Abigail Johnston
@amjohnston.bsky.social
📤 1642
📥 6050
📝 228
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
reposted by
Abigail Johnston
Hayley Gullen
4 days ago
Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.
#cansky
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Abigail Johnston
Sid Sadler
22 days ago
Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in today’s world! There are many you might not think about!
#Cansky
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Abigail Johnston
HarrisEve
about 1 month ago
You gotta be kidding me
#bcsm
#oncosky
add a skeleton here at some point
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Abigail Johnston
@doublewhammied
about 1 month ago
“'I don’t care if it’s toenail
#cancer
,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the 🍊 admin’s decision risks further stigmatizing men w/#BC. 'There’s this machinismo aspect, [men] ..." 1/2
#CanSky
#bcsm
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Citing Trump Order on “Biological Truth,” VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage
A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...
https://www.propublica.org/article/veterans-affairs-male-breast-cancer-coverage-trump-executive-order?utm_source=sailthru&utm_medium=email&utm_campaign=majorinvestigations&utm_content=river
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🎉 New Episode Out Now! 🎉 Don’t miss out—tune in now and join the conversation! 👉 Listen here:
www.livefromstage4.org
or your favorite podcast streaming platform.
#cansky
#oncsky
#oncosky
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Live From Stage 4 | Join the Conversation – Empower Yourself
A podcast providing insights, stories, and support for metastatic breast cancer patients and advocates. Join us to stay informed and empowered.
https://www.livefromstage4.org/
about 1 month ago
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Abigail Johnston
Mommy Has Cancer
about 1 month ago
I’ll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info 👇
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Abigail Johnston
Fumiko Ladd Chino, MD FASCO
about 1 month ago
I am happy to welcome 2️⃣ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this
@ascocancer.bsky.social
's 1st podcast about podcasts. 🎙️Drs Patel The Fellow on Call &
@drteplinsky.bsky.social
Interlude Podcast
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A Podcast About Podcasts: Podcasts as Educational Tools for Providers (and Patients) | Podcast | ASCO Publications
Dr. Chino welcomes Dr. Vivek Patel and Dr. Eleonora Teplinsky to discuss a recent article in JCO OP that reported a podcast-based curriculum could improve knowledge and comfort with common education t...
https://ascopubs.org/do/podcast-podcasts-podcasts-educational-tools-providers-and-patients
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Abigail Johnston
NAFOCathy #Release EpsteinFiles; #Release RvzzianFiles 🌻🍁🐕💉👩🏻⚕️😷💙💛
about 1 month ago
#CanSky
add a skeleton here at some point
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Today would have been Gwen’s birthday. She was stolen from us by MBC.
add a skeleton here at some point
about 1 month ago
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Abigail Johnston
Martha Carlson
about 2 months ago
Start your Saturday with
@metavivor.bsky.social
at the
@americancancersoc.bsky.social
walk at Chicago’s Soldier Field! Come on down, rain or shine
#cansky
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Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3
about 2 months ago
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Abigail Johnston
@doublewhammied
about 2 months ago
Just Dx'd w/#metastatic
#breastcancer
& looking 4 support,
#clinicaltrials
, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at
@fredhutch.org
. Topics include: financial health, sexual health, new
#MBC
treatmnts, nutrition, exercise, CTs & more!
#CanSky
@thankscancer.bsky.social
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2025 Metastatic Breast Cancer: From Surviving to Thriving
This is a free, educational event for patients with metastatic breast cancer & their caregivers hosted by Fred Hutch.
https://www.eventbrite.com/e/2025-metastatic-breast-cancer-from-surviving-to-thriving-tickets-1712382364749?aff=oddtdtcreator
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MBC BCAM awareness #2 Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my…
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MBC BCAM awareness #2
Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my de novo diagnosis and if I had been getting mammograms, the density of my breast tissue and the fact I was breastfeeding would have affected the results. Every person needs to know their individual risk and which screening and diagnostic testing is the best for their body.
