Abigail Johnston
@amjohnston.bsky.social
š¤ 1649
š„ 6056
š 244
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
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ReBlog: Weekly Round-Up from Journeying Beyond BreastĀ Cancer
Time for this weekās round-up of the best of the blog posts which Iāve read over the past week. These are the posts that have moved me, taught me ⦠Weekly Round-Up
http://nohalfmeasures.blog/2026/01/22/reblog-weekly-round-up-from-journeying-beyond-breast-cancer-5/
4 days ago
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Navigating Lifeās Turmoil: A Call for Connection andĀ Action When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to notā¦
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Navigating Lifeās Turmoil: A Call for Connection andĀ Action
When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not know where to turn. Whenever I turn on the news, I am bombarded by the different events, by rhetoric and opinions, by shocking videos, by big changes to systems we rely upon. It feels so big, it feels so chaotic, it feels overwhelming. I find it hard to look away, I find it hard to keep looking.
http://nohalfmeasures.blog/2026/01/19/navigating-lifes-turmoil-a-call-for-connection-and-action/
6 days ago
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@doublewhammied
8 days ago
BIG NEWS!
#gynca
expert
@kemidoll.bsky.social
has written a book on Black
#womenshealth
, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women.
#endo
#cancer
#blackwomb
#CanSky
@enddisparities.bsky.social
Pre-order here:š
www.penguinrandomhouse.com/books/775526...
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A Terrible Strength by Kemi Doll, MD, MSCR: 9780593977477 | PenguinRandomHouse.com: Books
Black women are facing a systemic gynecological health crisis. This book gives them the tools needed to unlearn the medical normalization of their suffering and offers a path forward to healingāby...
https://www.penguinrandomhouse.com/books/775526/a-terrible-strength-by-kemi-doll-md-mscr/
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Sid Sadler
8 days ago
#Cansky
I wrote something here. It was a bit too long to post so refer to the photos please š«¶š».
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Abigail Johnston
@doublewhammied
11 days ago
No
#cancer
screening means those w/cancer will be diagnosed later when the disease is
#metastatic
, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access.
#screeningsaveslives
#CanSky
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@doublewhammied
16 days ago
For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism.
#IDSky
#CanSky
jamanetwork.com/journals/jam...
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WHO Analysis Finds No Causal Link Between Vaccines and Autism
An analysis from the World Health Organization (WHO) Global Advisory Committee on Vaccine Safety (GACVS) concluded that there is no causal link between vaccines and autism spectrum disorder, according...
https://jamanetwork.com/journals/jama/fullarticle/2843817?guestAccessKey=052c2209-3266-48d3-b78b-3d741b7b872a&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jama&utm_content=olf-tfl_&utm_term=010926
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When a door closes, open a window ⦠but what about when you run out of windows?
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When a door closes, open a window ⦠but what about when you run out of windows?
In this clumsy metaphor, the doors and windows are treatment options for Stage IV Metastatic Breast Cancer (MBC) and so many of us only have a finite number of treatments before this terminal diagnosis completes its trajectory and ends its own existence and the host. Reaching the end of a treatment option and contemplating the shorter and shorter list of what could be next has occupied my thoughts and triggered a deluge of new and familiar angst in the last few months. But let me take two steps back and mention a new wrinkle in the cancer experience for me ā a new primary cancer.
