My alma-mater dropped this today. This is from THE bartonella guy, not a MECFS guy. I plan to read this and report back shortly. @tomkindlon.bsky.social —putting this one on your radar in case you missed it.

Kristi Noem is also a bird-legged hoe.

Long Covid - a thread. So, living with long covid isn’t great. I’m a relatively mild case and I’m managing it reasonably well with pacing but ‘managing with pacing’ still means a huge impact on life. 1/9

My child, on turning 13: “This means I have to take off my shoes at the airport, doesn’t it?”

Such a good point that I had never actually thought through before. Why are the patients being the one targeted over Medicaid fraud? We can’t even really do it!

I wrote a thing!

RFK Jr. is launching a government registry to track autistic Americans using private medical records.

It doesn’t matter. It’s inside the insurance cos, and Medicare/Medicaid, VA Medical patient data is all either already accessible or at risk via DOGE. And the EO for data sharing between gov’t orgs. They’ll use AI to also parse school records, social media, etc www.hipaajournal.com/sen-warren-s...

Hope this helps.

I enjoyed that the Ratliff family set sail without a clear plot resolution. Keeps things open for them to lose everything and retreat to the small town they own in Canada, perhaps? White Lotus, meet Schitt’s Creek.

Hear me out. An HBO mockumentary reality tv series called The Ratliffs that follows the disgraced North Carolina family on their road to redemption. #thewhitelotus

When I look at this I think, “yup, severe MECFS is exactly where I am.”

Just popping in to remind you that your weird friend is still weird. Just paid $24.99 to watch the LGT World Women’s Curling Championship on my personal television. Hope you are also able to carpe diem your Saturday afternoon!

I went outside at 3am to see the lunar eclipse so you didn’t have to. The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort. Nature: 10/10

I went outside at 3am to see the lunar eclipse so you didn’t have to. The moon was normal sized and slightly red, but nothing extremely out of the ordinary. The streetlights were trying their best to outshine the moon and failed, but made a good effort. Nature: 10/10

I love The Diplomat, but it surprises me how often they talk about clothing, choose clothing for each other, or change clothes in front of each other. Those involved in diplomacy, when you get a minute, is this a thing? 😂

ok i admit it's important to keep your vitamins in a pill organizer that looks very different from the one you keep your dog's pills in, but at least i'm not getting worms this week

Every time I read a story like this I recommit to be louder and more defiant.

I fight through my tears everyday to keep you updated on Social Security & dismantling of major health care programs. I want you to know there are MILLIONS of grassroots people working on this. The judicial cases DO matter. We must live in hope NOT fear. As someone on SSDI, I get it. NEVER GIVE UP!

I hope you are right about “no chance of passing.” You are the only one I would trust to say that BTW.

Disability sky: What mobility devices do you use that benefit you?

Having Democratic wardrobes collectively reflect the same wavelength of light is the sort of strong leadership we are looking for in times like these. 🤦🏻‍♀️ For fuck sake.

NEW: Senator Marshall (R-KS) RUNS AWAY, fleeing his own town hall after being asked about DOGE firing Veterans. MAKE HIM GO VIRAL.

Sent this out to 3000k folks on Substack this morning. It includes public health updates about seasonal flu, H5N1 flu, TB, measles, and a few virus rumors flying around as well as Medicare, Medicaid, USAID. Lots of drama llamas out there sharing misinformation so I want to clear things up.

Didn’t love what I’ve been seeing in the news about the H5N1 avian flu. It’s not all bad but I’m a little uneasy. Here is an update from me, your friendly neighborhood microbiologist. Just what you need to know with an easy to skim format and all my sources!

The wages of the richest 1% have skyrocketed 182% since 1979.  Meanwhile, the wages of the bottom 90% have seen just 44% growth.  Trickle down economics was always a hoax.

Researchers have identified a nanobody that effectively neutralizes all tested Omicron subvariants, SARS-CoV-1, & pangolin coronavirus. This has potential as an intranasal prophylactic & could help with development of a universal vaccine against current & future sub-viruses. -Ruth Ann Crystal, MD

Congress approved an extension in late December. The current administration could do the same, if they choose to. 100% fixable. In fact Trump has done it before. But I’ll make sure not to blame Trump because ::checks notes:: Peter Anderson really doesn’t want me to.

@matthewcort.land I have been trying to figure out why this isn’t news either. It’s been something I’ve been aware of since the new 2025 Medicare manual was mailed to me. No one is talking about it and I’m worried it will slip through the radar:

Video snippet courtesy of Belfast legend David Holmes on Instagram...

Kennedy Center ticket sales dropped roughly 50 percent week-over-week after Trump announced his takeover www.washingtonpost.com/entertainmen...

Here’s an update on my convo with Medicare today. Buckle up. If you are on disability, this is REALLY important.

A new study found that 78% of U.S. physicians see Long COVID as a public health issue, but only 7% feel very confident diagnosing it. This highlights the urgent need for better training and research so doctors can better support patients, especially children and families navigating Long COVID.

How many of you are #disabled and use #medicare? It looks like Medicare is going to end most #telehealth on March 31, 2025. None of my doctors are aware and based on my phone call today (details coming), they are clueless. Anyone have info?

How you guys holding up today? Like really really?

Nothing makes you want to do dishes more than NOT BEING ABLE TO DO DISHES. #mecfs #disability

Does he know that illegal immigrants can’t vote or am I making the mistake of applying logic again?

@whitneydafoe.bsky.social is able to eat again after 11 years! Fellow ME/CFS folks, this is a big deal. How wonderful to see improvement in quality of life in one of our own! Happy Monday!

“My name is all the way Ray May. I don’t do nothing halfway.” Eddie Murphy got me good on SNL. 😂😂😂

White Lotus is a prize an actor wins. If you do enough good character parts that highbrow critics like you but regular tv watchers don’t know who you are, Mike White takes you on vacation

If that montage of SNL's best commercial parodies made you want to watch the longer versions, have I got a list for you...

Here is your latest flu update. Here’s what you need to know from the news.

The Usher halftime show came and went... Rih announced a pregnancy during hers and it lasted one business day... We on Day 5 of heated discussion abt Kendrick's halftime show. 5. Whole. Days. And. Counting. ...but I'm supposed to believe it was trash.