Abigail Johnston
@amjohnston.bsky.social
📤 1688
đź“Ą 6069
đź“ť 281
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
Facing Denials and Decisions with Incomplete Information One of the often hidden burdens of living with terminal cancer is that the decisions never stop. People imagine the hard part is getting the diagnosis or hearing the word progression or running out of treatment options. And yes, those…
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Facing Denials and Decisions with Incomplete Information
One of the often hidden burdens of living with terminal cancer is that the decisions never stop. People imagine the hard part is getting the diagnosis or hearing the word progression or running out of treatment options. And yes, those moments are devastating. But there is another kind of burden that receives far less attention: the uncertainty of having to make decisions while standing in the middle of a story whose ending has not yet been written along with having to justify the cost of the tests that may provide clarity to a nameless, faceless insurance company.
http://nohalfmeasures.blog/2026/06/25/waiting-to-know/
2 days ago
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Nine Year Metaversary Nine (9) years is a strange country to inhabit when you were once told you might only have months. Time changes shape when it is measured not in vacations or promotions or retirement plans, but in scan dates, infusion schedules, pathology reports, and the quiet calculations…
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Nine Year Metaversary
Nine (9) years is a strange country to inhabit when you were once told you might only have months. Time changes shape when it is measured not in vacations or promotions or retirement plans, but in scan dates, infusion schedules, pathology reports, and the quiet calculations you do before every holiday, every birthday, every milestone, every ordinary day. Nine (9) years of living with terminal cancer means I can no longer divide my life neatly into before and after. Cancer has threaded itself into everything long ago. It moved into the house with us.
http://nohalfmeasures.blog/2026/06/22/nine-year-metaversary/
5 days ago
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Sharing my story
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Building Connections Through Photography and Adversity
Recently, as I have done a few times since Stage IV metastatic breast cancer (MBC) entered my life in 2017, I sat down with Janelle Sea of Uplifted Lens to talk about what it means to build a life inside the realities of MBC. These conversations are never simple. They require opening doors that are often easier to leave closed. And yet, from the moment we began, it felt less like an interview and more like a genuine exchange between two people interested in the stories that shape us. Janelle has a rare gift for seeing people—not just through the lens of her camera, but through the lens of her curiosity and compassion.
http://nohalfmeasures.blog/2026/06/18/sharing-my-story/
9 days ago
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Well meaning advice
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Well meaning advice
There is something about serious illness that seems to transform ordinary people into experts. The moment a diagnosis enters the room, advice follows close behind, bustling and relentless, carrying smoothies and slogans and optimism like talismans against mortality. Everyone suddenly has a philosophy. A cure. A mindset adjustment. A story about someone’s cousin who “beat it” by drinking green juice, manifesting positivity, refusing negativity, praying harder, thinking differently, smiling more, only eating kale, never eating kale -- the list is endless and often bizarre. Throwing lemons at the wall? As though survival were simply a matter of attitude or choosing.
http://nohalfmeasures.blog/2026/06/15/well-meaning-advice/
12 days ago
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Dark nights of the Soul when a dear friend has died There is a particular darkness that arrives after a dear friend dies. Not the darkness of the death itself. Not the darkness of the phone call, the text message, the hospice update, the social media announcement, or the funeral. These mechanics…
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Dark nights of the Soul when a dear friend has died
There is a particular darkness that arrives after a dear friend dies. Not the darkness of the death itself. Not the darkness of the phone call, the text message, the hospice update, the social media announcement, or the funeral. These mechanics of the death process come without warning, but you can handle these parts in community, even when the loss is not a local friend. The darkness I am talking about comes later. When everyone else returns to their regularly scheduled programming. When the world seems strangely comfortable moving forward without someone you deeply loved in it.