http://nohalfmeasures.blog/2026/01/12/when-a-door-closes-open-a-window-but-what-about-when-you-run-out-of-windows/
14 days ago
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Reboot: Weekly Round up by Journeying Beyond Breast Cancer
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ReBlog: Weekly Round Up by Journeying Beyond BreastĀ Cancer
Thankful to Marie at Journeying Beyond Breast Cancer for gathering up amazing blogs every single week and sharing her weekly round up. Sharing here so you can learn more about the various bloggers she brings together week after week ā each of them is worth a follow! Warmly, Abigail
http://nohalfmeasures.blog/2026/01/08/reboot-weekly-round-up-by-journeying-beyond-breast-cancer/
18 days ago
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Medical updates, January 2026
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Medical updates, JanuaryĀ 2026
2025 was a bit of a dumpster fire in relation to my medical care. It is only now looking back on the previous 12 months that I can begin to see just how bad it really was. It wasnāt just the specific side effects of Enhertu that put me into a foggy state most of the time, but also how many new and complicated things I had to manage. The year started off relatively typically in this Stage IV Metastatic Breast Cancer (MBC) experience in that it was full of appointments and side effects from the Antibody Drug Conjugate (ADC) I was on, Enhertu.
http://nohalfmeasures.blog/2026/01/05/medical-updates-january-2026/
21 days ago
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Happy New Year, 2026
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Happy New Year,Ā 2026
Entering 2026, the author reminisces about words selected previously and announces her word for 2026.
http://nohalfmeasures.blog/2026/01/01/happy-new-year-2026/
25 days ago
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Hayley Gullen
about 2 months ago
Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.
#cansky
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Sid Sadler
3 months ago
Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in todayās world! There are many you might not think about!
#Cansky
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HarrisEve
3 months ago
You gotta be kidding me
#bcsm
#oncosky
add a skeleton here at some point
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Abigail Johnston
@doublewhammied
3 months ago
ā'I donāt care if itās toenail
#cancer
,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the š adminās decision risks further stigmatizing men w/#BC. 'Thereās this machinismo aspect, [men] ..." 1/2
#CanSky
#bcsm
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Citing Trump Order on āBiological Truth,ā VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage
A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...
https://www.propublica.org/article/veterans-affairs-male-breast-cancer-coverage-trump-executive-order?utm_source=sailthru&utm_medium=email&utm_campaign=majorinvestigations&utm_content=river
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š New Episode Out Now! š Donāt miss outātune in now and join the conversation! š Listen here:
www.livefromstage4.org
or your favorite podcast streaming platform.
#cansky
#oncsky
#oncosky
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Live From Stage 4 | Join the Conversation ā Empower Yourself
A podcast providing insights, stories, and support for metastatic breast cancer patients and advocates. Join us to stay informed and empowered.
https://www.livefromstage4.org/
3 months ago
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Mommy Has Cancer
3 months ago
Iāll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info š
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Fumiko Ladd Chino, MD FASCO
3 months ago
I am happy to welcome 2ļøā£ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this
@ascocancer.bsky.social
's 1st podcast about podcasts. Ā šļøDrs Patel The Fellow on Call &
@drteplinsky.bsky.social
Interlude Podcast
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A Podcast About Podcasts: Podcasts as Educational Tools for Providers (and Patients) | Podcast | ASCO Publications
Dr. Chino welcomes Dr. Vivek Patel and Dr. Eleonora Teplinsky to discuss a recent article in JCO OP that reported a podcast-based curriculum could improve knowledge and comfort with common education t...
https://ascopubs.org/do/podcast-podcasts-podcasts-educational-tools-providers-and-patients
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Abigail Johnston
Cathy007š»šššš©š»āāļøš·šš
3 months ago
#CanSky
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Today would have been Gwenās birthday. She was stolen from us by MBC.
add a skeleton here at some point
3 months ago
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Abigail Johnston
Martha Carlson
3 months ago
Start your Saturday with
@metavivor.bsky.social
at the
@americancancersoc.bsky.social
walk at Chicagoās Soldier Field! Come on down, rain or shine
#cansky
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Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3
3 months ago
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Abigail Johnston
@doublewhammied
3 months ago
Just Dx'd w/#metastatic
#breastcancer
& looking 4 support,
#clinicaltrials
, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at
@fredhutch.org
. Topics include: financial health, sexual health, new
#MBC
treatmnts, nutrition, exercise, CTs & more!
