Emma Joe
@emmajoe.bsky.social
đ€ 81
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She/Her/Hers So tired.
#backyardgarden
#resistancegarden
#chronicillness
#disabilityawareness
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Emma Joe
Billy Hanlon
1 day ago
Medscape: 'How to Help With ME/CFS and Long COVID Disability Claims' By Miriam E. Tucker
www.medscape.com/viewarticle/...
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How to Help With ME/CFS and Long COVID Disability Claims
A disability attorney specializing in chronic disabling conditions and a physician with extensive experience helping patients file claims offer advice.
https://www.medscape.com/viewarticle/how-help-me-cfs-and-long-covid-disability-claims-2025a1000x2z
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Emma Joe
WeRateDogs
about 24 hours ago
This is Rosie. We do not know what she is asking for, but we need you to give it to her right away. 13/10 please hurry (IG: rosalinathepittie)
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Jess Piper
2 days ago
The Republican National Committee is spending millions of dollars to harass and intimidate Missourians. Donât be scared. You arenât doing anything wrong by signing petitions. In fact, you are saving our state. ïżŒ
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@thesicktimes.org
is keeping us all informed continuously. This publication is so important - please follow and support if you can. It is so interesting to see the research advancing in other countries while stagnating in the US. But I am hopeful that is moving forward.
#longcovid
#covid19
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2 days ago
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Emma Joe
Billy Hanlon
4 days ago
Medscape: 'Can Long COVID Be Decoded?' 'For Ziyad Al-Aly, MD, senior clinical epidemiologist at Washington University in St. Louis, this is a critical time for long COVID research in the United States.'
www.youtube.com/watch?v=WLcq...
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Can Long COVID Be Decoded? | Medscape
YouTube video by Medscape
https://www.youtube.com/watch?v=WLcqYLEc34Y
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Emma Joe
Joerg Lau
4 days ago
âQuiet, Piggy!â Just think about that for a minute, and what it means to live in a time when a President can assault a woman in public like that without any consequences. Itâs quite a testimony to the age of regression we live in.
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Emma Joe
Tom Kindlon
4 days ago
The Sick Times
@thesicktimes.org
: Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
thesicktimes.org/2025/11/21/l...
Experts say testing exercise is âmoney down the drainâ and wonât advance understanding of Long COVID.
#LongCovid
#PEM
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Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
https://thesicktimes.org/2025/11/21/less-than-20-of-long-covid-trials-involving-exercise-even-mention-post-exertional-malaise/
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Emma Joe
Imani Barbarin
6 days ago
Democrats are leaning into the meme war because they think if they win in culture, they donât have to win in policyâand no one will notice. Iâm gonna use that. Iâm writing it down so I donât forget.
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Emma Joe
Imani Barbarin
6 days ago
Are there any metal workers in the Philadelphia area that can help me fix a mobility aid?
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Emma Joe
babs âš
7 days ago
itâs not that i donât get the significance of the changes made to cdc this week, not that im not lamenting, but justâŠi n so many i love watched that agency turn its back on us years ago. this feels like the final nail in a coffin thatâs been ready to close n yall just figured out weâre at a funeral.
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Emma Joe
Patrickthebiosteamist
7 days ago
To those of us that have been following Covid and Long Covid, it is not a surprise to see rampant misinfo on the CDC pages. With the autism/vaccine page, know this is not their first instance of this, itâs just the first time you have taken notice or care of it. Itâs not too late to mask up đ·
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Emma Joe
Stewart Prest
7 days ago
The President of the United States is publicly calling for the political prosecution of his political opponents, urging the death penalty because they urged soldiers to uphold the rule of law. This should be front page news everywhere. It is not, which tells much about how we got to this point.
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They lied? Iâm shocked! đ
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7 days ago
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Emma Joe
Chronic Illness Humor
9 days ago
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Emma Joe
betsy ladyzhets đ·
12 days ago
"Alice supported and took many people with Long COVID under her wing â I was honored to call her a colleague and friend."
@mileswgriffis.bsky.social
in
@thesicktimes.org
's obituary for the great Alice Wong:
thesicktimes.org/2025/11/15/a...
