“My #dentist had to use a block to hold my #mouth open, but no thanks to my small mouth and #TMJ issues, we had to use the size meant for babies. That also means that #RootCanals are not an option for future reparations": buff.ly/DROi9tX #ChronicIllness

"[Applebaum] developed "meaning-centered #therapy for #cancer #caregivers"..reminds people to embrace aspects of themselves that endure..It helps people see that #caregiving builds on your #LifeStory, rather than tearing it down.": buff.ly/b6gmtIf via @npr.org

“Worst of all, once in that place, it’s near impossible to do the very things u need to to help yourself escape it. #Depression, quite literally, depresses your spirit, and when spirits are low, life loses all colour.”: buff.ly/yxqTbFh by @apainprincess.bsky.social #ChronicPain #NEisVoid #NEisVoid

" #Dysautonomia and #gastroparesis (my main illnesses) aren’t well known at all over here [in Belgium], let alone #doctors would suggest testing for them. I have friends in the US with the same illnesses and they helped me get diagnosed.": buff.ly/gshXC42 #belgium #ChronicIllness

"A client shared how she's become the unofficial planner, #therapist, and coordinator for her entire #friend group. "But I'm good at it," she tells me, tears welling up. "Everyone says so."": buff.ly/mKG2WDw by yourtraumatherapist #PeoplePleasing #MentalHealthAwareness #SelfCare

“#Values represent: How you want to behave. What kind of person you want to be. What qualities you want to develop. What you want to stand for in life..Unlike #goals, values can never be "completed" or "achieved"”: buff.ly/oUZTTZd by @remotetherapy.space #human #disability #ChronicIllness

"It’s a vicious cycle; people attend unsafe #events. They become #disabled with #LongCOVID. They’re too sick to attend events. They’re too sick to demand safety and #accessibility.": buff.ly/7hZp4Un by @juliadoubleday.bsky.social #ChronicIllness

"If there’s one thing I’ve become with my body due to #ChronicIllness, it is #intimate. Many healthy people aren’t fully aware of changes happening within themselves, but I’ve gained a heightened #sensitivity to it.": buff.ly/H2p6llq #ChronicPain #disability

"As does any #mindfulness practice, #NSDR helps regulate the #amygdala, which governs your brain’s fear & #stress response..the #brain shifts into a unique pattern of electrical activity characterized by slow-wave oscillations.": buff.ly/26HVpLK via thebestbrainpossible

"Make a list of the #medicines you take for reference at appointments or in an #emergency. It’s amazing how you can suddenly forget the names of #pills you take every day when asked!": buff.ly/vcbr2nO by chronicillnesslifehacks #medication #ChronicIllness

"Bonus #BrainFog tip: Keep a “When Did I Last” list with everything ard the #house that only gets done once in a while, like changing the air filter. Check this list monthly & make a note of anything that needs to be done soon": buff.ly/TGPPIRD #ChronicIllness #disabled

“It’s a particular kind of #isolation : being believed in theory but not in practice. Yr #diagnosis exists in #medical charts, yet the impact gets lost in the run of daily life. It’s the #loneliness of being visible but not truly seen": buff.ly/kvKIsGK via @bezzycommunity.bsky.social #ChronicPain

"But don’t be like me & live in denial; I continued to consume green tea in copious amounts and played contact sports, because there wasn’t any pain initially – until there was.": buff.ly/Pv7NGIl #MondayBlogs #AntiphospholipidSyndrome #spoonie #ChronicPain #ChronicIllness

"I just had a discussion with a friend the other day. We both excelled in #school. Yet we #struggle in life. Due to #ChronicIllness. We had such high hopes..": buff.ly/baLoLCG by sunbeamacres #ChronicPain #spoonies

"Everything our #bodies do— whether physical or mental— uses #energy. Studies have found that many individuals seem to have a daily threshold for making #decisions & an extended period of #DecisionMaking can lead to #cognitive exhaustion.": buff.ly/QHL1av2 via tedtalks

"I’ve come to realise that I need to accept that pain will always be a part of my life. Part of me as a person, inhabiting a portion of my body.": buff.ly/SrfK2vW #acceptance #ChronicPain #ChronicIllness #disability #MondayBlogs