#CanSky
@thankscancer.bsky.social
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2025 Metastatic Breast Cancer: From Surviving to Thriving
This is a free, educational event for patients with metastatic breast cancer & their caregivers hosted by Fred Hutch.
https://www.eventbrite.com/e/2025-metastatic-breast-cancer-from-surviving-to-thriving-tickets-1712382364749?aff=oddtdtcreator
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MBC BCAM awarenessĀ #2 Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of myā¦
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MBC BCAM awarenessĀ #2
Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my de novo diagnosis and if I had been getting mammograms, the density of my breast tissue and the fact I was breastfeeding would have affected the results. Every person needs to know their individual risk and which screening and diagnostic testing is the best for their body.
http://nohalfmeasures.blog/2025/10/13/mbc-bcam-awareness-2/
3 months ago
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@doublewhammied
4 months ago
Great 2C
#lobular
#breastcancer
coverd by
@cbsnews.com
but it wld have been helpful 2 mention: *Lobular
#BC
dsn't usually make lumps *So it's often not felt or seen on mamms *Esp in dense breast tissue *It's abt changes, not lumps! *More info
@lobularbca.bsky.social
#CanSky
#MedSky
#CancerBS
#bcsm
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What you need to know about lobular breast cancer
Dr. Cassann Blake, a breast surgical oncologist at the Cleveland Clinic, on lobular breast cancer.
https://www.cbsnews.com/miami/video/what-you-need-to-know-about-lobular-breast-cancer/?intcid=CNM-00-10abd1h#x
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@doublewhammied
4 months ago
Just diagnosed w/#lobular
#breastcancer
& wondering what the heck that is? Join me &
@fredhutch.org
#ILC
experts THIS Wed OCT 15 3-5pm in person or via Zoom 4 a breakdown of new research,
#clinicaltrials
& more. Register šš
@thankscancer.bsky.social
#CanSky
#bcsm
www.fredhutch.org/en/events/sp...
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Spotlight on lobular breast cancer: What patients, PCPs & oncologists need to know
Hear from Fred Hutch experts about lobular breast cancerās history, screening and surveillance challenges, new findings and clinical trials.
https://www.fredhutch.org/en/events/spotlight-on-lobular-breast-cancer.html
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Catching up on some MBC BCAMĀ awareness! Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in theā¦
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Catching up on some MBC BCAMĀ awareness!
Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the United States die every day from Stage IV Metastatic Breast Cancer (MBC) -- that's the equivalent of a plane load of people falling out of the sky to their deaths every single day.
http://nohalfmeasures.blog/2025/10/06/catching-up-on-some-mbc-bcam-awareness/
4 months ago
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Ginny Mason
4 months ago
www.msn.com/en-us/news/p...
"Morality is not a buffet"....pope's words remind people that
#pro-life
means taking care of others, no killing, etc.
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MSN
https://www.msn.com/en-us/news/politics/morality-is-not-a-buffet-the-weeknight-reacts-after-pope-leo-questions-pro-life-bona-fides/ar-AA1NL9GN?ocid=socialshare
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Abigail Johnston
Ashley Holden š©· M.Ed.
4 months ago
This and the funding cuts for cancer research could literally kill me. I can't even describe what that feels like. š
#Cancer
#Stage4
#Melanoma
#Metastatic
#CancerResearch
#CanSky
#DermSky
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Sid Sadler
4 months ago
Hey my
#Cansky
folks. Iām happy to announce Vanderbilt Ingram Cancer Center is hosting a young adults cancers symposium in November! Come join me. Itās FREE for patients. Would appreciate anyone spreading the word š«¶š»
#Oncsky
#Medsky
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Sid Sadler
4 months ago
Iām excited and honored to say I will be joining the Judy Nicholson Kidney Cancer Foundation Board of Directors in 2026. I could never imagine when I was first diagnosed that I would dive headfirst into cancer advocacy. But here we are.
