Abigail Johnston
@amjohnston.bsky.social
š¤ 1667
š„ 6061
š 265
Daughter, sister, wife, mom, lawyer and shenanigator living out loud with MBC since 2017.
Holding Healthcare Accountable as a Patient
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Holding Healthcare Accountable as aĀ Patient
Accountabilityāāthat tidy word Merriam-Webster offers up as an obligation or willingness to accept responsibility for oneās actionsāhas threaded itself through the past weeks, stitching tight seams through my days at a new infusion center, where I've spent time each week receiving my new line of treatment, Taxol. When I knew IV treatment would soon redraw the map of my time, multiplying appointments until they crowded out the margins of my life, I chose proximity. I chose a center closer to home. In a world where time itself becomes a toxinādripping away quality of life in waiting rooms and infusion chairsāthat choice felt necessary, almost urgent.
http://nohalfmeasures.blog/2026/05/05/holding-healthcare-accountable-as-a-patient/
7 days ago
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Back in the InfusionĀ Chair After recently experiencing bone-only progression on scans and perhaps some developing liver mets again based on results of ctDNA testing too small to be seen on imaging, I had to choose a new line of treatment and the daunting challenge revealed how few options I haveā¦
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Back in the InfusionĀ Chair
After recently experiencing bone-only progression on scans and perhaps some developing liver mets again based on results of ctDNA testing too small to be seen on imaging, I had to choose a new line of treatment and the daunting challenge revealed how few options I have left. Yes, the medical oncologists still try to give hope by telling me how many options there are approved as standard of care left for me, all the medications that may be approved soon or in the future, but getting them to list the actual real options reveals the truth -- there aren't that many good options left likely to be effective for very long and nearly everything available right now will require me to be tied to the infusion chair.
http://nohalfmeasures.blog/2026/04/27/back-in-the-infusion-chair/
15 days ago
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Integrative Oncology: Tending to the Inner Self, a reflection During the 2026 Living Beyond Breast Cancer MBC conference, which was the 20th anniversary of that particular conference this past weekend, I had the distinct honor of serving on a panel during a breakout session organized by Projectā¦
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Integrative Oncology: Tending to the Inner Self, a reflection
During the 2026 Living Beyond Breast Cancer MBC conference, which was the 20th anniversary of that particular conference this past weekend, I had the distinct honor of serving on a panel during a breakout session organized by Project Life and brilliantly moderated by April Stearns from Wildfire Community. My fellow panelist, Nikoo McGoldrick, a bestselling author who is also living with Stage IV Metastatic Breast Cancer (MBC), and I answered a few questions about how writing has helped us to cope with the diagnosis, but the real highlight of the session for us and the the attendees, were the writing prompts.
http://nohalfmeasures.blog/2026/04/20/integrative-oncology-tending-to-the-inner-self-a-reflection/
22 days ago
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reposted by
Abigail Johnston
DSPš#š¦ā”ļø
24 days ago
Late post but in Los Angeles it's still
#flowerfridayfamily
Day! We're still having bsky tech issues so you're not all receiving notifications from the tags. If you don't receive one, pls report it to bsky feedback It's definitely JacarandĆ” blooming time! They make a sticky mess but oh so pretty!
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
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ReBlog: Weekly Round-Up from Journeying Beyond BreastĀ Cancer
Time for this weekās round-up of the best of the blog posts which Iāve read over the past week. These are the posts that have moved me, taught me ⦠Weekly Round-Up
http://nohalfmeasures.blog/2026/04/16/reblog-weekly-round-up-from-journeying-beyond-breast-cancer-6/
26 days ago
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reposted by
Abigail Johnston
@doublewhammied
27 days ago
10 Washington state health orgs just received
@fredhutch.org
community grants to support their community-led solutions 4
#cancerprevention
#screening
&
#education
. Kudos - this is how you
@enddisparities.bsky.social
in
#cancer
!
#CanSky
#IDSky
www.fredhutch.org/en/news/cent...