http://nohalfmeasures.blog/2026/06/11/dark-nights-of-the-soul-when-a-dear-friend-has-died/
16 days ago
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Remembering Dr Amy Beumer
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Remembering Dr. Amy Beumer, 1978-2026
There are some people who enter the Stage IV Metastatic Breast Cancer (MBC) world quietly and somehow become foundational overnight. Not loud. Not performative. Not interested in applause. Not motivated by likes. Not wanting to be a cancer influencer or perpetuate toxic positivity. Just steady. Just kind. Just generous. Just real. Just magic. That was Amy. Dr. Amy Beumer carried something increasingly rare in this world — intellectual rigor wrapped in genuine kindness and deep generosity. She could speak science fluently without ever making another person feel small or less. She understood research, clinical language, mechanisms, data, dosing, microbiology, advocacy infrastructure, p-values — all the complicated machinery of cancer — but she never lost sight of the trembling human being sitting underneath all those charts and scans.
http://nohalfmeasures.blog/2026/06/08/remembering-dr-amy-beumer/
19 days ago
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reposted by
Abigail Johnston
@doublewhammied
22 days ago
This is my kind of politician! Ossoff calls out insurance companies for
#delay&deny2death
biz practice.
#CanSky
Jon Ossoff Introduces Amendment To Ban Insurance Companies From Denying 'Necessary Healthcare'
share.google/9IVmlxS5j6DD...
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YouTube
Share your videos with friends, family, and the world
https://share.google/9IVmlxS5j6DDJkrxb
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How We’re Loved
It's been a rough few weeks/months amongst many of my friends living with Stage IV Metastatic Breast Cancer (MBC) and reflecting on the hardships and the losses has occupied a great deal of my thinking recently. I wanted to share a poem that has been meaningful to me as I process the losses, the trauma, the suffering. There's no wise, sage wisdom to be found here, just a reminder to return to expressing love whenever possible and don't wait to say the words that show others what they mean to you.
http://nohalfmeasures.blog/2026/06/04/how-were-loved/
23 days ago
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Brave
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“You’re so Brave”
I have never known quite what to do with the word brave. It shows up so quickly whenever people witness suffering, ready in their mouths like a ceremonial offering. You’re so brave. They say it softly, reverently, as though bravery is the natural companion to illness, grief, fear, survival. As though courage blooms automatically inside catastrophe like a flower turning obediently toward light. But something in me has always resisted it. Perhaps because bravery sounds too willing. Too noble. Too purposeful. It feels, sometimes, as though the word quietly mistakes endurance for consent…
http://nohalfmeasures.blog/2026/06/01/youre-so-brave/
26 days ago
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In grief, my love, look for the daffodils
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“In grief, my love, look for the daffodils” a poem by Becky Helmsley
In grief my love, look for the daffodils. It may not be actual daffodils of course. It might in fact be the sunrise outside your window as you draw back the curtains one morning. It might be the decision to draw back the curtains at all, after weeks of being comforted by the dark. It might be walking past their photo and smiling instead of crying; or picking up that empty mug on the coffee table that hasn’t been moved since they left. It might be a message from a friend that you now feel ready to answer; and it might be that meal you cook for yourself after days of surviving on not very much at all.
http://nohalfmeasures.blog/2026/05/29/in-grief-my-love-look-for-the-daffodils-a-poem-by-becky-helmsley/
29 days ago
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The Burden of Honesty in Suffering
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The Burden of Honesty in Suffering
There is a peculiar loneliness in suffering that cannot decide how visible it is allowed to become. A terrible arithmetic that governs and if you step wrong, there are serious consequences. Maybe not in the short run, but absolutely over time. Speak too often of pain, exhaustion, grief, disability, illness, fear—and suddenly your humanity is reduced to the single note of your suffering. You become “negative.” Difficult. Too much. An attention seeker collecting sympathy like spare change. A burden people begin to carry resentfully, arms tiring beneath the invisible weight of your honesty.
http://nohalfmeasures.blog/2026/05/25/burden-of-honesty-in-suffering/
about 1 month ago
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Looking for a clinical trial option? If you are living with HR+
#mbc
, check out the attached tile.
