📢 Our Campaign Guide is out! It deals with common media traps that we need to know how to deal with 🗣️ Part One covers the ‘Bait & Switch' tactic: ‘Its not ALL in you Head But…’ Easy-to-read download & audio included 💌 Help us shift the paradigm and share away!

Phenomenal journalism investigating the FII crisis for families with disabled, ill & vulnerable children by Emily Dugan. We know this is negatively impacting #LongCovid families & urgent change is needed to the @rcpch.bsky.social FII guidelines. 🧵1/7 TW 🗞️🖇️ tinyurl.com/bdcrsxrj

💙 Thank you to Dr Kane for highlighting this deeply problematic mandatory training for FII. This broad model is embedded within healthcare yet is NOT backed by evidence. Capturing highly vulnerable families whom the medical system is failing. It is discriminatory & damaging. We need change.

We have serious concerns about the appointment of Dr Terry Segal as paediatric expert in the @covidinquiryuk This is due to her problematic history with ME, association with BACME & present framing of #LC 🧐What does the evidence say? /1

This is a great statement - it captures many aspects of a dire situation and offers solutions. So good to see ME and Long Covid charities and advocacy organisations standing shoulder to shoulder. #WorldMEDay

TLDR: This is an SOS. If you don’t have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! 🙏🏻💙 #MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal #MyalgicEncephalomyelitis #MECFS #LongCovid

Nobel Prize winning science.

"We constantly hear there’s no money left,” Polanski said, “but actually there is a lot of wealth in this country… but we are taxing people who are working really hard far more than we’re taxing wealth.” He added: “that’s totally the wrong way round!” www.newstatesman.com/the-weekend-...

A great podcast for anyone with or around ADHD. That's all of us. open.spotify.com/episode/5ID2...

New article: School Leadership in the Anthropocene: Four Pillars of an Intelligent, Humane Response With my UCL colleagues, David Godfrey and Monica Mincu. Full text and summary available here. Enjoy - and be in touch! responsibleleadershipblog.wordpress.com/2025/02/24/s...

Proud to endorse Zack Polanski to be the next leader of The Green Party. Zack is inclusive and welcoming to new members and understands the urgent need for The Green Party to become a broad church. He is also ready to take the fight to all shades of Toryism.

We need bold leadership. Now. That's why I'm running to be the next leader of the Green Party. Join our campaign: backzack.com #BackZack

Thanks to @jeremycorbyn.bsky.social for mentioning my work in his piece about Labour’s disability benefits cuts. The narrative that disabled people are “a cost” on the rest of society is pernicious and becoming more and more engrained. www.mirror.co.uk/news/politic...

Excellent article on our increasing brutishness towards neurodiversity, disability and unhappiness. www.theguardian.com/commentisfre...

💌 We're started the #Postcards4LC campaign for #LongCovidAwareness because we urgently need funding for: ⭐ biomarkers ⭐ pathophysiology ⭐ treatments @ashleydaltonmp.bsky.social @england.nhs.uk @nihr.bsky.social #LongCovidAwarenessDay

Writing my postcards to @ashleydaltonmp.bsky.social and more for #LongCovidAwarenessDay as part of @longcovidadvoc.com campaign We need funding now! #pwME #LongCovid

Dear @sadiqkhanlondon.bsky.social, I was invited to join your roundtable with Thames Water. Will you call for them to be nationalised? Stopping us from being there isn't going to stop me asking the questions!

📣Another blog post I hear you ask? Yes! Here's today's with @clairetyler.bsky.social & Catherine Dilnot: 🎤Testing, Testing – Why are Black applicants not getting graduate jobs?🎓💼 Black applicants are 45% less likely to get a graduate role than their white peers blogs.ucl.ac.uk/cepeo/2025/0...

📺 Our #pedanticzebra book club recording is now available! We have a fascinating discussion with @jonathanstea.bsky.social that covers: ▶️ Pseudoscience ▶️ US Politics & misinformation ▶️ The Lightning Process Audio, video & text versions available Links below👇 www.youtube.com/watch?v=lP6B...

"While much of society does not consider or advocate for us, we continue to deliver the news and share our stories." @mileswgriffis.bsky.social in @thesicktimes.bsky.social, reflecting on five years of Long COVID: thesicktimes.org/2025/03/07/h...

👀It is important in these times to have choices to where we place our social media attention. 👩‍💻So, we've worked to create a viable community on Bluesky. 🥳To celebrate your support we are now VERIFIED!

