NMRR were in Antwerp this week, presenting our work at the European CMT Federation scientific meeting. It was great to have the opportunity to share the Better Balance-NMD program, & highlight the importance & directions of rehab research for Charcot-Marie-Tooth disease. 1/3

The Queen Square Centre for Neuromuscular Diseases team braving the rain in beautiful Stresa, for the Neuromuscular Study Group meeting. Always such a good meeting with great representation from the London team 🤩 @uclbrainscience.bsky.social @cnmdrehab.bsky.social #NMSG2025

Chewing chips and chewing up racists. 👌🏾

Excellent talk by Dr Louie Lee on the hybrid feasibility/implementation trial of a supported self-management intervention, Neuromuscular Bridges: Adapt-NMD. #BritishMyologySociety #Oxford @ucl-qs-cnmd.bsky.social @ucl-qs-cnmd.bsky.social

Since this is apparently a resigning matter, I’ll just leave this here… www.theguardian.com/politics/202...

🎉 Many congratulations to Dr @gitaramdharry.bsky.social on being awarded a £1.6M NIHR Fellowship! She will be leading research into two rare neurological conditions: CMT and CANVAS. Find out more: www.ucl.ac.uk/brain-scienc... @uclqsion.bsky.social | @uclqsneuromuscular.bsky.social

"All of the other countries keep just watching us! ... You don't even see us as human beings!"

Still pinching myself and can't wait to get started 🤗 www.uclhospitals.brc.nihr.ac.uk/news/ps15m-n...

Translational framework for implementation evaluation and research: implementation strategies derived from normalization process theory #impsci implementationscience.biomedcentral.com/articles/10....

Evolution of "Sunset Over Seggae"

Congratulations, Louie, Aljwhara and Aleks! 👏🏽👏🏽👏🏽

Science and creativity go hand in hand. I'm blessed to have a brother who is a portrait artist and teacher. He's helped me on my journey to rediscover my love of art. On the left is a charcoal drawing of a bust of Brutus from 2017, the start of that journey 1/3

Scoping review highlighting lack of #rehabilitation research in POEMS syndrome, Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social journals.sagepub.com/doi/10.1177/... @uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social

I'm so delighted to have received a copy of the new book by Janet Deane: Doctorate. Finding your way as a healthcare professional in research. It's a fantastic mix of topic such as navigating the process, academic writing and defending your thesis in a viva. 1/4

From me to you 🕊

At the next CNR seminar we are delighted to welcome Professor Derick Wade to discuss 'What is really important in rehabilitation'? Free registration All welcome onlinestore.ucl.ac.uk/conferences-...

It was a pleasure to deliver a keynote lecture on Thurs at the International Congress on Neurorehabilitation & Neural Repair, bringing neuromuscular disease research to this event. Thank you to the organisers & Association of Chartered Physiotherapists in Neurology for the invitation 🙏🏽 #nnr2025

I really enjoyed talking to the fabulous Dr Anna Mayhew of POD-NMD In the first of two podcasts focusing on inherited neuropathy. www.pod-nmd.org/resources-by...

You'll never guess which sector is the overwhelming funder of Wes Streeting...

This is worth doing to protect your personal data and stop the targeted misinformation that creeps up on Facebook. It's very quick #notmydata ✌🏽 action.goodlawproject.org/meta-this-ti...

THREAD The numbers are in. @bsky.app research sharing volumes vs X Formerly Twitter In March 2024, on most days, Bluesky hosts more posts linked to research published in 2025 than X. By quite a lot. Release the Kraken... #AcademicSky #HigherEd #Altmetrics 1/11

Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...

Senior health figures have criticised the abolition of NHS England Lord Lansley, whose 2012 reforms saw its creation, said the Starmer / Streeting approach won't work and likened it to re-arranging deck chairs The Health Foundation said the "abrupt" announcement "chilling... sharply demotivating"

So very proud of my brother. Today the Mayor of Bournemouth unveiled his portrait by dhanrazfineart.co.uk The first full size portrait of a Mayor of the town for 100 years ❤️

My latest post is now out. I show how Trump's attacks on science and universities are neither random nor new - they fit very precisely into the authoritarian playbook. This means we can guess what might come next and prepare - and we must! christinapagel.substack.com/p/censor-pur...

So very proud of my brother. Today the Mayor of Bournemouth unveiled his portrait by dhanrazfineart.co.uk The first full size portrait of a Mayor of the town for 100 years ❤️

We have a new video showing ways to mobilise the joints of the feet when you have high arches and clawed toes due to Charcot-Marie-Tooth disease. @mdukcharity.bsky.social @cmtuk.bsky.social youtu.be/TOsGwtMlA1k?...

