Ghost Daughter My mother, she held me when I was a babe. When I was wee and I couldn't breathe, she looked after me. She was there to hold me, there to enfold me, there to stand by me and comfort me. 1/4 #MECFS #Poetry

Goals.

PSA for authors: gen-AI kills your "voice". Gen-AI works using a probability model (which word is most *likely* to come next), drawing on a database of other writers' work. I know a lot of editors, and what they're talking about right now is the manuscripts they're seeing sounding the same

I would pay extra to get a cologne and perfume free uber. Must have been a previous passenger, as the smell is on my top where the seat belt would have been. Damn sniffer dog nose.

Australians with Down syndrome among those to suffer most from proposed NDIS cuts government analysis says www.theguardian.com/australia-ne...

My daughter is obsessed with three books and the interesting thing is they’re all by Margaret Wise Brown, but we didn’t force it at all. Those are just the books she responded to most, and now wants to hear over and over again: Goodnight Moon, The Runaway Bunny, and Big Red Barn

Day is done, but love unfailing Dwells ever here; Shadows fall, but hope prevailing, Calms ev'ry fear. Loving Father, none forsaking, Take our hearts, of love's own making, Watch our sleeping, guard our waking, Be always near.

Let's face it, all books are colouring books. We writers provide an outline and the readers fill it in with their imagination.

PS. Pauline's plane's callsign is VH-AU7 and we have a network of trackers, including my ham radio mates, so even if Pauline's (it's Gina Rhinehart's plane and she leases it from the manufacturer) plane is blocked by say, the flightaware or flightradar 24 web apps, we're tracking it ...

11 brave Australians trying to bring urgent aid to Gaza have just been illegally intercepted in international waters by the Israeli Defence Force. Including Melburnians Violet, Anny, Bianca, Neve and Gemma. Call your Federal MPs now and demand their release: actionnetwork.org/letters/inte...

Thought I’d share this photo I took way back in 2008 in Florida. If the metadata is right, I shot this from St. Pete Pier looking east over Tampa Bay as the sun rose. #sunrise #feedcleanser

The Pirates of the Mediterranean Sea have kidnapped Aboriginal activist Sam Woripa Watson on open waters, along with 100s of other humanitarians. Free the flotilla members. Free Palestine www.blackwitness.com/p/we-have-a-...

(this is my Shavuot poem this year So much Torah here.) Snail By Langston Hughes Little snail, Dreaming you go. Weather and rose Is all you know. Weather and rose Is all you see, Drinking The dewdrop’s Mystery.

4 key things about the new £4.7m ME/CFS DNA study DNA uses 4 chemical letters — A, T, G and C — to encode the instructions to build and run a human. The genome contains 3 billion of these letters. 1️⃣ This study uses full genome sequencing to read all of them, while DecodeME…

Zohranist Mamdanism may not be your cup of tea but it's hard to argue he's not doing stuff. www.theguardian.com/commentisfre...

Tonight I learned about the Heavy Metal Tooth Fairy Project www.heavymetaltoothfairy.com

The government limited access to public data that would tell researchers if the water is poisoning kids

But here’s where it’s really fucked up: “Dr Stokes said access to data on heavy metals such as uranium and lead in water has been limited”

Last week some of the wealthiest people in the country had tantrums because there’s small changes being made to the tax system. (Not enough in my opinion) while we have disabled people being thrown off the only support they have. While charities are running out of food for people.

Done so much reading today for the course I’m doing and this quote stood out

this is your regular reminder that some meds/supplements can make hormonal birth control less effective (increasing the risk for unplanned pregnancies) - antiseizure meds (may also be used for migraines, MH stuff, etc) - certain antibiotics - some HIV meds - St John's Wort #NEISvoid

"We have 800 languages. We are all different: Central, Western, Gulf, the Highlands. Our ways of living are also slightly different. But when you're playing netball, people become friends" www.abc.net.au/pacific/veit...

The Joy Luck Club by Amy Tan The Wind Knows My Name by Isabel Allende Tom Lake by Ann Patchett

I've been reporting on local communities opposing massive new data centres. An update on one of the ones I covered. www.theguardian.com/technology/2...

This is actually a great meme because research shows the greater distance between the rich and poor the less social cohesion their is. It’s why we should be taxing the wealthy and lifting up the poor to close the gap a little bit

And if you're a journo getting to interview Labor pollies & you don't know what NAIRU is (how coarse the concept is, how poor the ability to estimate it is, & yet influential & consequential it is), here's a good explainer (no shame in learning)

We can send people to the moon but we can't even make a tv show starring Lauren Graham and Connie Britton?