about 1 month ago
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Shit we deal with — Time Toxicity Recently a fellow member of the Live from Stage 4 podcast team, Dr. Jill Tirabassi, recorded an episode reviewing a study examining the Time Burden in Patients With Metastatic Breast and Ovarian Cancer from Clinic and Home Demands ( and since cancer care feels…
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Shit we deal with — Time Toxicity
Recently a fellow member of the Live from Stage 4 podcast team, Dr. Jill Tirabassi, recorded an episode reviewing a study examining the Time Burden in Patients With Metastatic Breast and Ovarian Cancer from Clinic and Home Demands ( and since cancer care feels like a full time job to me, especially during times of progression, I decided to duplicate the record keeping for a 28 day cycle of the new to me IV chemotherapy, …
http://nohalfmeasures.blog/2026/05/21/shit-we-deal-with-time-toxicity/
about 1 month ago
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Cancer Fatigue, the Elephant in the room
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Cancer Fatigue, the Elephant in the room
If you are interested in hearing more from me and several professional health care professionals committed to supporting patients through this pesky and difficult adverse event, check out this MASCC (multinational association of supportive care in cancer) webinar on Thursday here. Fatigue is too gentle a word for what cancer (and the necessary treatments) does to the body. Fatigue sounds temporary, ordinary, solvable.
http://nohalfmeasures.blog/2026/05/18/cancer-fatigue-the-elephant-in-the-room/
about 1 month ago
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Managing Chemotherapy Induced Nausea and Vomiting (CINV)
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Managing Chemotherapy Induced Nausea and Vomiting (CINV)
I was recently honored to participate as a patient partner in a webinar organized by the Multinational Association for Supportive Cancer Care (MASCC) and it was recorded. Watch the recording from the MASCC recent webinar: Optimizing CINV Management: Best Practices for Addressing Delayed Nausea with T-DXd: I spoke for about 15 minutes after the introductions and my slides are available below. This webinar is supported by an independent educational grant from Daiichi Sankyo — thank you!! Agenda: ➡️ Introduction – Prof. Maryam Lustberg (Chair)➡️ Understanding CINV: Pathophysiology, Risk Factors & Patient Variability – …
http://nohalfmeasures.blog/2026/05/14/managing-chemotherapy-induced-nausea-and-vomiting-cinv/
about 1 month ago
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Holding Healthcare Accountable as a Patient
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Holding Healthcare Accountable as a Patient
Accountability”—that tidy word Merriam-Webster offers up as an obligation or willingness to accept responsibility for one’s actions—has threaded itself through the past weeks, stitching tight seams through my days at a new infusion center, where I've spent time each week receiving my new line of treatment, Taxol. When I knew IV treatment would soon redraw the map of my time, multiplying appointments until they crowded out the margins of my life, I chose proximity. I chose a center closer to home. In a world where time itself becomes a toxin—dripping away quality of life in waiting rooms and infusion chairs—that choice felt necessary, almost urgent.
http://nohalfmeasures.blog/2026/05/05/holding-healthcare-accountable-as-a-patient/
about 2 months ago
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Back in the Infusion Chair After recently experiencing bone-only progression on scans and perhaps some developing liver mets again based on results of ctDNA testing too small to be seen on imaging, I had to choose a new line of treatment and the daunting challenge revealed how few options I have…
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Back in the Infusion Chair
After recently experiencing bone-only progression on scans and perhaps some developing liver mets again based on results of ctDNA testing too small to be seen on imaging, I had to choose a new line of treatment and the daunting challenge revealed how few options I have left. Yes, the medical oncologists still try to give hope by telling me how many options there are approved as standard of care left for me, all the medications that may be approved soon or in the future, but getting them to list the actual real options reveals the truth -- there aren't that many good options left likely to be effective for very long and nearly everything available right now will require me to be tied to the infusion chair.
http://nohalfmeasures.blog/2026/04/27/back-in-the-infusion-chair/
2 months ago
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Integrative Oncology: Tending to the Inner Self, a reflection During the 2026 Living Beyond Breast Cancer MBC conference, which was the 20th anniversary of that particular conference this past weekend, I had the distinct honor of serving on a panel during a breakout session organized by Project…
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Integrative Oncology: Tending to the Inner Self, a reflection
During the 2026 Living Beyond Breast Cancer MBC conference, which was the 20th anniversary of that particular conference this past weekend, I had the distinct honor of serving on a panel during a breakout session organized by Project Life and brilliantly moderated by April Stearns from Wildfire Community. My fellow panelist, Nikoo McGoldrick, a bestselling author who is also living with Stage IV Metastatic Breast Cancer (MBC), and I answered a few questions about how writing has helped us to cope with the diagnosis, but the real highlight of the session for us and the the attendees, were the writing prompts.
