"What I had done was to #compare myself against a #healthy person's energy scale. A scale which I'll always fall short of, no matter what..the effort I had put in was 100% of whatever #energy I had available to me & so was his (perhaps 120% 😉)": buff.ly/FigW2gG #disabled #ChronicPain #relationship

" #Surrender didn’t mean #GivingUp. It meant tuning in. I still counted carbs. Still injected #insulin. But I stopped obsessing. I gave myself permission to rest. To feel joy. To actually enjoy parts of my #pregnancy again.": buff.ly/637fDAk via tinybuddha #ChronicIllness #diabetic #diabetes

The Surprising Thing About Chronic Pain buff.ly/2Lvfo5n I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally. Via @achronicvoice.com

"Instead of deciding each time whether to take yr #medication, create a rule: “I take my morning #meds with breakfast, no exceptions.” Rules remove the need for active #DecisionMaking & free up mental energy for more complex #choices.": buff.ly/T5a6Ya3 by @remotetherapy.space #ChronicPain #spoonie

"[My wife's] role is complex: #carer & partner, #mother & friend, protector & comforter. I work hard to shield her from as much of the weight as I can, but she carries it regardless. Not because she has to—but because she chooses to": buff.ly/8jpIiSL by dusty1wentworth #wife #husband #ChronicPain

[New Post] "Tho #undiagnosed at the time, I’ve experienced #fibromyalgia since the age of 21..The end of my #degree was in sight, and my mind was on my thesis constantly. Would I find a good #job at the end of this?": buff.ly/R0Asecn #student #ChronicIllness #career #YoungAdult #disabled #spoonie

"But she wasn’t #alone. #Family held her thru the nights meds couldn’t. #Doctors monitored. #Psychiatrists listened. #Therapists stitched coping into habit. Drugs warmed her fingers..thru it all, she showed up, fractured maybe, but present.": buff.ly/JOIAp6s via kevinmd #sjogrens #fibromyalgia

“ #Diarists were often unable to sustain the #discipline of #daily entries..so they occasionally produced retrospective entries to maintain the illusion that they wrote daily. Often..a record of #failure, containing apologias & #confessions.”: buff.ly/8ujx9qr from @aeon.co #writers #optimization

“Over time..some people may need #medication. “The longer you have #HighCholesterol, the worse it is,” Dr. Giaimo explains. Younger adults may have more time to improve levels, while older adults may already have #plaque buildup.”: buff.ly/FyKQJzw from YaleMed #cardiology #HeartHealth #cholesterol

CW: #sibling #loss “I certainly still remember Chris’ tragic #illness & #death, but I choose to spend more time focusing on his wicked sense of humor and all the times we laughed so hard that we got the “gigglesnorts.””: buff.ly/pilU3r1 by dlhampton #HIV #AIDS #ChronicIllness #family #grief #loss

"The researchers identified the new #jellyfish in the waters near Singapore’s #Sentosa Island. This #island was originally called Pulau Blakang Mati, meaning the "Island of Death Behind" which has given the new..species its name.": buff.ly/83hSuPk via @discovermag.bsky.social #MarineLife #singapore

"There’s no need to state the obvious I suppose, but many #mothers are the ultimate #superheroes in everyday life. They’re the ones who show up when things get rough & showing up once is actually the 'easiest' part.": buff.ly/JGe2aDY #ChronicIllness #parenting #mother #disability #support #carer

" #Purpose evolves..is not necessarily just 1 thing; co-existing ‘reasons for being’ can #evolve at the same time..The world around us – not to mention our inner worlds – can #change rapidly & our #priorities can shift accordingly.": buff.ly/lxJZmGm via @psyche.co #human #LifeGoal #LifeLessons

"Third, #ambiguity prevents validation of #loss. Especially with an #InvisibleIllness, there may be a questioning of whether feelings of #grief, anger and sorrow are justifiable.": buff.ly/SIL1kxY via @psychologytoday.com #NEisVoid #DisabledPeople #ChronicIllness #grief #ambiguous #MentalHealth

“Neither is being on #disability a life of luxury. I still live at home with my #parents, a fact that I find embarrassing..But my #health and the severity of my symptoms make being able to live alone & independently perilous”: buff.ly/rXt2dOw By @serenebutterfly.bsky.social #NEisVoid #ChronicPain

"It can be a very painful process to reimagine a new, more limited landscape than the life u had imagined for yourself..The positive is that going thru this #painful process can open our eyes to the huge variation in what it means to be #human.": buff.ly/6lbRBdf #disabled #ChronicPain #MentalHealth

CW: #death . “For..3 months, Williams & her #friends would go out for happy hour on Fris. When they couldn’t make it, she’d still go to avoid the #loneliness of her #home .."took me a long time to get into a new #routine of going home."”: buff.ly/ZPdBjTs via @ huffpost.com #grief #lonely #loss

