Unbelievable I will never forgive the people who voted for this idiotic and corrupt administration. www.nytimes.com/2026/04/01/h...

This "review" was led by Simon Wessely, who spent decades denying that ME was a real illness, leaving sick patients to rot in their beds. Since covid the number of ME patients has skyrocketed and so now he's moved on to destroying health care access for trans people and people with ADHD and autism.

- Long COVID’s disability burden rivals that of Alzheimer’s and asthma.

had a relapse this month so now i'm back to lying in a dark room. years of slow improvement erased overnight for no discernible reason. the cruelty of this illness is beyond the imagination of most people, including doctors. i am so, so sad. #longcovid

current mood

big metaphor vibes

BREAKING: VIPER Diagnostics Program Launches as First Phase of PolyBio Long COVID Cure Initiative Program will validate diagnostic tests for SARS-CoV-2 persistence and other drivers of Long COVID, providing a path to targeted treatments.

A mass public education campaign on long Covid is needed. This can't be on our backs anymore. People need to know it is still happening & reinfections increase risk. Info is needed to help friends, family, schools, employers, HCW understand LC, destigmatize masks & prevent infections

The Covid-19 pandemic’s early death toll was much higher than the official US count, according to a new study that spotlights dramatic disparities in the uncounted deaths. https://cnn.it/3NtbZYM

A country’s budget reveals its priorities, and we aren’t one of them.

Advanced brain imaging shows widespread white-matter neuroinflammation in ME/CFS, with tissue swelling, immune cell infiltration & nerve fiber reorganization across key brain pathways correlated with greater disability, even when standard MRIs look normal. onlinelibrary.wiley.com/doi/full/10....

A judge has blocked vaccine policy revisions made by RFK Jr.'s hand-picked, "unqualified" ACIP members. From the decision: "It would be quite strange for Congress...to authorize the Secretary to “assist” states by encouraging the spread of communicable diseases." 🔥

I’d really like to become a little less aware. I find myself not really having much to say today. #LongCovidAwarenessDay. Six years in, it feels like we’re still having to repeat the same things over and over, with little tangible change in day to day to life for most of us. 🧵

“You’re not just becoming disabled,” said Elle Seibert, 31, who has dealt with debilitating fatigue and cardiac symptoms since 2020. “You’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.” www.latimes.com/science/stor...

i have so many ideas for art projects but i can't sit upright long enough to do them 😢 #longcovid

When I ask people to mask it’s not out of a virtuous superiority or even an ethical code. It is because I am in the depths of this hellhole, and I am *screaming* at you not to come down here, and definitely not to shove anyone else in.

J Craig Venter Institute and Mount Sinai, 13 participants, found SARS-CoV-2 spike lingering in gut biopsies was linked to a local immune imbalance in Long COVID, strongest in the colon. www.biorxiv.org/content/10.6...

you know that feeling when you sit funny and your foot falls asleep? long covid feels like that but it's your whole body, including your brain, and no amount of movement will get the blood flow back

We live in a society where the response to a mass disabling event was a massive shrug and renewed interest in the r word. Betrayed isn’t actually too strong a word.

If i had not experienced long covid I'm not sure i would have believed it. what do you mean you can't sit upright for more than 20 minutes? What do you mean you've lost the ability to read? What do you mean you hyperventilate after walking to the mailbox? What do you mean you're bedridden?

good riddance to this twice-fired loser

once you get diagnosed with anything that has the word "syndrome" in it your quality of life is about to drop dramatically

This is the world that RFK Jr dreamed of—now that he runs the US health system he’s able to achieve his dreams each & every day, aided & abetted by Drs Bhattacharya, Makary, Høeg, Kulldorff, Prasad & Oz We can’t rebuild the devastation until all 7 of these federal health agency leaders are gone

Spent all night on the bathroom floor being sick and anyway i think God should be in jail

$170B in lost wages and we're still calling this a "health story." It's a labor story. A productivity-obsessed economy that spent 2021-2023 telling sick people to push through created a disability crisis it now has zero infrastructure to absorb.

