Please spread the word! Great opportunity for bioinformatician to join us at the world-leading UCL Institute of Neurology in London, UK, to research genomics of inherited neuromuscular diseases. www.ucl.ac.uk/work-at-ucl/...

Just over a month to go! Register now to secure your place 👉 bit.ly/QSmitomed2026

Stealth BioTherapeutics has today announced an award from our Business Engagement Fund to support a new collaboration to evaluate the effects of their compound SBT-589 on biomarkers of disease in a mouse model of Leigh syndrome, a rare mitochondrial disorder: nmgn.mrc.ukri.org/news/busines...

Launched to a positive reception in parliament yesterday, a new report – More trials, better data, faster access – outlines policy changes that would have huge impact for people with rare diseases. 👉 Read the report now: t.ly/LJRi4

Clinicians and researchers with an interest in #mitochondrial disease: Queen Square Advances in Mitochondrial Medicine (5 May 2026) is a CPD-approved course covering pre-clinical & translational research, and the latest updates in NHS diagnostic testing. Registration: www.ucl.ac.uk/brain-scienc...

Need a change? Then apply to join our Cambridge team working on #mito disease! Research coordinator post now live, working with @mitonewcastle.bsky.social @londonmito.bsky.social @lilyfoundation.bsky.social on the @lifearc.bsky.social centre for Rare #mito diseases! www.cam.ac.uk/jobs/clinica...

*New* Clinical Research Fellow vacancy - inherited neuropathies. Based at UCL Queen Square Institute of Neurology. Application Deadline 25/01/26 www.ucl.ac.uk/work-at-ucl/...

UCL Queen Square Institute of Neurology Hosts Neuromuscular Diseases Research Day 2025. A fantastic day bringing together clinicians, researchers and trainees to share insights and celebrate progress in NMD research. 🧠 @uclqsion.bsky.social @uclbrainscience.bsky.social Read more: bit.ly/48N8tPI

✍️ Apply now! Clinical Fellowship in imaging for evaluation of mitochondrial disease severity, progression, and treatment response, in our excellent & supportive team at UCL Queen Square / UCLH NHS Highly Specialised Service for Rare Mitochondrial Disorders shorturl.at/jaSke

📢 We are recruiting a post-doctoral clinical research associate to join the @lifearc.bsky.social Centre for Rare #Mitochondrial Diseases, supported by @mdukcharity.bsky.social It's an exciting time in mito research! For further details and to apply visit: www.cam.ac.uk/jobs/clinica...

It's World Mitochondrial Disease Awareness Week 💚 Since we couldn't #LightUpForMito this year the team's looking lit in green to raise awareness instead! Read more here: www.thelilyfoundation.org.uk/charity/get-... #mitoaware #mitochondrialdisease #worldmitoweek2025 @lilyfoundation.bsky.social

It’s here – World Mitochondrial Disease Week! 💚 We’re proud to collaborate with other mito charities across the UK to put mito on the map – let's spread the word together! 👉 See how you can get involved: 🔗 thelilyfoundation.org.uk/charity/get-involved/world-mitochondrial-disease-week

Looking for a Clinical Research Fellow to join our team! Please share and apply below by 7th August 👇

We are pleased to share an exciting new research opportunity for a clinician with a neurology background to join the London Mitochondrial Team, focusing on innovative MRI techniques in mitochondrial disease: www.ucl.ac.uk/work-at-ucl/...

We're proud to announce our work developing a ground-breaking mitochondrial donation IVF treatment has now seen eight healthy babies born 👶 Find out more 👇 www.ncl.ac.uk/press/articl... #WeAreNCL #Health #News #Mitochondria

Coverage of this important work led by @daniellahock.bsky.social and @dstroudlab.bsky.social who support our @lifearc.bsky.social research to replicate this @medicalsciencesncl.bsky.social @neygenomics.bsky.social @mitocamb.bsky.social @londonmito.bsky.social @lilyfoundation.bsky.social

We spent a great afternoon at the House of Lords for the launch of the @lifearc.bsky.social Centre for #Rare #Mitochondrial Diseases, supported by @mdukcharity.bsky.social The event centre hosted staff, dignitaries, patients, MPs & those involved in rare disease policy & research. We even unveiled…

For the 16th year running 🏃‍♀️ Prof Mike Hanna & the Queen Square Centre for Neuromuscular Diseases team are competing in the #Saucony London 10k! We aim to raise £5000 for The National Brain Appeal 🧠 Support our cause & help us make a difference shorturl.at/7qzqc #LDN10K #NationalBrainAppeal #CNMD

With Prof @robpitceathly.bsky.social at #PacBioPRISM Athens, discussing the potential for Lily Foundation and LifeArc's diagnostic goals to be realised by integrating PacBio HiFi sequencing into #NHS diagnostics 🤝 @lilyfoundation.bsky.social @lifearc.bsky.social @pacbio.bsky.social

We’ve launched a national survey with UCL & RDRP to learn more about how people receive a genetic diagnosis of #mitochondrialdisease It can be a long, complex process & we want to improve it Please share with your patients & networks 👉https://mpscom.eu.qualtrics.com/jfe/form/SV_6tgcIBuDfAcGhRI

Yesterday we were proud to join the launch of the LifeArc Centre for Rare Mitochondrial Diseases - a major step forward in mito research We led a workshop on making complex science clear – because involving patients is key to success #mitochondrialdisease #mitoresearch #patientvoice #raredisease

Thank you to everyone who visited us at Queen Square last Friday & especially our bakers & volunteers! 🧁 We raised over £360 for the @lilyfoundation.bsky.social and could not have done it without your support! 👏 www.justgiving.com/page/qsmito #mito #bakesale #lilycommunitea2025

We are looking for a Clinical Research Fellow to join our team. Please share!

Bake Sale is on TODAY 🧁 Find us from 12-3PM outside the Old Board Room, NHNN. Donate: www.justgiving.com/page/qsmito

We're fundraising for the @lilyfoundation.bsky.social as part of their Mito Communi-TEA Party campaign this April! Join us at the National Hospital for Neurology & Neurosurgery next Friday 4th for a sweet treat 🦋 Donate & more info: www.justgiving.com/page/qsmito

Please share! Exciting post-doc position in the Mitochondrial Research Group at UCL Queen Square Institute of Neurology, London www.ucl.ac.uk/ion/research.... Great team of supportive colleagues, this project could drive meaningful change to patients, closes 8th April www.jobs.ac.uk/job/DMJ082/r...

It's an honour to take on this responsibility from a great role model such as Linda Greensmith, during an era of groundbreaking research in neuromuscular diseases. I look forward to supporting the success of the department's exceptional PIs, early-/mid-career researchers, staff, and students.

If you are interested in mitochondria, Nashville is the place to be June 1-5. Check out this FASEB meeting. Please RT. events.faseb.org/event/mitoch...

📢 We have not 1 but 3 clinical/patient-facing jobs working with #mitoCAMB on the #LifeArc #raredisease centre for #mito diseases. 1x pre/post-doctoral CRA; 1x post-doctoral CRA (with potential to become a 4 year ACL); 1x research coordinator Join us! Links below.

Today is #RareDiseaseDay Did you know there's still no cure for #mitochondrialdisease? @lilyfoundation.bsky.social are fighting to change this. We've invested over £3 million in research since 2007 Please help us to raise awareness of mito Find out more www.thelilyfoundation.org.uk

Welcome @lilyfoundation.bsky.social !! @jellevda.bsky.social @ritahorvath.bsky.social

Welcome to our new account! We are also on LinkedIn here: www.linkedin.com/company/lond...