Our client, supported by #JusticeforME, is crowdfunding for legal advice with the aim of ensuring that specialist health services needed by everyone living with ME/cfs are made available – find out more here: www.crowdjustice.com/case/justice... #MyalgicEncephalomyelitis @swastrosarah.bsky.social

A BBC podcast titled "Access All: Disability News & Mental Health" asks if the DNA of people with ME is different. They interview Prof Chris Ponting @cgatist.bsky.social & participant Laura Boyles about the DecodeME study. Starts at 22.12 minutes www.bbc.com/audio/play/p... #MEcfs #PwME #CFS

🧵 "ME/CFS: The mysterious illness trapping people in their bodies" Journalist Zoe Madden-Smith from Re: News @1newsnz.nzcow.com in New Zealand looks into the controversy about ME/CFS in a short but informative documentary youtu.be/DsOAq6cs564 #ChronicFatigueSyndrome #MEcfs #CFS #PwME 1/

2. We’ve also discovered that there was a very high representation of suspected domestic abusers among those rioting against asylum seekers last year. A small number of truly horrible men are responsible for all kinds of misery. www.theguardian.com/society/2025...

Link to donate for LEGAL ACTION : #pwME - Currently at £4754 11:15 31/08/2025 crowdjustice.com/case/justice... #Justice #JusticeForME #MyalgicEncephalomyelitis PLEASE SHARE IF YOU CARE! (If you haven’t already) Thank you 💙

⏳Final week to sign up to the Green Party. 🗳️ Vote for Bold Leadership on August 1st.

It's time for a new kind of political party - one that belongs to you. Sign up at yourparty.uk.

June 30 + 10… and with still no sign of the ME Delivery Plan, last Thursday I again asked the Leader of the House, @LucyMPowell, if she could help bring an end to the delay which is so disrespectful for #pwME. I’m grateful for her acknowledgement and commitment to follow up. 👍🏾

Today we’ve got a visibility themed update, in honour of our @oonaghcousins.bsky.social new job. Read today’s #ThereForME update to find out how many times we can fit the word “visible” into a blog. Link in next post 👇

We’ve been so moved seeing the #FundThePlan videos over the past few weeks. Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign. We’d love your help making some noise with it 🙏

Another petty counterproductive move from Starmer. Punishing MPs who stood against a widely unpopular policy won’t endear him to the public or improve discipline in the party. It just makes him look like he hasn’t learnt a thing - morally or practically - from the disability cuts. Because he hasn’t.

Carers need more help, govt will be told as @resfoundation shows how little they get bit.ly/3GF0cDl Before being forced to change, the govt planned to take carers allowance away from 50,000 through changes to PIP. They are paid a pittance for £184bn worth of care

More than three-quarters of children’s doctors say poverty-related illness has increased over the last two years, as they warned of an “unbearable level” of hardship among kids.

⚠️ Irrationality and Authoritarianism: George Monbiot rightly said: > "Irrationality is a defining feature of authoritarianism. Those accustomed to irrational thinking not only commit brutality, but also begin to justify it as rational. "

Speak out for Disabled people? Keir Starmer will suspend you. Labour once again showing where their values lie. Join.greenparty.org.uk

Starmer suspends Labour MPs for challenging disability benefit cuts. Others targeted with petty sanctions. These people ought to be celebrated for forcing Starmer to develop better policies. Silencing of critics results in poorer policies.

I've read many condemnations of Keir Starmer, but none as damning as this.

I've received a number of enquiries about the decision to remove me as a trade envoy. I particularly want to thank the UK-Ghanaian diaspora for all their support in the role, which, like their jollof, is unmatched. My statement on the issue 👇🏾

I want to take this opportunity to thank everyone who has sent their solidarity in light of yesterday’s news of having the Labour whip temporarily suspended. Your support is incredible and it is the honour of my life to serve as the MP for Alloa & Grangemouth ❤️✊

how many days since he announced he was going to listen more to mps?

🚨 A statement: Over the past year James O’Brien & others have made claims about my departure from LBC. I’m restricted in what I can share with you but hope the statement below will draw a line under the matter. My focus is on moving forward. I am grateful for your continued support, Sangita

Closure of Columbia's ME/CFS Research Center will slow understanding of this terrible disease & progress towards effective therapies. This decision disproportionately affects women & some of the most vulnerable in society. It would've been a privilege to work alongside Ian Lipkin. #pwME #ME #CFS

Trump administration has terminated funding for the Center for Solutions for ME/CFS at Columbia University—one of the nation’s leading research centers for ME/CFS, led by Dr. Ian Lipkin. #MEAction plans to fight back!

