Today’s autism announcement was just as bad as we feared Trump blamed Tylenol & vaccines for autism They encouraged women to just “tough out” their pain They praised people who don’t “need” meds or vaccines These are eugenicist talking points & they’re devastating to the disability community:

BREAKING: The CDC is temporarily ending remote work. The decision leaves scores of employees in the lurch, even forcing people with disabilities with high-support needs to come into the office. #disability www.statnews.com/2025/09/16/c...

1. Pandemics shape politics and societies. Collective trauma is a powerful force, as is societal reaction to governmental responses to reduce transmission. This is not controversial; humanity experienced it after The Spanish Flu.

Try taking the COVID competency exam yourself, and share it around! Great way to bust myths (and the person who wrote it is an epidemiologist, and well-informed, so it really does). seanmullen.com/covidcompete...

Made it to RECOVER TLC!

Sea Otter (Enhydra lutris): There is so much more to a sea otter than meets the eye. By munching on urchins, it helps kelp forests flourish, and by crunching on crabs, it promotes eelgrass in estuaries. This mammal has the thickest of fur per square inch and is native to Pacific coasts. #seaotter

Today the importance of donations to #MEAction is especially clear. In addition to the brilliant reporting from Scientific Director Jaime Seltzer, we have the announcement of a new staff member for the Minnesota Home Health Navigation Program. To continue this good work, please donate if you can.

Updated public information page on ME/CFS from New Zealand's health authority info.health.nz/conditions-t... Initial impressions from me & a few others are that it is quite good. It probably helps that feedback had been sought. #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Great post. One critical point to me is that people are "not making decisions about COVID mitigation downstream of their ideas about disease severity, they’re developing ideas about disease severity downstream of decisions about mitigation."

Essential telehealth provisions are set to expire on September 30th 2025. Congress needs to hear from all of us that telehealth saves lives. Sample script and call instructions: www.meactions.org/telehealth #pwME #telehealth #disability #MyalgicE #LongCovid #congress #MECFS

NEW: In June, ProPublica reported that the FDA has given more than 20 foreign factories a special pass to send drugs to the U.S. even though they were made at plants the agency had banned. Today, we’re publishing a list of those exempted drugs.

Everyone needs to read this This is extremely bad

Today is #SevereMEDay - a day we come together to especially take time to honor the 25 percent living with the most severe form of this disease and remember those who have died from ME. Myalgic encephalomyelitis is a complex chronic disease that presents with symptoms in multiple body systems.

Today, on Severe ME Awareness Day, @thesicktimes.org is proud to publish this piece by @naomiwhitt.bsky.social sharing the story of singer Kara Jane and her new album, released posthumously by her family. thesicktimes.org/2025/08/08/p...

I developed Long Covid in late 2023, and became homebound by summer 2024. As the months drag on, it’s difficult not to feel like my life is on pause while the world moves on without me. My latest personal essay is about the pain of being left behind: www.thegauntlet.news/p/homebound-...

Positive news! The Senate Appropriations bill came out and utterly rejected the Trump cuts to NIH/CDC. #MECFS funding is included in the appropriations language, in part due to @meactnet.bsky.social's battle to include it. A thread 🧵

The primary author of the ADA, Tony Coelho, said this about this piece.

Another great read. “I think, what if community, perhaps, means a little bit more.”

This is going to have lots of exciting news from work on Long Covid and ME/CFS! I hope you’ll tune in if you’re able!

Julia continues to outdo herself with her personal essays. They are so, so well-written. She's also offering a deal on subscriptions--I highly recommend becoming a subscriber! “Take another day from her,” they say, “I have to live my life!” -- That line will be with me for a long time.

"The first thing to consider is that those who have already experienced post-Covid health issues are usually keen to avoid situations where there is a high risk of them being reinfected." Read this as many times as you need to

The news right now is a lot. Even non disabled people are having a hard time keeping up with the atrocities coming at them from every angle. It’s ok to rest. In fact, it’s necessary. If you’re like me and bad at resting, I’ve got you covered! My top tips 👇🏼

Nothing illustrates the all-encompassing social and institutional denial of Covid-19 more keenly than the absolute refusal of many governments to accept that the disease and its many sequelae are a significant causative factor in increased school absenteeism. Wilful blindness.

We are honored to be able to share this speech by Grace- a college student living with ME and Long COVID. We invited Grace to speak at #MillionsMissing as it is so important that young adults affected by ME are heard. Speech: youtu.be/ZgURoWamFNI Take action: www.meactions.org/millionsmiss...

Did y'all know? #MECFS is a disease shrouded in mystery, with 1.5 thousand inexplicable symptoms; this is why you must cast the bones to diagnose. This has led experts to presume that their inability to understand ME/CFS means it is unknowable as fate, god, time, and higher dimensions

A MYSTERIOUS MYSTERY!