http://nohalfmeasures.blog/2025/10/13/mbc-bcam-awareness-2/
about 2 months ago
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Abigail Johnston
@doublewhammied
about 2 months ago
Great 2C
#lobular
#breastcancer
coverd by
@cbsnews.com
but it wld have been helpful 2 mention: *Lobular
#BC
dsn't usually make lumps *So it's often not felt or seen on mamms *Esp in dense breast tissue *It's abt changes, not lumps! *More info
@lobularbca.bsky.social
#CanSky
#MedSky
#CancerBS
#bcsm
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What you need to know about lobular breast cancer
Dr. Cassann Blake, a breast surgical oncologist at the Cleveland Clinic, on lobular breast cancer.
https://www.cbsnews.com/miami/video/what-you-need-to-know-about-lobular-breast-cancer/?intcid=CNM-00-10abd1h#x
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Abigail Johnston
@doublewhammied
about 2 months ago
Just diagnosed w/#lobular
#breastcancer
& wondering what the heck that is? Join me &
@fredhutch.org
#ILC
experts THIS Wed OCT 15 3-5pm in person or via Zoom 4 a breakdown of new research,
#clinicaltrials
& more. Register 👇👇
@thankscancer.bsky.social
#CanSky
#bcsm
www.fredhutch.org/en/events/sp...
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Spotlight on lobular breast cancer: What patients, PCPs & oncologists need to know
Hear from Fred Hutch experts about lobular breast cancer’s history, screening and surveillance challenges, new findings and clinical trials.
https://www.fredhutch.org/en/events/spotlight-on-lobular-breast-cancer.html
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Catching up on some MBC BCAM awareness! Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the…
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Catching up on some MBC BCAM awareness!
Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the United States die every day from Stage IV Metastatic Breast Cancer (MBC) -- that's the equivalent of a plane load of people falling out of the sky to their deaths every single day.
http://nohalfmeasures.blog/2025/10/06/catching-up-on-some-mbc-bcam-awareness/
about 2 months ago
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Abigail Johnston
Ginny Mason
2 months ago
www.msn.com/en-us/news/p...
"Morality is not a buffet"....pope's words remind people that
#pro-life
means taking care of others, no killing, etc.
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MSN
https://www.msn.com/en-us/news/politics/morality-is-not-a-buffet-the-weeknight-reacts-after-pope-leo-questions-pro-life-bona-fides/ar-AA1NL9GN?ocid=socialshare
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Abigail Johnston
Ashley Holden 🩷 M.Ed.
2 months ago
This and the funding cuts for cancer research could literally kill me. I can't even describe what that feels like. 😟
#Cancer
#Stage4
#Melanoma
#Metastatic
#CancerResearch
#CanSky
#DermSky
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Abigail Johnston
Sid Sadler
2 months ago
Hey my
#Cansky
folks. I’m happy to announce Vanderbilt Ingram Cancer Center is hosting a young adults cancers symposium in November! Come join me. It’s FREE for patients. Would appreciate anyone spreading the word 🫶🏻
#Oncsky
#Medsky
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Abigail Johnston
Sid Sadler
2 months ago
I’m excited and honored to say I will be joining the Judy Nicholson Kidney Cancer Foundation Board of Directors in 2026. I could never imagine when I was first diagnosed that I would dive headfirst into cancer advocacy. But here we are.
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It’s October Again … 2025 While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a…
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It’s October Again … 2025
While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a larger timeline for sales. And while some of the most egregious perpetrators of Pinkwashing have been confronted and some have adjusted their behaviors, it's still something that is pretty clearly happening more than it should.
http://nohalfmeasures.blog/2025/10/01/its-october-again-2025/
2 months ago
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Navigating the Gray Areas of Cancer Treatment Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical offices…
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Navigating the Gray Areas of Cancer Treatment
Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical offices and the other in the real world existence. Periods of disruption to the routine/schedule are pretty consistent in this MBC experience and I have to say that it's a lot to handle when you have to juggle as much as is going on in our lives, but we persist.
http://nohalfmeasures.blog/2025/09/17/navigating-the-gray-areas-of-cancer-treatment/
3 months ago
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🎙️ Exciting news! Our new podcast, “Live from Stage 4,” is here. Join us as we dive deep into the real stories. 👉 Visit
livefromstage4.org
and follow us for updates!
