I feel especially grateful for how warmly Alice welcomed chronically ill people into the broader disability community. 1/ #NEISvoid

If no one in your timeline is grieving the loss of Alice Wong today then you’re not hearing from enough disabled people or even people who listen to disabled people. That’s a massive segment of society to which you will likely belong some day. Might want to turn an ear toward them sooner than later

🔥”Defend slowness when it serves a purpose, silence when it speaks and difference when evocative.”

This was very popular a few months ago so I thought I would repost it #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

It is positively dumbfounding to me that literally ANYONE still has Alexa in their homes, neverminded that they're lining up to buy literal surveillance sunglasses

Last night about a dozen of us at NWSA gathered in Alice’s memory & it was good to be in community—to remember her as the sassy perverted bad bitch she was. Seeing the many posts about her makes her death all too real, but seeing how loved, respected & valued she was by so many has helped my heart.

I hope Alice’s memory is never sanitized. She supported free Palestine. She believed in deep pleasure for disabled people, sexual, aesthetic & otherwise. She was unflinching in calling out people’s bullshit. Don’t let the mainstream turn her into some desexualized defanged inspiration porn!!!

Here is an obituary for Alice Wong from The Sick Times, a publication aligned with disability rights and disability activism, if you are looking for an alternative to reading the nyt one: thesicktimes.org/2025/11/15/a...

May her memory be for a revolution. May it deepen our commitments. May her example sharpen our politics. May her life remind us that disability justice is a practice of transforming the world through collective care, accountability, creativity, defiance and imagination.

Alice Wong’s legacy is the political horizon she helped articulate. A horizon where disabled knowledge is central, and care is a shared commitment. She taught us to name grief & rage without collapsing under them, to celebrate disabled brilliance without ignoring the material conditions shaping life

Alice moved through the world with a kind of political generosity that made people bolder. She noticed people. She uplifted new voices. She reached out with intention. She gave disabled folks permission to be angry, joyful, complicated, imaginative—to exist beyond the flattened roles we’re assigned.

Alice Wong was one of the most effective people challenging the Whiteness of disability communities and its many flaws, but who believed fiercely in us as a community, in disabled people as oracles. Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.

Remember: "Don't let the bastards grind you down!"

"I insist on resisting with joy and finding pleasure where I can such as with my friends and two cats, Bert and Ernie. Yes, life is a complete dumpster fire, but I am reminded that I am not alone, that I am in this with many others." — Alice Wong, January 2025: www.theguardian.com/society/2025...

Respect Alice Wong’s call here: “When I am in public spaces and see most people unmasked either because they think the virus is a hoax, that masking is virtue signaling & a sign of weakness, aren't thinking about it, or that they simply don’t care, I feel like an expendable burden not worth saving.”

If you want to learn more about Alice Wong and her work, you can find many links on her profile, @sfdirewolf.bsky.social, or check out disabilityvisibilityproject.com, or her Wikipedia page. Your library may also have her books, including audio/ebook editions (@multcolib.bsky.social does).

In the last chapter of Alice’s memoir, “Year of the Tiger,” she wrote her own future obituary. The wonderful “oracle, storyteller, cyborg, trouble-maker, activist, night owl” we loved so much closed it with: “Enjoy all of Alice’s good shit, and may you create some good shit as well.”

Glad I got to become disabled in a world that already had Alice Wong @sfdirewolf.bsky.social in it. I learned so much from her incredible writing & activism. May her memory be a blessing, & may we all continue her work. Easiest way to do it? WEAR A MASK. Protect yourself & the vulnerable around you.

Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated

It was an honor to be alive and advocating for disability rights at the same time as Alice Wong. A titan who beckoned us all to use our voices and be brave

‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’ —Alice Wong

Rest in power, Alice Wong.

"I'm honored to be your ancestor" - Alice Wong Thank you, Alice.

OK, I am now understanding why the rich ruling class wants generative AI to write their emails for them.

I didn't take a photo, but my bag tonight (from Wenzels) - 3 x meal-sized sandwiches, 3 x fancy donuts, 1 x pack of 4 jam donuts. For £4.

Yes, everyone who is fighting fascism needs to be united in fighting fascism. But the need to be united to fight fascism is the opposite of being united with people folding to fascism.

