Art is great. You can use your art as a distraction and to feel good and to connect with others, but you can also use it as a weapon. And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.

Medical gaslighting is like taking a cracked mirror to be repaired, and instead being told, “No, the glass is perfect. It’s your self-image that’s distorted.” Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception. #NEISvoid #MedicalGaslighting

We REALLY need this. The number of careless errors, of serious symptoms overlooked, of biased judgements made and documented in my medical notes... it's mind-blowing. And it does so much harm. #NEISvoid #DoNoHarm

When patients talk about being dismissed by doctors -or ignored, or gaslit- doctors say they’re overworked and don’t have the time. But here’s the thing: Only doctors can organize, demand change, and fix that. Patients can't. 1/ #NEISvoid #MedSky

When a child dies from brain cancer or someone dies from the measles or gets polio, can they sue RFK Jr. and the regime for severe negligence and medical malpractice for taking away the scientific research and the vaccines? Serious question.

The biopsychosocial model of medicine was meant to be holistic. Biology🩻 + psychology🧠 + social context🏘️ In theory: It's treating patients as whole human beings. In practice? It's weaponised against patients with conditions that doctors find "too hard". 🧵 #NEISvoid #MedEd

Doctor, Don't assume you're more intelligent than I am. Don't assume your work's more crucial than mine. Don't assume your time's more valuable than my time. You're not more worthy of respect, than I. Sincerely, Your Next Patient ⚡️ #NEISvoid #MedSky #Poetry

Being sick is a natural part of being human, yet sick people are dehumanised in healthcare all the time. Can you think of an example of this? Please add it below, I'm collecting them. 😊 ⚡️ #NEISvoid #MedSky #eds #pots #pwme #pwlc #mcas

Being nice to patients isn't sufficient to be a good doctor, but it is necessary. #NEISvoid #MedSky

If you love them, tell them. If they’ve changed your life, let them know. If they’re important to you, make sure they hear it from you.

Doctors, Stop defending abusive & neglectful behaviour from other docs towards patients. Don't assume your colleagues were in the right. Often they weren't. If a patient has to tell you what happened to them, and you blindly defend the perpetrator, you make the trauma worse. ⚡️ #NEISvoid #MedSky

Oh I love Nikita Gill but I hadn't seen this one before, thanks for sharing @jacysonne.bsky.social 💛🧡❤️ ⚡️ #DisabilityRights #PatientRights

What saved my life when the hospital discharged me with no hope from my sudden paralysis? Facebook. Networking with my community who helped me find a surgeon who fixed me. Connecting with others who had the same diagnosis and recovered. *They* want online communities to go away. We can’t let them go

I can imagine a medical system which treats all patients as worthy of care, worthy of investigation, & worthy as human beings. Where parities are protected from exploitation, neglect and harm. Where patients are truly equals, and our expertise is recognised. That's what I'm fighting for. #NEISvoid

Did you know there's a big group of people who are too sick to access medical care, and too disabled to access disability supports? Sounds absurd but it's true. (We're too sick to protest, too.) ⚡️ #SevereME #pwME #pwLC #PatientRights #MillionsMissing #Disability #DisabilityJustice

Whenever a social group is given trust, prestige & power, there'll be people who don't take the position in good faith. 🚔 We've learned this with police ⛪️ We've learned this with priests 🩺 Now we need to learn it with healthcare providers. It creates a culture of cover-up, left unchecked #NEISvoid

Docs, Your patients pay you to investigate their symptoms. Their symptoms don't just disappear when you get a scan back and it's clear. Stay curious Look, listen, ask You'll find the cause. (Hint: it's probably not stress or anxiety. You're not qualified to determine that anyway) #MedSky #NEISvoid

People with #MECFS need access to support! Australia, this is the situation for people with this #disability in our country 👇🏼

Undiagnosed = new symptoms blamed on mental health & lifestyle. Diagnosed = new symptoms blamed on pre-existing diagnosis. Docs, rule out as many medical causes as you can before making these assumptions. Errors here have devastating consequences. You may not ever see them. ⚡️ #NEISvoid #MedSky

Understanding Your Flare Fettered Friend - how to lend support for your loved ones going into a flare… buff.ly/WI3eZM1 #EhlersDanlosSyndrome #EDS #hEDS #HSD #Hypermobility #Fibro #Spoonies #Zebras #NEISvoid #Pain #CPP #ChronicPain #Support

Anyone with a chronic illness in #Spain? What have your experiences been like, interacting with doctors? Does this thread reflect your experience too? I'd love to know. ⚡️ #NEISvoid #MedicalGaslighting #PatientRights #eds #pots #pwme #mcas

Research matters! #Science is about discovery. Stop investing in science and you halt the progress of the human race. Or you know... just your country's. The #USA was the leader in so many fields. It's wild to think that could all be destroyed because a couple of rich guys want to be richer.

