In the latest edition of our newsletter, we are pleased to share the most recent updates and highlights from JLA Priority Setting Partnerships. 📰Read our winter newsletter here: buff.ly/heyOqPU ➡️Don’t miss out on future newsletters, sign up to the JLA mailing list: buff.ly/Lo7azFJ

📢JLA PSPs want to hear from you! Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or health and care professional your views are welcome. ➡️Complete an open survey to have your say: buff.ly/utn2zgF

📢New PSP survey! Help to identify the most important unanswered questions about how digital technology can improve care for people with bone, joint, muscle, and soft tissue conditions (also known as Trauma and Orthopaedics). Have your say:

The Obesity Care in Canada PSP worked with people with lived experience of obesity and those supporting them, including caregivers and healthcare providers, to identify and prioritise uncertainties in obesity care. ➡️The priorities for future research: buff.ly/6vBTjMf 🌐 Learn more: buff.ly/kGGWO6f

Please share the Youth Gender Diversity PSP survey with your colleagues, patients, and their carers so their questions about gender dysphoria/incongruence are heard and represented in the future. Survey now open: buff.ly/CRZUinI

It has been another busy year for the James Lind Alliance, and before the year comes to an end, we invite you to join us in reflecting on everything that has been accomplished over the past 12 months... 🎉 Here are some of our highlights of 2025: buff.ly/O2gElt7

📢New Top 10! The Community Acquired Pneumonia in Adults PSP worked with patients, carers and clinicians to identify questions for future research to answer about the diagnosis and management of community acquired pneumonia in adults, along with longer term follow up and recovery. buff.ly/kUZdOHd

🗣️Have your say. What questions do researchers need to answer about care and support for children and young people questioning their gender? Share your views with us: buff.ly/CRZUinI

📰 Want the latest JLA updates? Sign up to our newsletter and stay up to date on the latest news from the JLA:

📢What questions do you have about Sjögren’s disease that you think should be answered by research? Share your views as a person with lived and/or professional experience to help shape future research into Sjögren’s disease. Take the survey:

Do you have lived or living experience (as a patient, caregiver, or healthcare professional) of heart failure? 💭 What questions do you have about the link between heart failure and its effects on the brain? Have your say:

🌟 We’re delighted to welcome three new JLA Advisers to our team: Louise Hill-Davis, Rhiann McLean and Victoria Thomas! Read our latest blog to find out a bit more about them: buff.ly/l0Jhk2X

📢Your voice matters. We want to hear about your experiences of living with gender dysphoria as a young person. How should support and care change in the future? Influence future research by taking this survey: buff.ly/CRZUinI

📢What's new on the JLA website? In our latest blog post we celebrate the completion of the Pregnancy and Childbirth (Uganda) PSP. Thank you to everyone who contributed to the PSP, your contributions will help to shape future research! Find out more about the PSP's final workshop: buff.ly/S2IjM0N

📢New JLA Blog Post! Mothers, midwives, clinicians and community members in Eastern Uganda have directly shaped the Top 10 research priorities for maternal and newborn health through the JLA methodology. Find out more about the Pregnancy & Childbirth PSP in our latest blog post: buff.ly/hgfLPlC

📢Your voice matters. Share your experiences of working with young people experiencing gender dysphoria or incongruence. Take the survey: buff.ly/CRZUinI #GenderDiversity #GenderDysphoria #TransgenderResearch

The LGBTQIA+ Perinatal Care PSP identified and prioritised unanswered questions about LGBTQIA+ people’s fertility, pregnancy, birth, infant feeding experiences and health in the first year after birth. ➡️Check out the PSP's Top 10 here:

Genomics England and the Sickle Cell Society worked with patients, carers, carriers and healthcare professionals to identify uncertainties about the relationship between sickle cell and genomics. The Top 10 priorities for future research in this area have been announced! ➡️ buff.ly/PEzKSW4

Do you experience chronic or recurrent UTIs, or care for those who do? Have your say! Help shape the direction of future research by choosing the questions that matter to you the most:

Final day of sharing Top 24 research priorities for LGBTQIA+ Perinatal Care (@jameslindalliance.bsky.social PSP, supported by @ox.ac.uk & @britishacademy.bsky.social ).Qu 19-24 cover bonding, work leave, experiences of gender, induced & shared lactation, written language, & sperm donor diversity 1/

📢New Shortlisting survey! What questions about essential tremor do you think are the most important and should be prioritised in future research? If you live with essential tremor or provide care and support to anyone who does, you are invited to share your views: buff.ly/6ddfFgO

📢Delirium PSP - Initial survey! More research is needed to help people with delirium in the best way. Share your experience or professional insight to help shape the future of delirium care in the UK. Take part in the survey:

Do you work with young people experiencing gender dysphoria/incongruence? Make a difference by completing this survey. 📝Let us know the questions you think will help shape services in children and young people in future. buff.ly/CRZUinI

Excited to launch the results of the LGBTQIA+ Perinatal Care Priority Setting Partnership. In our 1st survey, 366 LGBTQIA+ people & their HCPs submitted 1166 qus. We combined qus on the same topic to make 48 summary qus. We checked the evidence to see if any had been answered 1/

Do you have experience of being referred to services provided by Allied Health Professionals (AHPs)? Have you cared for anyone receiving AHP services? 💭 What questions do you have about the staff providing care within AHP services? Share your views: shusls.eu.qualtrics.com/jfe/form/SV_...