Saskia Boelsums is a Dutch visual artist who turns landscape photography into pure visual poetry. Her images evoke the softness and depth of impressionist paintings, though they are captured with a camera. With a refined aesthetic and masterful digital editing, Boelsums creates ✒️

Does anybody else think that Rachel Reeves needs psychiatric help?

I feel physically ill. I just can’t cope with anymore. Rachel Reeves and Labour - you are an absolute disgrace. I can’t support my son alone when his disability benefits are pulled from him. #SpringStatement #Reeves #Labour

As Rachel Reeves follows the deathly neoliberal script to the letter, here is our latest video, explaining the dire state of this government and demanding better. Please do watch.

Reeves said PIP is "a waste of their potential and a waste of their futures.” PIP is a measure that keeps more disabled people IN WORK, without it many will drop out of the workforce. This REDUCES the economic activity the country needs. Reeves is lying by pretending it's somehow the opposite.

GCSE economics lesson for Rachel Reeves via @pileusmedia.bsky.social

Have you signed this petition yet? petition.parliament.uk/petitions/70... #SafeAir4All @shh-uk.bsky.social

@ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social @wesstreeting-mp.bsky.social @thereforme.bsky.social #FundThePlan #ThereForME

“It’s time they stopped being a drain on our society, with their ‘reasonable adjustments’ and ‘payments that give them some independence to engage with society’, and instead started being chased through the streets by me and my big net.”

UK billionaires added £182,000,000,000 to their wealth last year. That’s £35,000,000 every single day. Their combined wealth is £795,361,000,000. So don't let anyone tell you austerity is a “necessity”. There’s more than enough wealth to fund our NHS, public services & welfare.

I don't often ask people to write to their MPs. But I think they might listen to you on this, as it's so jaw-droppingly awful, and they're almost certainly unaware of it. www.theguardian.com/commentisfre... Please also write to the Environment Secretary: [email protected] Thanks.

Brexit a key factor in worst UK medicine shortages in four years, report says www.theguardian.com/society/2025...

How many times do we have to say it? *Austerity doesn’t work*. More cuts to public spending is economically illiterate and morally indefensible - people didn’t vote Labour to get more Tory austerity. FFS tax extreme wealth, don’t slash public services @patmillsuk.bsky.social

Covid changed our lives – and not for the better | Letters

‘Dr Gilbert said he felt "ignored" by the last government and "abandoned" by the current one.’ #LongCovid #ME #Doctor @alexisme.bsky.social

Projected Government cuts, particularly to PIP. One thing not even seen mentioned by them: it will drive up the number of unpaid carers, remove people from the workforce and place strain on resources because long-term unpaid care is intersectional with poor health and with poverty. And on PIP -

Full segment (3 mins) BBC Look North Dr Alexis Gilbert who has #LongCovid and has also been diagnosed with #MECFS youtu.be/M4e-6w16On0?... BBC article www.bbc.co.uk/news/article...

Any PEM/PESE can potentially lead to a dramatic deterioration which is permanent There's no treatment for it & every #pwME is constantly doing their best to manage this Until this is understood by every Dr & HCP #pwME are not safe when under their care #ME #MEcfs #LongCovid

The Government say that those ‘genuinely in need’ will still be helped. Well let me paint a picture for you. As a former Radiographer I became disabled in 2021 after a Covid Vaccine I took to help stop the spread of Covid to vulnerable patients. I am now in bed 24/7. I am untableto watch tv

Our current punitive welfare system has led to the deaths of hundreds of Disabled people at the hands of benefits cuts. The Government not only refuses to fix this - but is placing us at risk of further punishment and surveillance. Let us be clear: this is a political choice.

Clip from BBC Look North - Dr Alexis Gilbert (alexisme.bsky.social) who is almost entirely bed bound with #LongCovid and has been diagnosed with #MECFS feels "abandoned by the government... Its taken away all my dignity, all my joy its been devastating".

Find beauty somewhere today. Outside or within, give yourself the gift of composure. These moments of clarity and calm will enhance your patience and wisdom. Don’t feel guilty for walking away from the stress. Taking care of yourself is an act of resistance. I’m so glad you exist. 🫶🏼

Every day I pass in this bed is a day that was robbed from me. No-one could have stopped me getting ME/CFS. But there was no need for me to get worse. There was no need for doctors to manipulate me into destroying the quiet little life I had built for myself in the three years I was undiagnosed

“Could you live on £70 a week?” “Absolutely not” “So why do you expect young people to?” “We won't” @vicderbyshire.bsky.social challenges DWP minister Torsten Bell on benefits reform. #Newsnight

On top of this, it is feared plans to scrap the WCA and “streamline” disability benefits will also have a severe knock-on effect. Restricting eligibility to Pip *while* making it the only way to access UC health payments will see some disabled people’s incomes hit twice over.

It certainly means people can be left within the region of 4-6k alone to ‘live’ on. People will die.