For my fellow very severely affected members of #NEISvoid, I appreciated seeing this today; maybe you will too.

Excited to reveal the cover for my poetry book, Wildness Unafraid! Tentatively set to be released this spring. #poetry #naturepoetry #ecopoetry Artwork by @cranesuperior

Long Covid Is Real — And It’s Changing an Entire Generation Hundreds of thousands of kids in America are struggling with an illness that many doctors and schools refuse to recognize.e Feature: www.rollingstone.com/culture/cult...

A poem for a season that better matches my mood and life. #LongCovid #mecfs #pwme

More awards! Congratulations to our @genrepunkmag.bsky.social awards nominees! @haleydirenzo.bsky.social @jameslilliefors.bsky.social @gretchenfilart.bsky.social Allison Zaczynski @brokenwingpoet.bsky.social Arti Jain Chelsea Allen Mac Carey Luis Lopez Galan

Today is Severe ME Day. A poem imagining a world free of the ableism that compounds the trauma of this dreaded illness. #SevereMEday #pwME #MECFS #SevereME #ableism #bedbound

A poem about the simplicity of life that I miss. #longcovid #mecfs #severeme #bedbound #millionsmissing #grief #covidisnotover #loss #chronicillness #chronicillnesscommunity #poetry #poetrycommunity

The genocide and forced starvation in Gaza is indefensible. It’s ethnic cleansing in plain view. #freepalestine #endthegenocide @bobbylefebre.bsky.social

Long COVID anniversary on our anniversary. A day of grief with shadows of joy. The impossible lives disabled people are expected to live. #LongCOVID #MECFS #severeME #beebound #poetry #grief

New poem in Bed Zine. The loss of meaningful connection to nature is amongst the cruelest parts of this illness. #LongCovid #MECFS #Bedbound #SevereME

I’m excited to announce my debut poetry collection, “Wildness Unafraid,” has been accepted for publication! I’ll post more details as the release date gets closer. #poetry #ecopoetry #poetrycommunity #ecojustice

On this M.E. Awareness Day, too tired to type more than these words. #mecfs #pwme #millionsmissing #meawarenessday #mecfsawareness

A new poem in @hootreview about the constant, unwinding grief and loss of being indefinitely ill during a pandemic so few still observe. #LongCovid #chronicillness #grief #mecfs #pwme

A poem about surviving this torturous illness — by protecting dreams, finding our voice, and maintaining whatever connection we can to the outer world. #LongCovid #pwME #MECFS #SevereME #disability #poem #poetry

The air we’re forced to share, poisoned by privilege. #LongCovid #MECFS #pwME #SevereME #ableism #millionsmissing #Covidisntover

"The Severe....recognize the depths of the pit of horror that the Very Severe may find themselves stuck in...yet by leaning over to lend a hand, we risk falling further into the quicksand ourselves." Vital op-ed by Sam Pearce in @thesicktimes.bsky.social thesicktimes.org/2025/04/04/a...

A poem appearing in the Tiger Moth Review, about a heron I came to know before becoming bedbound, about our tenuous relationship to disability and the more than human world. #poetry #naturepoetry #ecopoetry #disability #ecojustice #heron

The Covid pandemic isn't over. Almost 1,000 people died from Covid last week in the US alone. Given the lack of testing and surveillance, the real number might be much higher. And an estimated 400 millions have or had Long Covid worldwide

This is what eugenics looks like. Literally banning disabled people from safely existing.

As Israel and the US break the ceasefire yet again, a poem of mine that appeared in “Songs of Revolution.” The poem is sadly as relevant now as when it was written - at the beginning of this endless genocide. #freepalestine #armsembargo #landback #endapartheid #permanentceasefirenow

On Long COVID Awareness Day, a poem reflecting on the limits of awareness alone when not coupled with care. #LongCovid #LongCovidAwarenessDay #pwME #MECFS #ableism #disability

You know that feeling when you desperately want someone to get it, but they just…don’t? #Disability #LongCovid #MECFS

As our government scrubs #LongCOVID from collective memory, a poem about what is happening to us. #pwME #MECFS #ableism #disabilityjustice #millionsmissing #poetry #poem #pandemic

A mourning poem for the 5 year anniversary. For all the avoidable deaths and the countless lives that, like mine, avoidably, were made to disappear in the dark. #LongCovid #MECFS #pwME #SevereME #pandemic #ableism #eugenics #CDCkills

Long COVID Awareness Month. Year 5 of the pandemic. A poem about the casual eugenics that, with each passing day, become more and more socially acceptable. #LongCovid #millionsmissing #MECFS #pwME #disabilityjustice #ableism #eugenics #nothingaboutuswithoutus

NEW: Millions will observe half a decade of #LongCOVID this year as the ongoing pandemic turns five. For @thesicktimes.bsky.social, I wrote about the courage of millions of pwLC who have led the way in the face of so much willful indifference, cruelty, and denial. thesicktimes.org/2025/03/07/h...

One of those days. A poem recently published in Serotonin Press. #LongCOVID #MECFS #pwME #PEM #poetry #Bedbound #grief #LongCOVIDAwareness

I wonder how many people have ever experienced their brain physically running out of energy making it so they cannot use their mind and have to lie still, unthinking, unfeeling - merely existing in a body.  This I believe is a torture no one but #MECFS patients understand.

A poem in the latest issue of Kaleidoscope, contemplating the way this illness forever changes you. #LongCovid #MECFS #pwME #poetry #chronicillness

ME, whether acquired after COVID or not, is about watching - with perfect discipline and minimal emotion - your life drift away in slow motion.

Activism that ignores disabled people isn’t activism—it’s exclusion. If your movement doesn’t account for accessibility, survival needs, and systemic barriers, it’s leaving people behind. Disability justice is and must be non-negotiable. #DisabilityJustice #AccessIsLove #NothingAboutUsWithoutUs

A poem about how certain illnesses are viewed. About the pain of watching as people see us bedbound yet refuse to see the illness that renders us in this state to begin with. #LongCovid #pwME #MECFS #Ableism #DisabilityJustice #MillionsMissing

NIH recently found 1 in 22 ppl who’d had Covid developed ME/CFS. The “mild” form of that disease, as @julialmv.bsky.social’s graph shows, means losing capacity to do 50% of your daily activities. What would you give up? Friends? Time w/your kids? Could you cut work hours in half w/o losing yr job?

Just shows the enormity of this illness, and the chasm between what’s needed for treatment and the crumbs we’ve been given.

Another crash within a crash. A poem to try see the way through. #LongCovid #pwME #MECFS #ChronicIllness #poetry #bedbound #PEM #millionsmissing

A poem on #ableism and how the left abandoned disabled people w/Long COVID. #LongCovid #pwME #MECFS #ableismistrash #isolation #grief #poetry

A bedbound poem on isolation and our frayed connection to the outer world that reminds us — we will always belong. #LongCovid #MECFS #pwME #chronicillness #poem #poetry

I’m so tired of disabled people being left behind in almost every way. In education, in economics, in diversity, in equity, I could go on. With things shifting and society uprising, disabled people are usually the last to be thought of. I can’t tell you how traumatizing it is to be abandoned.

A poem for the #millionsmissing that have to live with the living death disease of #MECFS and #LongCovid. Even as you’ve gone missing from your own life, you still belong. #chronicillness #pwME

#MECFS constant (crash) companion. #LongCovid #chronicillness #PEM

Sunrise from the desert a few weeks ago. Now weeks into the latest #LongCovid crash, I long to be back in the silent haven of the desert.

Buried In the contrived need to always be doing they plant the seed of our undoing.