Thank you @achronicvoice.com for sharing my blog post on the ways my #disability makes me feel unsafe in my own body and the anger that arises because of it. It’s very much appreciated! 🫶

Thank you so much @achronicvoice.com for sharing my post on how both #chronicpain and joy can coexist in life with chronic illness. I really appreciate it! 🫶

Living with a dynamic disability feels like being gaslit my own body. Every day, often every hour is a mystery to what version of myself will show up: the me whose body cooperates, or the who can’t trust her own legs. #ChronicallyIll #DynamicDisability #Disability #InvisibleIllness

Hi! I was wondering if there were any #artists or #disabledartists who could draw an illustration of me with my crutch to go alongside a quote for an image with a new blog post I’m writing? I would use a photo, but can’t get any nice pictures of me using it! #ArtistWanted

"My body..promises me a good day & then pulls the rug from under me without warning. Yet, people speak of ‘listening to your body’ as if it’s a wise inner compass. Mine no longer feels like a strong, #resilient #body.": buff.ly/EioKYD1 by @serenebutterfly.bsky.social #ChronicPain #NEisVoid #spoonie

Thank you @achronicvoice.com for sharing my personal essay on how living with a #disability has made me feel unsafe in my own body and the anger that has arisen because of it. I appreciate it! 🫶

"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me 🔗 Read it: www.brainlesionandme.com/reliving-hea... #Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen. This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show. What helps you feel seen, believed, or supported? 💙 #InvisibleNoMore

Sometimes I am not isolated I am just self-isolating for a reason. And that is some serious self-care for a day, two, a week or more. #selfcare

Thank you so much @achronicvoice.com for sharing my post on my travel experiences and how both joy and pain (and other symptoms) coexisted 🫶

"When battling through a severely debilitating #flare, it can feel like as though my physical and #mentalhealth are conspiring against me." www.brainlesionandme.com/chronic-illn... #ChronicIllness #ChronicPain #DepressionAwarenessMonth #MentalHealth #MentalHealthAwareness

“The decision whether to take a painkiller is a catch-22. Whether I choose to endure the pain or take a painkiller and face the side effects, it feels that I lose either way.” www.brainlesionandme.com/pain-or-pain... #ChronicIllness #ChronicPain #ChronicallyIll #ChronicLife

Thank you so much @achronicvoice.com for sharing my deeply personal essay on how I feel afraid and unable to trust my #disabled body and the #anger that comes from that 🫶

I remember reading #TheIllustratedMum many years ago! So it felt so nostalgic reading #PictureImperfect from #JacquelineWilson to revisit the characters from my childhood now as adults! Such a beautiful, sympathetic and tender depiction of #mentalillness.

It’s getting toward the end of the year - and that means the search for a new #diary for next year begins now! I really need one that has a pocket for documents - somewhere I can keep my hospital letters in so I don’t list them! Any recommendations? #Spoonie #ChronicIllness #ChronicLife

"saying yes to a marathon visit to bookstores..or a voyage..is a way of reclaiming some of the stolen #joy #illness snatches away. I do so despite knowing the heavy price to pay for these small snippets of #normality.": buff.ly/Puz81fs by @serenebutterfly.bsky.social #ChronicPain #ChronicIllness

Thank you @AChVoice for sharing my #blogpost on how I’ve learnt that joy can coexist alongside #chronicpain and #chronicillness! 🫶

"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly.bsky.social at My Brain Lesion and Me 🔗 Read it: www.brainlesionandme.com/reliving-hea... #Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

“It’s so much more than a holiday; it’s a reason. A reason to get through the next appointment, the next flare-up, the next moment of despair when the walls of my bedroom feel like they are closing in.” www.brainlesionandme.com/magic-of-hop... #ChronicIllness #ChronicallyIll #Hope #Travel

Chronic illness shrinks your world — #hope expands it. Here’s how a #cruise helped me remember #joy still exists. Read: www.brainlesionandme.com/magic-of-hop... #ChronicIllness #ChronicPain #ChronicallyIll #Disability #Travel #Cruising

The Magic of Hope In the Storm of Chronic Illness Living with chronic illness can feel like being trapped in an endless storm. In this deeply personal essay, I explore how hope — whether in the form of travel, small joys, or quiet moments — helps me find light in the darkest days.

Thank you @achronicvoice.com for sharing my latest blog post on the anger that often rears its ugly head from living inside my #disabled body and how I feel scared of my body 🫶

“For many, #reading is merely a hobby. But for those of us confined to bed, incapacitated by pain or from numerous other symptoms from #chronicillness, there are magic and power in those printed words.” www.brainlesionandme.com/the-magic-of... #ChronicallyIll #ChronicPain #InvisibleIllness #Books

"Having a ‘ #SelfCare box’ has really helped, especially on the days when I am unable to get out of bed..contains everything that comforts me, enabling me to cope better during times of #stress & suffering. - @serenebutterfly.bsky.social ": buff.ly/9PMmgy9 #ChronicPain #PainManagement #spoonie

Thank you @achronicvoice.com for sharing my #blogpost on my experience of #travel when living with #chronicillness and #disability and how pain and joy can coexist 🫶