“we know this basic frame of ref..to b inaccurate, but the seriousness & sense of inquiry which contemporaries brought to this model underlines the importance they attached to the principle of establishing gd pracs in #health.”: buff.ly/DnxcW7z from @EngelsbergIdeas.bsky.social

"Silence. Who knew #silence could be so #overwhelming? More suffocating than the humid tropic air, and not in the least bit golden." — You would have been 7 today. I still #MissYou my dearest little #cockatiel, Horace :) buff.ly/61AVG0n #loss #grief #pets #ChronicPain #accident #LifeLessons

“As a #DisabledPerson, I find it a little insulting when people compare the challenges of my #disability to going on #vacation because implies it’s easy to be #disabled. Many #DisabledPeople would love to work.”: buff.ly/IdlmMwM by sarahlynn358 #ChronicIllness #ableism

“A #GoodDay is not feeling well & I think this is the confusion that many people in #society have..in reality, what [it] really means with #Chronicllness is that we can cope better with our symptoms on those days.”: buff.ly/1AnXQ9o by @Beverleybutterfly.bsky.social #ChronicPain #InvisibleIllness

“Expressing my #emotions didn’t make me fragile. It made me #committed, present, and #honest. #Emotional expression is not the opposite of #masculinity. It’s a deeper version of it.”: buff.ly/S8IBfVz via @additudemag.bsky.social #MentalHealth #MensHealth #ADHD #neurodivergent

"O’Neill, a Montreal-based writer & #artist, lost her father a decade ago to a #fentanyl #overdose. The 2 were #estranged ..“His #death,” O’Neill told the Montreal Gazette, “was the most intimate we had ever been.”": buff.ly/x1yZdRD via @longreads.com #OpioidCrisis #PublicHealth #OrganDonation

"when the #pain is so unbearable that even a day is too long, I break it down further into seconds..don’t hv to fight for a ‘long period’; all I have to do is to #choose to fight on in this very moment, this very sec, now—I know I can do that & so can u.": buff.ly/wEdhEhH #ChronicPain #NotAlone

“ #Social #connection is really important for healthy #aging – for your #brain & for your #emotional health..Finding ways to stay engaged with others..is one of the most protective things you can do for your long-term #health.”: buff.ly/jQcZ9zW via @Stanford.edu #MiddleAged #community #Socialize

"1 of the ways Weaver beguiles readers to stick with her thru her long years of "landlocked seasickness" are her flashbacks to her #work in #Alaska ..her face-offs with animals in the wild often mirror many #patient / #doctor encounters.": buff.ly/mE9j90E via @NPR.org #memoir #ChronicIllness

"Although #architecture is often defined in terms of abstractions such as #space, #light & volume, buildings are above all physical artifacts..Softness under yr hand, a #sense of solidity, a color & temperature…all this affects your #mood.": buff.ly/kJmZnpi via TCRWUSTL #senses #sensations #touch

" #Challenging situations can be a good time for us to flex our #creative muscles. We don’t have to use the same old methods, especially if they have never worked that well. We can try new approaches, in search of breakthroughs & growth": buff.ly/HQBsY66 #SelfHelp #ChronicPain #ChronicFatigue

"as another of our interviewees suggests: ‘If I don’t talk about my #diagnosis in certain spaces, it’s not because I’m #ashamed. It’s because I know not every1 deserves to access that part of me’.": buff.ly/E32ZxMZ via @psyche.co #MentalIllness #MentalHealthAwareness #MentalHealth #InvisibleIllness

"I often find myself feeling #disconnected from #society, as if it is another dimension because I so rarely leave the house. And on flare days, I can feel like my magical practice is so far away from me & what I can do.": buff.ly/aJ8Jhdh by @ beverleybutterfly.bsky.social #ChronicPain #loneliness

"I drew this #comic to capture that specific “Sunday Morning” irony. The headphones symbolize the wall we try to build around our #suffering, and how easily a simple “Hi, Brian” can knock it down" (A Chance Meeting at #Infusion): buff.ly/hm9olRe by RealBrianKelley #human #cancer #ChronicIllness

" #JointAches — “It’s one of those little things that old people complain about. It’s only an #ache, not even a ‘real’ disease, how bad can it be?” That was before I developed #Lupus & #SjögrensDisease & learned just how wrong I could be.": buff.ly/IG85PhX #ChronicPain #arthritis #InvisibleIllness

"In a world that often feels unstable – emotionally, economically, environmentally – an #exercise #routine can feel like one of the few aspects of #life over which someone has complete #control.": buff.ly/g2eJgmf via @psyche.co #fitness #addiction #exercise #workout #HealthAndWellness