“[My lack of energy] could also be a cumulative effect from the two viruses I had in September and from which I still feel the effects. That’s the thing with #Fibro, it could be a number of factors.”: buff.ly/DMQg16W by DaleRockell #ChronicPain #ChronicFatigue #spoonie

"There is a particular kind of #courage in living with #ChronicPain – not the dramatic #bravery that draws applause, but the quiet #persistence of showing up day after day when everything in you wants to retreat. It's found in small #moments.": buff.ly/sIrcIP6 by @remotetherapy.space #disability

DYK: @achronicvoice.com lives with #EpiphrenicEsophagealDiverticulum, a #RareDisease 🦓 In her own words: achronicvoice.com/epiphrenic-e... Do you live with EED? If so, please share some of your experiences. #ChronicIllness

“Researchers are using #genetic data to predict how people will respond to #antidepressants and #anxiety #medications. Their work with polygenic risk scores could make personalized #MentalHealth treatment a reality.”: buff.ly/htl70tr via sciencedaily

I did a mega spring cleaning of all 300+ posts & pages on the #website. You don't need to be a web expert or writer to know that what was written 10 years ago is probably cringe-worthy by now, both in terms of technicality & #writing style.": buff.ly/bxZbjHB #MondayBlogs #blogger #spoonie

“I know others may feel like they can relate when I say I’m #tired, but it's not quite the same. The #fatigue we deal with isn’t the same as being tired. And even to say I’m #exhausted doesn’t do it justice.”: buff.ly/nyv9Ddk from multiplesclerosis .net #ChronicFatigue #MS

“You have to find a way to #LetGo. Trying to nail down every #trigger is an exercise in futility and the stress of analyzing and over analyzing every situation can (irony of ironies) also cause an attack.": buff.ly/kxOW21g by @Broadwaybabyto.bsky.social #ChronicIllness #MCAS #allergic

“ #Endometriosis had long been the ringleader of chaos, and #hypermobility joined the act with its own flair for the dramatic. My #hormones seemed to operate on a “scorched-earth” policy”: buff.ly/9y2ERl1 by sunbeamacres #ChronicIllness #fibromyalgia

“While I’ve lost my job and a portion of my functionality, I haven’t lost my ability to #adapt. I try and tell myself there are still things I can do.": buff.ly/pHTcekU by twipblog23 #ChronicIllness #career #NEisVoid #disability

"living with a #ChronicIllness ..I must pay the price to take part in everyday things everybody else takes for granted. But even sometime later, symptoms lingered..But #joy & exhilaration lingered, too.": buff.ly/PSEiswW by @serenebutterfly.bsky.social #ChronicPain #InvisibleIllness #disabled

"The word ‘clinging’ sounds feeble..But have you ever tried clinging onto life when #pain is all there is? When there might be nothing left to live for? When life has lost all meaning?": buff.ly/7aMCgAq #MondayBlogs #ChronicPain #MentalHealthMatters #disabled

"Finding the right #treatment for u often means long months, even years, of trying new things & weighing the benefits against the often unpleasant #SideEffects or risks..there's no guarantee that it will always work for u.”: buff.ly/9uEm15Q via theodyssey #ChronicIllness #ChronicPain #spoonie

"When terms like “#toxic” or “#narcissistic” are used casually, it reduces the #empathy people feel for those who experience actual #psychological #abuse. This desensitisation can lead to real experiences being dismissed or minimised.": buff.ly/xjuDxCR via Mellofluence

"I would get a #HeartPalpitation episode every 3-4 days, so it was a year of nonstop trips to the A&E..I became reclusive & had to be on constant high alert. I wasn’t allowed to leave the country & needed some1 else to stay with me": buff.ly/VDLMIQy #MondayBlogs #spoonie #arrhythmia #cardiology

"We get so used to #walking the same path every time..over time it does get easier & becomes less challenging. Find a different path if you can, because new #environments provide new ways to challenge your #body.": buff.ly/eyBfreZ by myrockindisabledlife #exercise #ChronicIllness

"With no clear answers to go on, it has been hard to stabilize a narrative about my current state: Am I #healthy or #sick? Is my condition alarming or just interesting?": buff.ly/B1FIwjt via @newyorker.com #NEisVoid #ChronicIllness #InvisibleIllness

“Just because one #biologic is a magic bullet for one person doesn’t mean it will be for you. You never fail #treatments, they fail you. If a provider says “oh, you failed Remicade” … please correct them. “No, #Remicade failed me."": buff.ly/gn4ozn2 by lightscameracrohns #ChronicIllness #Crohns