Help improve the care and well being of people having chest & lung surgery. Healthcare professionals and those with experience of chest and lung surgery are invited to select the most important questions for future research to address. Take part in the survey: buff.ly/fEGJxyh

📢The Sepsis (Australia) PSP wants to hear your views! Choose which questions you think are the top research priorities for sepsis in Australia. Have your say: buff.ly/30zmfhb

Have you questioned your gender identity? Are you trans or gender diverse? Help shape future support and care of gender diverse children and young adults by telling us what matters to you. 👉Take the survey: buff.ly/CRZUinI 📣Please help us get as many voices heard as possible and share this post.

💭What questions you would like research to answer about communication and/or swallowing difficulty during or following critical illness? Your questions can relate to any aspect of care or can include risks, causes and recovery. Have your say:https://buff.ly/3DFXnSs

📢The Young Adults with Hip Pain PSP wants to hear your thoughts. What should be the focus of upcoming studies on musculoskeletal hip pain in young adults aged 16-55? Have your say via the survey here: buff.ly/8xSPvyt #JLA #PrioritySettingPartnership

Help to identify the Top 10 priorities for research into gender diversity in young people. Share your experiences with the Youth Gender Diversity Priority Setting Partnership: buff.ly/lGw3Zp8

💭Do you wonder what is important for babies and young children? Would you like to know what affects their social and emotional wellbeing? Share the questions that you have about children's development. Your questions will help to shape future research: buff.ly/YKOL3HN

📢New Top 10! Check out the published priorities for future research around Polycystic Ovary Syndrome: buff.ly/r296eFy Congratulations to everyone involved in the PSP. Find out more about the PSP here: buff.ly/BHUuSmE

Do you care for or work with under-5s? Are you a researcher in child development? Help shape future research by taking part in a national survey from Supporting Early Minds Research Network @mhid.org.uk Read more: tinyurl.com/DevelopingCh...

📢New Top 10! The Food Allergy in Children PSP worked with children, parents and health care professionals to identify the most important questions for future research to answer. Check out the Top 10 research priorities: buff.ly/lChTI1U

📢The page for the Paediatric Intensive Care (Australia and New Zealand) Priority Setting Partnership (PSP) is now live and can be found on the JLA website: 🔗 buff.ly/nFBj8RK

No one understands the issues related to gender diversity better than those with lived experience, their parents/carers and the professionals who work with them. Share your views to help ensure that research focuses on what matters most: buff.ly/lGw3Zp8

Breathing problems can make daily life harder, and for people of Black/mixed Black heritage in the UK, barriers to fair care often make things worse. Share your thoughts and experiences to help make sure future research looks for answers to the questions you care about:

Have you or someone you care for been treated by adult secure psychiatric services, in hospitals or in the community? Or, do you work in forensic mental health services? Share your priorities for research to help improve care in secure psychiatric hospitals and in the community:

📢Help shape future research that aims to improve patient care and Allied Health Professions (AHPs) working lives. If you’re an AHP, a learner, part of the support workforce, or recently retired, take part in the short survey to help shape the research that matters most to you:

This #WorldMenopauseDay, we’re highlighting the Menopause PSP’s Top 10 research priorities. The priorities were jointly identified by people with lived experience and the healthcare professionals that support them. Check out the Top 10: buff.ly/G32ark8

🎉200+ Completed PSPs! There are now over 200 published Top 10s, providing a huge range of questions for researchers and funders to work on. These lists of priorities are directly relevant to patients, carers and families, and healthcare professionals. Check out the Top 10s here: buff.ly/RN6NNrV

📢Shortlisting survey! Help to choose which questions about problematic menstrual bleeding (bleeding problems associated with periods) are the most important to those who are affected, those who support them, and healthcare professionals who care for them. ➡️Take part here: buff.ly/JPCiB06

The Women's Cardiovascular Health and Cardiac Rehabilitation (Canada) PSP worked with people with lived experience, their support networks, and clinicians to identify and prioritise research questions specific to cardiac rehabilitation and women’s cardiovascular health. ➡️Top 10: buff.ly/qw9DOhs

📢Shortlisting survey! Help to decide the most important questions for research to answer about Developmental Coordination Disorder (DCD)/ Dyspraxia. If you have lived and/or professional experience of DCD, have your say: buff.ly/RTLPFWI

📢 The second survey is now open for Metabolic Interventions for People with Severe Mental Illness (SMI) PSP. Help to decide which questions researchers should focus on to improve the metabolic health of people living with SMI. Have your say: buff.ly/isjGdqQ #JLA

The JLA is excited to join the incredible lineup of speakers at the 2025 PeDRA Annual Conference in Minneapolis this October! We look forward to sharing the work of the JLA with the pediatric dermatology community. 📅 October 9-11, 2025 📍 Minneapolis, MN 🌐 Learn more: buff.ly/sKqzy7m #PeDRA2025

The Childhood Deafness and Hearing Loss PSP has published the top priorities for future research aimed at improving our understanding of childhood hearing loss. ➡️Top 10 priorities ranked by adults: buff.ly/GQq4qNB ➡️Top 10 priorities ranked by children: buff.ly/1hR5qEu

We are thrilled to share that the JLA will be speaking at the 2025 PeDRA Annual Conference this October in Minneapolis! We look forward to forming new connections and sharing the value of JLA Priority Setting Partnerships. 📅 October 9-11, 2025 📍 Minneapolis, MN 🌐 Learn more: buff.ly/sKqzy7m

Help to identify which research areas matter most to the sickle cell community, ensuring that people directly affected are at the heart of future research decisions. Whether you have sickle cell, carry the trait, or are a loved one, or a clinician, your insights are vital. ➡️ buff.ly/f20QnEM