#MEAction is asking you to take action to save telehealth NOW! You can call or email your member of Congress. To make this action easier, we have drafted up a sample script you can use: www.meactions.org/telehealth #Telehealth #PwME #LongCovid #MECFS #Congress #Disability

Need a little distraction? Enjoy learning about a new book? Join us for a Q&A with author and #MEAction volunteer Brian Buckbee TOMORROW - October 1st at 3 pm ET! Register here: www.meaction.net/event-detail... #pwME #Book #author #disability #chronicIllness #InvisibleIllness

It's all being handled by an LA cleantech company called @havenenergy.bsky.social. Haven deals with the paperwork, the permitting, the applications, etc. As the homeowner, all you need to do is qualify, the rest is taken care of. Pretty sweet deal.

This is amazing: @ladwp.com, the Los Angeles utility, has launched a program that will install solar+battery systems on qualifying low-to-moderate-income households, *for free*. Yes: free. If you know someone eligible, tell them to apply!

Ugh. I knew it was coming, but this absolutely sucks. One of the real wins of the last admin. But we can’t have those disabled people thinking they can have special treatment (not having someone destroy their primary means of getting around, which has killed people in the past).

Just got my Covid vaccine and asked if they’ve been busy. The nurse said they were worried people wouldn’t come in, but they’re getting lots of demand. Good going, herd! Resisting propaganda saves lives.

Joey getting some early morning belly rubs and showing off his massive paddle paws

Give at streetroots.donorsupport.co/page/Donate

📣 ONLY TWO DAYS LEFT TO REACH OUR GOAL 📣 Keep this vendor community, and our city, strong. Help us get to $288,000 by 9/30! Make your gift today! streetroots[dot]org/donate #portland #pdx #portlandnonprofit #pdxnonprofit #portlandnews #streetroots

Oregon is our home – not a military target.

One more day! This fantastic Mayo Clinic #MyalgicEncephalomyelitis #CME has just the rest of today & tomorrow, Sept 30th left. Send it to your providers ASAP! #MECFS #MedSky

This is evil. Wheelchairs cost hundreds to thousands of dollars and are often customized to one person. Loss of mobility means loss of income, mental health, healthcare. This is eugenics. Remember: anyone can become disabled at any time. The folks in charge haven’t forgotten. They weaponize it.

Will be calling tomorrow! Thank you for this very informative post @meactnet.bsky.social you've made it super easy to understand what's going on and take action!

People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏

most things are bad but Taco loves you.

Today Oregon’s message to Donald Trump was loud and clear: stay out.

Every single one of these clips was taken today in downtown Portland. Portland doesn’t want or need a federal takeover. If Trump insists on sending federal “resources” he can start with funding health care, bridges, affordable housing, and wildfire protection to name a few.

Oregon and the city of Portland are suing President Donald Trump to block the federal government from deploying hundreds of Oregon National Guard members in an unprecedented crackdown in Oregon’s largest city. buff.ly/FHQxLhV

Getting ready

"Oh, the human is back, let me yawn in an aggressively unconcerned manner to show my lack of interest."

Interview with Yale immunologist Akiko Iwasaki | David Tuller youtu.be/nJTaGD4fYz0 #LongCovid #MECFS #immunology #medicine #health

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy and research for the week of Sep 22-28. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...

Join us October 1st at 3 pm ET as we host a discussion and Q&A with Brian Buckbee, author of We Should All Be Birds. www.meaction.net/event-detail... A little birdie told us there might be a giveaway! 😉 #pwME #MECFS #LongCovid

Telehealth is crucial for the tens of millions of Americans w/ #MyalgicEncephalomyelitis, #LongCovid, or dozens of other major illnesses and/or #disabilities. Please help us save telehealth! Even if you're healthy, this greatly impacts someone you love❤️

Take action to save telehealth now! You can call or email your member of Congress. To make this action easier, we have drafted up a sample script/email wording you can use: www.meactions.org/telehealth #Telehealth #PwME #MECFS #LongCovid #disability

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid #PASC

Thank you to Prof. Vivienne Matthies-Boon for including my very severe ME/CFS video in your lecture on the psychologisation of post-viral illness. Good to see philosophy and ethics engaging with this topic.