http://nohalfmeasures.blog/2026/04/20/integrative-oncology-tending-to-the-inner-self-a-reflection/
2 months ago
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reposted by
Abigail Johnston
DSP💙#🟦✡️
2 months ago
Late post but in Los Angeles it's still
#flowerfridayfamily
Day! We're still having bsky tech issues so you're not all receiving notifications from the tags. If you don't receive one, pls report it to bsky feedback It's definitely Jacarandá blooming time! They make a sticky mess but oh so pretty!
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
http://nohalfmeasures.blog/2026/04/16/reblog-weekly-round-up-from-journeying-beyond-breast-cancer-6/
2 months ago
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reposted by
Abigail Johnston
@doublewhammied
2 months ago
10 Washington state health orgs just received
@fredhutch.org
community grants to support their community-led solutions 4
#cancerprevention
#screening
&
#education
. Kudos - this is how you
@enddisparities.bsky.social
in
#cancer
!
#CanSky
#IDSky
www.fredhutch.org/en/news/cent...
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Fred Hutch funds 10 Washington state initiatives to expand cancer prevention
Fred Hutch Cancer Center’s Community Grants Program has recently awarded 10 cancer prevention projects across Washington state up to $15,000 each, for a total of $145,500. These dollars will support c...
https://www.fredhutch.org/en/news/center-news/2026/04/community-grants-program-2026.html
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Finding Glimmers in the Weight of Metastatic Breast Cancer (MBC)
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Finding Glimmers in the Weight of Metastatic Breast Cancer (MBC)
Recently, in a support group I’ve been moderating with my Dad, a mental health therapist, since the long blur of COVID, I offered a small piece of homework—something I rarely do. But sometimes you can feel the shift before anyone names it, the quiet sag of spirits, the way the room grows heavier even through a screen, sometimes entirely unspoken. And in those moments, my instinct is to place something steady in our hands. So I asked them to look for the good. To notice what is meaningful. To gather the small, stubborn glimmers.
http://nohalfmeasures.blog/2026/04/13/homework/
3 months ago
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reposted by
Abigail Johnston
@doublewhammied
3 months ago
"Drug denials by private insurers are up 25% since 2016, creating access barriers across
#cancer
& other chronic conditions. Further, a 2023 analysis of coverage policies found that comm'l health plans’ use of restrictions on onc drugs nearly doubled – from 17.6% to 33.5% btwn 2017 & 2021."
#CanSky
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The Hidden Burdens of Cancer Care: When Insurers Override Doctors - Becker's Oncology
Every 30 seconds, someone in the U.S. hears the words: “You have cancer” – a moment that changes life in an instant. Yet, too often, the greatest struggle isn’t always the disease itself, but the maze...
https://www.beckersoncology.com/oncology/the-hidden-burdens-of-cancer-care-when-insurers-override-doctors/?origin=OncologyE&utm_source=OncologyE&utm_medium=email&utm_content=newsletter&oly_enc_id=2536I8636590A5G
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reposted by
Abigail Johnston
@doublewhammied
3 months ago
"What is happening right now is ... the wholesale substitution of consumer enthusiasm 4 clinical evidence. My pt is refusng a drug studied in 170K people because of side effects that a 124K person analysis just confirmed do not exist — while injecting a compound studied in 14 humans ..." 1/2
#CanSky
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My patient would rather take a peptide than a statin. That reveals an uncomfortable truth in medicine
“The volume of evidence behind a therapy has become inversely correlated with public trust in it,” writes Vikas Patel.