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Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
https://thesicktimes.org/2025/11/15/alice-wong-disability-activist-and-luminary-dies-at-51/
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Emma Joe
Kelly
12 days ago
Alice Wong helped me accept my disabilities. She taught me thereâs no social justice without disability justice. She encouraged me to start The Disabled Ginger and was a friend & mentor. She wonât be forgotten. Donât let the bastards grind you down:
www.disabledginger.com/p/thank-you-...
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Thank You Alice Wong
Alice Wong has passed away and the disability community has lost a leader. I lost a mentor and a friend. The Disabled Ginger wouldn't exist without Alice and everything she taught me.
https://www.disabledginger.com/p/thank-you-alice-wong
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Emma Joe
Denis - The COVID Info Guy
13 days ago
Almost 500k studies showing COVID causes lasting damage⊠if that doesnât convince anyone, nothing will. Source:
x.com/Doorenspleet...
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It isnât a matter of if, it is just a matter of when.
#longcovid
#wearamask
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14 days ago
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It has always been about microclots and inflammation⊠but oooo âstrange spoooooky microscopic structuresâ is a better headline.
#longcovid
#covid19
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14 days ago
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Emma Joe
Imani Barbarin
15 days ago
How long do you think Democrats were sitting on those Epstein emails waiting for an opportunity to release them when they needed a distraction? ïżŒ
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Emma Joe
Imani Barbarin
15 days ago
You all honest to God think that the eight Democrats that voted to end the shut down just happen to be people that werenât up for reelection anytime soon or at all? If you think that I canât talk to you.
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Emma Joe
Kelly
15 days ago
Everyone thinks they will be the exception. Serious illness or disability wonât happen to them and IF it does, they will be able to afford it. The reality is it only takes one catastrophic event to change your life, especially in a country that doesnât guarantee healthcare for all.
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James Van Der Beek selling âDawsonâs Creekâ merch to help pay for cancer costs
The âVarsity Bluesâ star was diagnosed with stage 3 colorectal cancer last year.
https://nypost.com/2025/11/12/entertainment/james-van-der-beek-selling-dawsons-creek-merch-to-help-pay-for-cancer-costs/?utm_medium=social&utm_source=twitter&utm_campaign=nypost
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Emma Joe
Kelly
16 days ago
My MCAS hit before Covid, but itâs been devastating to my ability to eat. Iâm down to 10 safe foods. Iâm malnourished and still losing weight. The digestive and allergic issues that can accompany Long Covid are very destructive to quality of life.
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Emma Joe
Dr. DaShanne Stokes
16 days ago
Starving people is a weapon of control. So, too, is controlling and attacking the media, attacking science and higher ed, and using the military against citizens and innocent people. All weapons of control.
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Emma Joe
Kelly
16 days ago
There can be no social justice without disability justice.
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Emma Joe
Imani Barbarin
17 days ago
I donât care who you are, the one thing that links all of the -isms and bigotries together and sets them on fire is eugenics and ableism. Theyâve been playing you all the entire time. There is no progress in this country for ANYTHING without equity for disabled people.
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Emma Joe
Imani Barbarin
16 days ago
If we as a country cared about disability and therefore healthcare and access, they would not be building AI centers in Black neighborhoods.
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Emma Joe
Imani Barbarin
17 days ago
If you donât get it yet.
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Another set of trials focused on non-drug treatments for LC proven to be ineffective. đ You canât exercise the mind into healing? Who would have thought. Iâm so tired of researchers wasting time on thought experiment trials or exercise based trials. Has yet to be and will not be the solution.
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17 days ago
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Emma Joe
Billy Hanlon
17 days ago
RECOVER: 'RECOVER-NEURO clinical trial shares results of three non-drug treatments for cognitive symptoms of Long COVID' 'None of our rehabilitation approaches to treatment for cognitive Long COVID proved to be effective.'
recovercovid.org/news/recover...