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Fred Hutch funds 10 Washington state initiatives to expand cancer prevention
Fred Hutch Cancer Centerās Community Grants Program has recently awarded 10 cancer prevention projects across Washington state up to $15,000 each, for a total of $145,500. These dollars will support c...
https://www.fredhutch.org/en/news/center-news/2026/04/community-grants-program-2026.html
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Finding Glimmers in the Weight of Metastatic Breast Cancer (MBC)
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Finding Glimmers in the Weight of Metastatic Breast CancerĀ (MBC)
Recently, in a support group Iāve been moderating with my Dad, a mental health therapist, since the long blur of COVID, I offered a small piece of homeworkāsomething I rarely do. But sometimes you can feel the shift before anyone names it, the quiet sag of spirits, the way the room grows heavier even through a screen, sometimes entirely unspoken. And in those moments, my instinct is to place something steady in our hands. So I asked them to look for the good. To notice what is meaningful. To gather the small, stubborn glimmers.
http://nohalfmeasures.blog/2026/04/13/homework/
29 days ago
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reposted by
Abigail Johnston
@doublewhammied
about 1 month ago
"Drug denials by private insurers are up 25% since 2016, creating access barriers across
#cancer
& other chronic conditions. Further, a 2023 analysis of coverage policies found that comm'l health plansā use of restrictions on onc drugs nearly doubled ā from 17.6% to 33.5% btwn 2017 & 2021."
#CanSky
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The Hidden Burdens of Cancer Care: When Insurers Override Doctors - Becker's Oncology
Every 30 seconds, someone in the U.S. hears the words: āYou have cancerā ā a moment that changes life in an instant. Yet, too often, the greatest struggle isnāt always the disease itself, but the maze...
https://www.beckersoncology.com/oncology/the-hidden-burdens-of-cancer-care-when-insurers-override-doctors/?origin=OncologyE&utm_source=OncologyE&utm_medium=email&utm_content=newsletter&oly_enc_id=2536I8636590A5G
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reposted by
Abigail Johnston
@doublewhammied
about 1 month ago
"What is happening right now is ... the wholesale substitution of consumer enthusiasm 4 clinical evidence. My pt is refusng a drug studied in 170K people because of side effects that a 124K person analysis just confirmed do not exist ā while injecting a compound studied in 14 humans ..." 1/2
#CanSky
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My patient would rather take a peptide than a statin. That reveals an uncomfortable truth in medicine
āThe volume of evidence behind a therapy has become inversely correlated with public trust in it,ā writes Vikas Patel.
https://www.statnews.com/2026/04/03/peptides-statins-research-trust-bpc-157/
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Pros and cons of a small(er)Ā life Over the last few years, Iāve carried the quiet, disorienting sense that my life has been reducedāpulled inward, pared down to something smaller than I once imagined, something I didnāt recognize at first as my own. I fought it. I grieved it. I raged against theā¦
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Pros and cons of a small(er)Ā life
Over the last few years, Iāve carried the quiet, disorienting sense that my life has been reducedāpulled inward, pared down to something smaller than I once imagined, something I didnāt recognize at first as my own. I fought it. I grieved it. I raged against the narrowing, cried until the edges blurred, mourned the life that felt like it had nothing to do with what I'd been building for the first 38 years of my life. And then, this past week, I heard it spoken back to me in a different voice, which happens often to me.
http://nohalfmeasures.blog/2026/04/06/pros-and-cons-of-a-smaller-life/
about 1 month ago
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Losing Faith in the Healthcare Systen
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The Erosion of Hope in TerminalĀ Illness
There is a quiet, particular grief in watching the scaffolding of the health care system meant to hold you sway, splinter, and give. Not all at once, not dramatically enough to draw alarmājust a subtle leaning at first, a hairline fracture you convince yourself can be repaired. Until one day you realize you are carrying weight that was never meant to be yours to carry, that shouldn't be on any patient especially those of us already living with a terminal illness. Coordination, communication, remembering the specifics of a treatment plan; I've lost count of the number of errors, medical mistakes, that I've found, corrected, and addressed since my de novo Stage IV Metastatic Breast Cancer (MBC) diagnosis in 2017.
