ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer

Navigating Life’s Turmoil: A Call for Connection and Action When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not…

BIG NEWS! #gynca expert @kemidoll.bsky.social has written a book on Black #womenshealth, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women. #endo #cancer #blackwomb #CanSky @enddisparities.bsky.social Pre-order here:👇 www.penguinrandomhouse.com/books/775526...

#Cansky I wrote something here. It was a bit too long to post so refer to the photos please 🫶🏻.

No #cancer screening means those w/cancer will be diagnosed later when the disease is #metastatic, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access. #screeningsaveslives #CanSky

For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism. #IDSky #CanSky jamanetwork.com/journals/jam...

When a door closes, open a window … but what about when you run out of windows?

Reboot: Weekly Round up by Journeying Beyond Breast Cancer

Medical updates, January 2026

Happy New Year, 2026

Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation. #cansky 1/5

Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in today’s world! There are many you might not think about! #Cansky

You gotta be kidding me #bcsm #oncosky

“'I don’t care if it’s toenail #cancer,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the 🍊 admin’s decision risks further stigmatizing men w/#BC. 'There’s this machinismo aspect, [men] ..." 1/2 #CanSky #bcsm

🎉 New Episode Out Now! 🎉 Don’t miss out—tune in now and join the conversation! 👉 Listen here: www.livefromstage4.org or your favorite podcast streaming platform. #cansky #oncsky #oncosky

I’ll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info 👇

I am happy to welcome 2️⃣ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this @ascocancer.bsky.social 's 1st podcast about podcasts.   🎙️Drs Patel The Fellow on Call & @drteplinsky.bsky.social Interlude Podcast

Today would have been Gwen’s birthday. She was stolen from us by MBC.

Start your Saturday with @metavivor.bsky.social at the @americancancersoc.bsky.social walk at Chicago’s Soldier Field! Come on down, rain or shine #cansky

Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3

Just Dx'd w/#metastatic #breastcancer & looking 4 support, #clinicaltrials, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at @fredhutch.org. Topics include: financial health, sexual health, new #MBC treatmnts, nutrition, exercise, CTs & more! #CanSky @thankscancer.bsky.social

MBC BCAM awareness #2 Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my…

Great 2C #lobular #breastcancer coverd by @cbsnews.com but it wld have been helpful 2 mention: *Lobular #BC dsn't usually make lumps *So it's often not felt or seen on mamms *Esp in dense breast tissue *It's abt changes, not lumps! *More info @lobularbca.bsky.social #CanSky #MedSky #CancerBS #bcsm

Just diagnosed w/#lobular #breastcancer & wondering what the heck that is? Join me & @fredhutch.org #ILC experts THIS Wed OCT 15 3-5pm in person or via Zoom 4 a breakdown of new research, #clinicaltrials & more. Register 👇👇 @thankscancer.bsky.social #CanSky #bcsm www.fredhutch.org/en/events/sp...

Catching up on some MBC BCAM awareness! Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the…

www.msn.com/en-us/news/p... "Morality is not a buffet"....pope's words remind people that #pro-life means taking care of others, no killing, etc.

This and the funding cuts for cancer research could literally kill me. I can't even describe what that feels like. 😟 #Cancer #Stage4 #Melanoma #Metastatic #CancerResearch #CanSky #DermSky

Hey my #Cansky folks. I’m happy to announce Vanderbilt Ingram Cancer Center is hosting a young adults cancers symposium in November! Come join me. It’s FREE for patients. Would appreciate anyone spreading the word 🫶🏻 #Oncsky #Medsky

I’m excited and honored to say I will be joining the Judy Nicholson Kidney Cancer Foundation Board of Directors in 2026. I could never imagine when I was first diagnosed that I would dive headfirst into cancer advocacy. But here we are.