I wrote about Republicans’ efforts to restrict access to COVID vaccines, and how this aligns with ongoing efforts to claim that COVID is the problem of a few “vulnerable” individuals, rather than a collective public health crisis. Read here: www.thegauntlet.news/p/republican...

The CDC's airport screening program with Ginkgo Bioworks has now detected multiple cases of the new COVID-19 variant NB.1.8.1, which has been linked to a recent surge in China www.cbsnews.com/news/us-repo...

U.S. reports cases of new COVID variant NB.1.8.1 behind surge in China. The CDC's airport screening has detected the new COVID-19 variant NB.1.8.1, tied to a surge in China, in travelers arriving in California, Washington, Virginia, and the NYC area, per Ginkgo Bioworks data. archive.md/viSvU

Really appreciated this perspective. "Because pwME know that a crash is unpredictable and impossible to reverse, the goal of pacing is to not encounter the symptoms at all."

Friends, please spread the word that e. is offering to match donations to MEAction, OMF or any c3 org that works on ME/CFS—and then her employer will also match that! The employer match has a limit but hers does not 👀

"I’m seized by what I believe to be the same impulse Proust had; I reminisce constantly about the lives I’ve already led. Moments come back to me, oddly, suddenly..."

Thank you for covering this event!

COVID denial and long COVID denial are so off the chain in the UK that parents of disabled children are being *legally persecuted* when their kids are too sick to attend school national.thelead.uk/p/were-left-...

"All workers - all people who work for a wage, who are dependent on their income, who cannot survive without their employer, who do not own the means of production, who are not of the ownership class- are real workers."

This resonated so much: "Instead, the world just watches as you drown, and people say they’re very sorry, and they say it’s so tragic what’s happened to you... and they go out with no mask, and they tell themselves they aren’t like you, because they’re a special type of person- immune to drowning."

Julia's essays are always impactful. This one made me cry, because it's my life too. (Different specific symptoms, same overall terrible + neglected illness.)

Worked hard on this, and I hope it will be a useful resource for many. A beginner’s guide to Long COVID, with a discussion of mechanisms: www.thegauntlet.news/p/what-is-lo...

I hid my disabilities for years. I was afraid of being judged, abandoned & left behind. I had to deal with my internalized ableism before I could open up about my illnesses. Our society rewards the healthy and despises the sick. Ableism is a heck of a drug. What would happen if we stopped hiding?

We're lonelier than ever, and here's why. www.the-sentinel-intelligence.com/p/loneliness...

We invite you to the Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th at 11 am PT/2 pm ET/6 pm GMT, a showcase of resilience, creativity, & the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP: us06web.zoom.us/meeting/regi...

As kids get sicker, media ignores scientific papers pointing to immune damage after COVID. Instead, parents are urged to “watch out” for unusual waves of RSV, flu, pneumonia, & more, while masks, clean air and the pandemic are pointedly never mentioned. www.thegauntlet.news/p/kids-keep-...

Jaime Seltzer, #MEAction's Scientific Director, was interviewed to create this piece on PEM in ME/CFS with @scishow.bsky.social, a popular YouTube channel that explains complex science/medical concepts to laypersons. Check it out here: youtu.be/wxSwYUennBA?... #pwME #MECFS #LongCovid

I believe the US media would be more honest about wanna-be dictator Donald Trump and the seizure of our government by Elon Musk’s junta if it was happening overseas, so here’s my weekly news roundup in the style of such over-the-top dispatches: www.doomsdayscenario.co/p/trump-inte...

A question I hear asked a lot is, How can bird flu be having such a dramatic impact? Here's part of the answer: The farms where eggs are produced are massively dense — millions of birds on a property. Thus millions lost or culled at once if the flu arrives. www.wattagnet.com/poultry-meat...

Gentle reminder that #MEAction will host a virtual town hall tomorrow Tuesday, February 25th at 2pm PST/5pm EST to discuss the impact of recent executive orders and other policy discussions that could affect the ME community. Register here: us06web.zoom.us/webinar/regi... #pwME #MECFS #longCovid

One last thing I’ll say about this is that judging by people’s messages, the audio version has some stuff not in the edited online transcript, including a discussion of the false tension around empathy in journalism, and a bit about paying attention to sparrows.

#MEAction will host a virtual town hall on February 25th at 2 pm PST/5 pm EST to discuss the impact of recent executive orders and other policy discussions that could affect the ME community. It will be recorded. RSVP: us06web.zoom.us/webinar/regi... #pwME #MECFS #LongCovid #disability #MyalgicE

I find alt text handy for many of the reasons above. However, the reason I started was to show solidarity to those who do require it. Fascists launched a government-wide attack against accessibility, because accessibility is community care: an ongoing commitment to what we owe to each other.