http://nohalfmeasures.blog/2026/03/31/losing-faith-in-the-healthcare-systen/
about 1 month ago
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A tale of two lives
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A tale of twoĀ lives
It was the season of knowing and not knowing. The doctors said the word terminal, repeatedly, and then time began to move in three directions at onceāforward toward progression, forward in all the ordinary days and also backward through memories of what life used to be. Each scan carries the question of how much had grown, what had spread, what had been lost since the last scan or intervention. My body changes every time, quietly and sometimes more dramatically. Ordinary days continue ācoffee in the morning, sunlight through the window, carpool to drive, or not as we head into Spring Breakābut they unfold beneath the steady knowledge that the disease is advancing, marching towards the inevitable.
http://nohalfmeasures.blog/2026/03/16/a-tale-of-two-lives/
about 2 months ago
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When they beat you down ā¦
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When Treatment Delays Impact Life: A PersonalĀ Account
Iām a pretty resilient person. Iāve faced a lot and retained my sense of humor (albeit more dark these days), my ability to see silver linings, the ability to keep going despite hardships, despite set backs, despite bad news over and over. Itās not been easy but Iāve developed a lot of tools to keep going. But some days, it seems too hard. Some days, itās just too much. I had a day like that a few weeks ago when I showed up for my Zometa infusion. For those of you who arenāt familiar with this medication, Zometa is a bisphosphonate, given for the affects of bone metasteses in an IV (intravenous drip).
http://nohalfmeasures.blog/2026/03/09/when-they-beat-you-down/
2 months ago
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reposted by
Abigail Johnston
Wendy Woodward, MD, PhD
2 months ago
Another amazing life story cut short by inflammatory breast cancer. I found Clareās NYT podcast and article unexpectedly, while scrolling last year. I loved hearing she had found love. And Iām so sorry she didnāt get more time. Rest in peace Clare.
#IBC
#cansky
www.nytimes.com/2025/01/08/p...
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Finding the Magic, Just in Time (Published 2025)
https://www.nytimes.com/2025/01/08/podcasts/modern-love-finding-the-magic.html?smid=nytcore-ios-share
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reposted by
Abigail Johnston
Triage Cancer
2 months ago
Do you know your health care rights? In recognition of National Health Care Rights Day on March 22, weāre highlighting three important rights that can help people diagnosed with cancer navigate work, insurance, and access to care.
#CanSky
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The Loneliness Experienced During Forever CancerĀ Care At first, there so much noise. Phones ringing, kind and supportive messages flooding in. Appointment after appointment, preparation for surgery after surgery. Fitting it all in becomes a full time job. Information is a flood, coming at youā¦
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The Loneliness Experienced During Forever CancerĀ Care
At first, there so much noise. Phones ringing, kind and supportive messages flooding in. Appointment after appointment, preparation for surgery after surgery. Fitting it all in becomes a full time job. Information is a flood, coming at you faster than you can process it, like drinking from a fire hose. People are everywhere, offering a hand, food, respite, coffee. Health care workers asking question after question after question. You feel at the center of a very large, uncontrollable storm. And almost immediately, you are isolated, alone. Because even surrounded by people you love, something irrevocably separates you.
http://nohalfmeasures.blog/2026/03/02/a-cancer-diagnosis-is-lonely-in-a-way-that-is-hard-to-explain-until-you-are-living-inside-it/
2 months ago
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Chronic v. Terminal
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Chronic v. Terminal
Thereās been several articles recently labeling Stage IV Metastatic Breast Cancer (MBC) as a chronic disease sponsored by and including various non profits. Ironically none of the articles Iāve seen provides justification or basis for this claim and none cite to medical doctors or scientific proof. Instead of actual evidence or attempting to explain, the articles Iāve seen merely make the statement and shockingly move on as if there is consensus.
