"“ #Exercise. It never fails to flare the worst #MuscleSpasms due to my peripheral #NerveDisease.” - SaltyBurdNurd": buff.ly/9lZqgPd #ChronicPain #FlareUps #ChronicIllness #disability #spoonies

"Don’t be rude..because people will likely not listen.. #Education is important because we can’t expect non- #disabled people to know everything & the only way we will get more #disability #inclusion is by talking about it.": buff.ly/xvkMynm by sarahlynn358 #advocacy #inclusive #accessibility

"Eating #chocolate in the evening may cause #AcidReflux because ingredients such as caffeine & theobromine relax the muscles that keep #stomach acid in place. Chocolate also has a high #fat content, which can slow digestion.": buff.ly/etOI3QF via @theconversation.com #sugar #gastric #ChronicPain

" #Pacing with #ChronicIllness asks you to leave margin, even on good days. It asks you to stop while you still feel #capable. It asks you to trust that protecting tomorrow is more important than maximizing today.": buff.ly/AMreIeo by @thethrivingspoonie.com #disabled #spoonie #InvisibleIllness

"If you could give yourself the advice you needed as a teenager, what would it be?" — Get all 365 #JournalPrompts in the post! The theme for April is "Imagination, #Creativity & #Hope".: buff.ly/EXZPxUB #PersonalGrowth #SelfCare #MentalHealth #ChronicIllness

"New things are being discovered all the time & u want to make sure that if u believe something..announced in the 1960s it’s still true today. #Misinformation happens by accident just as much as it happens on purpose.": buff.ly/s7RGfYc by @katethealmostgreat.bsky.social #ChronicPain #disability

"It is ok to #AskForHelp because even non #disabled people need a little help sometimes.. it’s always better to have someone do something for you than try to do it yourself and get injured.": buff.ly/a3sVVYV by sarahlynn358 #disability #ChronicIllness #ChronicPain #diagnosed #DisabledPeople

"Before u can think about what needs to happen today, you’re already running a separate set of calculations..That’s not a warm-up. That’s work. Cognitively demanding, energy-consuming #work that most #planning systems completely ignore.": buff.ly/7iA9zY6 by @thethrivingspoonie.com #ChronicPain

"A new study..warns that coordinated #scientific #fraud is becoming increasingly common. From fabricated data to purchased authorships & paid citations, #researchers say organized groups are manipulating the #academic #publishing system.": buff.ly/YJ4bqBU via sciencedaily #research #medicine

"When you’re looking for #accessible #brands, you’ll find brands like Rare who are “mainstream” brands making a strong effort to be #inclusive, and you’ll also find brands like Human Beauty, whose primary mission is #accessibility.": buff.ly/tHXO46P via disabledand #disability #makeup #ChronicPain

"Besides it would be hypocritical if I am trying to raise #awareness for #RareDisease so that people would treat us with more respect and #understanding, when I go out there and treat them in the exact manner which I despise.": buff.ly/OJ79na1 #humanity #ChronicIllness #BeKind #disabilities

“Make #SelfCare tasks more enjoyable..treat yourself to a hot & healing drink while you’re organizing your #medication for the week ahead, or build a relaxing bedtime routine that [feels] like pampering.”: buff.ly/DZUruGx By thehealthsessions #ChronicIllness #spoonie #disabled

“[ #Akan ] means: Naming what cannot be changed. Fixing it as a constraint. Redirecting resources into what can be improved. That isn’t #weakness. That is elite-level #survival. Because #human resources are limited.”: buff.ly/FlTAONo by kenken02122000 #disability #ChronicPain

"We need to remember that #resting & #sleeping are actually highly #productive for all dimensions of #wellness. Our body shifts into optimal repair and #healing mode when we sleep; modes that cannot be activated when we are awake.": buff.ly/cKfq33i #ChronicPain #thriving #SelfCare

Thank you so much for your kind words, and for being a teacher who leads by example :)

“Be prepared to realize that many of the people you thought would be front and center to #support you will be non-existent. It’s fine to mourn those #friendships or #relationships, but dont waste your time or energy on them.": buff.ly/XhgHciF by nataliesparacio #disabled #ChronicIllness #LifeLesson

"Overall, where you get #protein from – & having a balance between animal & plant sources – is more impt than simply jz trying to add ever more protein to your #diet. Protein, #fats & #carbohydrates all work tgt to keep your body #healthy.": buff.ly/zUhUFlv via @theconversation.com #nutrition

"I learned that being #accommodating was a #virtue. That making people uncomfortable—even by asking for what I needed—was something to avoid. And when #ChronicIllness took over my life, that training didn’t magically disappear.": buff.ly/kKaJMa0 by @thethrivingspoonie.com #boundary #values