"For #Asia, I like #Mongolia because it feels so #liberating – the endless space is mind blowing, especially since I come from the city where there’s always ‘something in the way’ no matter where I face.": buff.ly/iemup0D #ChronicIllness #singapore

"“The #brain is organized around the #SenseOfSmell,” Hummel said. “In the very beginning is #breathing, and then comes #smell with breathing, and then comes the rest of the brain.”": buff.ly/BNARlw7 via @quantamagazine.bsky.social #HumanBody

"I have also found that me & my mom argue a lot because I need to make #decisions or offer advice to her and she feels I am taking away her choices. #Stress can cause flares in my own #illnesses.": buff.ly/xkqmPvG by @beverleybutterfly.bsky.social #ChronicPain #caregiver

"I stopped fighting the waves of #sadness when they came, allowing them to wash over me, knowing they would eventually recede. This #acceptance was pivotal..transformed my..struggle from a battle into a painful, but necessary, #process.": buff.ly/hd1nlr1 via tinybuddha #loss #hope

"It wasn’t jz the #travel itself that made things tiring—it was everything that came before it. The #packing, the meal prep, the cleaning..By the time I actually got to the “#holiday” part of the trip, I’d already used up..my energy.": buff.ly/VmmtxRJ by @thethrivingspoonie.com.com #ChronicIllness

"How do I explain a condition like #EhlersDanlosSyndrome without giving a #biology lecture?..There is no quick..summary that does my experience justice..yet, people ask, well-meaning..unaware of the #EmotionalLabor they’re requesting.": buff.ly/2qGBZFc via @cppedsa.bsky.social #ChronicIllness #EDS

"It may not be a #superpower from a sci-fi show, but the #Bajau people of the Philippines, Malaysia, and Indonesia have evolved a #genetic ability to use #oxygen more efficiently. This makes them excellent free #divers.": buff.ly/CQwaaPe via @nationalgeographic

"There’s nothing shameful about having a simplified #hygiene #routine. You’re not lazy. You’re #sick. And #adapting to what your body can handle is an act of self-respect.": buff.ly/sPokQTR by @thethrivingspoonie.com #ChronicPain

"When we are feeling stormy and agitated, it is within us to transform it into a sea of calm. Sometimes that can be impossible, and we need to learn how to surrender and ride upon the waves.": buff.ly/udyat6i #anxiety #acceptance #SelfCare #ChronicPain #ChronicallyIll

"For me, there's an additional layer. I actually have a #diagnosis for #anxiety. While anxiety is a very serious condition in its own right, it shouldnt be used as a blanket explanation to dismiss other potential causes.": buff.ly/cgJmW7Z via CBC #ChronicPain #gaslighting #InvisibleIllness

"I thought I’d made peace with how my #life had changed. But #grief doesn’t follow a neat timeline. It cycles around, sometimes catching u completely off guard, even when you think you’ve got all the tools to handle it.": buff.ly/umt7JaT by sarahwarburton #disability #spoonie #ChronicIllness

“When people allow you to know about their pain and talk about it, take your shoes off. It’s a holy place. Be humble, be kind when someone shows you vulnerability.” - Amani Albair #ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0

"You may not be able to go to a #spa (or even your own bathroom) right now. But you can always recreate a spa-like #ambience, and it doesn’t need to be costly or complicated.": buff.ly/pFJxqPb #SelfCare #MentalHealth #ChronicPain

"[Wordgathering's] aim is to give voice to the emerging genre of #disability #literature. They seek work related to disability or by #writers with #disabilities ..also..interested in reviewing #books of poetry, fiction, memoir & drama.": buff.ly/18v3arK via @ericaverrillo.bsky.social

"Learning how to fall has been one of the most useful skills I have learned because it has taught me the right way to fall to prevent #injury ..most people do not know how to fall & fail to put their hands out to brace themselves": buff.ly/bal4XlM by myrockindisabledlife #spoonie #falls #disabled

"1 of the hardest things about being #ChronicallyIll is that most people find what you’re going thru incomprehensible—if they believe u r going through it. In your #loneliness ..you want to be understood in a way that you can’t be.": buff.ly/XQgeh4b via @newyorker.com #spoonie #InvisibleIllness