I wasn’t planning to write anything for #MEAwarenessDay this year but I’m at my Mom’s & she pulled out a bunch of old photos for me & I’m just so angry for this little one. She deserved better than to have her fate sealed by misogyny & ableism before she reached 8 years old. #GreatestMEdicalScandal

In the past year or so, I've started writing poetry about my experience with #MECFS. In honour of ME awareness month, I've been sharing some of what I've written in the hope it might resonate with other #PwME. #MEAwarenessDay #MillionsMissing #FrailAndFurious #WorldMEday #UnitedForME #MEAction

Poverty doesn’t just impact health.It signs death certificates.

I guess the media's budget 'winners' and 'losers' narratives resonate for people? But the wholesale normalisation of individualism is just... 🤯

In the last 5 years I’ve watched my community members priced out of rentals I’ve known 2 people suicide who were being evicted. I’ve watched people who never had to line up for food banks lining up. I’ve seen my local park be filled with tents.

Interminable disease There's no palliative care for an interminable disease. How do I grieve when the loved one I've lost is me? I'd like a retirement party and some golden years to live chronic illness free. #FrailAndFurious #MillionsMissing #MeCfs

Does anyone in nz have a phone they don't want. My neighbors one broke and she's poor like I am, would really like to procure her one if possible Must be unlocked

"The rise of artificial intelligence is the next industrial revolution." *boos from the crowd of graduating students* "May I finish? ... Only a few years ago AI was not a factor in our lives." *wild cheers and applause from crowd of graduating students*

I'm lying about my health I'm lying I'm lying I'm lying about my health I'm ok I'm fine I'm not too bad I'm the same I'm fucking terrible and it's driving me insane 1/3 #FrailAndFurious

Living in a rural area and working with populations facing socioeconomic disadvantage you’d never witness in the city, it doesn’t feel hard to understand why people would outright refuse to vote for either Labor or Liberals

Are there any writers here that have used the ACF (Australian Cultural Fund) platform, as an individual? How does it compare to other crowdfund platforms? Is it more productive than arts grant applications?

Patient I spent so much time being patient Waiting Doing the right thing Doing what I was told Researching Following the research Trying everything Pressing pause on my emotions Waiting for the space to deal with them And twenty years later, I am so sick And I am so angry. #FrailAndFurious

Super fun interactive tool by @vicnaum allows you to see which cities are "latitude buddies" with your city. Did you know that Buenos Aires and Adelaide are latitude buddies? Or Los Angeles and Teheran? Have a play here: buff.ly/FATl1Mi

Last week my godmother brought me flowers. Image is part of my ongoing self-documentary series ‘Enduring: Life with Severe ME/CFS’.

The author sent me a copy, and it's really something to behold in person.

This poem speaks to the immense losses and grief of ME and Long COVID, that all but snuff out last embers of dreams. And to dreams still faintly burning. #MECFS #LongCovid #pwME #poetry #disabledpoet #millionsmissing #bedbound

The first day of the #MECFS Research Foundation 2026 conference. A couple of things that stood out: overwhelming amount of good and thorough biomedical research, extremely good conversations in the breaks, no psychologisation and quite a few people masking. Simply great.

Imagining but never doing Dreaming but never experiencing Longing but never feeling Seeing but never touching Believing but never receiving Envisioning but never achieving Driven but never accomplishing ⠀⠀⠀⠀Loving but always being alone. The experience of living with ME/CFS. —————— 💙 Whitney

Australians who fight for IDF are free to enter the country with almost no scrutiny after possibly committing war crimes, but some women who married ISIS members and travelled to Syria were arrested once the plane touches down. We asked experts why. www.ettemedia.com/women-isis-c...

These kids are so cute it makes me 😭

Here's the thing, friends. Antisemitism is rising. Intensely. Frighteningly. In many areas of society where it hasn't had nearly as prominent a footprint for a very long time. And Fighting antisemitism effectively means being in broad coalition with other marginalized groups, not going solo. ->

Hey Covid cautious and movie loving friends! Someone just shared this resource in a group I’m in - a site that lists the least-sold showings at AMC theaters near your zip code. Great way to find a mostly empty theater to catch a film while staying as safe as possible! walzr.com/empty-screen...

there needs to be a proper investigation into how this ever got published and a public retraction, i cant believe such a terrible and intentionally misleading article got approved