Hey everyone. Our #ICanCME2025 #conference videos are up on YouTube. 💙 The theme of our #Canadian conference was “Nothing About Us Without Us”. Please #subscribe to our channel to help us drive engagement and watch and like our videos too. youtube.com/@icancmerese...

For those interested in #PatientEngagement or #PPI👇

The Sick Times (@thesicktimes.org) is hiring! We're looking for a new part-time podcast and social media producer who will revive our weekly podcast, help expand our social media presence, and assist with other editorial tasks. More details here, applications are due on January 20:

📢JLA PSPs want to hear from you! Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome. ➡️Complete an open survey to have your say: buff.ly/utn2zgF

An international team of patient partners, including @dawnrichards.bsky.social, is studying patient partners' experiences with authorship of peer-reviewed publications. If you have such experience, consider completing this survey! survey.alchemer.eu/s3/90907829/... #ParticipateInResearch

On this day in 1989, an armed gunman murdered 14 women at École Polytechnique de Montréal. Another ten women and four men were injured. The anniversary of the massacre is commemorated annually on Dec. 6 as the National Day of Remembrance and Action on Violence Against Women.

A University of Regina researcher is looking for caregivers (e.g., family, friends) in Canada who are supporting long-term care residents to participate in a study evaluating an online mental health program to improve caregivers' mental well-being. #ParticipateInResearch

At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference: pxphub.org/pxp-2025-art...

💭How do you navigate owning your lived experience as one aspect of your identity? www.youtube.com/watch?v=F39U...

Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research. 🎥Check out this webinar recording from the #PxP25 conference: www.youtube.com/watch?v=-xoH...

🌎How are research teams engaging patients as partners in different parts of the world? ☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25 conference in September: www.youtube.com/watch?v=LBW8...

How are patients are changing the research system from within? www.youtube.com/watch?v=Wf5v...

🚂How do you get research to the people who can learn or use something from it? Get some ideas here: www.youtube.com/watch?v=gwde...

Let's keep sharing these amazing stories about how vaccines have transformed our lives

📚 Read the chat summary: pxphub.org/laying-the-g... #PxP25 #PatientPartnership #HealthResearch

How can you lay the groundwork for successful patient partnership? #PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role. 🎥 Watch back: www.youtube.com/watch?v=EnJ6...

📣 Interested in #PPIE, #PPI, #PatientEngagement, #CoProduction in research (or whatever your term is for it) and the concept of power dynamics? Join me and Therese Lane on Nov 25 at 12 pm eastern for a conversation on this- tinyurl.com/4brnknxj - everyone is welcome! 1/2

In honour of the one year since he started his journey to the west, I wrote a letter to Dad in my free @winnipegfreepress.com newsletter Biidaajimowin.

To dismantle structures that cause imposter syndrome: - Examine who gets credit & why - Value collaborative achievements - Recognize that someone who thinks before speaking might have better ideas than those who dominate the conversation @shannonrwatts.bsky.social substack.com/home/post/p-...

If you are passionate about Black Queer and Trans Health, you can report to @drdryden.bsky.social if selected for this brilliant opportunity! 🫂 Please share widely in the hopes of it getting onto the radar of Black or African Nova Scotian folx with a grad degree and project coordination skills! 🙏🏾🙏🏾🙏🏾

(1/2) Dr. Monika Kastner and her research team invite implementation researchers & practitioners in Canada and the U.S. to participate in a #CIHR -funded study exploring perceptions of quality in #KnowledgeTranslation and implementation science (KT-IS) practice tools (theories, models, frameworks).

Previous multiple sclerosis, now the potential role of Epstein Barr virus for driving lupus (SLE) science.org/doi/10.1126/...

We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word www.scripps.edu/news-and-eve...

Her sister wrote my favorite essay about her. She points out that RF would have been famous even if she'd never looked at DNA www.thelancet.com/journals/lan...

Thinking only of Rosalind Franklin today, and what was stolen from her (and so many other female scientists alongside her).