So many patients are dealing with fear & inability to see doctors because of the way we've been treated in the past. Right now, we can't even explain this to our GP. They have no understanding of clinician-inflicted trauma & may perceive us as dramatic or paranoid after that. ⚡️ #NEISvoid #MedSky

what have been your favorite chronic illness & disability books from the last 3-5 years? (I’m playing cultural catchup since my last crash!) reposts also appreciated :)

I'll be adding my favourite quotes to this thread as I listen. 🎧 📖 Rebel Health: A field guide to the patient-led revolution ⚡️ www.audible.com.au/pd/B0CZ4W7PX... #DisabilityJustice #HealthcareActivism #PatientLed #NEISvoid

It isn't disabled people #rorting the system, it's providers. In Australia we've got - Healthcare practitioners stealing from #Medicare - Disability for-profit services ripping off the #NDIS It's time to stop demonising disabled people & look at who the real "dole bludgers" are here. ⚡️ #NEISvoid

It's not up to the patient to communicate the problem in the exact right way so that the doctor will help. It's up to the doctor to ask the patient the right questions, listen, and understand the patient, so they can help. ⚡️ #NEISvoid #MedSky #eds #pots #pwme #mcas #PatientRights

Disabled people are 11 times more likely to die during labor/in the postpartum period than non-disabled people. Better education and smashing ableism is how we get out of this horrible stat. For the past year, I’ve been looking into the topic of disability and pregnancy for @motherjones.com 🧵

Re eugenics views on disability and pregnancy “The narrative has to change,” Mitra said, “so that disabled people have the right to be pregnant, and the right to have children—and the right not to have children.”

The BMJ has not published a rapid resopnse from Maeve Boothby O'Neill's mum, @swastrosarah.bsky.social‬, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here. virology.ws/2025/07/23/t...

#MedicalGaslighting sounds like: Doctor: Okay I've looked at all of your tests, and they're all... normal Patient: But I'm still in pain. Doctor: Your body is fine. Your mind is playing tricks on you

This video 💯💯 People with chronic illness are not lazy. Every single person on the planet could become one of us at any moment. If you live long enough, you WILL. A society that doesn't care for their sick is a society that cares for no one. Even a billionaire can lose it all. ⚡️ #NEISvoid #Trump

Healthcare isn't accessible to people with #MECFS, or people who are so unwell or #disabled that we're house or bed-bound. If only the doctor would make house calls again.

“I’ve had too many appointments where the #doctor I saw took “this test looked normal” to mean “therefore the patient is okay” instead of “so we should look at a more detailed test."": buff.ly/4hLz5TQ by @katethealmostgreat.bsky.social #NEisVoid #undiagnosed #InvisibleIllness #spoonie

Patients should be paid for their time just as an expert in any other field would be. The research and surveys we volunteer for don't just help us, they help companies make profit too. We are being consulted us as experts -with our years of experience- but our expertise is devalued. ⚡️ #NEISvoid

People without chronic illness often assume that, no matter how lengthy/difficult the path to diagnosis, once diagnosed: 1. Now the treatment and recovery can begin! 2. You and your diagnosis will be taken seriously by every health professional going forward! Both of these assumptions are WRONG.

At the moment peeps with chronic illness literally need advocates prepped & ready to fight for us in case we need to go to hospital. Otherwise we're unlikely to get help and may end up worse off. All the time and energy that could be saved if docs would just listen & take us seriously! ⚡️ #NEISvoid

So people will stop questioning my reality 💯💯 You're not the only doctor I'm seeing - others need to know about my condition. It changes the way my body functions. It makes other conditions more likely. And a diagnosis helps me combat the All In Your Head arguments that block me from medical care.

This study suggests the post-viral and gradual-onset types of #MEcfs have different pathology - there were different white matter abnormalities in the brain. 🧠 📑 www.nature.com/articles/s41... ⚡️ #pwME

Simon Wessley is a psychiatrist with an established record of preying on some of the most vulnerable people in society - the sickest - by incorrectly claiming their medical issue is psychiatric, and profiting off of the treatments. ⚡️ #pwME #trans margaretwilliams.me/2025/wessely...

Oh no

This is #MedicalGaslighting. "I cried in the parking lot after the ER doctor sent me home. Not because I was being dramatic, but because I knew something was wrong but no one was listening." ⚡️ vt.tiktok.com/ZSBUpFHVu/ #NEISvoid #MedSky #DisabilityRights

People with #ChronicIllness have lived with it for years, decades even. We've read books, read resources from our condition's charities, spoken to group leaders in forums, been to online conferences... We don't only have experiential knowledge, we often have medical knowledge too. ⚡️ #NEISvoid

Everyone deserves hospital care. But right now, people with #SevereME are locked out. We need care spaces that don’t harm the people they’re meant to help. Dark. Quiet. Temperature-controlled. Stimulus-limited. Because care isn’t care when it excludes the most vulnerable. #DisabilityRights #pwME

I get it - the joke stings. We fight so hard to be seen. But not knowing that pre-peeled oranges are an access tool? That’s not ableism. It's lack of awareness. Ableism is deeper. Harsher. It's dehumanising, it's prejudice, it's hate. Let’s save the word for what breaks us. ⚡️ #Disability #NEISvoid

Caring for a patient requires both patient and doctor... wait - 🎤️ is this thing on? Alright, for those in the back: Caring for a patient requires both patient AND DOCTOR to recognise and respect the other's area of expertise. 📑Kennedy (2003) ⚡️#MedSky #NEISvoid #eds #mecfs #pots

📢 Now published: www.embopress.org/doi/full/10..... Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences. bsky.app/profile/cgat...

It’s Disability Pride Month y’all. Let’s try to be intentional in our work. Specifically, we should move beyond disability rights and into Disability Justice. If you’re not familiar with Disability Justice, how is a perfect time to get acquainted with the concept as outlined by Sins Invalid.

Doctor, I know a lot more than you about my chronic illness. You can't fool me into thinking you're an expert - I watch the experts speak at conferences every year. So stop pretending you know everything, and listen. Sincerely, ~ Your next patient ⚡️ #NEISvoid #MedSky

what's wild to me is how many people I've come across who find it incomprehensible that anyone would mistrust healthcare providers. Like apparently they've never had to deal with medical gaslighting they've never been told that their serious organic illness is just anxiety or perhaps they don't know