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Itās October Again ā¦Ā 2025 While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on aā¦
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Itās October Again ā¦Ā 2025
While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a larger timeline for sales. And while some of the most egregious perpetrators of Pinkwashing have been confronted and some have adjusted their behaviors, it's still something that is pretty clearly happening more than it should.
http://nohalfmeasures.blog/2025/10/01/its-october-again-2025/
4 months ago
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Navigating the Gray Areas of CancerĀ Treatment Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical officesā¦
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Navigating the Gray Areas of CancerĀ Treatment
Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical offices and the other in the real world existence. Periods of disruption to the routine/schedule are pretty consistent in this MBC experience and I have to say that it's a lot to handle when you have to juggle as much as is going on in our lives, but we persist.
http://nohalfmeasures.blog/2025/09/17/navigating-the-gray-areas-of-cancer-treatment/
4 months ago
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šļø Exciting news! Our new podcast, āLive from Stage 4,ā is here. Join us as we dive deep into the real stories. š Visit
livefromstage4.org
and follow us for updates!
#cansky
#oncosky
#oncsky
#mbc
5 months ago
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John Prensner
5 months ago
Thank you
@nytimes.com
for featuring this upsetting news about the loss of
#childhoodcancer
funding for
#braintumors
. It was my pleasure to speak with
#NinaAgrawal
for this piece. But I wish circumstances were different and we didn't need this article at all.
www.nytimes.com/2025/08/28/w...
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Pediatric Brain Cancer Group to Lose Federal Funding
https://www.nytimes.com/2025/08/28/well/pediatric-brain-cancer-trial-group.html?smid=nytcore-ios-share&referringSource=articleShare
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@doublewhammied
5 months ago
Let's get politics the f*ck out of
#publichealth
.
#IDSky
#CanSky
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DSPš#š¦šļøā”ļø
5 months ago
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Abigail Johnston
Memorial Sloan Kettering Cancer Center
5 months ago
New FDA-approved blood test "Shield" offers a less invasive
#colorectal
cancer screening, but while Shield may detect later-stage cancers, it misses over one-third of stage 1 cancers and most precancerous polyps. Learn more about what MSK experts have to say about Shield. ā¬ļø
#cansky
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Is Shield a Good Colorectal Cancer Screening Blood Test? Hear From an MSK Expert
MSK experts say the Shield blood test is not the best way to detect colorectal cancer and instead recommend colonoscopy or a stool test for those who canāt have a colonoscopy.
https://www.mskcc.org/news/is-shield-good-colorectal-cancer-screening-blood-test?utm_source=Bluesky&utm_medium=Organic+Social&utm_term=&utm_content=Image+of+Dr.+Mendelsohn&utm_campaign=Social+Media+Posts+August+2025
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Abigail Johnston
Cancer Coach USA
5 months ago
Courage doesnāt mean fear is goneāit means you carry it with you and act anyway. Every bold step you admire was taken by someone who felt scared but chose to move forward. Fear is human. Courage is action in spite of it.
#YouBeatCancerNowWhat
#OncSky
#CanSky
#cancerbs
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Abigail Johnston
Sid Sadler
5 months ago
#Cansky
hereās my video where I spoke at the World GU Conference. I had to trim it a bit, but I hope it provided doctors and researchers there with a clear vision of their āwhyā.
#Oncsky
#Medsky
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Sara Hastings-Simon šØš¦
5 months ago
Once again Iām asking someone at Epic/MyChart to come up with a way for providers to opt out of sending the generic āyou have a new message in mychartā that you need to go check in case itās important for every time they change the specific chair you are assigned for systemic treatment
#cansky
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Abigail Johnston
Hayley Gullen
5 months ago
Calling cancer patients ābraveā is dehumanising. I think this is because it puts distance between the patient and the other person. Itās not a compliment with any real meaning or recognition behind it. āYouāre so brave. I couldnāt do what youāre doing.ā But whatās the alternative?