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RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
https://recovercovid.org/news/recover-neuro-clinical-trial-shares-results-three-non-drug-treatments-cognitive-symptoms-long?utm_source=ACC+Communications&utm_campaign=61f9b37a84-RECOVER_REPORT_NOVEMBER_2025_NEURO_RESULTS&utm_medium=email&utm_term=0_-61f9b37a84-596794595
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reposted by
Emma Joe
Kelly
19 days ago
Disabled people tried to warn you. We said that the rising eugenicist sentiment that accelerated during the âback to normalâ phase of Covid would eventually hurt everyone The new healthcare plan for America appears to be: Donât get sick If you do get sick, itâs your fault If you canât pay, die
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babs âš
19 days ago
the inverse iâll get is people asking me, masked, if iâm sick, to which ive got a few replies: > ânah i just mask in all public indoor spacesâ > ânot yet and iâd like to keep it that wayâ and my fave for if iâm feeling mysterious and or snarky: > âyes but not in the way you thinkâ
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Emma Joe
Jess Piper
20 days ago
Has America ever seen a more disastrous administration after just 10 months? I feel like I know the answerâŠ
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Emma Joe
The Sick Times
20 days ago
Our
#LongCOVID
journalism requires reader support â with your help, we can prepare our non-profit newsroom for whatever 2026 brings. Will you donate today and help us keep this vital work going?
the-sick-times.fundjournalism.org/donate/
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Emma Joe
Jessica Ellis
27 days ago
This is what I mean when I say that present-day covid denialism is right wing. It was a plan born of corporatists and wholly adopted by centrists and even leftists eager to pretend the pandemic was over, which should immediately give anyone thinking about it pause.
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Emma Joe
The Sick Times
27 days ago
Happy Halloween! We have a some last-minute
#LongCOVID
themed costume ideas for you! đ»
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Emma Joe
Sam Reich
29 days ago
this was filmed april 4th 2025
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Emma Joe
The Sick Times
30 days ago
Weâve now passed one month into the U.S. government shutdownâand one month without COVID-19 or other infectious disease data updates from the CDC. COVID-19 levels seem to be in a lull between waves in much of the country, based on available sources, but the situation is uncertain.
bit.ly/3JuWhdv
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Emma Joe
Jess Piper
29 days ago
Hey, Josh. Stand up or take a seat. Take several seats.
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Emma Joe
The Sick Times
about 1 month ago
Last week, Atlanta Hawks star Kristaps PorziĆÄŁis shared his diagnosis of postural orthostatic tachycardia syndrome (POTS).
bit.ly/3WVp65Z
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Emma Joe
Dave Jorgenson
about 1 month ago
and theyâre all cozying up to the president
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Emma Joe
Clara
about 1 month ago
And it is entirely manufactured by one man who spends more money on bronzer than any of us pay towards SNAP
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Emma Joe
Post-Viral Trials
about 1 month ago
BleakâŠeven a world-famous NBA player doesnât get more than salt. Somebody get this man an appointment with a real doctor! Mestinon, tVNS, IVIgâŠsomething more than salt and exercâer, oh, youâre a professional athlete you say? Then, uh, rest!
www.nytimes.com/athletic/673...
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Emma Joe
Jess Piper
about 1 month ago
Contest every race. Have a candidate in every race on every ballot in every county in every state. Run even if you know you canât win. Run because you know you canât win. No seat uncontested. Bring the fight to every ballot.
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Emma Joe
Billy Hanlon
about 1 month ago
Men's Health: 'The Lion Does Not Concern Himself With Long COVID. Maybe He Should?' 'And now, the lion is making the rounds againâbut this time as a covert(ish) way to talk about long COVID symptoms.'
www.menshealth.com/health/a6910...
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Is Gen Z Using This Viral Lion Meme to Share Legitimate Health Concerns?
The lions may not concern themselves, but mental health experts do.
https://www.menshealth.com/health/a69109689/lion-meme-long-covid-game-of-thrones/
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Emma Joe
Kelly
about 1 month ago
Disabled people tried to warn you. When everyone rushed âback to normalâ and started adopting eugenicist talking points like âonly the vulnerable are at risk from covidâ⊠we said this would happen. It was always about culling the herd. Eliminating the weak. Dismantling public health
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Everything is fine. Pay attention to all that social media drama, get all pissy about who said what or did what⊠that is the important stuff right?
#theworldisonfire
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about 1 month ago
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Emma Joe
Chronic Illness Humor
about 1 month ago
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The Sick Times
about 1 month ago
It's been a month since RFK Jr. convened a Long COVID roundtable event with leading researchers and government officials. Preliminary meetings are occurring amid the ongoing government shutdown, while some advocates call for his removal. Read more from
@betsyladyzhets.bsky.social
:
bit.ly/47gpcd9
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Emma Joe
Clara
about 1 month ago
So we don't have air traffic control money or food stamps money but we have demo the White House money?
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