Ever feel like you're shouting into the void? My posts here get zero replies... crickets. And honestly, it mirrors real life—feeling invisible, unseen, like my struggles don't register with anyone. Chronic conditions have me stuck in this quiet bubble. Anyone else out there feeling the same?

Pure escapism: Drs who have time to get to the bottom of your illness AND covid is over

😂 No. You can’t solve the health fall out from uncontrolled circulation of a novel virus and a poorly managed pandemic by flogging people harder to get back to work. #BBC www.bbc.com/news/article...

Some days, the loneliness hits harder than the pain. Chronic conditions have stolen so much—not just my energy, but my freedom. I can't work like I used to, pouring my all into projects that light me up. I can't chase spontaneous adventures or even simple plans when the mood strikes.

Them: How’s your health? Me: Same I simply cannot answer because the fact you go to work coughing, sniffly or not quite recovered means you don’t give a 🐀 about my health. You don’t care because it’s not affecting you…yet!

Now published! My edited book ‘Long COVID and Society’ - my introduction is free to read for everyone. Download from the link below and check out the others chapters too (Chapter 14, about LC children and families, is also open access) link.springer.com/book/10.1007...

MCAS runs my life now. Covid's gift. Months of achey painful sleepless nights with a side of histamine migraine hell. But hey, we’re post pandemic… aren’t we?😷😬 #MCAS #LongCOVID

Long Covid, dysautonomia, MCAS, CFS is not a linear recovery. Apparently I’m not trying hard enough, I should try to do more and see what happens… like I need a setback after 2yrs of clawing my way to this point 🙄😞🙄

Latest 🧵by @rorpreston.bsky.social on Twitter: The COVID pandemic has undoubtedly been one of the largest, if not the largest, drivers of new ME/CFS cases in recorded history 🦠 Full 🧵 threadreaderapp.com/thread/19795...

HR: "The plan is to increase your hours." Me: "Oh, fabulous, that’s my plan too! Just let me check with my LC, dysautonomia, MCAS, and CFS to see if they got the memo about sticking to your timeline. Spoiler: they don’t do schedules."

🎯by @kananaskinyeti.bsky.social on Twitter: "It’s easier emotionally to believe that the people wearing masks are the ones who changed than it is to accept that the world is fundamentally different now. Pretending things are normal is giving in to the fantasy..." OP: x.com/kananaskinye...

LC is a battered brolly, its fragile MCAS lining, unraveling under relentless triggers. CFS is the shaky handle, barely clutched by depleted hands. Dysautonomia is the fierce, unpredictable gale, whipping the umbrella inside out, leaving me defenseless against the storm. But it’s mild, so they say…

23mths of long covid, dysautonomia, CFS, MCAS & when I ask my GP for a plan in the event of reinfection they tell me ‘covid is mild’… the kind of mild that puts you in resus 3 times I guess

👏👏👏Yep 🎤

@kencampbell.bsky.social @jaki-idler.bsky.social @coveissi.bsky.social @philipscurve.com @abellel.bsky.social @liawar7.bsky.social @thefemdomfairy.bsky.social @oceanbreezemegv.bsky.social @theoijwtlm.bsky.social @leonoragunn.bsky.social @microlabdoc.bsky.social @mariasale8.bsky.social

@philipscurve.com @abellel.bsky.social @liawar7.bsky.social @thefemdomfairy.bsky.social @oceanbreezemegv.bsky.social @theoijwtlm.bsky.social @leonoragunn.bsky.social @microlabdoc.bsky.social @mariasale8.bsky.social @cheryldambrose.bsky.social @ladybuzzard.bsky.social @meagkram.bsky.social

Within an hour I sent two sick students home. Both revealed they have parents home with covid. It’s going well. Glad I’m masked.

Long COVID's waste bin, Loneliness soaks dysautonomia's weight - Friends fade, none remain. CFS chains my strength, MCAS flares, career lost to fog - Mask hides breath, not pain. I shield to survive, Hate this mask, yet it guards me - No one cares to see.

Partner just back from GP appt. Said the GP was dry coughing through the appt, complained they can’t shake it, & there’s a lot of stuff going around. No mask.

Australian COVID-19 cases update: Reported Cases now seem to be rising again at the national level and in most states & territories. As always, it is hard to be certain with this series; the data quality is very shoddy and the raw data is incredibly spiky. 🧵 #COVID19 #Australia

Too Much Exertion Produces Autonomic Nervous System Hit in Long COVID, ME/CFS, and Fibromyalgia #MECFS #FM #LongCOVID www.healthrising.org/blog/2025/04...