"When #empathy & patient-centered care are the norm, #patients suffer less, #doctors can focus on helping instead of fearing misinterpretation & the whole system feels more trustworthy. That’s not soft, but it’s smart #medicine.": buff.ly/C0itb0w via kevinmd #healthcare #PatientCare #medicine

"If I am struggling to go to the bathroom, sometimes I will hold onto my countertop & do some assisted #squats ..I am not necessarily trying to get some #exercise ..I just want a little bit of #movement to help me have a #BowelMovement.": buff.ly/cZlwhEY by sarahlynn358 #SpinaBifida #constipation

" #Inclusive #design should question your assumptions & that always leads to better experiences for all. What [Onvero] has shown us is that #inclusion isn’t a niche consideration, but really the standard we should all be working to.": buff.ly/k62KxGP via CreativeBloq #accessibility #designers

"When a #HumpbackWhale becomes stranded, it’s usually a sign of poor #health rather than poor navigation. Either way, the moment a #whale becomes caught on a #beach, the #survival clock starts ticking.": buff.ly/KbAG7Tz via @theconversation.com #AnimalWelfare #OceanLife #mammal #SeaCreatures

"It looks like a mini lab in the store room. #Housing agents have asked questions about my ‘mini #pharmacy’, for which I have no simple answer to. There’s more #medication in the kitchen of course": buff.ly/S68jx1S #ChronicIllness #InvisibleIllness #disability #awareness #ChronicallyIll #spoonies

"1 of the most challenging aspects of seeking #accommodations for #ChronicIllness is that many of the things u need can seem like luxuries to other people. Sitting in a desk chair causes..#pain..& can even make my joints #dislocate": buff.ly/AxawjkJ via TheMuse #disabled #ChronicPain #disability

“[My #doctor ] predicted in 2022 that I’d be a patient who needs #biologic swapping therapy every 6 months to a year and he has been right. This is why I’ve been through so many #medications.”: buff.ly/UWo3Wwn by @carriekellenberger.bsky.social #ChronicIllness #AutoimmuneDisease #AxSPA

"I presumed I was fine since I did not experience pain, & continued to eat, drink & play sports as usual until I developed multiple #DVTs & a #PulmonaryEmbolism that nearly cost me my life. It also activated #AutoimmuneDiseases." 🔗 www.achronicvoice.com/antiphosphol... #APS @achronicvoice.com

"Most people get a #BloodTest done only..for one-off cases. For people with #ChronicIllness, we need to get this done on a monthly, weekly or even daily basis. Some of the blood tests ordered are highly specific..which tend to cost more.": buff.ly/8X6veXX #healthcare #PersonalFinance #disability

" #DisabledPeople find ourselves working twice as hard to reach the same opportunities as non-#disabled people. We feel as tho we have to prove our worth in a world that tells us we don’t belong.": buff.ly/XK3wJXR by @myblurredworld.bsky.social #disability #belonging #ChronicIllness

"Then, I wasn’t #socializing at all. I wasn’t #working at all. I became #isolated. I lost my income & #independence. I lost my #ability to drive. I struggle to do stretches and walk fifteen minutes is my maximum. Max.": buff.ly/TaRz8vV by @chronicallynikki.bsky.social #ChronicPain

"Living with #ChronicIllness doesn’t just #change what your body can do. It reshapes how you relate to your internal signals. Over time, many people adapt by overriding themselves in order to function.": buff.ly/glwCvF9 #SelfAwareness #disabled #MentalHealth by @thethrivingspoonie.com

"Despite years of being aware of the monster in the closet, it still came as a #shock. What was in the recess of subconsciousness was now conscious. The monster was ready to wreak havoc & my only weapons were an array of toxic #medications.": buff.ly/CTmqyXs #ChronicPain #MentalHealth #NEisVoid

"Really recharge. It’s ok to have some #energy left at the end of the day! What’s more, by focusing on deep #restoration, you #support your #health and may reduce the amount of buffer time needed in the future.": buff.ly/VDJh1Ix by Health_Sessions #ChronicIllness #ChronicPain #pacing #SelfCare

" #Elders aren’t just people who hold #knowledge. They are part of #community : they are trusted because of their #relationships, their responsibilities, and their accountability over time. #AI can’t be in relationship in that way": buff.ly/Kz98Kb1 via @theconversation.com #humanity #indigenous

"the proj has 2 primary aims: evaluate current monitoring pracs to harmonize approaches & establish best pracs; & build a shared #data pipeline that aggregates info across collections so it can be accessed, shared & analyzed more easily.": buff.ly/xHI3buZ via @yale.edu #sustainability #Museums

"Our #hobbies are windows into our #passions & #personalities. What better way to help yr #child feel seen & accepted than to encourage them to pursue what lights up their brain? Mastery over a skill, as we know, also builds pride.": buff.ly/sZyqXkK via @additudemag.bsky.social #parenting #ADHD