Well guys, I must be an MMR autistic, because my mother confirmed that she took NO Tylenol while pregnant with me. 🤣🤣🤣💊💉 #ActuallyAutistic #Neurodivergent

Vaccines cause Adults.

Disabilities and chronic illnesses like Diabetes, behavior problems, neurological disorders, asthma, etc - all existed BEFORE vaccines. More kids have these now because more people who have those conditions are LIVING TO ADULTHOOD to procreate and pass on their genes.

I don’t really care what caused my neurodivergence. I just want the Epstein files to be released. 🤨

And during all of this, we have fewer disability reporters at national publications than when we started the year.

Have you heard of Period Nirvana? I’m now a fan. shop.periodnirvana.com #Menstruation #Period #WomensHealth

My family is not ready to hear that they are all touched by the “tism”. It’s fine. I’ll bide my time. The Emperor will eventually realize he’s naked. 😂

You know what causes autism? Autistic people having sex. Signed, A neurodivergent who is probably on the spectrum, but try getting a diagnosis at almost 40 years old when you’re a woman. 🤣

If you’re not designing with accessibility in mind, you’re missing out on HUGE populations of people as potential clients.

A reminder to follow journalists, today and every day. If you say you're going to have disability representation in an article on a disability topic, interview a disabled person, not a non-disabled parent. Their perspectives don't count as disability representation.

Trying to deconstruct the internal ableism that tells me I’m a burden to my family. Trying to learn a new way to live now with my limitations. Grieving what my life once was. Celebrating it’s not worse. Fearing it will be. I’m…tired. #Spoonie #hEDS #MeningealCyst #SuddenParalysis #PartialParalysis

I have so many questions.

Have an earache (possibly TMJ?) and can’t wear my hearing aid in my good ear. 😭🙏 This is when I really wish the rest of my family knew more ASL or I had captioning glasses. 😞

I don’t care what the VMAs said, Golden was THE song of this summer. #KPopDemonHunters #Huntr/x #Golden

Tired of my labs and test results being “abnormal” and the interpretation is “well, they’re just a *little* abnormal so it’s probably fine”. Is there a line in the sand or not? Why have a range of “normal” if you’re going to blow off “abnormal”?? #ChronicIllness

Well, what we suspected at 17 years old got confirmed today. I have PCOS. #PolycysticOvarySyndrome. It only took 22+ years of seeing gyn to finally get it diagnosed.

If you don’t understand the hype behind K-Pop Demon Hunters, just know it’s essentially this generation’s Sailor Moon. #90sKid #SailorMoon #KPopDemonHunters

I’m tired of unsolvable problems and unwinnable situations. I’m just…tired.

Currently on 26 meds per day. 🙃 That’s what it’s like to have a rare disease, a chronic illness, and an acute illness. So much of my day is spent keeping track of and taking medications. #ChronicIllness #RareDisease #Sick

I know we’re normally “zebras”, but in this case, I may be a giraffe? 🦒🦓😂😭 #hEDS #EDS #EhlersDanlosSyndrome #Hypermobile #HypermobileEDS #RareDisease

Hello rare disease friends! I wanted to encourage you all to participate in some advocacy. As most of you probably know, Telemedicine was expanded hugely during Covid. 1/

Yes, wrote about it in June. www.motherjones.com/politics/202...

@juliametraux.bsky.social is the dept of energy really getting rid of the rule that any new construction has to be ADA complaint/disability friendly??

Me, reading most contemporary romance books: Omggggg GO TO THERAPY!!! 😂😂😂 *looking at YOU #EmilyHenry* (except Book Lovers. Nora is perfect.)

If you’re in the Evanston/Chicago are, please check your RING and security cameras and help join to effort to find Dr. Nina Kraus. She went missing Sept 1st at 9am: evanstonroundtable.com/2025/09/02/s...