Used this post/graphs to explain variants to 2 older relatives that despite having covid 3wks ago, they are not ‘done for the year’

‘Shrinking my world really small’: How New Yorkers are coping with long COVID. "One of the most common reported symptoms is chronic, debilitating fatigue. That’s often paired with a punishing condition known as post-exertional malaise — a crash that comes after too much mental or physical activity"

"Brazilian researchers reveal that even mild cases of COVID-19 can temporarily reduce heart rate variability (HRV), with stress on the autonomic nervous system lasting up to 6 months—especially in older individuals." Study: www.nature.com/articles/s41...

The 15th of March is LC Awareness Day! On this day we acknowledge Australians impacted by and living with LC. #Covidisnotover

Today, March 15, 2025, is #LongCOVIDAwarenessDay. We stand with those affected, advocate for research, and raise awareness for better care and recovery. 💙 #LongCOVID #COVIDisNotOVER

The 15th of March is LC Awareness Day! On this day we acknowledge Australians impacted by and living with LC. ♿ #LongCovid #ChronicIllness

‘We might die because you won’t wear a mask’: A plea to health-care workers. "Yes, it’s time to mask again. We need to do better. We know how to do better. We can save so many lives and preserve the dignity of patients in the process." #Maskup😷 #COVIDisNotOVER Source: archive.md/dQMtX

🗞️ Article in @theguardian.com -includes section on #LongCovid “People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.” Full article: tinyurl.com/2u6xe8jx

Immunology appt, no masks except mine, no plan/help, ‘symptoms fit LC/CFS’, ‘some of my colleagues are suffering as well’, ‘your condition is mild’, ‘maybe see a psych & physio’ ‘no further appt needed’. See ya $$$ #LongCovid

With Covid, flu, RSV, pneumonia, whooping cough, TB, and potential bird flu people are forgetting THEY SHOULD BE MASKING to protect themselves & their communities & loved ones. It’s all here now. Do your part to keep to prevent getting & spreading illness.

IG/dear_chronic_pain #chronicillnessmemes #chronicillnesscommunity #chronicillness #fibro #fibromyalgia #sjogrens #autoimmunedisease #doctorsky #doctormemes #medsky #spoonie #spooniesky

1/ "In reality, most of the people still masking are among the strongest, most self-assured people I’ve known": open.substack.com/pub/misfitme...

Read the latest from the Covid-Is-Not-Over newsletter: Covid still demands a strong response, Ed Yong enjoys not being sick, Losing faith in politics, and more open.substack.com/pub/johndupu...

Radiology: Why do you have a mask on? Me: I always wear a mask and the text reminder also said to wear one. I have LC. Her: Can I catch it? Do I need a mask? Me: No, you can’t catch LC from me but you should really wear a mask. Her: Yeah, I should working with with public… ‘Abandon all hope…’

Translation: How not to be a minimising dick‼️ www.mdpi.com/1660-4601/22...

*News I was due to appear on SBS Insight tonight in a show about ‘My Body My Choice’, with a disability counterpoint against lawyers representing anti vaxxers. At the last minute, I was uninvited due to their strict ‘no mask policy’. Said the executive producer. I will be lodging a DDA complaint.

Worked hard on this, and I hope it will be a useful resource for many. A beginner’s guide to Long COVID, with a discussion of mechanisms: www.thegauntlet.news/p/what-is-lo...

Next time you strike an uncommitted voter in the upcoming #auspol election, you might want to ask them if they knew the Liberal/Nationals under Peter Dutton voted repeatedly against cost-of-living measures to help working families. Here’s a handy list of positions the LNP have taken lately.

It is awful that 60-80 people died tonight, needlessly. The shocking way it happened has garnered a lot of attention. Quietly, for the past few weeks, nearly 1000 people per week have died in the US from covid. It is no longer shocking, & so garners little attention. Please, pay attention.

New here? Struggling with Long Covid or think you might have Long Covid? I’ve written a series of guides about two of the most common and difficult to diagnose comorbids: POTS and MCAS. If you’re newly diagnosed or undiagnosed, if you’ve been told it’s “all in your head”… read on! 🧵

Japan: "Researchers from the Institute of Science Tokyo and Osaka Medical and Pharmaceutical University said that they have developed a peptide that can bind to the spike proteins of SARS-CoV-2 to prevent COVID-19 infections." Source: archive.md/X3yVw

So the official Australian government position is that C19 is airborne and that respirators work! Great, now that is agreed on, let's get this out to the general public!

I used to love reading dystopian fiction in high school. Reaaaaally not enjoying living through dystopian reality as an adult.

@WHO and some public health groups are actually starting to provide some useful memes.

Instructions for building a CR box. Less than $100 and reasonable to build. Teams are building them for LA fires.

Sometimes I'm not symptomatic at all... And other times I'm awake.