Does anyone have recommendations for black N95 masks available from reliable suppliers? We've been using 3M Aura for years now, but have had a household request for a black option. #StillCoviding #N95Mask #NEIS

I’ve said a million times before that I thought I was a pretty radical person before I was disabled out of the workforce but disability is so much more radicalizing.

People who haven’t lived through what happens when you can no longer work in a world that requires you to work to be able to be alive have no idea that toll it takes. This last 6 years of disablement has really… carved me into something different than I was before.

Coachella is trying to wipe all of the footage of The Strokes protest set so I’m gonna post it here. The last images on the screen made me cry.

"Life During Wartime" lyrics seem far more prescient than we knew in the early 1980s. The last minute of this Coachella performance takes place against a backdrop of last summer's ICE raids and anti ICE protests/stand-offs with police in: Chicago, L.A., NYC, and Ventura County, CA.

Sending rejection letters when she was an editor, Toni Morrison emphasized, according to Melina Moe, readers needing “both drama and organization, the space and information to make discoveries themselves yet a clear enough path so as not to feel lost.” This is also a good approach to teaching.

getting sick and staying sick can be a great shock that reorders your place in the world to such an extent that it’s hard to explain to people who live outside the haze of sick time. falling through that door has meant arguing with language to communicate something we don’t have shared words for.

I would definitely

This is what friendship looks like @sheainthecatskills.com ❤️‍🔥❤️‍🔥❤️‍🔥 love you so much

the greatest thing you’ll ever learn is just to love and be loved in return

“There is a city nearby that we hide from view. Its people are of all ages, ethnicities & classes. What unites them is a disease: all are diagnosed w/ myalgic encephalomyelitis. We hide them there because we don’t know where else to put them. Like a plague village, we have no plans to treat them…”

My highest recommendation for this workshop. Fundamentally changed my relationship with vulnerability and time for the better.

so many people i know have been struggling since last week’s news, and i think this passage explains it well. very little in our lives materially changed; but, the lack of accountability requires recalibrating just how broken the system is and to live within this is to slowly hollow out

A staggering accomplishment and an excellent read. Truly honorable in heart, art, and craft. I haven't finished a book this quickly since getting sick years ago. Kudos and flowers and a deep bow of respect, @katecrane.bsky.social

The writing life, courtesy of Franz Kafka.

I don’t know why people want to feed their intimate thoughts into a language scraper conglomerator. It is so gross to me.

Blooms and birds and below the sssh of the sea.

Goosebumps all over from the preface. Diving in! @katecrane.bsky.social

In the event it's relevant to you, my church, Montclair Presbyterian in Oakland, is an official Peace Church. Young people who are members can file an official statement of belief to qualify as consciousness objectors.

Just a reminder: The fascism and the murder states and the oligarchs and the liars and the tech-bro's and the LLM's and the White South Africans and the threat of nuclear war and mayhem Is a psychological emotional energetic DRAIN I'm just saying it takes a lot to protect your heart through this

and hearts shatter. And hearts reanimate. And we all fear death unless it comes as respite for suffering and sometimes we have to decide who we mean to be to each other. offer each other whatever graces we can. accept graces offered from other people too

today is launch day for my debut, an investigative memoir of my dad’s 1987 murder. 18 years of work. I am happy with the book

People who haven't suffered don't get that laughter eases suffering.

Thank you @ninahatfield.bsky.social! Here’s mine! Released April 21st www.haymarketbooks.org/books/2622-s...

God this poem is haunting me again.

Muriel Rukeyser, always but especially today. Full text at www.poetryfoundation.org/poems/47657/...

So I need to stop a panic attack, then call my reps to beg someone to stop him, then do my job answering emails and collecting data. Do I have that right?

This hits a bit hard today, as I have been reflecting on all of the things I have "put off until I have the energy" which may never come.

If you get self-conscious about posting repeated promo, let me give you all my long-standing promo-hack, for free. (I'm not currently using it, but I will be soon! lol) This is a site without an algo, but also one that does not punish links. So what you want to do is make a strategic thread.

and also please request + borrow from your library, because libraries are wonderful and glorious

“Cognitive surrender” is the archetypal theme of the era. To normalization To misinformation and psyops and propaganda campaigns To forced dependency on LLMs To lies and wishes. How stubborn are you? How long can you hold out when people you love surrender all around you?

I may start calling how slowly and poorly I communicate in intracranial hypertension Chiari flares “stroke brain” As 1) I could be stroking, we may discover later 2) I’m tired of people thinking I’m drunk, unintelligent or belligerent 3) they may finally look up my conditions

Can you read English cursive? Ever wanted to volunteer from the comfort of home for a useful cause? Have I got an offer for you... The Newberry Library in Chicago is always in need of transcribers to help decipher historical handwritten documents. If this is you, learn more about it below:

My cold and well considered take on generative text AI: I don’t want to take the time to read what nobody took the time to write

Next drop in Gathered Meeting is 4/19 You can join us to observe this low-conflict community group model, sign up to practice facilitating if you wish, or download a free pdf of these non-proprietary norms and practices to edit and tailor for your own purposes all free.

i don't really have the wherewithal or capacity to start a new thing right now but i would love to be part of a club or cohort for journalists who can't fucking stand AI and never use it in either their personal or professional lives because it's a horrible scourge that's ruining everything

A great article in English from 2024 on Post Exertional Malaise (PEM) from ScienceNorway. #ME/CFS #LongCOVID www.sciencenorway.no/me/victoria-...

yeah i separate art from the artist. i put the harry potter books in the recycling and jk rowling in the trash.

"Many disabled people in media, myself included, owe a debt of thanks to Alice, whether she helped us personally or indirectly by fundamentally reshaping the culture around us." Very much agree with these words by @sesmith.lol on Alice Wong. disabilityvisibilityproject.com/celebration-...

Also, @viralpersistence.bsky.social via @iaccsky-updates.bsky.social went above and beyond creating terrific feeds for LC and other IACCs, because people said they couldn’t find the chronic illness content they wanted. For me at least those feeds work beautifully so I don’t know what the issue is.

I know it's been a while since I've posted on here. The needs of my body always come first. I hope this post allows folks with ME to feel seen in some of their fears and insight to those who don't understand. #pwME #ME/CFS

DANGEROUS NONSENSE Hey world, accuracy matters! Something that has the general appearance of being a thing is not the same as actual information!

Come for the amazing visuals. Stay for the Ned Flanders-level swearing.😂

Capitalism at this stage requires blatant theft of our resources and widespread oppression to keep the project rolling. What we have seen with the War on Terror around the world is now being prepared here stateside, creating an environment with a stark divide between the wealthy and everyone else.

In the process of stealing our resources, the wealthy have created a series of governmental crises that will then be "solved" by dispatching groups like ICE that are funded by the resources they've stolen. They're there to oppress us so that the next level of resource theft can continue on.

Your regular reminder: It’s not vaccines vs masks It’s vaccines AND masks AND clean air AND tests AND more

also... they dont care about due process and disappear people constantly? you want to check in for a flight and be kidnapped to a concentration camp or a different goddamn country? in shackles?

A reminder that we are still sending whistles to anyone who wants them! linktr.ee/3Dwhistles

I wonder if travel insurance will cover a cancellation for terrorist-state-agents-are-occupying-the-airports.

The next season of co-resting starts in early April and there is currently space open in all three cohorts. www.co-resting.org #rest #ME/CFS #MECFS #PWME #LongCovid #NEISvoid #community