"When u get ‘normal’ #sickness on top of your ‘regular’ daily #ChronicPain, life can feel like a chore in itself. Like rotten garnishing to your usual stew of issues. Getting out of bed now takes not just double the effort, but triple.": buff.ly/fP3sN1x #ChronicIllness #NEisVoid #disability

CW: #death . "It’s not OK to feel your #child’s heart stop. It’s not OK to die on a plane. It’s not OK to be laughed at.. hv a little more #empathy ..We’re jz trying to live life like everybody else..not trying to..take away your fun.": buff.ly/FGlrZHA via kevinmd #allergy #BeKind #PublicHealth

“Going to war with #illness on some level can make some sense, but you’ve got to know when to transition to a different mind frame or a different #perspective.": buff.ly/dPZu49r from @theatlantic.com #mindset #ChronicIllness #PalliativeCare #reframing #ChronicPain #MentalHealth

CW: #abuse . "It is important to recognise that #hope in #abusive #relationships is not #weakness or #denial. For many victims, it becomes a vital coping tool. Clinging to hope makes the intolerable feel just a little more bearable.": buff.ly/MtkAwI3 by @shadowsofcontrol.bsky.social #coping

"structural nature [ #braille ] means the individual dots can’t be made smaller. #Spacing ..can't be tightened either. Altered #FontSize would be “misleading”.. "we’ll be confused. That word (won’t) mean anything to us."”: buff.ly/Su57aXg via @ChannelNewsAsia.bsky.social #blind #accommodations

#addiction . “Despite this, I still encounter #triggers in Florida. Even though #opioids were my ultimate downfall, #alcohol is a major #trigger for me. Why? Well, it’s much easier to avoid heroin dealers than it is to avoid bartenders.": buff.ly/ylFDEjm by sober_nation #sober #sobriety

“For anyone dealing with #energy budgeting for #ChronicIllness, this kind of overview can be incredibly #grounding. Instead of asking, “What’s wrong with me?” I started asking, “What areas of my life are quietly demanding more than I can give?””: buff.ly/09KmgtX by @thethrivingspoonie.com #SelfCare

"I hv very little energy & I’m starting to feel disheartened.. that no matter what I do, I’m jz not going to notice the diff or feel any better. As a result, I lack the motivation to do the things that I know used to help me.": buff.ly/KeyBx9A by @TrippingTreacle.bsky.social #disabled #ChronicPain

"A common early symptom of #dementia is “ #anosognosia ” or an inability to appreciate one’s physical or #cognitive deficits. The same chronically #HighBloodPressure negatively affecting my mother’s kidneys was also slowly damaging her #brain.": buff.ly/rLBY76O via @theguardian.com #aging #parent

“You cannot be anything you want to be – but u can be a lot more of who you already are.” – Tom Rath, #Strengths Finder. Don't forget that you are a unique individual on this planet with your own set of #abilities. Sharpen them 🙂 buff.ly/0V3VAl7 #affirmation #SelfEsteem #MotivationalQuotes

“Do NOT be afraid to rest. Your heart is effectively running a marathon any time you’re upright - it’s OK to be tired. Give yourself the permission u need to put your legs up & take a break.": buff.ly/pXIv5F2 by @Broadwaybabyto.bsky.social #POTS #dysautonomia #ChronicIllness #spoonies #disabled

““As the #caregiver, know that this #disease will not make him aggressive, because of where the changes are happening in his brain.” Caregiver? I didn’t want that word. The shift from #wife to caregiver was instant and soul crushing.”: buff.ly/KGSpmOY via @theglobeandmail.com #marriage #identity

"We can lead by example, *because* we are #sick ..your words or actions wouldn’t have as much power if you were healthy, because you don’t live the reality of it. #Experience ..is the best form of credibility. Your #scars tell a story of #survival.": buff.ly/YkB0Gce #advocate #ChronicPain #disabled

"Anyone who writes about #people makes choices that influence how #readers understand the experiences of others. These choices can also perpetuate harmful #attitudes about the people who participate in your studies or come to you for care.": buff.ly/RxyZSDT via @ apastyle.bsky.social

"When we make #decisions, we expect things to go right. If we think through our #options, we know what could possibly happen. If we don’t, we are surprised when the #unexpected happens.": buff.ly/UtP7ac8 via Postanly #expectations #DecisionMaking #LifeGoals #LifeJourney #LifePlan #planning

“[The #DeepSea is] such an unexplored area, and with so many threats to our #ocean, such as overfishing and #ClimateChange and deep sea mining, we need to understand what’s out there before it’s lost.”": buff.ly/NFwh2HG via @theguardian.com #MarineLife #environment #nature #animals #CoralSea

