Let This Radicalize You - a book I needed in this moment. I've just started but can't stop thinking about it "When you feel trapped by an oppressive inevitability, you never stop trying to escape, because every jailbreak begins with a decision to reject the inevitable" - @mskellymhayes.bsky.social

We're seeing some confusion about this, so let's talk about it. Home Depot has been complicit as ICE snatches day laborers out of parking lots. At minimum Home Depot is turning a blind eye, and there have also been rumors they may be more actively complicit. Organizers including #weaintbuyingit 🧵

UK: Transcript for 1-hour Myalgic Encephalomyelitis debate in Westminster Hall (UK Parliament) on Wednesday 19 November 2025 led by @tessamunt.bsky.social hansard.parliament.uk/commons/2025... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

We always see a surge of infectious disease, including COVID, RSV, etc etc around Thanksgiving and Christmas. Unless you want to gift your fam with a few weeks sick this year, mask up as you travel!

My wife took a photo of me, & now I’m not exactly the most handsome guy, but I look a bit worse in this pic, thanks babe 😏. There’s a heating pad tied around my feet to help me try to not focus on the terrible foot pain. This is me between work shifts. Please check out my post.

This is one of the best explanations I've seen of the impossible math that I do everyday and why my social life is small #LongCOVID #MECFS

The Sick Times @thesicktimes.org : Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise thesicktimes.org/2025/11/21/l... Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID. #LongCovid #PEM

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 17 - 23. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...

Call to action: Congress has extended Telehealth until January 31,2026. This is NOT a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Call now using our call script: www.meaction.net/telehealth #Telehealth #PwME #MECFS #LongCovid

Do you have a family caregiver in your life? Want to tell them thanks and show your appreciation? We created some images you are welcome to save and share throughout the year with the caregivers in your life! It can be for your caregiver or for a friend who is caregiving. #FamilyCaregiver #pwME

Available to buy now: One Red Leaf at a Time Greetings Cards. All proceeds go to our #MEcfs research @uoe-igc.bsky.social. Thank you @drjogreer.bsky.social & Dr Clare Raynor! theredtreeandme.substack.com/p/one-red-le... #oneredleafatatime

Sssssooooo... yeah. (Wow!) 😳🤗

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 10 - 16. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...

Join our caregiver call this Saturday Nov 15th at 1:30 PM – 3:30 PM EST. We welcome caregivers of people with chronic diseases such as myalgic encephalomyelitis (ME), Long COVID, MCAS, etc. to our calls as we connect with and support each other! www.meaction.net/event-detail... #caregiver

💜 Protecting others is kindness.💜 Kindness isn’t abstract. It’s wearing an N95 on the train. It’s staying home when sick. It’s sending a message to the friend who’s still housebound with Long Covid. #WorldKindnessDay #LongCovid #MaskUp 😷

I am celebrating my birthday by making a donation to @meactnet.bsky.social to keep the struggle going in these difficult times. Here’s how to join me in supporting this essential work. www.meaction.net/lantern-in-t...

Please help us wish @wilhelminaj.bsky.social a very happy birthday! Wilhelmina is a force in our community. We would not be where we are without her. We are truly honored and touched by her gift which will be matched! #pwME

Have you wondered how you can help a caregiver in your life? If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank? Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support... #Caregiver

For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness. This week’s focus: the Employee Retirement Income Security Act (ERISA). Download our one-pager here: solvecfs.org/wp-content/u... #UnitedForME

#NEISvoid PSA TIL patients and caregivers can get free access to Elsevier papers! Email your request to [email protected] and include confirmation you are a patient. Turnaround is 48 hours. #LongCovid #MECFS

Join us Tues, Nov 11 | 1 PM MST for BHC’s Online Support Group: Denial, Resistance & Gaslighting — Coping with Others’ Unhelpful Reactions Let’s talk about communication, boundaries & advocacy in chronic illness. 🔗 Learn more: https://bit.ly/4npZ4Ud #MECFS #LongCOVID #IACCs

Sign up for these 2 workshops for #caregivers. 1. Nov. 16 @ 3 pm ET: 10 Lessons from 20 Years of Caregiving — Kim Moya ow.ly/gtAP50XlbZb 2. Nov. 22 @ 3 pm ET: Chronic Illness Caregiving for Youth, Teen, & Adult Children — Denise Lopez-Majano ow.ly/3IcV50XlbZh #pwME #ChronicIllness

Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Nov. 3 - 9. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...

If you didn’t watch the third and last day of the #ICanCME2025 Conference for ME/CFS, here’s the live tweeting stream by @spichaksimon.bsky.social. Thanks, Simon, and thanks to @icancmeresearch.bsky.social for such a brilliant conference.

Watch now! The recording is available for our 2025 Annual Meeting featuring MIT Research Scientist, Beth Pollack. www.youtube.com/watch?v=15WR... #massmecfs #mecfsreseach #longcovidreseach #chronicillnessresearch #invisibleillnessresearch

"The average voter believes a SNAP recipient gets $20/day, more than 3 times the actual amount of $6."

