Participants needed: this sociological study explores how people with Long COVID and ME/CFS utilize online chronic illness communities and content while navigating their journeys to diagnosis. Please share with anyone who might be interested! #chronicillness #mecfs #longcovid #chronicfatigue

WHY does ProQuest E-book Central now have an AI "Research Assistant?" Instead of a worse-written version of the book's actual summary popping out at me I'd prefer they fix the fact that if you search a word that's in a chapter title, every single page of that chapter pops up due to the header 😪

Caregivers to disabled people and aging adults (who do not have certain health conditions) will not be able to get the Covid booster in the future under new rules, putting people they care for at risk. New from me at @motherjones.com www.motherjones.com/politics/202...

I had an interview yesterday for a graduate student researcher position on a project that's directly in my research area and I am manifesting HARD that they hire me 😭🙏✨🔮😩

A friend included this anti-acknowledgement section on her PhD thesis. She also added the proposition: “Systematic bullying and undermining of girls and women in STEM starts early on and is the reason why they do not stay in science and related fields.” Absurd we still need to go through this 🧪👩‍🔬

I hate this timeline 🙃🙃🙃🙃🙃🙃

NEW: The NIH has begun terminating grants for active projects studying gender identity, DEI, environmental justice, climate change, among other topics. At least 16 termination letters have already been sent — and hundreds more are coming, people inside NIH tell me. www.nature.com/articles/d41...

Worth posting again for people who may not know. The names of what Medicaid is called in your state:

Can we please stop with the "why aren't Americans doing anything" Discourse that I keep seeing? I'm not even talking about people in other countries. I'm talking about my fellow USians who I see every day On Here bemoaning how we aren't protesting. 1. PROTESTS ARE LITERALLY HAPPENING EVERY DAY.

no funding if it seems like the research MIGHT involve a woman or a nonwhite person

One thing for faculty to do rn: share info with your students about basic needs programs on your campus. The whole shit show over federal funding means there's some programs that people rely on for food and other needs that have been disrupted, and sharing that info could really help students.

Excellent post

Our govt actively encouraged the thinking that some lives were, by necessity, disposable & to settle oneself to that being the only way to continue to perpetuate the status quo. You bet that opens the door to widescale fascism as the list of disposables grows.

I’ve started saying this every time I hear the term “executive order” #Nosferatu

My dad was tortured by the Gestapo for 4 days and thrown in a concentration camp for being in the Norwegian Resistance. Growing up, he would tell me things he learned in the Resistance. I thought, I'm never going to need this stuff. Here's some of those things #Thread

PBS is now live on Prime — ad-free — and you don't need a subscription to watch. This marks the first time this programming will be available *free* on a major streaming service. Channels include PBS Drama, Documentaries, Kids + live feeds for 150 local stations www.pbs.org/articles/str... #TVSky

As the parent of a disabled student, I can tell you that the assessments & documentation necessary to get accommodations is time-consuming, difficult to access, & expensive. Students with documented disabilities aren’t “entitled,” “lazy,” or simply needing “extra time.”

California identified roughly 800 women forcibly sterilized in state prisons from 2005 to 2013. Yet a reparations program for victims has compensated only a fraction, with most claims being denied. boltsmag.org/forced-...

My computational social sciences instructor made a really good point yesterday. In regards to online platforms like LLMs and social media, “if you’re not paying for it, you’re the product.”

Disabled people are not acceptable casualties. Not during natural disasters. Not during a pandemic. Not during climate collapse. Not for profit. Not for optics. Not at protests. Not at school. Not for election goals. Not for personal comfort. There is no justice without disability justice.

Your periodic reminder that if you need to get out of your house FAST, do not bother trying to stuff your cats into carriers, just scoop them up in pillowcases. (You can drop said squirming rage sacks into carriers for added security if you have time.)

If there are any disability-specific support and relief efforts/mutual aid in the affected California areas, please amplify.