#cansky
#oncosky
#oncsky
#mbc
3 months ago
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Abigail Johnston
John Prensner
3 months ago
Thank you
@nytimes.com
for featuring this upsetting news about the loss of
#childhoodcancer
funding for
#braintumors
. It was my pleasure to speak with
#NinaAgrawal
for this piece. But I wish circumstances were different and we didn't need this article at all.
www.nytimes.com/2025/08/28/w...
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Pediatric Brain Cancer Group to Lose Federal Funding
https://www.nytimes.com/2025/08/28/well/pediatric-brain-cancer-trial-group.html?smid=nytcore-ios-share&referringSource=articleShare
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Abigail Johnston
@doublewhammied
3 months ago
Let's get politics the f*ck out of
#publichealth
.
#IDSky
#CanSky
add a skeleton here at some point
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reposted by
Abigail Johnston
DSP💙#🟦🎗️✡️
3 months ago
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Abigail Johnston
Memorial Sloan Kettering Cancer Center
3 months ago
New FDA-approved blood test "Shield" offers a less invasive
#colorectal
cancer screening, but while Shield may detect later-stage cancers, it misses over one-third of stage 1 cancers and most precancerous polyps. Learn more about what MSK experts have to say about Shield. ⬇️
#cansky
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Is Shield a Good Colorectal Cancer Screening Blood Test? Hear From an MSK Expert
MSK experts say the Shield blood test is not the best way to detect colorectal cancer and instead recommend colonoscopy or a stool test for those who can’t have a colonoscopy.
https://www.mskcc.org/news/is-shield-good-colorectal-cancer-screening-blood-test?utm_source=Bluesky&utm_medium=Organic+Social&utm_term=&utm_content=Image+of+Dr.+Mendelsohn&utm_campaign=Social+Media+Posts+August+2025
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Abigail Johnston
Dr Danielle Clay
3 months ago
Courage doesn’t mean fear is gone—it means you carry it with you and act anyway. Every bold step you admire was taken by someone who felt scared but chose to move forward. Fear is human. Courage is action in spite of it.
#YouBeatCancerNowWhat
#OncSky
#CanSky
#cancerbs
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Abigail Johnston
Sid Sadler
3 months ago
#Cansky
here’s my video where I spoke at the World GU Conference. I had to trim it a bit, but I hope it provided doctors and researchers there with a clear vision of their “why”.
#Oncsky
#Medsky
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Abigail Johnston
Sara Hastings-Simon 🇨🇦
3 months ago
Once again I’m asking someone at Epic/MyChart to come up with a way for providers to opt out of sending the generic “you have a new message in mychart” that you need to go check in case it’s important for every time they change the specific chair you are assigned for systemic treatment
#cansky
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Abigail Johnston
Hayley Gullen
3 months ago
Calling cancer patients “brave” is dehumanising. I think this is because it puts distance between the patient and the other person. It’s not a compliment with any real meaning or recognition behind it. “You’re so brave. I couldn’t do what you’re doing.” But what’s the alternative?
#cansky
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Abigail Johnston
@doublewhammied
3 months ago
"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/
#cancer
,
#MS
, ulcerative colitis,
#longCovid
or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2
#CanSky
#IDSky
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The trauma of illness can last long after the body has healed
“The body can heal while the self remains disconnected”: a psychologist on the overlooked trauma of illness.
https://www.statnews.com/2025/08/21/illness-trauma-psychology-healing-medicine/
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Abigail Johnston
Ginny Mason
3 months ago
www.msn.com/en-us/news/p...