Washington Post. Don't forget that they fired journalists too, and they've taken their paper and turned it into a tool for billionaires. I honestly think WaPo needs to be the next target. And lets not forget that they said this about Bondi, giving her a green thumbs up.

Welp. I’ve been called before the committee. Again.

Hard to compete with the glorious elegance of tulips in spring, but hoo boy, the fragrance and lasting power of freesias are overtaking them now! 😍 #BloomScrolling

All new guest essay for the DVP by Shannon Pagdon: “When coercion in care makes Kilmeade’s ‘just kill ’em’ thinkable” disabilityvisibilityproject.com/2025/09/26/w...

Worth reading and supporting this article on Violet Affleck’s advocacy for clean air and COVID mitigations. We should always support our youth when they step up and want to engage in making the world a better place. www.elle.com/culture/cele...

Really important topic. It’s a great day to donate to @thesicktimes.org. Nowhere else is gathering this critical information for people who have Long Covid—or anyone who might get it, which a new NIH incidence study says is at least 1 in 20 people who get Covid.

Remember when RFK Jr. challenged Senator Wyden to a mailbag size contest? Defend Public Health has a new campaign. You can help prove that scientists and healthcare workers do not, in fact, support RFK Jr.’s agenda by sending Senator Wyden a postcard. Click on the link below to get started.

Oh, this is a GREAT idea. For those who don’t know, the Bateman Horne Center is one of the leading #MyalgicEncephalomyelitis research centers and Dr. Lucinda Bateman creates those wonderful YouTube videos for drs who actually want to learn. She gives me hope☀️ #pwME

4 hours no eta on when they’ll be done fixing it not great bob. i have an energy limiting condition (mecfs) and overexertion can have serious consequences so this isn’t trivial to me. the building skews very elderly too. i’m pissed

This is Annie. She freaking loves fall. 13/10 (FB: James Osborne)

Stop doing gestapo things and we'll stop saying you're doing gestapo things

you can't bullshit nine year olds like you can grown-ass adult CEOs, university administrators, techbros, assorted VCs, politicians and journalists

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.” Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

Karen Attiah, a Washington Post opinion writer fired this month for her social media posts about the assassination of Charlie Kirk, has filed a grievance arguing that she should have been allowed to share her views on news events under the company’s labor agreement and social media policy.

yes, they did it must not have polled well, because they stopped using the "A" in their communications shortly thereafter but their desire to eliminate the disabled from the workforce and public life as a whole has been quite clear from the start

Hawthorn Bridge, Portland, OR #SignsOfFascism

Also huge thanks to the union, damn. Let's all focus a little on the fact that they were stopped, as well as the intent to harm 🫠

Our current admin hates disabled people 🌈 www.afge.org/article/cdc-...

We are thrilled to bring you a Q&A with author & #MEAction volunteer Brian Buckbee on Oct 1st at 3 pm ET! Register: www.meaction.net/event-detail... "We Should All Be Birds" is "a charming & moving debut memoir about how a man with a mystery illness saves a pigeon, & how the pigeon saves the man."

Take action TODAY! Are you a medical provider in need of a concise but helpful CME? Are you a patient wishing your clinicians knew more about ME, aka ME/CFS? We have a CME for you but it is only available until Oct 1. Sample language & link: docs.google.com/document/d/1... #MedEd #CME #MECFS

We only rate dogs. This is very clearly a red panda. We've had just about enough of your tomfoolery. Please only send dogs. Thank you… 12/10 (IG: __joyjoa)

Masking up and advocating for clean air at #UNGA w/ Violet Affleck and @myrabatchelder.bsky.social!

How fucking cool is this @bradlander.bsky.social and @zohrankmamdani.bsky.social at Rosh Hashanna services and EVERYONE WAS MASKING! Kolot Chayeinu was one of the first synagogues to call for ceasefire. “The rabbi spoke extensively about the war in Gaza, calling Israel’s campaign a genocide.”