http://nohalfmeasures.blog/2026/02/23/chronic-v-terminal/
3 months ago
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Navigating Grief and Support for MBCĀ Patients In my circles of good friends living with Stage IV Metastatic Breast Cancer (MBC), there is a great deal of suffering at present and that weighs on all of us. It is not abnormal to get on a zoom call ostensibly about the "business" of advocacy and talkā¦
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Navigating Grief and Support for MBCĀ Patients
In my circles of good friends living with Stage IV Metastatic Breast Cancer (MBC), there is a great deal of suffering at present and that weighs on all of us. It is not abnormal to get on a zoom call ostensibly about the "business" of advocacy and talk mostly about these personal struggles because we lean on each other in big and small ways. We notice small and large changes, sometimes before anyone else because we're tuned into each other in nuanced ways and are more vulnerable with each other than most in our real lives.
http://nohalfmeasures.blog/2026/02/16/navigating-grief-and-support-for-mbc-patients/
3 months ago
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Things to know when you are getting a port
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Things to know when you are getting a port, from a patientāsĀ perspective
After receiving three different ports after my de novo Stage IV Metastatic Breast Cancer (MBC) diagnosis in 2017, I've collected a few important things to think about along the way that I'd like to share. Not everyone living with MBC has a port and not all patients living with MBC desire one. It is important to consider the pros and cons of every decision, keeping in mind those things that are important to each individual person; at the same time, itās hard to know what to ask and when. Port #1 (non-power port, no name)
http://nohalfmeasures.blog/2026/02/09/things-to-know-when-you-are-getting-a-port/
3 months ago
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Clinical Trials, Part II: InformedĀ Consent During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating in a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the Americanā¦
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Clinical Trials, Part II: InformedĀ Consent
During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating in a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.
http://nohalfmeasures.blog/2026/02/05/clinical-trials-part-ii-informed-consent/
3 months ago
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ReBlog: Journeying Beyond Breast Cancerās Weekly Round-Up
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ReBlog: Journeying Beyond Breast Cancerās WeeklyĀ Round-Up
Time for this weekās round-up of the best of the blog posts which Iāve read over the past week. These are the posts that have moved me, taught me ⦠Weekly Round-Up
http://nohalfmeasures.blog/2026/01/29/reblog-journeying-beyond-breast-cancers-weekly-round-up-6/
3 months ago
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Finding Clinical Trials: A PatientāsĀ Guide During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the Americanā¦
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Finding Clinical Trials: A PatientāsĀ Guide
During the 2025 San Antonio Breast Cancer Symposium (SABCS), I had the privilege of participating a panel discussion that was a collaboration between the Alamo Breast Cancer Foundation, the Metastatic Breast Cancer Alliance (MBCA), the American Association of Clinical Research (AACR) and the Advanced Breast Cancer Global Alliance (ABCGA). Dr Fatima Cordoso and Teri Pollastro were the moderators, Dr. Mariana Chavez MacGregor from MD Anderson was the keynote speaker, and in addition to myself, Kirstin Spencer from METUPUK was a panelist. The title of our discussion was, in part, Demystifying Clinical Trials.
http://nohalfmeasures.blog/2026/01/26/finding-clinical-trials-a-patients-guide/
4 months ago
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ReBlog: Weekly Round-Up from Journeying Beyond Breast Cancer
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ReBlog: Weekly Round-Up from Journeying Beyond BreastĀ Cancer
Time for this weekās round-up of the best of the blog posts which Iāve read over the past week. These are the posts that have moved me, taught me ⦠Weekly Round-Up
http://nohalfmeasures.blog/2026/01/22/reblog-weekly-round-up-from-journeying-beyond-breast-cancer-5/
4 months ago
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Navigating Lifeās Turmoil: A Call for Connection andĀ Action When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to notā¦
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Navigating Lifeās Turmoil: A Call for Connection andĀ Action
When we add up all of the chaos, only exacerbated by the perpetual news cycle, the burden of trying to find truth when no one gives us everything, it is entirely reasonable to feel paralyzed, to feel as though all hope is lost, to not know where to turn. Whenever I turn on the news, I am bombarded by the different events, by rhetoric and opinions, by shocking videos, by big changes to systems we rely upon. It feels so big, it feels so chaotic, it feels overwhelming. I find it hard to look away, I find it hard to keep looking.
http://nohalfmeasures.blog/2026/01/19/navigating-lifes-turmoil-a-call-for-connection-and-action/
4 months ago
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reposted by
Abigail Johnston
@doublewhammied
4 months ago
BIG NEWS!