#Payasyougo
rule could have big impact on $$$ available for Medicare in 2026 thanks to the
#BigUglyBill
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MSN
https://www.msn.com/en-us/news/politics/medicare-faces-45b-in-cuts-by-2026-here-s-what-it-means/ar-AA1KPBJP?ocid=socialshare
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Your Cheat Sheet for Medical Billing and Insurance Challenges For the past few months, I have been in at least weekly and sometimes daily contact with either my insurance company, various medical providers, Medicare or all of the above. While I’ve dealt with what I often call “paperwork hell”…
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Your Cheat Sheet for Medical Billing and Insurance Challenges
For the past few months, I have been in at least weekly and sometimes daily contact with either my insurance company, various medical providers, Medicare or all of the above. While I’ve dealt with what I often call “paperwork hell” since my de novo Metastatic Breast Cancer (MBC) diagnosis since 2017, this fresh experience has reminded me of a litany of things that I often incorporated into my routine when it came to billing and insurance issues.
http://nohalfmeasures.blog/2025/08/18/your-cheat-sheet-for-medical-billing-and-insurance-challenges/
4 months ago
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The Pencil’s Tale for the First Day of School, 2025
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The Pencil’s Tale for the First Day of School, 2025
http://nohalfmeasures.blog/2025/08/11/the-pencils-tale-for-the-first-day-of-school-2025/
4 months ago
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Medical Updates, August 2025 As we prepare for a last getaway for the summer of 2025 and prepare to go back to school for the 2025/2026 school year (will have a 5th and 7th grader this year!), I realized that I passed eight (8) years of living with Stage IV Metastatic Breast Cancer (MBC) in June…
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Medical Updates, August 2025
As we prepare for a last getaway for the summer of 2025 and prepare to go back to school for the 2025/2026 school year (will have a 5th and 7th grader this year!), I realized that I passed eight (8) years of living with Stage IV Metastatic Breast Cancer (MBC) in June and didn't mark or celebrate it. Wow, eight years.
http://nohalfmeasures.blog/2025/08/04/medical-updates-august-2025/
4 months ago
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Abigail Johnston
Brian Cardone
4 months ago
🚨🚨Holy Shit!! Senator Cory Booker (D-NJ) is not fucking around with this fiery speech on the Senate floor.💥🔥💥We need this from every Democrat if we are going to push back on fascism and save our fragile Democracy!! More of this please!! Bravo Senator Booker!!
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1826
850
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Abigail Johnston
Triage Cancer
4 months ago
Did you know that whether you have access to state disability insurance, depends on where you live? Use our charts of state laws to find out what you have access to:
https://loom.ly/ZOCwLJU
#cancerrights
#canceradvocacy
#disabilityinsurance
#disability
#cansky
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Abigail Johnston
Sid Sadler
4 months ago
Great article here about misinformation. We see it so much in the
#Cancer
communities. How to recognize and combat it 🥊.
#Cansky
#Oncsky
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Abigail Johnston
5 months ago
...life isn't a clockwork; it's a dynamic system, and unexpected things emerge from the interactions between all those little parts. To truly understand life, you can't just break it down. You have to be able to put it together again. - Claire L. Evans
#cansky
feeling this quote this morning
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Abigail Johnston
Sugar Sunshine
5 months ago
As a cancer patient surviving cancer means ignoring all misinformation against science, this is crucial to survivorship. Having Smith pedal anti science is a death sentence to children and adults in Alberta.
#cansky#abpoli
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Abigail Johnston
Stand Up for Science!
5 months ago
Over 120 mRNA cancer trials are now at risk as the Trump admin cuts funding & tells researchers to scrub “mRNA” from grant proposals. What started as COVID fearmongering is now derailing life-saving cancer research. Hope remains - but scientists say time is running out.
