Proud to contribute frontline testimony to tonight's enraging @itvx.com documentary "The Covid Contracts: Follow the Money". Boris Johnson's govt squandered £8.7 billion on unusable PPE, while grifters like Michelle Mone made millions. Tonight, 10.15pm, ITV1. www.theguardian.com/tv-and-radio...

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States doi.org/10.1186/s129... @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @longcovidphysio.bsky.social

Published today 📣 Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...

Congratulations to our Chair Todd Davenport who has been awarded as a Catherine Worthingham Fellow of the American Physical Therapy Association We are delighted that Todd’s outstanding work for ME/CFS and LC has been recognised Thankyou for all that you are & do @sunsopeningband.bsky.social 🙏

This 👇

Again for those in the back: 👏🏼 PEM 👏🏼 is 👏🏼 NOT 👏🏼 deconditioning Symptoms associated with effort expenditure in #LongCOVID, #MECFS and other energy limiting illnesses are physiological, not “preferential” Thanks to @RobWust for this incredible work. www.medrxiv.org/content/10.1...

“Skeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest” Objective science debunking deconditioning theories! 💥 🎤 @patientled.bsky.social www.medrxiv.org/content/10.1...

@longcovidphysio.bsky.social is pleased to support this essential campaign by @longcovidkids.bsky.social Better assessment, care, funding and research are urgently needed for the millions of adults and children living with Long COVID and M.E. #LCandME #FundOurFuture #FundThePlan

As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social #LCandME #FundOurFuture #FundThePlan www.longcovidkids.org/post/open-le...

5 years with #LongCovid. This was 2020. Trying to work through it turned out to be bad idea, in hindsight @longcovidsos.bsky.social #LongCovidAwarenessDay

Research, support & effective treatments are urgently needed. Lives, health, careers, education, financial stability, homes & relationships are all being lost. Anyone can develop #LongCovid The only way to prevent it, is to stop the spread of #Covid #LongCovidAwarenessDay

A heartbreaking insight into our reality. So grateful to everyone involved with this project and in International Long Covid Awareness day #LongCovidAwareness bsky.app/profile/long...

We thank everyone who contributed their limited energy to this project & #LongCovidAwarenessDay We also thank the charities, peer support groups, clinicians & researchers who are striving to help & support people living with this life changing condition #LongCovidAwareness

Research, support & effective treatments are urgently needed. Lives, health, careers, education, financial stability, homes & relationships are all being lost. Anyone can develop #LongCovid The only way to prevent it, is to stop the spread of #Covid #LongCovidAwarenessDay

5 years have passed and millions are affected globally All are still waiting for a cure #LongCovidAwarenessDay

Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid “It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social t.co/kfLzV0B0fy

The world has lost a wonderful human being. There are not adequate words to describe the loss & pain so many of us feel today. She did so much for the long covid community & was such an important friend & ally to so many of us. We send love to her family & all who will miss her.

Published today in @plosone.org “Episodic disability framework in the context of #LongCOVID: Findings from a community-engaged international qualitative study” @kellyobrien25.bsky.social @longcovidsupport.bsky.social @patientled.bsky.social journals.plos.org/plosone/arti...

“Achieving return to work remains challenging without proper accommodations” #LongCovid #EpisodicDisability #PESE #PEM pubmed.ncbi.nlm.nih.gov/39846207/

Roses are red Violets are blue THE RAILWAY TRAIN GOES ROLLING THROUGH! #VaiCorinthians #UpTheCasuals

Thread 🧵👇 Joining the appreciation for all that you are doing Rob Wust 🙏

Recommended read for all HCPs who prescribe exercise and may be seeing people who have #LongCovid, whether in a speciality LC clinic or MSK setting Wonder how common it is to routinely ask for history of Covid-19 infections, screen for #PEM and ask about response to exercise

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Many Congratulations to our founding Chair @darrenabrown on this marvellous recognition for his outstanding work in the HIV and LongCovid fields. Very well deserved. Thank you for all that you have done for our LC community 🙏🎖️

Recommended watch for all who love the magic and history of football and sport 🤩👌

Please read the following thread containing a letter from the #LongCovid Groups’ legal team. It was written to express our concerns about comments @gwynnemp.bsky.social made in his letter to @timfarron.bsky.social around how covid is transmitted

Woke up this morning feeling fine! Corinthian-Casuals are now officially on Bluesky! Spread the word #VaiCorinthians