Return-to-office (RTO) mandates lead to abnormally high employee turnover, especially for female/more senior/more skilled employees. It also takes significantly longer to fill these job vacancies after RTO mandates. papers.ssrn.com/sol3/papers....

Being disabled is walking the tightrope of proving you're competent enough to matter and disabled enough to require support

Abstracts authored by all-female teams are less likely to get accepted for presentation at economics conferences than those authored by all-male teams, even after adjusting for the authors’ prior track records and institutional prestige

I had to reread this to be sure I understood since it is so Kafkaesque: hospitals are giving medications to patients in labor, only to report them to child welfare authorities when they or their newborns test positive for *the same medications the hospital just gave them*

Chronic pain has truly changed my entire outlook on society and especially the medical field. Because pain isn’t visible it’s often not believed (especially in women and other marginalized groups) by doctors, professors, bosses, loved ones. You become suspect without evidence of suffering.

As a scientist and patient, I’ve been shocked (over and over) at how little questioning & investigation happens in the doctors’ office when a patient talks about their symptoms. And how rarely physicians ever look into conditions they’re unfamiliar with. #neisvoid #medsky

That about sums it up (Artist: teabag.comics)

Advertise your account with just one image.

Let this sink in: there’s not a single state, city, or county in America where someone with a disability who receives SSI can afford a one-bedroom apartment. SSI payments are capped at $943 a month nationwide. The average monthly rent is $1,399—or an astounding *148%* of an SSI recipient’s income.

Blue Cross Blue Shield in Connecticut, New York and Missouri has declared it will no longer pay for anesthesia for the full length of some surgeries. It the procedure goes over a certain time, anesthesia will not be covered for the duration. www.asahq.org/about-asa/ne...

The following is a recruitment letter for an IRB approved research project I'm doing on disabilities and masculinity, along with an alt-text summary. Please share with anyone you know who might be interested in participating. #academia #disability #masculinity #gender

It was only 4 years ago disabled ppl with Covid were being put on DNR requests in hospitals without consent. It’s only 4 years ago, Covid treatment was rationed based on who needed less treatment due to lack of planning and equipment. This country isn’t responsible enough for assisted dying

Anyone who tells me that disabled people aren't being coerced or pressured into MAID need to read Normand Meunier's experience because something as simple as a damn mattress would have prevented him choosing MAID. AID (as in care and help) before MAID.

Show me a picture on your phone that has your energy that isn’t a selfie.

On the shelf, it would look like an ordinary book, but when opened you’d find drawers to hide poison. The inside cover has a woodcut from Vesalius’ De Fabrica. The glass bottle says STATUT UM EST HOMINIBUS SEMEI MOR - it is well established that all people die once. It was made in Germany in 1682

Good morning to everyone who doesn’t dismiss women and their very real complaints.

Elimination by starvation. Republican legislators may not be shuttering Sociology programs (yet), but restrictions on what can be taught and what subjects can count for gen ed credit are forcing programs to cut courses and driving students elsewhere for majors. www.nytimes.com/2024/11/21/u...

Optimist: the cup is 1/2 full Pessimist: the cup is 1/2 empty Excel: the cup is January 2nd

When we said this years ago on Twitter… based on maths… they said it was ridiculous. Slowly, slowly… this train is pulling out of the station. We’ll see what full speed looks like. www.ineteconomics.org/perspectives...

Oh my god. I had no idea: Medicaid: 73 million low-income people are exposed to AI-related decision-making SNAP: 42 million low-income people are exposed to AI-related decision-making Social Security disability benefits: About 13.8 million people are exposed to AI-related decision-making

Georgetown Law told a pregnant student due amid exams that she has to take her final with everyone else, because accommodation would be “inequitable” to “non-birthing” peers. They suggested she bring her newborn to campus as she does her exam. “Motherhood is not for the faint of heart,” they said.

I was going to write something eloquent about disability justice today, but I am tired. I will keep it simple. If your DEIJ and health equity work does not include people who have disabilities it is incomplete.

So we beat on, boys against the milkshake, borne back ceaselessly into the yard