https://www.statnews.com/2026/04/03/peptides-statins-research-trust-bpc-157/
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Pros and cons of a small(er) life Over the last few years, I’ve carried the quiet, disorienting sense that my life has been reduced—pulled inward, pared down to something smaller than I once imagined, something I didn’t recognize at first as my own. I fought it. I grieved it. I raged against the…
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Pros and cons of a small(er)Â life
Over the last few years, I’ve carried the quiet, disorienting sense that my life has been reduced—pulled inward, pared down to something smaller than I once imagined, something I didn’t recognize at first as my own. I fought it. I grieved it. I raged against the narrowing, cried until the edges blurred, mourned the life that felt like it had nothing to do with what I'd been building for the first 38 years of my life. And then, this past week, I heard it spoken back to me in a different voice, which happens often to me.
http://nohalfmeasures.blog/2026/04/06/pros-and-cons-of-a-smaller-life/
3 months ago
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Losing Faith in the Healthcare Systen
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The Erosion of Hope in Terminal Illness
There is a quiet, particular grief in watching the scaffolding of the health care system meant to hold you sway, splinter, and give. Not all at once, not dramatically enough to draw alarm—just a subtle leaning at first, a hairline fracture you convince yourself can be repaired. Until one day you realize you are carrying weight that was never meant to be yours to carry, that shouldn't be on any patient especially those of us already living with a terminal illness. Coordination, communication, remembering the specifics of a treatment plan; I've lost count of the number of errors, medical mistakes, that I've found, corrected, and addressed since my de novo Stage IV Metastatic Breast Cancer (MBC) diagnosis in 2017.
http://nohalfmeasures.blog/2026/03/31/losing-faith-in-the-healthcare-systen/
3 months ago
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A tale of two lives
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A tale of two lives
It was the season of knowing and not knowing. The doctors said the word terminal, repeatedly, and then time began to move in three directions at once—forward toward progression, forward in all the ordinary days and also backward through memories of what life used to be. Each scan carries the question of how much had grown, what had spread, what had been lost since the last scan or intervention. My body changes every time, quietly and sometimes more dramatically. Ordinary days continue —coffee in the morning, sunlight through the window, carpool to drive, or not as we head into Spring Break—but they unfold beneath the steady knowledge that the disease is advancing, marching towards the inevitable.
http://nohalfmeasures.blog/2026/03/16/a-tale-of-two-lives/
3 months ago
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When they beat you down …
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When Treatment Delays Impact Life: A Personal Account
I’m a pretty resilient person. I’ve faced a lot and retained my sense of humor (albeit more dark these days), my ability to see silver linings, the ability to keep going despite hardships, despite set backs, despite bad news over and over. It’s not been easy but I’ve developed a lot of tools to keep going. But some days, it seems too hard. Some days, it’s just too much. I had a day like that a few weeks ago when I showed up for my Zometa infusion. For those of you who aren’t familiar with this medication, Zometa is a bisphosphonate, given for the affects of bone metasteses in an IV (intravenous drip).
http://nohalfmeasures.blog/2026/03/09/when-they-beat-you-down/
4 months ago
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reposted by
Abigail Johnston
Wendy Woodward, MD, PhD
4 months ago
Another amazing life story cut short by inflammatory breast cancer. I found Clare’s NYT podcast and article unexpectedly, while scrolling last year. I loved hearing she had found love. And I’m so sorry she didn’t get more time. Rest in peace Clare.
#IBC
#cansky
www.nytimes.com/2025/01/08/p...
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Finding the Magic, Just in Time (Published 2025)
https://www.nytimes.com/2025/01/08/podcasts/modern-love-finding-the-magic.html?smid=nytcore-ios-share
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reposted by
Abigail Johnston
Triage Cancer
4 months ago
Do you know your health care rights? In recognition of National Health Care Rights Day on March 22, we’re highlighting three important rights that can help people diagnosed with cancer navigate work, insurance, and access to care.