Before her (too early) death, the amazing Sharon Begley wrote this piece on double helix co-discoverer James Watson and the racist and sexist pronouncements he seemed to revel in making in later life. Fascinating read about a troubling individual. www.statnews.com/2025/11/07/j...

With 🇺🇸 Thanksgiving being 3 weeks away and SNAP being a shit show—but with some retailers and nonprofits offering turkeys for low or no cost—I'd love to get my free cookbook #AfterTheFeast to as many folks as possible. Would you kindly share it here and elsewhere? 🙏 ivacheung.com/2025/09/afte...

➰Our November issue of 'In the Loop' is here! Learn how you can be part of the movement to close the gap for kids in pain!🔗 tinyurl.com/4by6pcda ✉️Subscribe & submit an entry: kidsinpain.ca/newsletters/ #ItDoesntHaveToHurt #InTheLoop #NPAW2025

Have you seen Healthcare Excellence Canada’s series, All Voices for Safer Care? Check out SKIP’s article on how the Pediatric Pain Management health standard is closing gaps for kids in pain. tinyurl.com/2wx6fwmu #ItDoesntHaveToHurt #NPAW2025 #CPSW2025 @he-es-canada.bsky.social

Thanks for sharing this Solve. We appreciate it.

Please check your spam or junk folders for an email from ICanCME if you haven’t received your link yet for part 2 of the conference registration. :) Also, we had some missing emails and some that were rejected for being written incorrectly (missing the @ sign for example).

Today is the last day to complete our survey about living with polymyalgia rheumatica (PMR)! This is your chance to share your experience and help shape access to treatment. Learn more + add your voice: buff.ly/2LUuZry #PMR #Kevzara #PatientInput #PatientVoice

I made a li'l cookbook! *After the Feast* suggests ways to use up leftovers from your big turkey dinners. The PDF is FREE. If you buy a print copy, $2 will support food security initiatives through the Qajuqturvik Community Food Centre. Please spread the word! 🍗 ivacheung.com/2025/09/afte...

Hello #HamOnt! On Oct 16th I'll be at the @hamiltonlibrary.bsky.social talking about fascinating research on how vaccinations protect the aging brain. It's free, it's fun, and I would love to see you all there. Register below. @miramcmaster.bsky.social

In need of some inspiration this weekend? I use these inspirational quotes in my global health courses

“What we bring to the community and decision makers is that breadth of lived experience. Researchers want to partner with us because we have knowledge, experiences, and values that they don’t have.” - Neil Bertelsen #PxP25

“Like the idea of us as a global patient movement identifying institutions that claim to be doing health equity work and holding them accountable to these claims.” - Kwanele Asante #PxP25

“Expertise makes the distinction between our experience and our expertise like others on the team (e.g. a biostatistician).” - Greg Merritt

“With each passing involvement, my confidence grows in my ability and my place in the process….Crucially I can say no to project that don’t feel right, feel tokenistic, or not right for my family.” - Joel Nelson #PxP25

“Even though we may all live with the same disease, doctors need to know that our experiences are all different. We’re not just numbers.” - Marquetta Frost #PxP25

“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25

“One voice is not enough. We need many patient voices- loud, clear, and informed, at every decision-making table.” - Josef de Guzman #PxP25

“Patience, grace, and understanding that changing culture takes time. Patient engagement is fairly new and people are learning together.” - Cheslie Johnston

“A paper that sits locked on a shelf is like a locked medicine cabinet. The medicine is there, but it doesn’t reach the people who need it.” - Marie Ennis-O'Connor

“The problem is that doctors think they know what patients want”- “how do patients assert their authority and voice, and make doctors and researchers understand more about this?” - Nikhil Jayswal #PxP25

“Engagement moves at the speed of trust. If you have no trust, you’ll never have engagement.” - Jeff Ordway #PxP25

“Trust is important. When you build that trust, you get to the point of being a partner.” - Joab Wako #PxP25

“There are no silly questions, patients ask questions that others on the team don’t.” - Dominique Hamerlijnck #PxP25

💚In the thread below, we share a selection of our favourite quotes from today which you can scroll through. Please add your own quotes or reflections too! #PxP25