Looking forward to this panel @ucl.ac.uk next Weds 5-7pm. 5 years since covid, what are the lessons for communicating in a crisis? Jonathan Van-Tam @profaliceroberts.bsky.social @susanmichie.bsky.social Professor Jack Stilgoe Dr Philip Ball and me! www.eventbrite.co.uk/e/communicat...

New, open-access publication: English headteachers are deeply conflicted: they know they must lead on climate change education, but feel overwhelmed by competing responsibilities. Please read and share. #educationalleadership #climatechange #BELMAS www.tandfonline.com/doi/full/10....

💙 LCA wholeheartedly supports @thereforme.bsky.social #FundThePlan campaign. It is crucial that strong foundations are formed for #pwME and that means investment. One of our members explains below in our video contribution. 1/8 youtube.com/shorts/4yCiM...

Privatised water has failed. Just look at your water bills or the sewage pouring into our rivers. Steve Reed - include public ownership as an option in your independent commission on the water sector. Sign the petition weownit.org.uk/act-now/stev...

Boss of England’s most polluting water provider United Utilities admits firm ‘isn’t good enough at stopping sewage dumping’. Dumped sewage for 3.6m hours. CEO got £1.4m pay. Company has 205 criminal convictions, allowed to hike bills by 32%. Must remove profit motive. Nationalise.

When I worked in UK academia I recall hearing of a Japanese man who was baffled at how Britain had decided to run its universities like firms. “Why? Your universities are excellent and your firms are terrible.”

How to support your child with Long Covid : the importance of the family danilobuonsenso.substack.com/p/how-to-sup... If you find it useful, please like and share it wifely! free access. Next episode will be on role of schools and teachers

This is so grim. I think about all the decent, principled people who were barred even from being shortlisted and smeared as “low calibre” & then read this www.theguardian.com/politics/202...

💙Discover how to help Long Covid patients with empathy and knowledge. ⛲We've developed a SPLASH guide of practical ways to support and enhance quality of life.

🦋NAVIGATING THE BLUESKY 101 We've been Sky Geeking so you hopefully don't have to. Our first (proper) thread will cover: CULTURE; ACCESSIBILITY; ALGORITHM; ENGAGEMENT; FINDING YOUR TRIBE; TWEAKS; COOL TOOLS; FUNKY BISCUITS 🧵1/18

You don't need to be a philosopher to enjoy this - but it adds frisson. existentialcomics.com/comic/582

Alert! Deadline for this fantastic PhD opportunity is 2nd February!

🔴Today Labour has released the 'Get Britain Working' White Paper. 🔹2.8 million economically inactive due to ill health 🔹We have 2 million with #LongCovid The Gov states it will tackle root causes but... 1/8

In the journal ‘Innovation. The European Journal of Social Science Research‘, a special issue on “Citizens’ Assemblies in Times of Crisis” has been published with 11 highly interesting articles. #CitizensAssembly

The National has seen an email sent by the institution’s management to staff and students outlining how, despite overwhelming opposition, the university decided not to divest from weapons firms Read here: www.thenational.scot/news/2474222...

It's open! The @longcovidadvoc.bsky.social shop is online with seriously badass merch. Look around... Treat yourself... Sort Christmas!

My TED Talk on Saving Ourselves is OUT! Tune in to learn why we ALL need to be apocalyptic optimists: Prepared for the climate shocks that are coming and ready to rally as activists, disruptors, and bridge-builders to save ourselves from the climate crisis. go.ted.com/danarfisher

About time. www.theguardian.com/world/2024/n...

Long Covid Advocacy's response to The ME Association in solidarity with #ThereForME

A perfect thesis is never finished and a finished thesis is never perfect

Properly bonkers.

This weeks heartbreaking BBCNews report that schoolchildren from struggling families are pretending to eat out of empty lunchboxes to save their embarrassment at having no food is exactly why we should all join @bigissue in calling for a POVERTY ZERO LAW👇

How long does CO₂ have to be stored in #CarbonDioxideRemoval #CDR? At least 35 years? 100 years? Longer?🤔 In a new study, @hausfath.bsky.social, @retoknutti.bsky.social & I find that for #netzero CO₂, anything less than 1000 years is not enough to neutralize warming.🧵 www.nature.com/articles/s43...

Hahahahaha www.nbcnews.com/news/us-news...

"The Awakening Conscience"

The upcoming change of conditions on X, requiring your feed can be used to train AI, will be another exodus point. Encourage them here!

Diving Bird (1939). Painting by Erika Giovanni Klein. Austrian 1900-1957. It’s in the Belvedere Museum, Vienna.

Measles… before vs after vaccines. See if you can spot the difference.