#CanSky
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The Loneliness Experienced During Forever Cancer Care At first, there so much noise. Phones ringing, kind and supportive messages flooding in. Appointment after appointment, preparation for surgery after surgery. Fitting it all in becomes a full time job. Information is a flood, coming at you…
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The Loneliness Experienced During Forever Cancer Care
At first, there so much noise. Phones ringing, kind and supportive messages flooding in. Appointment after appointment, preparation for surgery after surgery. Fitting it all in becomes a full time job. Information is a flood, coming at you faster than you can process it, like drinking from a fire hose. People are everywhere, offering a hand, food, respite, coffee. Health care workers asking question after question after question. You feel at the center of a very large, uncontrollable storm. And almost immediately, you are isolated, alone. Because even surrounded by people you love, something irrevocably separates you.
http://nohalfmeasures.blog/2026/03/02/a-cancer-diagnosis-is-lonely-in-a-way-that-is-hard-to-explain-until-you-are-living-inside-it/
4 months ago
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Chronic v. Terminal
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Chronic v. Terminal
There’s been several articles recently labeling Stage IV Metastatic Breast Cancer (MBC) as a chronic disease sponsored by and including various non profits. Ironically none of the articles I’ve seen provides justification or basis for this claim and none cite to medical doctors or scientific proof. Instead of actual evidence or attempting to explain, the articles I’ve seen merely make the statement and shockingly move on as if there is consensus.
http://nohalfmeasures.blog/2026/02/23/chronic-v-terminal/
4 months ago
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Navigating Grief and Support for MBC Patients In my circles of good friends living with Stage IV Metastatic Breast Cancer (MBC), there is a great deal of suffering at present and that weighs on all of us. It is not abnormal to get on a zoom call ostensibly about the "business" of advocacy and talk…
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Navigating Grief and Support for MBCÂ Patients
In my circles of good friends living with Stage IV Metastatic Breast Cancer (MBC), there is a great deal of suffering at present and that weighs on all of us. It is not abnormal to get on a zoom call ostensibly about the "business" of advocacy and talk mostly about these personal struggles because we lean on each other in big and small ways. We notice small and large changes, sometimes before anyone else because we're tuned into each other in nuanced ways and are more vulnerable with each other than most in our real lives.
http://nohalfmeasures.blog/2026/02/16/navigating-grief-and-support-for-mbc-patients/
4 months ago
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Things to know when you are getting a port
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Things to know when you are getting a port, from a patient’s perspective
After receiving three different ports after my de novo Stage IV Metastatic Breast Cancer (MBC) diagnosis in 2017, I've collected a few important things to think about along the way that I'd like to share. Not everyone living with MBC has a port and not all patients living with MBC desire one. It is important to consider the pros and cons of every decision, keeping in mind those things that are important to each individual person; at the same time, it’s hard to know what to ask and when. Port #1 (non-power port, no name)
http://nohalfmeasures.blog/2026/02/09/things-to-know-when-you-are-getting-a-port/
5 months ago
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Clinical Trials, Part II: Informed Consent During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating in a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American…
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Clinical Trials, Part II: Informed Consent
During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating in a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.
http://nohalfmeasures.blog/2026/02/05/clinical-trials-part-ii-informed-consent/
5 months ago
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ReBlog: Journeying Beyond Breast Cancer’s Weekly Round-Up
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ReBlog: Journeying Beyond Breast Cancer’s Weekly Round-Up
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
http://nohalfmeasures.blog/2026/01/29/reblog-journeying-beyond-breast-cancers-weekly-round-up-6/
5 months ago
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Finding Clinical Trials: A Patient’s Guide During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American…
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Finding Clinical Trials: A Patient’s Guide
During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.
http://nohalfmeasures.blog/2026/01/26/finding-clinical-trials-a-patients-guide/
5 months ago
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me … Weekly Round-Up
http://nohalfmeasures.blog/2026/01/22/reblog-weekly-round-up-from-journeying-beyond-breast-cancer-5/
5 months ago
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Navigating Life’s Turmoil: A Call for Connection and Action When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not…
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Navigating Life’s Turmoil: A Call for Connection and Action
When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not know where to turn. Whenever I turn on the news, I am bombarded by the different events, by rhetoric and opinions, by shocking videos, by big changes to systems we rely upon. It feels so big, it feels so chaotic, it feels overwhelming. I find it hard to look away, I find it hard to keep looking.
http://nohalfmeasures.blog/2026/01/19/navigating-lifes-turmoil-a-call-for-connection-and-action/
5 months ago
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reposted by
Abigail Johnston
@doublewhammied
5 months ago
BIG NEWS!
#gynca
expert
@kemidoll.bsky.social
has written a book on Black
#womenshealth
, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women.
