t considering that the lady down the road who has had a pulmonary embolism or heart or kidney or autoimmune problem might have long COVID. That’s because there is no health messaging on airborne post infection risks.

This is actually true, imo. And also, COVID reminded people of their own vulnerability, the porosity of their own skins and bodies, their mortality and they HATED it. They still hate it. Thats why they scream about masks, about COVID and any reminder of that vulnerability.

Thanks to @amyremeikis.bsky.social for sharing our statement about the Albanese government failing people on welfare yet again. This budget will be remembered as the cruellest act yet from the Albanese government. live.thepoint.com.au/2026/05/the-...

I wasn’t planning to write anything for #MEAwarenessDay this year but I’m at my Mom’s & she pulled out a bunch of old photos for me & I’m just so angry for this little one. She deserved better than to have her fate sealed by misogyny & ableism before she reached 8 years old. #GreatestMEdicalScandal

In the past year or so, I've started writing poetry about my experience with #MECFS. In honour of ME awareness month, I've been sharing some of what I've written in the hope it might resonate with other #PwME. #MEAwarenessDay #MillionsMissing #FrailAndFurious #WorldMEday #UnitedForME #MEAction

I second this. So many incredibly powerful artworks & poetry in this online exhibition that launched today. I especially urge anyone who doesn’t know much or anything about ME to check it out. If you have ME, take care. 🫶🏼 (You’ll also see a familiar name under the last artwork 👀 ) #MEkills #pwME

Polycystic ovary syndrome (PCOS) has been renamed polyendocrine metabolic ovarian syndrome (PMOS), a move which health experts say will lead to faster diagnosis and better treatment for women of all ages.

Interminable disease There's no palliative care for an interminable disease. How do I grieve when the loved one I've lost is me? I'd like a retirement party and some golden years to live chronic illness free. #FrailAndFurious #MillionsMissing #MeCfs

I'm really fucking disappointed about Farrer. I grew up there. I know many of my friends and relatives will have voted ONP. But I'm also disappointed to see all the country-bashing on here. Perhaps not giving a fuck about rural issues is part of the problem. #AusPol

#pwME if you want some hope, have a look at this hashtag bsky.app/hashtag/Lieg.... SO MANY PEOPLE protesting for us!!

This is brilliant. Though health warning: your neck might hurt from all the nodding. #AusPol

Hey so if you’re a man with an XX partner or child that you care about, I need you to read this thread because shit is not going to change unless cis men start not being okay with this stuff.

I know we're suffering financial ruin from ME/LC, but if you've any change down the back of the sofa...

... "So tell us about yourself....". Fuuuck!!! Public mental health care in Australia & Victoria (where I reside), needs more funding & much better systems implemented, to improve the welfare, care, diagnosis, treatment and outcomes for severely mentally ill people, whose ability to advocate ...7/

... I've been ‘treated’ by 12+ different Psychiatrist's, within the same mental health system/location, often with varying opinions on my diagnosis/es, treatment, medication etc. This. Is. Unacceptable. Harmful. &. Fucked! Inconsistent, unpredictable, differing opinions and an endless... 4/

Did you know, in Australia, if you've clinical/severe mental illness/es, can't afford Private Health Ins. & need regular Psychiatric treatment, like me (Not Psychologist, that's another story…) you only get an appointment with a fully qualified Psychiatrist once every ... 1/

@deakinuniversity.bsky.social media release about our recent study: The ABC Elite Athletes in Australian Women’s Sport Survey led by Deakin University and ABC polled 152 current and recently retired athletes across 47 sports. Read more here: www.deakin.edu.au/about-deakin...

Incredibly excited to announce that our proposal to create Emergency Department guidance for #MECFS & #LongCOVID has received a generous grant from the Whittemore Peterson Institute! I'm working with longtime colleague @grachstephanie.bsky.social, plus Dhairya Jarsania and Kimberly Rogers at Mayo.

All Australians should be angry with the government. First they allowed private businesses to steal funding from disabled people. Now the government is directly ripping funding away from disabled people. Shameful. Shameless. #NDIS

I know these are super fun, but this is an absolute fucking nightmare for visually impaired screen readers. Just something to think about! 🥰

"Increase welfare payments. Invest in public education and healthcare. Build public homes. Abolish the CGT discount."

How does it feel to be an Iranian right now? 🧵

Reporter @octoberk.bsky.social is working with The Sick Times on an investigation about the experience of #LongCOVID in prison, which will also highlight how people outside of prisons can advocate on this issue.

Yup theconversation.com/the-rbas-pol...

If the only way service providers can avoid claims of neglect is to completely withdraw all care when they aren’t funded to meet the entire care needs of clients, hospitalisation will only increase

About the combo of Frew and Van Der Berg, Horjus said it's not something they've really practiced. Meanwhile, Honey said GK/GD combo of Weston/Eddy was planned. Methinks Obst got out coached! #SSN2026 #VIXvTHU

more than 70% of incarcerated children and young people in NSW are presumptively innocent (locked up “on remand”). More than half of all incarcerated children, on any given night, in every jurisdiction, are Aboriginal and Torres Strait Islander children. www.theguardian.com/australia-ne...

If disabled people using the #NDIS is "undermining" it (Albo), are we not supposed to use it? Has it been designed to be un-useable? Was the intention of it to give disabled people a hard time? As a participant, it sure feels this way most of the time, especially now.

Fascist policy www.abc.net.au/news/2026-04...

Octavia E. Butler, 1998:

TRAILER: Buried Alive with M.E. I’ve spent the last months making a film for M.E. Kills, an online exhibition by A Quiet Storm. People with ME die every week. Many more are left to rot in dark rooms without care, disbelieved and dismissed. It’s a living death. #pwme #millionsmissing #severeME 1/

High tide #kidlit #kidlitart

It took everything I had to apply for the DSP 12 years ago- physically, financially, but most of all emotionally. I can't cook, clean, do dishes, do laundry, wash my hair etc but I haven't applied for the NDIS because I cannot emotionally cope with the bureaucracy.

"We need to stop expecting disabled people to have endless resilience in the face of discrimination and bureaucracy. We need something akin to a Universal Basic Income (UBI) to reduce bureaucracy and to ensure the financial safety of people who cannot work."

Thinking about the time I did “brain retraining” for ME (ie gaslighting yourself into thinking you’re healthy) & I was making myself hike in the woods but had to spend most of the time lying on the ground & some guy tiptoed up to me terrified he had found a dead body & then both of us screamed 🫠

People want to use AI to reduce the amount they have to care about disabled people, not to actually improve access. That’s the bad thing here.

I want to see the modelling for cost benefit analysis. How many people will lose their homes and end up on DSP to access NDIS supports. What the long term cost will be to the system if people have to run down assets before accessing ndis supports