Always important to learn from the expertise of the people who come to our clinics...

Exploring experiences of Guillain-Barré Syndrome: key themes were early diagnosis; experiences of inpatient care; active support for recovery; communication throughout; greater knowledge and provision of information; path to recovery #RareDiseaseDay onlinelibrary.wiley.com/doi/full/10....

For Rare Disease Day, check out this great podcast on changing the future of muscle wasting conditions. Featuring my Queen Square colleague Dr Jasper Morrow, Dr Kate Adcock and Tahira Mathur of Muscular Dystrophy UK www.optimumcomms.com/podcast/#epi...

New: The government has spent £400 million on staff costs for PIP appeals since 2013. But the real cost? The anguish, breakdowns, and worsening illness caused by a system built on disbelief. Disabled people shouldn’t have to fight for survival. #PIP #DisabilityJustice

We just had to share this inventive hack by a lady in one of our QS clinics, who has neuromuscular weakness leading to toe and foot drop. Her toes would always curl under when trying to get her foot into a shoe, which could be painful. Learn the steps here: youtu.be/chbCIybrxUE?... #FootDrop

We are currently looking for expressions of interest in presenting at the next CNR Clinical Networking event on Tuesday 29/4/25 (17:30-19:00) The topic for the event is: ‘How do AHPs help people with neuro-disability deal with work?’

Registration for 12th Annual Queen Square Upper Limb Neurorehabilitation Course now open onlinestore.ucl.ac.uk/conferences-...

Congratulations to the LISTEN team on publication of this trial of personalised self-management support for people living with long Covid led by Profs Fiona Jones and Monica Busse bmjmedicine.bmj.com/content/4/1/...

Wow! This article is about my brother, a classically trained portrait artist, and his recent painting of the Mayor of Bournemouth. Proud doesn't even come close 😁😍 www.bournemouthecho.co.uk/news/2493368...

Check out this video demonstrating ways to mobilise your feet if you have CMT 🦶🏼❤️

If UK news shows are going to give Nigel Farage a platform to spout this absolute boll**** about Brexit & the vaccine rollout (unchallenged) I’ll happily come back every week to correct it We cannot allow them to rewrite history. If you agree share this FACT CHECK widely youtu.be/MUrf7addcTA?...

In our latest pre-print, we show that processivity and BDNF-dependent modulation of #AxonalTransport are impaired in aged mice: www.biorxiv.org/content/10.1... Well done team! @dvillarroelc.bsky.social @andrewtosolini.bsky.social @alessiovagnoni.bsky.social et al. @uclqsion.bsky.social #aging

Labour Government must fund the NHS to end the crisis behind 14,000 avoidable deaths - NOT fund the private health sector to further undermine the NHS. @keepournhspublic.bsky.social Month of Action

#BlueBadgeHolders #Bromley Bromley are proposing to bring in car parking fees for blue badge holders to use LBB car parks bromley have not carried out a public consultation & tried to have a vote without an EIA There’s an e petition if you live work or study in bromley please sign & share

Really excellent videos on 'Managing Ataxia' developed by Genny Hart & Suzanne Booth at the Queen Square Ataxia service, available on the links below: youtu.be/EuRz2y-A3yo?... youtu.be/wuRMkuEpk2Y?...

This Centre for Neurorehabilitation Research Networking Event is a forum in which researchers and clinicians are given the opportunity to talk to each other. Please come and chat to us! Free registration here onlinestore.ucl.ac.uk/conferences-...

Report published in @AddictionJrnl here: onlinelibrary.wiley.com/doi/10.1111/...

Big thanks to @gitaramdharry.bsky.social & the UCL CNR team for inviting the fabulous Beverley Harden to give the CNR lecture tonight. The presentation certainly rallied the troops & the enthusiasm to address our own areas in need of rehab was exciting & inspiring 💙 #treatment #rehab #collaborate

FAO Streeting & Starmer.... but they know this already

This is going to be brilliant! Sign up!

I think altmetric bluesky tracking is now live. This should add a new colour to the altmetric wheel: www.nature.com/articles/s41...

My direct appeal to @rthonwesstreeting.bsky.social & Keir_Starmer in the light of yesterday's vote on AD. If they sincerely care about dying people, surely now they will publicly & urgently commit to properly funding our threadbare, neglected palliative care? www.theguardian.com/society/2024...