#endo
#cancer
#blackwomb
#CanSky
@enddisparities.bsky.social
Pre-order here:👇
www.penguinrandomhouse.com/books/775526...
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A Terrible Strength by Kemi Doll, MD, MSCR: 9780593977477 | PenguinRandomHouse.com: Books
Black women are facing a systemic gynecological health crisis. This book gives them the tools needed to unlearn the medical normalization of their suffering and offers a path forward to healing—by...
https://www.penguinrandomhouse.com/books/775526/a-terrible-strength-by-kemi-doll-md-mscr/
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reposted by
Abigail Johnston
Sid Sadler
5 months ago
#Cansky
I wrote something here. It was a bit too long to post so refer to the photos please 🫶🏻.
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reposted by
Abigail Johnston
@doublewhammied
5 months ago
No
#cancer
screening means those w/cancer will be diagnosed later when the disease is
#metastatic
, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access.
#screeningsaveslives
#CanSky
add a skeleton here at some point
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reposted by
Abigail Johnston
@doublewhammied
6 months ago
For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism.
#IDSky
#CanSky
jamanetwork.com/journals/jam...
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WHO Analysis Finds No Causal Link Between Vaccines and Autism
An analysis from the World Health Organization (WHO) Global Advisory Committee on Vaccine Safety (GACVS) concluded that there is no causal link between vaccines and autism spectrum disorder, according...
https://jamanetwork.com/journals/jama/fullarticle/2843817?guestAccessKey=052c2209-3266-48d3-b78b-3d741b7b872a&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jama&utm_content=olf-tfl_&utm_term=010926
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When a door closes, open a window … but what about when you run out of windows?
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When a door closes, open a window … but what about when you run out of windows?
In this clumsy metaphor, the doors and windows are treatment options for Stage IV Metastatic Breast Cancer (MBC) and so many of us only have a finite number of treatments before this terminal diagnosis completes its trajectory and ends its own existence and the host. Reaching the end of a treatment option and contemplating the shorter and shorter list of what could be next has occupied my thoughts and triggered a deluge of new and familiar angst in the last few months. But let me take two steps back and mention a new wrinkle in the cancer experience for me — a new primary cancer.
http://nohalfmeasures.blog/2026/01/12/when-a-door-closes-open-a-window-but-what-about-when-you-run-out-of-windows/
6 months ago
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Reboot: Weekly Round up by Journeying Beyond Breast Cancer
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ReBlog: Weekly Round Up by Journeying Beyond Breast Cancer
Thankful to Marie at Journeying Beyond Breast Cancer for gathering up amazing blogs every single week and sharing her weekly round up. Sharing here so you can learn more about the various bloggers she brings together week after week — each of them is worth a follow! Warmly, Abigail
http://nohalfmeasures.blog/2026/01/08/reboot-weekly-round-up-by-journeying-beyond-breast-cancer/
6 months ago
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Medical updates, January 2026
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Medical updates, January 2026
2025 was a bit of a dumpster fire in relation to my medical care. It is only now looking back on the previous 12 months that I can begin to see just how bad it really was. It wasn’t just the specific side effects of Enhertu that put me into a foggy state most of the time, but also how many new and complicated things I had to manage. The year started off relatively typically in this Stage IV Metastatic Breast Cancer (MBC) experience in that it was full of appointments and side effects from the Antibody Drug Conjugate (ADC) I was on, Enhertu.
http://nohalfmeasures.blog/2026/01/05/medical-updates-january-2026/
6 months ago
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Happy New Year, 2026
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Happy New Year, 2026
Entering 2026, the author reminisces about words selected previously and announces her word for 2026.
http://nohalfmeasures.blog/2026/01/01/happy-new-year-2026/
6 months ago
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reposted by
Abigail Johnston
Hayley Gullen
7 months ago
Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.
#cansky
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reposted by
Abigail Johnston
Sid Sadler
8 months ago
Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in today’s world! There are many you might not think about!
#Cansky
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reposted by
Abigail Johnston
HarrisEve
8 months ago
You gotta be kidding me
#bcsm
#oncosky
add a skeleton here at some point
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