A few midweek flowers for you, Bluesky 🙂

Does #MutualAid exist anymore? Crowdfunding stalled. Too sick to stay visible? People too broke? If you’re reading please share pinned post! Help if able. Room or granny flat? Board neg. Land for trailer/ cabin? LMK. Dying, Dr backed! #DisabilityMA 💕💸 #MADBoost 💸❤️ bsky.app/profile/halc...

#pwME there was a study in the past year or two showing the detrimental effects of psychologising physical illness. I can't find it anymore tho, does anybody have the link to the study?

For #MEAwarenessday I interviewed 8 men about their experience with ME. As far as I'm aware there's never been a film with just men talk about ME. Make sure to check out and please share!! #myalgicEman #pwme #millionsmissing #millionsmissing #severeME #MECFS youtube.com/watch?v=z_MC...

🧵🧵 A repository of selected ME/CFS and Long Covid documentaries & shorts. Plus some current affairs reports, art films and archival footage * Compiled over a few years from web searches * Apologies for any links that have broken #MECFS #LongCovid #GreatestMEdicalScandal #MillionsMissing #May12th

Two poems by James Strazza who died this week. He had been suffering with severe #ME since 2019. A rare and sensitive man. It’s incredibly sad that once again we are mourning one of our own. May those that have blocked research and psychologised ME feel the pain of their actions 💙

This has been a challenging crowdfunding for Berkeley's Trial by Error project on ME, ME/CFS, Long COVID, etc, but it seems like things are catching up in the final days. Now at 80% of the goal! Thanks to all!!! crowdfund.berkeley.edu/project/49720

Oooh nice!! Congrats to @davetuller1.bsky.social for being a finalist 👏 Last chance to support his Trial By Error reporting at UC Berkeley (3 days left): crowdfund.berkeley.edu/project/49720

Thanks!!! The campaign has now reached 72% of the goal. For those who'd like to support the project, here's the link: crowdfund.berkeley.edu/project/49720

A cute Beans n Bleb moment for Caturday. He's recovering well from his TNR surgery (a bit goopy in that left eye still) and turning out to be a real smoocher. We nose-booped today, which took reciprocal trust since last time he also bit me on the face, the little chaos gremlin! #Caturday #TNR

David Tuller is crowdfunding for his salary & expenses for period up until end of 2026, when he plans to retire. His work has played a major role in the ongoing shift in how ME/CFS is viewed, and Long COVID along with it. Contribute until 5 May. 58% of goal achieved so far tinyurl.com/5exx924e

Could we get this legend who fights for us paid for the last year before retirement, please!

‼️ BURIED ALIVE WITH M.E.‼️ For #MEAwarenessMonth I made a severe ME body‑bag “dance” film about death within the ME community. youtu.be/XhrAhGkrGuQ?... I also joined the online expo ME Kills by A Quiet Storm, which goes live on May 12th, 1/ #pwme #myalgicE #millionsmissing

Ah, here it is "a single bed in a share house with multiple tenants" in North-Eastern Adelaide www.sbs.com.au/news/article...

Guess what? It's #WaysideWednesday and here's the first episode of Wayside, an audio drama for the Covid Conscious community. I'll post episode 2 next Wednesday! youtu.be/MvcynQFPJRk

There was a great man called Dave Who was #pwME ‘s fave He stood up for them When they had PEM Please donate in memory of Maeve #GreatestMEdicalScandal #SevereME #MaeveInquest

Not up for a full research study? You can still make a big difference. One blood donation to the AusME Biobank can support up to 39 research studies into ME/CFS and long COVID. Low effort, high impact. Join here: zurl.co/JosYx

Berkeley's crowdfunder for Trial By Error has received 350 donations!! Thanks to all who have supported my work over the years. Here's the link for the current effort: crowdfund.berkeley.edu/project/49720

@angryhacademic.bsky.social slow release vitamin 🍊 dose 🐾😽🐾

Lift off! Everyone is LOVING the recent summery weather!!

1) This review on exercise for Long Covid now has a corrigendum, following a letter by David Tuller that points out multiple flaws.

Can you help provide Anna with: 1. $$ 2. A quiet room in a COVID-conscious (masking) home in Melbourne, Australia (can pay $250 per week) 3. Relocation assistance 4. Advocacy 5. Assistance with basic phone calls

Reminder: If you have diagnosed MCAS, or you think you have MCAS but it's not been diagnosed, please consider doing our survey 👇

Meet Gojan, the latest addition to our little #TNR colony. We got him out for desexing last weekend & he's doing well. #Caturday #LibraryCat

Self-appointed library Rodent Control Officer expanding her duties to stationery cabinet inspector 😻 Confirming that there were, in fact, no rodents (or treats) behind that drawer #LibraryCat #TNR #Caturday

Well, Berkeley's latest crowdfunding campaign for my Trial By Error has now launched: crowdfund.berkeley.edu/project/49720

Anyone in Melbourne able to help Anna find a safe room to move into?

