Stop saying chronically ill people are lucky to stay home all day. Being chronically ill is a full time job with so much over time and no benefits

It never occurred to me that I would wake up sick one day and never get well again. #chronicillness

If me talking about my chronic illness symptoms is overwhelming for you, just think how I must feel living with those symptoms.

I'm 4+ months post shunt replacement and I'm still having confusion, lethargy, muscular weaknesses at night, slurred speech when really tired wetting the bed at night.

You can't spell healthcare without THC.

Petting my furbabies and talking to them is self care. 🐈 #catmom

I don't know who needs to hear this, but it was NOT your fault and you did NOT deserve it. #cptsd

Don't underestimate the disabled community. it says way more about you than it does about us.

Them: "are you seeing anyone?" Me: "like dating or like a therapist?"

Went to the ER last night. Thankfully my shunt is working fine, but we found out that I am anemic. No one mentioned it but we found out through MyChart. My body doesn't absorb iron due to my Sjogrens Disease. So that's fun. Turns out anemia can cause most if not all the symptoms I had.

Omfg guys it feels like my cranium is inside a vise owww just took meds. Gonna try to sleep wish us luck and good night!

Having an ocular migraine and my head It feels like it is an a vise. Checked BP 119/75

#depression #anxiety

#AbleismIsReal #disabledsky #disabilitysky

If you only have 10% to give in a day, and you manage to give all 10% be proud of yourself, because you effectively gave 100%

I am not a sick person. I am a person managing an illness

Do you think Trump even realizes that if he ended birthright citizenship, he would be deported himself?

My partner just told me last night I slept right side of my body on my back left side of my body on my side... No wonder my back hurts

My mom told me God's plan is for us to trust him. You want me to trust a invisible man in the sky? No thanks

If the Bible were true then the Universe is run by a maniac worse than Trump

#RareDisease #chronicillness

#spoonie #spoontheory #spooniesky

Your anxiety will always tell you the worst case scenario. It is a liar. Do not listen to it.

Happy Wednesday! #AprilFools has been cancelled this year, because nothing is a bigger joke than our current president. #resister #NoKings

I stand with the transgender community. I will NOT let them be erased.

#spoonie #spooniesky #SppoonTheory

I wanted to talk about it. I wanted cry, scream, but instead I said "i'm fine" #cptsd

I'm not an early bird or a night owl. I'm a permanently exhausted pigeon.

post hysterectomy "pseudo periods" are the worst. imo they are worse than normal periods. There used to be (slight) relief by bleeding but not there is no relief. things your obgyn won't tell you.

Empowering #Spoonie Affirmations "I am more than my illness". "My strength isn't measured by productivity". "I am trying my best, and that is enough". "It is okay to rest and take care of my body". "I am allowed to say 'no' to protect my energy". "My worth is not defined by how many spoons I have".

Good morning! Here is your #reminder to eat something healthy, drink some water and take any necessary medications.

I know it's a little late (or early depending on where you are in the world) but here's a reminder to eat something, drink some water and take any necessary medication.

I don't know who needs to hear this, but you are loved (by me), you are not a burden. your feelings matter. YOU matter!

My fucking head hurts.

As someone who is completely wheelchair bound, I cringe when I hear my partner say, "you can go but there won't be room for ___ and your chair in the car. The chair has to stay here."

I have a tummy ache

What do you get when you cross depression with the great depression? . . . . . . . . . . . I don't know but we're about to find out together.

"no pollen formed against me shall prosper." Benadrylations 24:7

#depression #anxiety

I was approved to have a home health aid to come out to my house 3x a week for 3 hours a day. This is going to help so much!

this is the best video I have found that depicts what living with DID is really like. youtu.be/ZxVzXLVn_oE?... #DID #DidSky #DissociativeIdentityDisorder #plural

people who haven't been raped or sexually assaulted don't get to decide what is and what isn't offensive to people who have.

Good morning Bluesky 🦋 This is your daily #reminder to eat something, stay hydrated and take any meds that are needed.

I read somewhere that having a chronic illness is like running a marathon without even leaving the couch. I feel that deep in my soul

If a disabled person tells you they can do something, trust them. If a disabled person tells they can't do something, trust them. #disabledsky #disabilitysky #disabled #disability