Went to Manchester for the #hsjpatientsafety awards - so proud to have won the education and training category with our amazing Frailty Academy #frailty

Taking some time to find my way round @bsky.app Anyone got any top tips for me as I am still trying to work out how to get the best from being here! Thank you

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

It is #SevereMEDay Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission. We can play a key role in education of other health professionals, to advocate for safe management and care @thecsp.bsky.social www.physiosforme.com/severe-me

Proud to be part of the RoyalSurrey frailty team heading for @rcphysicians.bsky.social awards this evening- finalists in two categories for the #EPCA2025 awards

A fab weekend spent with like minded colleagues who I well and truly count as friends!

youtu.be/vv0pUwoF9J0?si… Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some grea#MEME talks, well done all at the ME/CFS conference, digging deeper - Norway.

Proud to stand alongside colleagues in supporting the need for evidence based science to improve care for people living with #ME and or #LongCovid There is no place for the outdated nonsense in recent BMJ article

Our evidence-based rebuttal to *that* BMJ opinion piece published last week. This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community. www.bmj.com/content/389/...

Great response from @naomidharvey.bsky.social www.bmj.com/content/383/...

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

Tomorrow the 3rd International ME/CFS Research Conference of Charité will take place in Berlin. You can still register for free. Thank you Cort Johnson for the announcement. www.healthrising.org/blog/2025/05...

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

What a great letter. Thank you

@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social I'm an ally for people with ME - they deserve better from us as health professionals #FundThePlan

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM) Please share widely - all info on our website here www.physiosforme.com/athletessurvey

🚨 We're recruiting 🚨 If you're looking for a role in NHS ops as part of a great team, take a look! As the national focus shifts to community based services, you’ll be at the forefront, leading the delivery of outstanding care for older adults #frailty www.royalsurrey.nhs.uk/current-vaca...

40% of ED attendances are over 65yrs. Average wait for admission in>75yrs =12 hours. 10% attendances from care homes. Waiting is especially bad for older -risk of delirium, deconditioning, acute kidney injury/LOS. But much could be done to avoid these probs @gerisoc.bsky.social @rcem.bsky.social

Great opportunity to talk on BBC Breakfast today about the amazing work of our frailty teams across the four nations. Thank you to everyone working in these services today in the snow!! @gerisoc.bsky.social

We know considered, timely (soon!) social care reform is essential to deliver quality healthcare for older (&younger) people &to reduce daily crisis management in NHS. A consistent message from patients, carers, @gerisoc.bsky.social & our partner organisations. Let’s build on what we already know

Sunday morning #CPD (on a Saturday - have had some days off & no idea what day of the week it is really!) A great article from @otskiff.bsky.social & Ciara Brean journals.lww.com/cptj/fulltex... Lots of learning about cognitive dysfunction in #LongCovid & #MECFS @physiosforme.bsky.social

I’d like to crowdsource a poem, if you all are willing: If you have #LongCovid, please name your worst 3-5 symptoms. I’m gonna track responses and make a word cloud. The more the better so please share!

The increased alanine and BCAA levels in females, in particular, suggested, for the first time I can remember, a metabolic reason why more women may have ME/CFS. It turns out that women, more so than men, rely on a process called anaplerosis to replenish their www.healthrising.org/blog/2024/12...

We promised that the #LCPForum was research generating … … so here it is 💙📰 Priorities for Research, Education, Clinical Practice, and Policy From the Long COVID Physio International Forum #LongCOVID journals.lww.com/cptj/fulltex...

Karin Steere PT DPT PhD provides an overview on the science and clinical application of measuring heart rate variability in people with #LongCovid, potentially of interest to people and companies using HRV measurements to monitor disease activity and guide pacing. journals.lww.com/cptj/fulltex...

Helen Skiffington OT BSc (UK) and Ciara Breen MSc HCM (Ireland) contribute a clinical perspective on clinical identification and management of cognitive dysfunction in individuals with #LongCovid. journals.lww.com/cptj/fulltex...

Glad to have been part of this work - and the opportunity to learn from working with colleagues whose paths wouldn't usually cross mine. Exciting to see it published

This book has a lot of great insight, especially to those who are new to or relatively unfamiliar with ME/CFS.

