We’ve seen where this ends. The Nazis targeted disabled people. Those in power rely on society’s fear and misunderstanding of disability. The truth is there’s nothing to be afraid of. We aren’t less than. We aren’t “better off dead”. We’re worth fighting for.

Just published in JOSS: 'PyPaperRetriever: A Python Tool for Finding and Downloading Scientific Literature' https://doi.org/10.21105/joss.08135

#datalibs #medlibs NIH Data Management and Sharing Policy question - is data that was produced from grants that are now terminated still subject to the original grant terms and conditions?

Help me build the St. Jude Archives and Special Collections as our new Digital Collections Archivist! This new position will be responsible for managing our oral history collection, our future Electronic Theses and Dissertations, and some digitization. It's a great early career archivist job.

Today the internet lost Maru, cat of legend, so I'm putting out an empty cardboard box for him.

Mask up, y'all! The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize. www.nih.gov/news-events/...

In A Few Words essay by Alan Finkelstein, PhD: Giving Grace bit.ly/45JzaUX (FREE)

... Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November. #medlibs 📚 webofscience.zendesk.com/hc/en-us/art...

#chronicillness #covidconscious Bloody vaccinate your bloody kids, a valuable public health notice from Joel Gustaffson thanks heaps to @qrky.bsky.social www.youtube.com/watch?v=o2wo...

We have agency. We can speak up. We can show up. Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes. ➡️ @oncoalert.bsky.social @statnews.com

Potentially catastrophic behind-the-scenes news about the Network of the National Library of Medicine (www.nnlm.gov) shared with me today. While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again. #medlibs 📚

NIH comment request for public access fees on NIH grants:

This is incredible. Not only is it beautiful work, it's a reminder that there is no shame in being increasingly disabled as multiple cancers slowly take my health and my life. This, too, is a process. Thank you @philsinabind.bsky.social and @sfdirewolf.bsky.social.

Drift into the weekend in full colour! This dreamy pink & green kaftan from the Dame #zandra_rhodes_ collection is made for balmy #FashionFriday vibes #fashionhistory #dmufashion #a_stitch_in_time_13 #historicfashion #dmufashionmarketing #fashion

As a #childhoodcancer doctor, I'm proud to be able to advocate for children with cancer in any way that I can. Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it. #PEDCan #CANSky www.detroitnews.com/story/opinio...

🚨 If you haven’t seen it yet… 📢 The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition. Check it out at bioart.niaid.nih.gov

Children have died who have recovered from Cancer, only to be lost to COVID. Same for so many patients. It’s not acceptable that five years on there is no correct PPE in healthcare. No clean air and restricted vaccines. One life isn’t worth less than another and this is dividing families too.

I bought my home hoping it could eventually be a point of refuge for other community members who may need a place to land This loan stands between me and making that a reality If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off

Introducing the 2025-2030 NIH Strategic Plan for Data Science: What Researchers Need to Know datascience.nih.gov/director/dir... "Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"

IU has the oldest Folklore Department in the country--no longer a major. Cognitive Science? gone! PhD programs also sacrificed. Full list here: www.in.gov/che/files/In...

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Describing cancer patients as “brave” is inaccurate and dehumanising. We need less dehumanisation in the NHS. Also dehumanising: putting doctors and nurses on pedestals. This fails to recognise their full humanity. I wish we’d all stop dehumanising each other. #cansky 1/3

soooo I've maxed out my credit card prepping for conventions this year and I'm super broke. If you want to help me out, pls check out my online shop! I have over 150 items listed, including funny cat stickers, cute art prints, and stationery💖 Pls help support a queer artist💖 💖 mcapriglione.art 💖

This is very, very bad. A new state law will likely force the closure of hundreds of low-enrollment programs at Indiana University. The cutoff is 15 graduates/year for undergrad majors, 7 for Masters programs, and 3 for PhD programs, averaged over 3 years. wfiunews.wordpress.com/2025/06/24/h...