#cansky
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@doublewhammied
5 months ago
"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/
#cancer
,
#MS
, ulcerative colitis,
#longCovid
or anothr autoimmune or chronic illness, the emotional reverberations ā marked ..." 1/2
#CanSky
#IDSky
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The trauma of illness can last long after the body has healed
āThe body can heal while the self remains disconnectedā: a psychologist on the overlooked trauma of illness.
https://www.statnews.com/2025/08/21/illness-trauma-psychology-healing-medicine/
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Ginny Mason
5 months ago
www.msn.com/en-us/news/p...
#Payasyougo
rule could have big impact on $$$ available for Medicare in 2026 thanks to the
#BigUglyBill
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MSN
https://www.msn.com/en-us/news/politics/medicare-faces-45b-in-cuts-by-2026-here-s-what-it-means/ar-AA1KPBJP?ocid=socialshare
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Your Cheat Sheet for Medical Billing and InsuranceĀ Challenges For the past few months, I have been in at least weekly and sometimes daily contact with either my insurance company, various medical providers, Medicare or all of the above. While Iāve dealt with what I often call āpaperwork hellāā¦
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Your Cheat Sheet for Medical Billing and InsuranceĀ Challenges
For the past few months, I have been in at least weekly and sometimes daily contact with either my insurance company, various medical providers, Medicare or all of the above. While Iāve dealt with what I often call āpaperwork hellā since my de novo Metastatic Breast Cancer (MBC) diagnosis since 2017, this fresh experience has reminded me of a litany of things that I often incorporated into my routine when it came to billing and insurance issues.
http://nohalfmeasures.blog/2025/08/18/your-cheat-sheet-for-medical-billing-and-insurance-challenges/
5 months ago
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The Pencilās Tale for the First Day of School,Ā 2025
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The Pencilās Tale for the First Day of School,Ā 2025
http://nohalfmeasures.blog/2025/08/11/the-pencils-tale-for-the-first-day-of-school-2025/
6 months ago
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Medical Updates, AugustĀ 2025 As we prepare for a last getaway for the summer of 2025 and prepare to go back to school for the 2025/2026 school year (will have a 5th and 7th grader this year!), I realized that I passed eight (8) years of living with Stage IV Metastatic Breast Cancer (MBC) in Juneā¦
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Medical Updates, AugustĀ 2025
As we prepare for a last getaway for the summer of 2025 and prepare to go back to school for the 2025/2026 school year (will have a 5th and 7th grader this year!), I realized that I passed eight (8) years of living with Stage IV Metastatic Breast Cancer (MBC) in June and didn't mark or celebrate it. Wow, eight years.
http://nohalfmeasures.blog/2025/08/04/medical-updates-august-2025/
6 months ago
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Abigail Johnston
Brian Cardone
6 months ago
šØšØHoly Shit!! Senator Cory Booker (D-NJ) is not fucking around with this fiery speech on the Senate floor.š„š„š„We need this from every Democrat if we are going to push back on fascism and save our fragile Democracy!! More of this please!! Bravo Senator Booker!!
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Abigail Johnston
Triage Cancer
6 months ago
Did you know that whether you have access to state disability insurance, depends on where you live? Use our charts of state laws to find out what you have access to:
https://loom.ly/ZOCwLJU
#cancerrights
#canceradvocacy
#disabilityinsurance
#disability
#cansky
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Abigail Johnston
Sid Sadler
6 months ago
Great article here about misinformation. We see it so much in the
#Cancer
communities. How to recognize and combat it š„.
#Cansky
#Oncsky
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6 months ago
...life isn't a clockwork; it's a dynamic system, and unexpected things emerge from the interactions between all those little parts. To truly understand life, you can't just break it down. You have to be able to put it together again. - Claire L. Evans
#cansky
feeling this quote this morning
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