Here we go people … after many years of hard work by so many people the #LongCOVID Video Series translations has its first fully complete series in French 🎉🎉🎉 Huge thanks to @apresj20.bsky.social Myléne 🇫🇷 Annie-Claude 🇨🇦 @fisiocamera.bsky.social

‼️UK Covid Inquiry Mod 4 starts today. #LongCovid Groups were refused as Core Participant. “shows massive inequality of arms between ordinary members of the public seeking accountability for long term damage to their health from #Covid19 & the Government” - Jane Ryan, Bhatt Murphy Solicitors Link ⬇️

The relationship between body composition and knee osteoarthritis in postmenopausal women pmc.ncbi.nlm.nih.gov/articles/PMC... “fat mass was closely and significantly associated with knee OA compared to lean mass.”

We promised that the #LCPForum was research generating … … so here it is 💙📰 Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum #LongCOVID journals.lww.com/cptj/fulltex...

More than “Brain Fog”: Cognitive Dysfunction and the Role of Occupational Therapy in Long COVID Recommended read. Lived experience and Professional expertise from two of our Committee members @otskiff.bsky.social and Ciara Breen journals.lww.com/cptj/fulltex...

Skeletal muscle adaptations and post-exertional malaise #PEM #PESE in #LongCOVID www.cell.com/trends/endoc...

⛔️ There is an ongoing risk of harm to HCWs and patients from the current inadequate IPC guidance @longcovidkids.bsky.social @longcovidsos.bsky.social @longcovidsupport.bsky.social @bhattmurphy.bsky.social #CovidIsNotOver

There is recommendation for vaccines but eligibility is becoming more restricted @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @bhattmurphy.bsky.social

“IPC Guidance is in urgent need of updating” Prof Clive Beggs covid19.public-inquiry.uk/documents/in... @longcovidkids.bsky.social @longcovidsupport.bsky.social @bhattmurphy.bsky.social @longcovidsupport.bsky.social

We ask for a revision of IPC Guidance 🔴Recognition of the airborne transmission of Covid 🔴Measures to limit transmission of Covid * FFP3 masks * Improved ventilation in Healthcare @longcovidsupport.bsky.social @longcovidkids.bsky.social @longcovidsupport.bsky.social @bhattmurphy.bsky.social

We, as core participants in Module 3 at Covid Inquiry UK , seek an urgent Interim recommendation from the Chair to make Healthcare settings safe @longcovidkids.bsky.social @longcovidsupport.bsky.social @longcovidsos.bsky.social @bhattmurphy.bsky.social

🚨New pre-print🚨 “It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with #LongCOVID – Results from an international community-engaged qualitative research study www.medrxiv.org/content/10.1...

Fab thread @putrinolab.bsky.social 🙏

Please consider nominating Long Covid Kids and Friends and help us provide support and advocacy for the families, children and young people who need us next year. Thank you. movementforgood.com/index.php?cn... #LongCovidKids #LongCovid #Nominate #Charity #Donate #Christmas

editorial from @bmj.com and paper: Poor staff retention is associated with higher patient mortality. Have said it before & I’ll say it again. If you don’t care for the carers, they cannot care for their patients. www.bmj.com/content/387/...

One of our LongCOVIDPhysio members, Nicola Ritchie, will be giving evidence to the Covid Inquiry UK on Tues 29th Oct, highlighting the impact living w LongCovid has had on her life, including her ability to work as a physio Please listen & support her m.youtube.com/@ukcovid-19inq…

UK Covid Inquiry The burden & impact of having to prove that LongCovid is a condition to HCPs Dr Sarah Powell Clinical Psychologist living with LongCovid #Listen #acceptance should not be hard!

UK Covid Inquiry The dismissal of LongCovid by medical professionals “I was having to convince him (NHS Dr) that LongCovid was an actual thing” Dr Sarah Powell, Clinical Psychologist, living w LongCovid #gaslighting #ignorance @sarkpowell @covidinquiryuk

UK Covid Inquiry “One of the big reasons I have LongCovid is that I carried on exercising. I was absolutely wiped out. The Dr said it’s better if you exercise more. I honestly believe if I hadn’t exercised I wouldn’t have these symptoms today” Dr Sarah Powell, Clinical Psychologist, living w LC

Fast becoming my fave read this week after watching the UK Covid Inquiry #masks #FFP3 www.bmj.com/content/363/...