#gynca
expert
@kemidoll.bsky.social
has written a book on Black
#womenshealth
, esp Black maternal health & the ONGOING systemic gyn health crisis killing Black women.
#endo
#cancer
#blackwomb
#CanSky
@enddisparities.bsky.social
Pre-order here:š
www.penguinrandomhouse.com/books/775526...
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A Terrible Strength by Kemi Doll, MD, MSCR: 9780593977477 | PenguinRandomHouse.com: Books
Black women are facing a systemic gynecological health crisis. This book gives them the tools needed to unlearn the medical normalization of their suffering and offers a path forward to healingāby...
https://www.penguinrandomhouse.com/books/775526/a-terrible-strength-by-kemi-doll-md-mscr/
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reposted by
Abigail Johnston
Sid Sadler
4 months ago
#Cansky
I wrote something here. It was a bit too long to post so refer to the photos please š«¶š».
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Abigail Johnston
@doublewhammied
4 months ago
No
#cancer
screening means those w/cancer will be diagnosed later when the disease is
#metastatic
, which means their options (and lives) will be limited. Lack of access 2 screening is often why underserved populations die from cancer at a higher rate than those w/access.
#screeningsaveslives
#CanSky
add a skeleton here at some point
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reposted by
Abigail Johnston
@doublewhammied
4 months ago
For those in the back who didn't hear it the first 500K times: there's no link between vaccines and autism.
#IDSky
#CanSky
jamanetwork.com/journals/jam...
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WHO Analysis Finds No Causal Link Between Vaccines and Autism
An analysis from the World Health Organization (WHO) Global Advisory Committee on Vaccine Safety (GACVS) concluded that there is no causal link between vaccines and autism spectrum disorder, according...
https://jamanetwork.com/journals/jama/fullarticle/2843817?guestAccessKey=052c2209-3266-48d3-b78b-3d741b7b872a&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jama&utm_content=olf-tfl_&utm_term=010926
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When a door closes, open a window ⦠but what about when you run out of windows?
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When a door closes, open a window ⦠but what about when you run out of windows?
In this clumsy metaphor, the doors and windows are treatment options for Stage IV Metastatic Breast Cancer (MBC) and so many of us only have a finite number of treatments before this terminal diagnosis completes its trajectory and ends its own existence and the host. Reaching the end of a treatment option and contemplating the shorter and shorter list of what could be next has occupied my thoughts and triggered a deluge of new and familiar angst in the last few months. But let me take two steps back and mention a new wrinkle in the cancer experience for me ā a new primary cancer.
http://nohalfmeasures.blog/2026/01/12/when-a-door-closes-open-a-window-but-what-about-when-you-run-out-of-windows/
4 months ago
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Reboot: Weekly Round up by Journeying Beyond Breast Cancer
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ReBlog: Weekly Round Up by Journeying Beyond BreastĀ Cancer
Thankful to Marie at Journeying Beyond Breast Cancer for gathering up amazing blogs every single week and sharing her weekly round up. Sharing here so you can learn more about the various bloggers she brings together week after week ā each of them is worth a follow! Warmly, Abigail
http://nohalfmeasures.blog/2026/01/08/reboot-weekly-round-up-by-journeying-beyond-breast-cancer/
4 months ago
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Medical updates, January 2026
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Medical updates, JanuaryĀ 2026
2025 was a bit of a dumpster fire in relation to my medical care. It is only now looking back on the previous 12 months that I can begin to see just how bad it really was. It wasnāt just the specific side effects of Enhertu that put me into a foggy state most of the time, but also how many new and complicated things I had to manage. The year started off relatively typically in this Stage IV Metastatic Breast Cancer (MBC) experience in that it was full of appointments and side effects from the Antibody Drug Conjugate (ADC) I was on, Enhertu.
http://nohalfmeasures.blog/2026/01/05/medical-updates-january-2026/
4 months ago
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Happy New Year, 2026
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Happy New Year,Ā 2026
Entering 2026, the author reminisces about words selected previously and announces her word for 2026.
http://nohalfmeasures.blog/2026/01/01/happy-new-year-2026/
4 months ago
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reposted by
Abigail Johnston
Hayley Gullen
6 months ago
Compliments can be just as dehumanising as insults if they are used to skate over the reality of the situation.