Rates of death and disability from any virus are irrelevant if they are preventable. Any debate about percentages that does not first accept the need to prevent are just debates about how many people to allow to die and suffer so existing societal norms can remain mostly undisturbed.

Bloomberg: How Covid Quietly Rewires the Brain Researchers keep discovering more about the long-term neurological effects of SARS-CoV-2. By Jason Gale www.bloomberg.com/news/feature...

They think mass death is funny because they hate you

And it is hard being a person with Long Covid because we are a constant reminder of this failure. We make everyone uncomfortable just by existing and by still being sick. Our abandonment by (most) medical professionals and by the government is part of this memory-holing.

when you have only so much cognitive energy to expend, you don’t necessarily want to spend it explaining your new chronic illness to someone who maintains covid is over

Its easy to resolve that the complete consolidation of all HHS jobs around the same 5-6 people is more insular-ideology-by-convenience... because there is no one else willing to be part of this insanity.

Crucial paper published Friday that deserves much more attention in the #LongCOVID world: www.nature.com/articles/s41... TLDR: 13/15 immunocompromised patients who had chronic COVID infections (>200 days) cleared the virus in under 2 weeks when given combo antivirals/monoclonals 1/

It's easy to be concerned about vaccines when you stop being concerned about viruses. You can only stop being concerned about viruses in a world with vaccines.

The firestorm continues 😔. There are so many reports of EBV being a trigger for #ME & studies showing viral reactivation being part of the picture for #IACC - a sad day for science.

“Patients are just happy to be believed.” NO. That talking point accomplishes nothing but soothing healthy people into thinking somehow any of this is okay. The care is beyond inadequate. I have never needed someone to confirm my own lived experiences. I need medical treatment. #MECFS #LongCovid

This man is the head of Health and Human Services

The people in the Covid-conscious community knew that Prasad was a crook as soon as he compared Covid mitigation measures to the Nazi regime. He was promoted because of his minimization of Covid. Meanwhile the doctors who followed the science are unknown by the general public.

I personally think it's bad that every friend I have in a marginalized group is up-to-the-minute informed on which criminals belong to his, her, or their intersection and can accurately and immediately predict the ways the association will be used to harm them

This is exactly in his character. He's a trained oncologist who mocked people for masking for funsies. You know, a field that is generally more alarmed by patients getting infectious diseases.

Life comes at you fast, New York Post edition. Propaganda does not alter the behavior of a virus.

watching the Olympics, the announcers casually mention that a gold medalist had to take a year off from skiing because of "covid complications." there are so many of us affected. it's a global problem no one wants to address. she was lucky to bounce back.

Documents show RFK Jr lied to Congress about his agenda in Samoa—he did indeed go to spread anti-scientific doubts about vaccines. He was ultimately successful in getting an outbreak going there that killed 83 people, mostly babies and young children.

Like so many said from the start, because this is not new, but the defining feature of this era is to never listen to people who predict things accurately, and instead promote the people who got it completely wrong, and health care is no different at that.

Oh look, Podcast Jay lied to Senate. www.medpagetoday.com/publichealth...

Shared this on insta & will share here too. If you’re not in the ME or Long Covid communities you’re likely unaware of just how often we have to watch young people die.

TIL that Jay Bhattacharya - prominent COVID skeptic (co-author of the Great Barrington Declaration) and newly appointed director of the National Institutes of Health (NIH) - is "a good friend" of Peter Thiel from back in his Stanford University days. Thiel's tendrils are everywhere!

'measles outbreak at the child prison' seems entirely avoidable, it's really the kind of thing that only happens if you do several unthinkably evil things on purpose all at once

“The new evidence that reinfections can trigger or worsen this chronic condition [in children] suggests that the societal burden is set to grow. With no therapy currently available, the number of children living with a chronic and often debilitating illness will continue to rise.”

long covid has left me bedridden/housebound for 5 years. some of us did not come out of it and are living a posthumous existence.