zurl.co/YBGNy
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‘Tremendous uncertainty’ for cancer research as US officials target mRNA vaccines
Amid Trump cuts and state-level backlash, experts worry that progress in messenger RNA vaccines could stall
https://zurl.co/YBGNy
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2657
1714
reposted by
Abigail Johnston
@doublewhammied
5 months ago
"The NIH awarded $36.94B in extramural research funding 2 researchers in all 50 states in 2024. This funding directly & indirectly supported ~408K jobs & produced $94.58B in new economic activity nationwide. That's $2.56 of economic activity 4 every $1 of funding. Biomedical ..." 1/2
#CanSky
#IDSky
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Annual Economic Report - United For Medical Research
https://www.unitedformedicalresearch.org/annual-economic-report/?utm_source=salesforce-marketing-cloud&utm_medium=email&utm_campaign=SPGA+-+NIH+Funding+Crisis+-+Economic+Impact&utm_term=Read+the+Report
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reposted by
Abigail Johnston
@doublewhammied
6 months ago
This is why we fund
#publichealth
#clinical
#basicscience
#research
#Research
funding has unexpected benefits. A lizard study led to Ozempic
www.statnews.com/2025/06/18/n...
via
@statnews.com
#MedSky
#CanSky
#IDSky
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Research funding has unexpected benefits. A lizard study led to Ozempic
In a new weekly video series, STAT's @HoganAlex examines the stakes of ongoing court battles over NIH grant funding.
https://www.statnews.com/2025/06/18/nih-research-funding-reed-jobs-lizard-research-led-to-ozempic/
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Abigail Johnston
Hayley Gullen
6 months ago
Human connection helped me to heal. And I don’t think we can fix the NHS without keeping this in mind. 7/7
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Abigail Johnston
Project Life
6 months ago
✨A little Sunday Reminder from Project Life!
#mbc
#stage4needsmore
#bcsm
#busylivingwithmets
#bccww
#oncsky
#oncosky
#cansky
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reposted by
Abigail Johnston
@doublewhammied
6 months ago
"90+ staffers at NIH signed their names 2 a letter of dissent in a rare sign of open resistance by career govt employees. The letter warns that 🍊administration policies such as terminating peer-reviewed grants, interrupting global collaborations ..." 1/3
#CanSky
#MedSky
#IDSky
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NIH scientists have been angry for months. Now some are rebelling.
More than 90 NIH scientists sign their names to the “Bethesda declaration” in protest of Trump administration policies they say are harming people’s health.
https://www.washingtonpost.com/science/2025/06/09/nih-scientists-bethesda-declaration-trump/?utm_campaign=wp_post_most&utm_medium=email&utm_source=newsletter&carta-url=https%3A%2F%2Fs2.washingtonpost.com%2Fcar-ln-tr%2F42fb485%2F684706f922827c5c3021c4cb%2F59765d82ae7e8a6816d570cd%2F26%2F67%2F684706f922827c5c3021c4cb
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Abigail Johnston
@doublewhammied
6 months ago
"In a number of cases, trials that were mostly completed were rendered useless without the money to finish and analyze the work, the letter says. 'Ending a $5 million research study when it is 80% complete does not save $1 million,' it says, 'it wastes $4 million.'” TRUTH!
#CanSky
#IDSky
#MedSky
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NIH scientists publish declaration criticizing Trump’s deep cuts in public health research
Scores of National Institutes of Health researchers and staffers have sent their leader a letter challenging policies they say undermine the NIH mission.
https://www.seattletimes.com/seattle-news/health/nih-scientists-go-public-to-criticize-trumps-deep-cuts-in-public-health-research/
0
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reposted by
Abigail Johnston
Wendy Woodward, MD, PhD
6 months ago
Great time to try the five calls app and ask your senators to vote down this bill that diverts critical funding for science and Medicaid. I called my senators and left messages. It really matters how many calls a minute. The numbers and script are in the app.
#cansky
#altnih
#sciencesky
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Abigail Johnston
Project Life
6 months ago
⚖️Abigail's Legal Clinic is coming up again, on Tuesday, May 13 at 9:30AM PT / 12:30PM ET 🎉 Get help and answers to any of your legal questions when dealing with an MBC diagnosis. RSVP through the link in our bio today!
#mbc
#stage4needsmore
#bcsm
#busylivingwithmets
#bccww
#oncsky
#oncosky
#cansky
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