#cansky
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reposted by
Abigail Johnston
Sid Sadler
6 months ago
Happy to say that I will be on a panel for this event coming up this weekend on Saturday! Thrilled to be talking about all of the various issues that young adults with cancer face in todayās world! There are many you might not think about!
#Cansky
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reposted by
Abigail Johnston
HarrisEve
6 months ago
You gotta be kidding me
#bcsm
#oncosky
add a skeleton here at some point
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reposted by
Abigail Johnston
@doublewhammied
6 months ago
ā'I donāt care if itās toenail
#cancer
,' said Kirby Lewis, Dx'd w/#breastcancer ~12 yrs ago & now Stage 4. 'If exposure occurs, they shld take care of those ppl.' Lewis said the š adminās decision risks further stigmatizing men w/#BC. 'Thereās this machinismo aspect, [men] ..." 1/2
#CanSky
#bcsm
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Citing Trump Order on āBiological Truth,ā VA Makes It Harder for Male Veterans With Breast Cancer to Get Coverage
A Department of Veterans Affairs memo obtained by ProPublica erects new roadblocks to care for veterans with the rare but deadly cancer. The agency cites no new science but relies on an executive orde...
https://www.propublica.org/article/veterans-affairs-male-breast-cancer-coverage-trump-executive-order?utm_source=sailthru&utm_medium=email&utm_campaign=majorinvestigations&utm_content=river
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š New Episode Out Now! š Donāt miss outātune in now and join the conversation! š Listen here:
www.livefromstage4.org
or your favorite podcast streaming platform.
#cansky
#oncsky
#oncosky
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Live From Stage 4 | Join the Conversation ā Empower Yourself
A podcast providing insights, stories, and support for metastatic breast cancer patients and advocates. Join us to stay informed and empowered.
https://www.livefromstage4.org/
6 months ago
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Abigail Johnston
Mommy Has Cancer
7 months ago
Iāll be sharing my cancer-related thrombosis story at this webinar. If you are a cancer patient, or are caring for one, please register for free. Info š
add a skeleton here at some point
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reposted by
Abigail Johnston
Fumiko Ladd Chino, MD FASCO
7 months ago
I am happy to welcome 2ļøā£ guests to discuss the role of podcasts to improve information sharing. They are both podcast hosts, making this
@ascocancer.bsky.social
's 1st podcast about podcasts. Ā šļøDrs Patel The Fellow on Call &
@drteplinsky.bsky.social
Interlude Podcast
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A Podcast About Podcasts: Podcasts as Educational Tools for Providers (and Patients) | Podcast | ASCO Publications
Dr. Chino welcomes Dr. Vivek Patel and Dr. Eleonora Teplinsky to discuss a recent article in JCO OP that reported a podcast-based curriculum could improve knowledge and comfort with common education t...
https://ascopubs.org/do/podcast-podcasts-podcasts-educational-tools-providers-and-patients
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Abigail Johnston
Cathy Fellaš»šššš©š»āāļøš·šš
7 months ago
#CanSky
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Today would have been Gwenās birthday. She was stolen from us by MBC.
add a skeleton here at some point
7 months ago
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reposted by
Abigail Johnston
Martha Carlson
7 months ago
Start your Saturday with
@metavivor.bsky.social
at the
@americancancersoc.bsky.social
walk at Chicagoās Soldier Field! Come on down, rain or shine
#cansky
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Interested in sharing about your experience of living with MBC? The Metastatic Breast Cancer Alliance has launched a new initiative designed to educate the public on the experience of living with MBC and I would like to invite anyone who is living with MBC or their person is living with MBC 1/3
7 months ago
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Abigail Johnston
@doublewhammied
7 months ago
Just Dx'd w/#metastatic
#breastcancer
& looking 4 support,
#clinicaltrials
, new treatments? Check out this FREE pt event Sat, Nov 1, 8-3:15 PDT at
@fredhutch.org
. Topics include: financial health, sexual health, new
#MBC
treatmnts, nutrition, exercise, CTs & more!
