Nine Year Metaversary Nine (9) years is a strange country to inhabit when you were once told you might only have months. Time changes shape when it is measured not in vacations or promotions or retirement plans, but in scan dates, infusion schedules, pathology reports, and the quiet calculations…

Join Justine every third Sunday of the month for a low-impact, gentle yoga class designed to support your body exactly where it is—offering space to move, breathe, and unwind at a comfortable pace. Sign up now via the link in bio 🔗 #Yoga #ProjectLife #MBC

>>young adults are not just developing colorectal cancer, they are increasingly **dying** from it, particularly rectal cancer<< #ayacsm #oncosky

Clinical trials can save lives from cancer. But not everyone can access them. Congress has an opportunity to change this with a new bill. Help us spread the word so more people understand why #ClinicalTrials matter and why we need Congress to pass this legislation.

OMB nominee Hal Duncan: “This administration is committed to gold standard science and wants to advance the best cancer research that we possibly can.” Sen. Slotkin: “Slashing cancer research…is not a way to uphold a gold standard for cancer research.”

His wife told me she has been holding his hand for over 30yrs, so we created this hand mold of them holding hands for one final time before he died. I might have teared up a little seeing how beautiful it turned out. @3wishesprogram.bsky.social

On a broader scale, the growing reliance on crowdfunding campaigns to cover the costs of care signals a deeper problem in the medical system: “People are falling through the cracks,” said Fred Hutch's Dr. Veena Shankaran. Read more: https://wb.md/4fZ46X1

🚨SNAP Restrictions = STIGMA, reduced autonomy & fewer choices where to shop IF retailers choose to withdraw from EBT. Food insecurity ⬆️⬆️⬆️ Grocery options ⬇️⬇️⬇️ Disregards ACCESS & individual needs of those who face homelessness, lack cooking facilities or have NO reliable means of transportation.🚨

Enjoyed talking with @jlussenhop.bsky.social, the host of ProPublica’s new podcast “Paper Trail,’ about my reporting on how a 25-cent pill became a $100 billion drug, and my experience taking the pricey cancer medication. Listen here: open.spotify.com/episode/6D6u...

Social and support opportunities for adults diagnosed with stage IV metastatic breast cancer under the age of 45 Join us for the EMBRACing Young and Strong Summer Series for connection, support, and community this summer on Thursdays | 6:30 – 7:45 PM ET redcapdfci.dfci.harvard.edu/redcap/surve...

There is a global surge in young-onset cancers, particularly within Asia Pacific. Dr. Kimmie Ng is looking forward to #ASCOBT26 to discuss why understanding these epidemiologic trends is more urgent than ever. Join her and other global leaders in Singapore or online: https://bit.ly/3PLGsCE

Dark nights of the Soul when a dear friend has died There is a particular darkness that arrives after a dear friend dies. Not the darkness of the death itself. Not the darkness of the phone call, the text message, the hospice update, the social media announcement, or the funeral. These mechanics…

NEW on “Paper Trail”: Cancer drug Revlimid is one of the bestselling pharmaceutical products of all time, with total sales of over $100 billion. It also cost nearly $1,000 per pill, even though that same pill cost just 25 cents to make. Listen to this episode wherever you get your podcasts:

“It’s a paradigm shifting treatment,” said Fred Hutch's Dr. Andrew Coveler. “It’s going to probably change treatment from chemotherapy to agents that target the mechanism that causes pancreas cancer.” https://bit.ly/4usynkv

Also... "Researchers at MD Anderson Cancer Center are studying vibration plate technology in animal models, with the goal of protecting bone health in cancer patients." www.npr.org/2026/06/08/n...

In our latest podcast episode, we talk with Haley Pollack, executive director of Bright Spot Network, about navigating parenthood & metastatic cancer, the importance of support systems, & resources available to families. Listen now: TriageHealth.org/Podcast #MetastaticCancer #BeyondDiagnosis #CanSky

Found this good article. Appropriate to focus on LGBTQ health during Pride Month. Do Lesbians Need Cervical Cancer Screening? What You Need to Know www.center4research.org/do-lesbians-...

This week, Ken Jones, a retired San Francisco firefighter, died from lung cancer after Blue Shield denied his treatment claims. He is one of 68,000 Americans who suffer & die annually because of our exploitative healthcare model. Today, I debunk 5 arguments against universal healthcare in the U.S.

As we get started with #ASCO26, what better way to brush up with what has happened the last year in #BreastCancer Presentation 👉 youtu.be/r3ahf8Tb7cQ?... Get a 13 minute breakdown on ER+ Metastatic Breast Cancer from OncoAlert Faculty Dr. Erika Hamilton of Sarah Cannon🇺🇸

#ASCO26 abstracts are live, and so is coverage from #ASCODailyNews! The addition of #GLP1 receptor agonists to combo endocrine therapy and CDK4/6is was associated with a 30% reduction in mortality risk in patients with metastatic breast cancer: https://bit.ly/4dJOMuB #bcsm #MetastaticBreastCancer

Live soon — @mayorwu.boston.gov joins @danafarber.bsky.social and @fire.boston.gov to announce a new partnership that will support cancer screening protocols for hundreds of firefighters across Boston.