We'll be taking a break for the Christmas period, but wanted to wish everyone a restful season. We'll be back in 2025 to continue our work in education, advocacy and research for #pwME ❤️

Thankful to @physiosforme.bsky.social for being able to reference their seminal, "A Physiotherapists's guide to Understanding and Managing ME/CFS" (2023) and Jessica Kingsley Publishers for this initiative. It will assist NHS staff to know better what specialist services should be offering.

Happy that our book continues to help educate and inform physios and other health and care professionals You can find out more here www.physiosforme.com/our-book

#12waysofERASE #1 We adapt our research to the participants rather than participants being made to adapt to our research. We design our environment to be quiet with adjustable lighting and temperature. Easy accessibility with parking and wheelchair availability is essential.

As we approach December & our final week of remdesivir infusions for 2024, we thought it timely to share how we have used and considered LC lived experience to guide our award-winning research. Each day for the next 12 days we will share our guiding principles that make the #12waysofERASE

👀 👀 worth a watch to see how the lived experience of people should inform research (as opposed to them being dismissed as activists or worse)

A new BMJ review claims that #LongCovid can be treated using CBT and physical exercise As ever, the devil is in the detail TL; DR the authors' own risk-of-bias analyses show that their own conclusion is unwarranted (Too bad they hid the crucial deets in an online supplement!) cc #pwME #MECFS

Some shockingly bad statements here: Two of CBT studies cited - one didn't include PEM in fatigue criteria, other excluded PEM or "exercise contraindicated" but somehow conclusion is CBT best option for LC? But apparently, the reviewers think they're free from any ideology... t.co/3KlzbMXOmt

Fantastic presentation from @CMO_England to finish off my two days at #BGSConf . So good to hear #AHPs being included in workforce planning discussions @gerisoc.bsky.social

Chris Whitty reminds #bgsconf that the majority reach later life in relatively good health @gerisoc.bsky.social

“Be more Ted Lasso” - if you want to improve systems be curious about why motivated colleagues who are doing their best don’t always do what we think is the right thing says @sheffielddoc.bsky.social #bgsconf @gerisoc.bsky.social

A thread worth reading about the importance of considering the whole energy envelope for people with #ME and/or #LongCovid Like @sunsopeningband.bsky.social I'm equally passionate about the benefits of exercise to support rehab - when it is safe and appropriate to do so!

In the runup to Xmas it's worth highlighting our book as a possible present for #physios and other #hcps wanting to learn about #ME. I'm still v proud of what we produced and it is still v relevant. @PhysiosForME www.awesomebooks.com/book/9781839...

There is a survey on improving physiotherapy education, with opportunity for service users to input. Follow this link, click "complete a survey", and scroll to "Charities and Patient Groups- Patient Advocates" A great opportunity to be heard! www.csp.org.uk/networks/hig...

Still getting used to the world over here! Just wondering if the #ME community can point me in the direction of any research/articles about #ME in #olderpeople Thank you

On #WorldPatientSafetyDay, happy to be one of the 200 healthcare professionals who signed the letter to @wesstreeting in collaboration with #There4ME calling for urgent action to improve care for people with severe #ME and #LongCovid.

Congratulations to Katie Johnstone for her 3-part article on the #PACEtrial which cost c. £5M of UK taxpayers' money & part funded by the UK Department of Work & Pensions It's all available for free starting here: mecfs.substack.com/p/the-incred... #MEcfs #CFS #PwME #GradedExerciseTherapy #CBT

@claguenjc36.bsky.social is presenting a rapid5 and 2 posters of our #ME research at the Chartered Society of Physiotherapy conference next Tuesday - looking forward to sharing our findings with physio colleagues

Woohoo! Physios For ME have joined us. @physiosforme.bsky.social #MECFS #LongCovid #NEISvoid #pwME #pwLC #ChronicIllness

We've just arrived 👋 any hints and advice much appreciated @physiosforme.bsky.social

The original diagrams:

Congratulations Jaime @exceedhergrasp1.bsky.social on cowriting an excellent article Diagnosis and Management of ME/CFS. www.mayoclinicproceedings.org/article/S002... Great to see sound advice clearly written with PEM and symptom contingent pacing highlighted and clear recommendation against GET.