Timeline cleanser 🫶

Grok is not worth these horrors.

Snails, Anselmus Boëtius de Boodt, c. 1596 - 1610 (Rijksmuseum) Serene and lovely. Just snails.

Long live Pride 🏳️‍🌈🫶 [ #cuteart #pridemonth #pride ]

Your periodic reminder that the AI summaries in Google are often complete hallucinations. DO NOT USE AI SEARCH RESULTS. You can turn them off in Chrome and Firefox. Do this and save the truth as well as the planet (so you aren’t triggering AI usage when you do searches). tenbluelinks.org

Big Ten Academic Alliance and Springer Nature Announce Unlimited OA Publishing Agreement in the Americas. btaa.org/about/news-a...

Guess what they mention as an aside? Archives. "If an archive fails — fails to save the right things, fails to preserve old documents or fails to maintain digital information in a format modern computers can interpret — then the fact of that failure may take years or even decades to emerge."

Scientists--Share your story! We need the nation to know what is at stake if the NIH is gutted. It's therapeutic and takes just a few minutes

Concerns about the reliability of PubMed are leading the German govt to develop an “open, reliable, and sustainable” alternative absolutelymaybe.plos.org/2025/05/14/g...

As a recipient of a Fulbright-Hays dissertation grant to Poland in 2002-2003, this hurts my heart. These kinds of grants are not only life changing, they're world changing. This is another step in the direction of ignorance and insularity.

I don't want to hear another word about AI "play" and "experimentation" to develop "nimble" skills in the classroom without this context www.politico.com/news/2025/05...

Never going to the Liberty again.

My trainee just sent me this notification from the NIH about a pending F31 application. We knew it was likely to come, but it still hurt to read the words.

US withdrawal from WHO and its budgetary impacts: www.who.int/news-room/sp...

FYI “Spencer Foundation, Alfred P. Sloan Foundation, William T. Grant Foundation and Kapor Foundation are providing quick turnaround grants of up to $25k for education scholars impacted by the abrupt NSF grant cancellations.” www.spencer.org/news/meeting...

LFG!!!!!! 📚💪

No point doing an OA policy if there's no research left to make OA but there you go... www.nih.gov/about-nih/wh...

Just got word from my college roommate - who is the state archivist for the state of South Dakota - that due to the DOGE shutdowns of IMLS, they can no longer fund InterLibrary Loan in SD. This means exchange between libraries, ability to get books delivered across the system, is gone as of 4/30.

Could you use help explaining the value of #cataloging & good metadata to your admin, coworkers, #MLIS students, etc.? Happy to share this set of resources put together by an ALA working group chaired by @magsjoy.bsky.social. All of these & more are available at hdl.handle.net/11213/22872. 📚

🔥Calling all no-spice dragon-rider romantasy ARC readers🔥 The Dragon Next Door Tollar’s got a stolen dragon egg, and that’s the least of her problems. Join this loveable rogue as she fights against the darkness to save everything (and everyone) she loves. Get the eARC: forms.gle/KMkiJPYVnLpE...

Here’s an explainer re possible impacts to the Institute of Museum & Library Services (IMLS). It “enumerates which programs are "shall" programs and duties, meaning that they are mandated by Congress, and which programs are "may" programs, meaning that they are discretionary for IMLS”

ICYMI: POTUS issued an EO yesterday directing to dissolve the IMLS (and six other agencies). Solidarity to everyone affected. I’m with you—it’s been a major source of my research support, and, generally, a major source of support for libraries and museums in America.

📣 New zine!! "11 Reasons I'm Still Wearing a Mask in 2025." Freely available to print or read online at violetbfox.info/11reasons/. Very excited to share this zine! 💜😷💜 #MasksSaveLives

The struggle is real. Most of my family is completely uninterested in getting tested for the BAP1 mutation I carry. They'd rather pretend it doesn't exist.