"This nightly #neural jacuzzi is driven by a series of pulsations: #cardiovascular pulsations from..heart in yr arteries, #respiratory pulsations in the veins & #cerebrospinal fluid spaces &.. #vasomotor ..in the walls of blood vessels.": buff.ly/vvsp1I5 via @ nautil.us #sleep #BrainHealth #brain

CW: #SuicidalIdeation . "There are people who are struggling with this single thought right now, “To kill or not to kill myself?” They are not only feeling incapable, but also worthless & burdensome.": buff.ly/SngMIaD #SelfWorth #MentalHealth #ChronicPain #disability #capable

" #Chocolate also contains #theobromine, a stimulant commonly found in #cocoa beans. Theobromine is similar to #caffeine in that it blocks the adenosine signal. Theobromine can also increase your #HeartRate": buff.ly/etOI3QF via @theconversation.com #EasterChocolate #easter #HealthyEating

"Softness isn’t #weakness..It’s trusting your own #InnerTruth. #Trust and #softness go hand in hand; the more you trust yourself, the more you can stay open and present without fear.": buff.ly/y8BICUA via tinybuddha #SelfLove #SelfAwareness #PersonalGrowth #spoonie

"Everything hit me at once: the freedom others enjoy, the #loss of my autonomy, the rigidity of a #life ruled by symptoms. My thoughts & reality were so different, it was like we no longer spoke the same language.": buff.ly/1O8RBle via @cppedsa.bsky.social #NEisVoid #disability #ChronicIllness #EDS

" #RespiteCare, the lifeline that allows #carers to rest & reclaim part of their own lives, is shrinking fast. Many services closed during the #pandemic & never reopened, leaving carers without #support, even as demand has surged.": buff.ly/VZbE94f #caregivers #disability #society #SocietalIssues

"My #YoungAdult years passed by in a blur with most of my good #memories shadowed by #pain. So often I would try to step into my perceived #persona only to have it fall apart, leaving me embarrassed and feeling very much like a fraud": buff.ly/jg7ICbl #disability #ChronicIllness #NEisVoid

#sex . "The #sexual tension in the room immediately comes crashing down, [from my pain] leaving only care & #kindness from my #boyfriend in its wake. He’s never made me feel guilty for having to cut our steamy sessions short.": buff.ly/kClqr1X via MetroUK #ChronicPain #relationship #WomensHealth

"If I had entrusted all my #dignity to others, I would have #broken many times by now. So I moved part of it inward.. Today, I protected myself.. That’s enough. No matter how some1 else behaved, I did not treat myself cheaply.": buff.ly/jLRzvog by kenken02122000 #disabled #SelfLove #ChronicPain

"There were moments I didn't know how to #AskForHelp ..when #pride whispered that I shd handle it on my own. But.. #friendship taught me that leaning isn’t weakness — it’s #trust ..allowing some1 to see u..unfiltered & still #choose u.": buff.ly/C4OE8lf by @flareflourish.bsky.social #relationships

"I try not to #struggle against the #feelings of #hopelessness. They can follow me around in sulky silence like a fly at the border of my #brain ..I may be moving at a crawl, but I know that I must keep going, even if I think there’s no point.": buff.ly/L72TwWt #depression #MentalHealthMatters

"Trying to remember what I have done and wondering if I did what I wanted/needed to do. Asking my dog, ‘Did I feed you yet?’ (He always answers, ‘No.’) — Wiesel": buff.ly/rtzKjxT via CarolynSpring #DissociativeIdentityDisorder #MentalIllness #InvisibleIllness #spoonies

"“It comes in like a hand, and then it just settles in your house. … You’re woken out of sleep. You can’t go back to sleep. You’re gagging in your bed.” — Kelley Wojcik, #Nestor resident.": buff.ly/pBRgbNj via @philipsalata.bsky.social #ChronicDisease #PublicHealth #environment #pollution

"Fibromyalgia #LegPain seems to affect areas where muscles attach to the bones tho this is not a rule!..While your #fibromyalgia leg pain might feel like #arthritis, it’s not as fibro doesn’t damage joints or muscles.": buff.ly/lS3k3xJ by @carriekellenberger.bsky.social #ChronicIllness #RA

" #Caregivers often carry a quiet #hope: to be recognized not only as helpers, but as whole #human beings whose love and effort matter. What matters most is intent and #acknowledgment, not the scale of the gesture.": buff.ly/6jPSWCH via caregiverwisdom #empathy #caregiving #disability #gratitude

"The goal of this #blog series is to highlight aspects of #identity that are separate from illness; however, #writing is especially helpful in compensating for the #isolation my illness causes.": buff.ly/q48CzG0 Featuring: hospitalprncss #ChronicPain #MCAS #ChronicLife #allergies