#CanSky
@thankscancer.bsky.social
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2025 Metastatic Breast Cancer: From Surviving to Thriving
This is a free, educational event for patients with metastatic breast cancer & their caregivers hosted by Fred Hutch.
https://www.eventbrite.com/e/2025-metastatic-breast-cancer-from-surviving-to-thriving-tickets-1712382364749?aff=oddtdtcreator
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MBC BCAM awarenessĀ #2 Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of myā¦
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MBC BCAM awarenessĀ #2
Good morning! Picking up where I left off last week with Breast Cancer Awareness month educational tiles from Metavivor: In 2017, I was 38 and had never had a mammogram because I did not yet meet the criteria for screening. I received my first mammogram in the process of my de novo diagnosis and if I had been getting mammograms, the density of my breast tissue and the fact I was breastfeeding would have affected the results. Every person needs to know their individual risk and which screening and diagnostic testing is the best for their body.
http://nohalfmeasures.blog/2025/10/13/mbc-bcam-awareness-2/
7 months ago
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5
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reposted by
Abigail Johnston
@doublewhammied
7 months ago
Great 2C
#lobular
#breastcancer
coverd by
@cbsnews.com
but it wld have been helpful 2 mention: *Lobular
#BC
dsn't usually make lumps *So it's often not felt or seen on mamms *Esp in dense breast tissue *It's abt changes, not lumps! *More info
@lobularbca.bsky.social
#CanSky
#MedSky
#CancerBS
#bcsm
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What you need to know about lobular breast cancer
Dr. Cassann Blake, a breast surgical oncologist at the Cleveland Clinic, on lobular breast cancer.
https://www.cbsnews.com/miami/video/what-you-need-to-know-about-lobular-breast-cancer/?intcid=CNM-00-10abd1h#x
0
4
2
reposted by
Abigail Johnston
@doublewhammied
7 months ago
Just diagnosed w/#lobular
#breastcancer
& wondering what the heck that is? Join me &
@fredhutch.org
#ILC
experts THIS Wed OCT 15 3-5pm in person or via Zoom 4 a breakdown of new research,
#clinicaltrials
& more. Register šš
@thankscancer.bsky.social
#CanSky
#bcsm
www.fredhutch.org/en/events/sp...
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Spotlight on lobular breast cancer: What patients, PCPs & oncologists need to know
Hear from Fred Hutch experts about lobular breast cancerās history, screening and surveillance challenges, new findings and clinical trials.
https://www.fredhutch.org/en/events/spotlight-on-lobular-breast-cancer.html
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Catching up on some MBC BCAMĀ awareness! Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in theā¦
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Catching up on some MBC BCAMĀ awareness!
Each October, Metavivor shares tiles of educational information and 2025 is no different. I'll be sharing information throughout the month as I have the time/bandwidth and today I'm catching up on the first week of tiles: Approximately 117 people in the United States die every day from Stage IV Metastatic Breast Cancer (MBC) -- that's the equivalent of a plane load of people falling out of the sky to their deaths every single day.
http://nohalfmeasures.blog/2025/10/06/catching-up-on-some-mbc-bcam-awareness/
7 months ago
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3
0
reposted by
Abigail Johnston
Ginny Mason
7 months ago
www.msn.com/en-us/news/p...
"Morality is not a buffet"....pope's words remind people that
#pro-life
means taking care of others, no killing, etc.
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MSN
https://www.msn.com/en-us/news/politics/morality-is-not-a-buffet-the-weeknight-reacts-after-pope-leo-questions-pro-life-bona-fides/ar-AA1NL9GN?ocid=socialshare
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1
reposted by
Abigail Johnston
Ashley Holden š©· M.Ed.
7 months ago
This and the funding cuts for cancer research could literally kill me. I can't even describe what that feels like. š
#Cancer
#Stage4
#Melanoma
#Metastatic
#CancerResearch
#CanSky
#DermSky
add a skeleton here at some point
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