If you’re under 50, it’s likely that colorectal cancer isn’t on your radar, but it should be. Once considered an older-age disease, rates are skyrocketing among young adults. https://to.pbs.org/4dku8m1

Specific benefits, programs, and resources are available to members of the U.S. Military and U.S. Veterans that may be useful after a cancer diagnosis. Find these FREE resources and more for Military & Veterans here: https://loom.ly/KD4cqAQ #CanSky

Cognitive issues during MBC treatment can be worrisome. Here, Dr. Freedman explains that oftentimes the solution might be easy to discover. 🎧 Listen (all channels) or 🔗 buff.ly/Io01AWZ #CognitiveAging #BrainHealth #BCSM #CanSky

Join us on Friday, May 8 at 12 p.m. ET for an educational webinar focused on supporting the children in your life who are impacted by someone they love living with #MetastaticBreastCancer (MBC). For more information and to register, please visit: www.dana-farber.org/cancer-care/...

Proud to advocate for our patients with cancer with my @mdanderson.bsky.social colleagues! #ASTROAdvocacy @astro-org.bsky.social We spoke to our congressmen about the urgent need to: 🤝 Support the #ROCR Act to preserve access to life saving ☢️ ⏰ #FixPriorAuth ⬆ cancer research funding

Blue Cross had refused to pay thousands of claims for the center’s patients, but on several occasions executives at the insurance company had signed special one-time deals with the center to pay for their wives’ cancer treatment. (Published April 2025)

April is National Minority Cancer Awareness Month. It's a time to raise awareness about the disparities that impact minority communities and the importance of early detection, education, and equitable care. #LungCancer #NMCAM #MCAM

A rural dialysis clinic was a lifeline for locals before it closed www.npr.org/2026/04/15/n...

Keytruda is $99000 every 3 weeks.

Hey, @mdhumanservices.bsky.social What does a terminal Stage IV Metastatic Breast Cancer patient have to do around here to get SNAP benefits in Howard County?? Phone interview was randomly assigned to me for 9:30am today. No one called. BUT said online that I "missed my call." I did not. THEY did.

Most times, living with terminal cancer REALLY sucks. That's probably an understatement. But sometimes, I reframe my mindset and use it for good: • Participate in research • Arrange to donate my body for cancer research • Write a song focused on my legacy. What do you do when you are handed 🍋?

Tiffany Go from @fredhutch.org talks about the importance of collecting #SOGI data to better serve #cancer patients. #SCHD26 "The more we know about you, the better we can provide for your care." #CanSky #MedSky

Since Trump took office in January 2025, more than 2.7 million credit reporting complaints submitted to the CFPB have gone without relief, a higher rate than in the past. It’s left people at risk of being denied loans, housing or employment.

Fingerprint keychains (on left) are definitely the most commonly requested items that we gift to families as part of our @3wishesprogram.bsky.social. I can hardly believe it, but a generous donor/volunteer has now offered to create & donate engraved, personalized ones (on right). My heart is full.

Breaking news: Chicago’s City Council has voted unanimously to pass a resolution in support of Medicare for All 🎉 This makes Chicago the biggest city in the country to endorse Medicare for All, and sends a message to federal legislators that their constituents expect them to support single payer.

@3wishesprogram.bsky.social is about honoring the patient as a PERSON rather than their illness in their death.

Published today in Science Immunology: @sriv4000.bsky.social and team find a new way to give #CARTcells their own portable pit crew, allowing them to rejuvenate on the go and transforms them into a type of T cell that can support long-term immune responses against tumors. https://bit.ly/3NiSged

We had a request for a birthday party for a dying patient last week. Unfortunately, the patient died before that. Live every day like it's your birthday. @3wishesprogram.bsky.social

Forest Service officials knew about the use of potentially dangerous “forever chemicals” in protective gear years before publicly acknowledging the issue, according to emails obtained by ProPublica.

REHAB DISCHARGE EMERGENCY CARD If told your loved one must leave rehab: Ask for Notice of Medicare Non-Coverage (NOMNC). Call number on it & request FAST APPEAL (Deadline:Noon next day) "I cannot safely accept this patient at home.This is an unsafe discharge." Call state Long-Term Care Ombudsman

🦓 Calling all zebras! 🦓 RU a #rarecancer patient or caring for one? Trying to learn more about a #cancer no one's heard of? Check out @fredhutch.org's FREE Rare Cancer Symposium, Sat, March 14, in #Seattle. #CanSky Learn more: rarecancerprogram.com Register: www.fredhutch.org/en/events/ra...