Disappointed in The Thursday Murder Club. *Spoilers* Letting a bad guy continue to illegally exploit immigrant workers in exchange for letting them keep their posh retirement home? Yeah, that sucked. 😒 How is this framed as a “happy ending”? No desire to read now. #TMC #ThursdayMurderClub

I used to love weekends. Now it’s just one more thing my chronic illnesses have stolen from me. Instead of time doing fun things with my family, I crash to recuperate. I can’t talk to my doctors. And I’m overstimulated because everyone is home. #NEISvoid #hEDS #POTS #MCAS

My whole life I’ve been teased for being clumsy. Turns out I have global vestibular dysfunction. It’s not just older people who can have poor balance. Anyone can. Pediatricians, PLEASE refer to PT. I should have been seen 37.5 years ago. #Balance #Vestibular #PhysicalTherapy

Here’s some disabled representation on your screen! 🤟🦻👩🏻‍🦽 Trying to teach myself it’s okay to just *exist*. I don’t have to push myself to the brink of being rundown or burnt out. I can have goals as simple as “shaved my legs today”. It’s ok to conserve my energy for things I enjoy. 🥄🥄🥄

There are so many barriers for patients to even get into Dr offices. Once they get there, inaccessibility creates even MORE barriers to assessment, care, and treatment. ALL doctors offices need to be accessible. It an office is not ADA compliant, it shouldn’t be zoned for healthcare. #Accessibility

Dynamic disabilities exist. Let’s repeat that. DYNAMIC DISABILITIES EXIST. Some days I’m more disabled & I need more support than others. That doesn’t mean I’m “getting better” or “healed”. It means some days I crash and burn and other days I can push through. #Spoonie #DynamicDisabilities

"Even in a world without additional economic constraints, accessibility tools and assistive technologies are already shockingly high-priced." mashable.com/article/tari...

We don’t have to justify our need for help as persons with disabilities. We can just ask for help without having to prove we deserve to exist. It’s ok if all you sometimes have the energy for is existing. #DisabledLife #Disability #NEISvoid

If I wasn’t a doctor who owned my own practice, I’d probably be out of a job right now with how much time I’ve had to take off of work. 😥 My body has needed this time to heal. I realize how privileged I’ve been to be able to take it. #ChronicIllness #POTS #MCAS #hEDS #MeningealCyst

I suspect hearing loss isn’t rare in young people, it’s just GROSSLY under diagnosed. You can’t find something you’re not looking for. And who gets regular hearing tests after elementary school? (Though honestly everyone should.) #HearingLoss #HearingAidUser

I miss trying new foods. I miss feeling joy around eating. When everything makes you feel ill, it just sucks the fun out. So much socializing revolves around food. Some days I feel like an IV bag of nutrients would be easier. At least it would take away the mental load of deciding what to eat. #MCAS

Would love to hear from disabled people in other countries. I’m based in the U.S. How is accessibility where you are? Do you have protections like the ADA (Americans with Disabilities Act)? What would you change if you could? #Disability

For anyone having trouble getting in to appts, August is the month to go to the doctor! Got my kids appts with a pediatric ENT in less than 24 hours. Same with a sleep specialist. My own work schedule is also quite clear. No one goes to doctors in Aug I guess. 🧐

Young disabled people exist. We need more visual representation.

Physical therapy is currently giving me life. It’s my reason for getting out of bed and taking my meds in the morning. #hEDS #MeningealCyst #SpineInjury #Neurosurgery

My eating was already so restricted because of food allergies. The low histamine diet (because of MCAS) is even more restrictive. I’m so frustrated and tired. Disabled existence can be so overwhelming at times.

I don’t feel good and I’m tired of taking so many medicines daily. Today’s a flare day

So many people talk about flares from day to day. I swear for me it’s hour by hour. 🥴 #hEDS #POTS #MCAS

Just because I need physical help does not mean that I am incapable of making decisions. I asked for physical assistance, not your opinion of my life or what I’m doing. When I want your opinion, I’ll ask for it. #Boundaries #WheelchairUser #PhysicalDisability

If anyone thinks I’ve made my disabilities my entire personality, that’s because I have to be loud and intentional with setting boundaries. #Spoonie #NEISvoid #DisabledLife

We need more disabled designers designing things. Why are the handicap stalls the furthest from the entrance doors? Same with accessible rooms at Hilton, they are the furthest from the elevator. And I can’t turn my chair around in stalls!

I’m not naturally resilient. I just have no other choice. #MultipleDisabilities #ChronicallyDisabled #ChronicPain #ChronicIllness #Spoonie #NEISvoid

If someone were to ask me what my hobbies currently are, crying in the bathtub would be at the top of the list.

People’s experiences are so unique, so different. We collect so much data, and process it in such different ways. We all contain volumes, and each of us is a catalogue of our experiences. Each of us is a Library of Alexandria: precious. The loss of one is a loss of multitudes. I’m glad you exist

Getting my diagnoses. Everything has changed, and nothing. I had these things all along. But now I have labels, and I can research and figure out a game plan. But existing feels so exhausting. #Spoonie #Disabled #MultipleDisabilities