Do you know any #Naarm #FDV #disability support people? Maybe there’s some on here? Sometimes they do work outside official employment, but I don’t know the right people. Regular people are welcome to help. This is the hardest one. Nobody in Melbourne wants to help. I can’t do this alone.

The Amazing Adventures of Tortoise & Gecko (Part 1) is complete! A tale of talking animals, pirates, empire, & buried texts, you can download a free copy here: theamazingadventuresof.tortoiseandgecko.au/p/e-books #tortoiseandgecko #sff #books #ebooks #booksky 🪐📚💙

WE MADE THE GOAL chuffed.org/project/1619... We will keep it open because Anna will certainly have more expenses relating to moving, health and generally setting up her life again after she finds a place NEXT STEP - need a room to move into and an advocate in Melbourne

Also PLEASE if anyone can help Anna out with a room or advocacy, making phone calla on her behalf to access services or any support in Melbourne please email her directly Halcionandon at gmail dot com

Thank you SO much for getting us 80% of the way there! Paypal is now an option for payment Anna's expecting 44 degrees in the heatwave today and has no aircon. Help her get out of there so she doesn't have to suffer through another heatwave or at the hands of her family again #MutualAidAustralia

I have an increase in headaches & nausea, and new sudden vomiting with POTS from longcovid. It’s not improving after stopping Mestinon. Anyone have recommendations for things I can ask my neuro’s NP next week?

$2,995 Raised of $5,000! chuffed.org/project/1619...

The link has non-financial ways to help if you can't give $ (Help would be easier given by people in Australia though)

#Urgent Appeal: Help Anna Escape #Abuse – Time is Running Out! @phonakins.com kindly helped make a Chuffed ♥️ Please help: 🔄SHARE, 💬 COMMENT, 📝QUOTE &💸 GIVE if you can. Share on all social media platforms. chuffed.org/project/1619... #SevereME #MutualAid #Disability #MECFS #ChronicIllness

I have helped Anna @halcionandon.bsky.social to set up a chuffed to raise funds the help her have a chance! Anna lives with severe ME and is abused and neglected by her family - Her doctor fears that staying in this environment will kill her Please share widely! chuffed.org/project/1619...

You might be thinking, "CPSC, does a dry Christmas tree really burn that much faster than a well-watered tree?" Friend, let's find out together by watching this PSA.

Huge thanks to @mikehoney.bsky.social for all the valuable COVID data he tracks. His work has become incredibly important for scientists and health professionals, and with so little data available now, it really matters for people who want to stay safe and informed. www.sbs.com.au/news/article...

A book from the 19th century that depicts the Rhine Valley by creating an impression of three-dimensionality and spatial distance. @MasayukiTsuda2 #globalmuseum #books #travel #19thcentury

Fire flowers on today's little walk #FlowerReport #Bloomscrolling

A fruity find! 🍎 This practical guide to fruit varieties, now known as The Tradescant’s Orchard, was made for gardeners, not as fine art. Later bound by Elias Ashmole, it joined Oxford with his collections and moved to the Bodleian in 1860. Shelfmark: MS. Ashmole 1461

Edinburgh University PhD 3 year funded fellowship. Closing date 16th January 2026: "Personalised blood-based biomarkers for ME/CFS symptom severity" www.findaphd.com/phds/project... Screenshot from Science for ME weekly update #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

This clip from 2018 perfectly captures just how passionate @davetuller1.bsky.social is and how shocked he was by the way the PACE trial was defended. His crowd funding has just 1 day to go and he’s ~$10k from his target. I’ve just donated again so he can carry on doing his important work

#MECFS pals— There’s a study going on to assess whether FUNCAP can be used to capture PEM in the moment, in addition to its original purpose to capture the average impact PEM has on you. You take their surveys twice, once during PEM and once after you recover. Sign up at the link below!

For several years, I have spent my time busting terrible and even fraudulent research into ME, ME/CFS, Long COVID, etc. If this crowdfunding works out, I will do one more in the spring and then retire from Berkeley. If you'd like to support my work, here's how: crowdfund.berkeley.edu/project/47768

❗Help us spread ME/CFS awareness❗ People living with #ME/CFS are severely ill, yet often don't receive welfare, specialised medical treatment and accessible education opportunities. Furthermore, sufficient awareness in the areas of politics, healthcare and research is lacking.

I recently wrote a reflective piece for the Polyphony blog @the-polyphony.bsky.social explaining the motivations behind my work on ME, and what I think a medical humanities approach has to offer this field - and health research more generally thepolyphony.org/2025/10/09/p...

Please Help David Tuller @davetuller1.bsky.social , Our Champion! crowdfund.berkeley.edu/project/47768 From the October 2025 AMMES Newsletter #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid

The curse of Myalgic Encephalomyelitis is that you can't rest. There is no recuperation, only the passage of time. Not just disability: A heaviness to the infirmity. The needed pause isn't an invigorating rest: It's a state of constant, leaden unrest. #LongCOVID Day 1121