It's Disability Pride Month! ♿ ✨ This July, we're celebrating disabled voices that embody a rich spectrum of lived experiences 📚 Discover cutting-edge memoirs, swashbuckling fantasy, ravishing romance, pioneering disability activism manifestos and much more 📖 🧚⚔️ 💏 buff.ly/zCwuaWc

"My #body moves in ways I can’t #control —or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/MWdkmQ9 by @serenebutterfly.bsky.social #ChronicIllness #FND #disability

Thank you @achronicvoice.com for sharing my latest blog post on the anger that often rears its ugly head from living inside my #disabled body and how I feel scared of my body 🫶

Another costly outgoing when you become #disabled which isn’t mentioned enough is the cost of postage and packing. Not being able to get out and about easily, I have no choice to have things delivered to the house. And now I have to send something back after…

"By accepting and embracing my #disability, I am by extension accepting and embracing myself." www.brainlesionandme.com/from-shame-t... #ChronicIllness #ChronicallyIll #Disability #DisabilityPride #DisabilityPrideMonth

For anyone looking for a book that has authentic and relatable #chronicillness and #disability representation then I thoroughly recommend #TheChemistryTest. I am almost half-way through and am loving it. So many of the situations/thoughts/comments are ones I too have experienced

“Because living with a #ChronicIllness is terrifyingly #unpredictable, it has no neat beginning, middle and end. Chronic illness offers no arc, no gratifying climax or satisfying resolution.":https://buff.ly/z8DhTNn by @serenebutterfly.bsky.social #ChronicPain #NEisvoid #disability

Thank you @achronicvoice.com for sharing my blog post on the #depression that often sadly rears its ugly head when living with #chronicillness and #disability

Disability benefits cuts will harm hundreds of thousands of people and cost some individuals almost £900 a month, MPs have warned.

What a phenomenon! And thank you DisneyPlus for sharing this with us. I would love to physically see the show, but cannot due to ill health and disability. But for nearly two hours tonight I was transported to Arendelle and forgot about #chronicillness for a while! Pure magic!🪄

"I shy away from using the D word: disability, as in, I'm on disability when asked what it is I do. Shame immediately set in whenever it has, as any self-worth I had disappeared into the abyss." www.brainlesionandme.com/im-on-benefi... #ChronicallyIll #Disability #Benefits #TakingThePIP

Thank you so much @achronicvoice.com for sharing my post on the f-word that rules your life when living with #chronicillness - #fatigue!

I might have finished this a couple of days ago, but it’s one I’m still thinking about. #ToExistAsIAm by @gracespencegreen.bsky.social is a powerful, life-affirming book and is a beautiful testament to the resilience and strength of the #disability community. Must-read book! #BooksWorthReading

Just took #books back to the #library. Only one of them I didn’t read, only realising after that I had already read it! Clearly, I’ve read so many books now that I can’t remember what I have and haven’t read! #BookLovers #BookWorm

"much of every day, I make #decisions explicitly designed to avoid physical #pain. I spend every day doing everything in my power to prevent triggering any of the #symptoms that make my life increasingly oppressive.": buff.ly/Pgr2X4V by @serenebutterfly.bsky.social‬ #ChronicPain #NEisVoid

Thank you @carriekellenberger.bsky.social for sharing on my post on the heartbreak of living with chronic illness. Much appreciated🫶

Thank you so much @achronicvoice.com for sharing my blog post on how chronic illness and joy coexisted while travelling! 🛳️

"“It has to be doing too much, whether it’s pushing too hard at the gym or doing too many chores..Doing so, only leads to increased pain & fatigue culminating in a massive flare.” - @serenebutterfly.bsky.social": buff.ly/LJTJ30i #ChronicPain #spoonies #ChronicIllness #ChronicFatigue #awareness

"Some of the best experiences and my happiest memories were not pain— or symptom-free." www.brainlesionandme.com/joy-existed-... #ChronicIllness #ChronicPain #ChronicallyIll #Disability #Disabled #ChronicTravels

"It is a grieving kind of fury - a longing for a body I will never have and the freedoms I've never fully known." www.brainlesionandme.com/disability-a... #ChronicIllness #ChronicallyIll #Disability #DisabledLife

“…wishing like Ariel that I could be part of the world outside of my prison” is one of my favourite #quote from any of my blog posts. I’ve always loved #TheLittleMermaid and always related to Ariel’s frustration and isolation especially since becoming #chronicallyill and #disabled

"My body moves in ways I can't control—or it refuses to move at all. It aches quietly, collapses without warning, and spasms for no reason. It hides things from me, keeps its secrets, and exposes me in the worst ways." www.brainlesionandme.com/disability-a... #ChronicIllness #Disability

"I shy away from using the D word: disability, as in, I'm on #disability when asked what it is I do. Shame immediately set in whenever it has, as any self-worth I had disappeared into the abyss." www.brainlesionandme.com/im-on-benefi... #ChronicallyIll #ChronicIllness #PIP #ChronicLife

Thank you @achronicvoice.com for sharing my blog post on the crippling #fatigue that is a constant reality when living with #chronicillness - the only f word for the #chronicallyill!

"A bitterness creeps in whenever I hear ‘You look fine’ or ‘Think positively.’ As if my #disability is a mere inconvenience, a temporary setback that I can snap out of with a #positive #attitude.": buff.ly/MWdkmQ9 by @serenebutterfly.bsky.social #ChronicIllness #awareness