The value of reading history is you know that in 1860 there were abolitionists who were so demoralized that they thought chattel slavery would be permanent. 5 years later those still alive had lived to see its end.

Can someone please tell me how they got a script for a wheelchair?? I’ve been begging my pcp and have had no eval for mobility aides since I’ve been sick! What do I ask for

Bluesky suspended Sarah Kendzior today for no reason whatsoever. She just shared excerpts of her articles, which were as always incisive and not offensive at all. Hey @pfrazee.com this is super not OK. I know her- we've interacted a fair bit via chats and her work is essential.

I truly believe among those who dive into learning there are two general types: the Doers and the Thinkers. Doers approach knowledge as either a lever to achieve things or a new fulcrum through which levers can be applied. Thinkers simply want to know, disinterested in what it is "for" altogether.

A lot of Thinkers spend their lives being told they're approaching things wrong for not spending their spare moments finding something to apply their knowledge to. A lot of Doers battle a sense of inadequacy as scholars because they're repeatedly told the knowledge alone should be enough for them.

I tell younger folks all the time: Do not worry about losing the respect or presence of people who can't or won't accept you doing things that bring you joy. The only relationship you are guaranteed will last until you die is the one you have with yourself. Don't let yourself down.

"Prominently platforming a vibes-based argument that the excess of power unreasonably wielded by women has warped the nation’s institutions and should prompt a reconsideration of their civil rights, while their civil rights are being stripped away, is indefensible."

I loved this conversation with Andi, and tried to get at something important that I think has been lost: feminism is a discrete ideology, and has a more specific meaning than “anything any woman ever says about gender.”

We're extremely dishonest about the realities of aging in this country. The older I get, the more this becomes apparent to me.

if you are food insecure for both the humans and pets in your household there is a tool called Pet Help Finder that can help locate pet food banks nearby and other free or reduced price assistance and supplies for pets. no one, ABSOLUTELY NO ONE, should have to give up their pet bc of this.

One of my friends who is visiting lives in Albany Park in Chicago and listening to her talk about what’s been going on and watching her cry and feel helpless… She was a union organizer. She’s used to organizing in less than ideal conditions. She’s not brand new. She’s horrified and traumatized.

I’m in Evanston, IL & we all just look haunted. They stole a city worker yesterday who was trying to remove a giant fallen branch off my friend’s yard.

My sister and brother in law live in Rogers Park and the community is trying to resist ICE by using whistles to warn folks if they spot agents. They said it's haunting hearing a whistle outside and knowing someone is likely about to be abducted

Anyway, AI doesn’t have any value for me in anything I do. I understand this says something about *what* I do. But also? It’s only practically existed for maybe 18 months. I loved and worked almost 45 years without it so yeah, I’m cool.

A cool Interesting Times topic would be "We Put Ross Douthat Into One of Those Drive-Thru Tubes at the Bank, and this is the Sound it Made When We Pushed the Button"

Which women exactly have a "choice" NOT to work?

my current needs are: $100 to get home and for food $710 for rent $95 for utilities (my roommates were covering for me for a while, but they really can't do it anymore- i hate that i put them in that position 💔) $430 (literally the final stretch) to pay for radiation therapy) that's $1335 🥹

This reminds me: A few CBP agents were recently overheard complaining about how much they *hate* the whistles. Apparently, in addition to the obvious, the racket makes it harder for them to communicate with each other.

People often push the disabled to take risks with our health. They think if it’s already “that bad” who cares if it gets worse We care. Our baselines mean everything to us. Whatever limited function we have left is always worth protecting. You don’t get it until you get it.

Spreading the word in case this is new info.

It’s almost like if people tell you that to win you have to turn your back on poor people, or Muslims, or trans people, or immigrants, you can just say, “no, that’s immoral, we’re not doing that,” and keep doing good old fashioned organizing and campaigning and things will be ok

As racist responses to Mamdani's win emerge on social platforms, consider not sharing the actual posts. Our Muslim siblings don't need to see that bullshit every time they scroll, & we can just call out the people saying those things as racist fools, & stay focused on our joy over his win 🥰

He has declared war on Trump and made people excited about being New Yorkers. I’m already proud to live here and my god, that was the best NYC pride, don’t fuck with us speech I’ve heard in my lifetime

CRANK IT UP!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! www.youtube.com/watch?v=VwcK...