It’s October Again … 2025 While we don't see the fall seasons so much here in Florida from the trees, the rising incidences of pink smothered whatever always reminds me that October has arrived. Similar to other holidays, retailers get a start earlier and earlier in the year to capitalize on a…

Navigating the Gray Areas of Cancer Treatment Just popping in with a quick update as I've been remiss lately in keeping everyone updated. When so much is happening and changing in a short period of time, it's easy to forget that everyone else isn't doing this strange one foot in medical offices…

🎙️ Exciting news! Our new podcast, “Live from Stage 4,” is here. Join us as we dive deep into the real stories. 👉 Visit livefromstage4.org and follow us for updates! #cansky #oncosky #oncsky #mbc

Thank you @nytimes.com for featuring this upsetting news about the loss of #childhoodcancer funding for #braintumors. It was my pleasure to speak with #NinaAgrawal for this piece. But I wish circumstances were different and we didn't need this article at all. www.nytimes.com/2025/08/28/w...

Let's get politics the f*ck out of #publichealth. #IDSky #CanSky

New FDA-approved blood test "Shield" offers a less invasive #colorectal cancer screening, but while Shield may detect later-stage cancers, it misses over one-third of stage 1 cancers and most precancerous polyps. Learn more about what MSK experts have to say about Shield. ⬇️ #cansky

Courage doesn’t mean fear is gone—it means you carry it with you and act anyway. Every bold step you admire was taken by someone who felt scared but chose to move forward. Fear is human. Courage is action in spite of it. #YouBeatCancerNowWhat #OncSky #CanSky #cancerbs

#Cansky here’s my video where I spoke at the World GU Conference. I had to trim it a bit, but I hope it provided doctors and researchers there with a clear vision of their “why”. #Oncsky #Medsky

Once again I’m asking someone at Epic/MyChart to come up with a way for providers to opt out of sending the generic “you have a new message in mychart” that you need to go check in case it’s important for every time they change the specific chair you are assigned for systemic treatment #cansky

Calling cancer patients “brave” is dehumanising. I think this is because it puts distance between the patient and the other person. It’s not a compliment with any real meaning or recognition behind it. “You’re so brave. I couldn’t do what you’re doing.” But what’s the alternative? #cansky 1/3

"Society treats illness as a series of discrete medical events while ignorng the psychological aftermath tht often follows. Whether someone is living w/ #cancer, #MS, ulcerative colitis, #longCovid or anothr autoimmune or chronic illness, the emotional reverberations — marked ..." 1/2 #CanSky #IDSky

www.msn.com/en-us/news/p... #Payasyougo rule could have big impact on $$$ available for Medicare in 2026 thanks to the #BigUglyBill

Your Cheat Sheet for Medical Billing and Insurance Challenges For the past few months, I have been in at least weekly and sometimes daily contact with either my insurance company, various medical providers, Medicare or all of the above. While I’ve dealt with what I often call “paperwork hell”…

The Pencil’s Tale for the First Day of School, 2025

Medical Updates, August 2025 As we prepare for a last getaway for the summer of 2025 and prepare to go back to school for the 2025/2026 school year (will have a 5th and 7th grader this year!), I realized that I passed eight (8) years of living with Stage IV Metastatic Breast Cancer (MBC) in June…

🚨🚨Holy Shit!! Senator Cory Booker (D-NJ) is not fucking around with this fiery speech on the Senate floor.💥🔥💥We need this from every Democrat if we are going to push back on fascism and save our fragile Democracy!! More of this please!! Bravo Senator Booker!!

Did you know that whether you have access to state disability insurance, depends on where you live? Use our charts of state laws to find out what you have access to: https://loom.ly/ZOCwLJU #cancerrights #canceradvocacy #disabilityinsurance #disability #cansky

Great article here about misinformation. We see it so much in the #Cancer communities. How to recognize and combat it 🥊. #Cansky #Oncsky

...life isn't a clockwork; it's a dynamic system, and unexpected things emerge from the interactions between all those little parts. To truly understand life, you can't just break it down. You have to be able to put it together again. - Claire L. Evans #cansky feeling this quote this morning