There is something deeply broken about an economy that creates trillionaires while people get buried under the cost of living and 42 million go hungry. The ultra-rich should realize that my Billionaires Income Tax, aimed at ensuring they pay their fair share, represents the moderate path forward.

10) The interview can be rewatched here:

9) Prof. Hughes wrote a new book about this called 'Psychology’s Quiet Conservatism' which can be found here: link.springer.com/bo... You can support David Tuller's work (only 1 day left to donate for his fundraiser) using this link: crowdfund.berkeley.e...

This is a very deft thread. A concise precis of our conversation on conservatism, capitalism, and disability Thank you @mecfsskeptic.bsky.social #MECFS #LongCovid @davetuller1.bsky.social

This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground. Remember, HOPE is a sweet rebellion. #MEAction is a lantern in the darkness. We can only continue our work with your support. www.meaction.net/lantern-in-t...

SNAP funding is held up because of Trump’s illegal delays. President Trump and his Administration have decided that it is okay to let children, families, and your neighbors starve — they need to put a stop to this cruelty. (1/2)

I’m calling on Republicans to return and work to lower health care costs for millions of Americans like Sue. I’m fighting to lower costs, and I want to hear from you. If your health care premiums are expected to rise, click the link below and fill out the form. (2/2)

I recently spoke with Sue, whose premium will more than double thanks to Republicans’ inaction to extend the Affordable Care Act tax credits. As a kidney donor, she can’t risk losing coverage. Her story is heartbreaking — and preventable. (1/2)

It could be great if some people with ME/CFS in Ireland could raise awareness by responding to this journalist request #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

2nd donation ✅ David Tuller DrPH has shown he has a: -good skill set for this type of work -good knowledge base from following the field closely for many years -an appetite as it can be very draining Proponents of exercise/psychologicalisation/etc are still around #MEcfs #LongCovid #CFS #PwME

November is National Family Caregiver Appreciation Month. #MEAction is bringing you two powerful webinars with Kim Moy and Denise Lopez-Majano to honor and support caregivers in our community. Caregiver Wisdom and #MEAction will be sharing more resources throughout the month as well! #caregiver

Thank you to all the caregivers. 💙 Depending on where we live, social and medical supports for PwME can be hard to get, especially for those who are homebound or bedbound. Some live in complete isolation. The care given to PwME is life-changing. #disability #healthcare #MillionsMissing #MECFS

Hi @meactnet.bsky.social I noticed that your Bluesky account requires login to see these posts, or even to see the account profile. Is that intentional? I thought I might share links to your posts outside of Bluesky but I won't do that if this is meant to be a private account. Thanks!

The immigration system is a civil system, not a criminal one. But this administration isn’t treating it that way, and they’re militarizing our communities and terrorizing people of all statuses in the process.

I find it deeply meaningful every single time I see someone using what they have to support others. I really do. We don't all have $1 million but we can give something by thinking creatively.

"Why don't people support welfare programs?" Racism. More specifically, anti-Blackness. White folks asked about who welfare serves overestimate the number of Black people on welfare. Not only that, but just the mere THOUGHT of who welfare supports led less white people to support it. #blacksky

Here’s a way to help ME/CFS/LC patients while resisting the Trump administration’s attack on academic freedom. Remember that in March, Columbia temporarily had its funding cut by the government? Ian Lipkin’s ME/CFS/LC lab still needs support. (cont.) joinus.cuimc.columbia.edu/participants...

Our latest News in Brief post (in 2 parts this week) has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Oct 27 - Nov 2. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...

Don't let the grim reaper steal your health insurance! CALL your Congress Member and tell them to fight back against Medicaid cuts + ACA Premium increases. Congress is tackling these very issues during the govt shut-down - they need to hear from YOU! See our call script 👇.

They say you don't know what you've got til it's gone. If you don't want to envision a future that doesn't #SaveMedicaid and the #ACA, join us in contacting your Congressperson. Tell them only they can save American Healthcare! @meactnet.bsky.social

Today is the day after Halloween & this pumpkin is not scary ... Not like Medicaid cuts are scary for millions of Americans - they're life and death. #savemedicaid #aca @meactnet.bsky.social

This is Storm and she never gets any pets.

🌟Triple Giving November is back! From November 1 to December 2, all gifts to OMF will be tripled, up to $500,000, thanks to generous matching donors. 👉 Triple your gift today and learn about other ways to support OMF: ow.ly/6RrM50XlkLk. #pwME #MECFS #pwLC #LongCOVID

November is National Family Caregivers Month. #MEAction is bringing you 2 powerful webinars! We will also be sharing social posts & resources focusing on caregiving. Webinar 1: Nov. 16 at 3 pm ET ow.ly/aN5G50XlbZc Webinar 2: Nov. 22 at 3 pm ET ow.ly/JZis50XlbZg #Caregiver #PwME #MECFS