At least NASA chose an iconic episode to tape over the moon landing 😂

Want my head in focus? Bite me! #PaleHeadedRosella #AustralianWildlife #BirdPhotography

Baby magpie 🥰

Nothing more eerie than waking up to a magpie mimicking the theme song of Severance at 4am.

Berkeley's crowdfunder has reached 32% of the goal, with 199 donations so far. Who will make the 200th donation? crowdfund.berkeley.edu/project/47768

🙏 @vladvexler.bsky.social this describes exactly the point being made by Justice4ME.uk. 7 days left to Judicial Review of (England and Wales) UK government Final Delivery Plan for ME. @ashleydaltonmp.bsky.social we want to help you get this. www.youtube.com/watch?v=_6KS...

When I think of violent criminals … Winnie the Pooh and Cookie Monster are top of the list. Hide your honey and your baked goods! Portland is rubbing off on Chicago. The inflatable animals have arrived at the Broadview ICE detention facility chanting “this is what democracy looks like”

INTRODUCTION This newsletter provides updates and information about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research news, #ME/CFS Collaborative Research Network (MECFSnet) news, and new and ongoing activities at NIH related to ME/CFS. Do you have suggestions for our newsletter?

🧵 "The Trouble With Recovery Stories" by Naomi Whittingham @naomiwhitt.bsky.social (with severe ME for decades) alifehidden.com/2024/11/05/r... An excellent, articulate article discussing “Recovery Stories” and the complex impressions and impacts they bring about #MEcfs #CFS #PwME 1/

Here’s another gorgeously fluffy baby bush cackler 🥰 #kookaburra #juvenilekookaburra #babykookaburra #australianbirds #australianbush #birdphotographer #birdphotography

Nothing to see here. Just some Lorikeets spreading misinformation on The Gossip Gum.

They call him the tree whisperer. #cockatoo #whitecockatoo #australianwildlife #birdphotography

Looking forward to 3 mins with #Savannah this weekend. Tube strike delayed my visit. #ME/cfs delays her participation in everyday life. #Justice4ME justice4ME.uk

The Irish health service has initiated a process to develop a clinical guideline for ME (#MyalgicEncephalomyelitis). I am honoured to be part of its Steering Group The process so far has been extremely progressive I am hugely optimistic that a world-leading guideline will be produced #pwME #MECFS

Their stupidity would be hilarious if it wasn’t so dangerous. There will be movies and tv shows made for centuries to come about this administration - if the world still exists.

"misinformation from decades ago which said the illness was psychological has caused stigma that still impacts patient care today" Very well made 17 minutes from Re: News in New Zealand. Ads to skip. www.youtube.com/watch?v=DsOA... Thanks to @tomkindlon.bsky.social for the share.

I just love cute fluffy juvenile kookaburras. #juvenilekookaburra #kookaburra #australianbirds #wildlifephotography #birdphotography

Are you the screeching cockatoo waking me up at 2:30 every morning?

I see people protesting the rights of many marginalized groups and important issues. I see people up in arms over injustices faced by people all around the world…BUT WE ARE DYING.…And I don’t see anyone even blinking an eye… Read the piece on my blog: www.whitneydafoe.com/mecfs/?post=... #mecfs

Goed nieuws! De Nederlandse ondertiteling is toegevoegd aan 't interview van @davetuller1.bsky.social met NOS-journalist @zurhake.bsky.social over de dwang en drang van behandelingen met CGT/GET bij kinderen met ME/PAIZ. #kidswithME Veel kijkplezier, en ook graag delen!! youtu.be/WFxTpuGuiI4?...

Happy Birthday Maeve, you should have been 31 today. Please remember her for who she was, not how she died. Feminist, Writer, Linguist. Wannabe diplomat with her Irish passport, a gift for Russian & a balanced interest in Israel/Palestine. #MEKills #PlanForME #JusticeForME #MaeveInquest

My noise cancelling headphones work very well. I was completely oblivious to the 5.6 magnitude earthquake we had yesterday.

I miss the feeling of possibility. #MyalgicEncephalomyelitis

I just realised today’s my shitiversary. 12 years today, I knew something was wrong. I collapsed only a few metres from my car after dropping my kids to school. I was in bed with a high fever for days. I expected to get better, but I never recovered. #MyalgicEncephalomyelitis

Safeguarding records for the final year of Maeve’s life show social workers, nurses and a mental health assessor, instead of focusing on managing Maeve’s ME, were investigating concerns about Boothby. (£) www.thetimes.com/uk/healthcar... #MEcfs #LongCovid

Severe ME terrifies me more than death, so I kept putting off having to think about it, or write about it. But after listening to Emerge Australia’s Severe ME Day Symposium this afternoon, I was compelled to write this… substack.com/home/post/p-...

Today is Severe ME Awareness Day. Severe ME is worse than you think. 
Imagine feeling like you’re dying—every single day—for years. Not months. Not weeks. Years.

The Other Guys - Will Ferrell and Mark Wahlberg edition 🤣

Health(s)care. A short talk for the 8th of August #severemeday2025 about how healthcare can be a frightening place for those of us living with severe ME. We urgently need things to change. We need support, and you can help. Because speaking, 1/ #pwME www.youtube.com/watch?v=qVDw...

The Times: 'Lack of ME research because of ‘medical misogyny’, says top scientist' 'Professor Chris Ponting, who led a groundbreaking study into the disease, says it is ‘highly stigmatised and incredibly female-biased’' #DecodeME www.thetimes.com/uk/scotland/...

I've just updated my list of latest research into ME/CFS and Long COVID. Lots of studies from now, going back decades. If you see that I'm missing any important studies, please link them in comments below. amandafrancey.medium.com/me-cfs-long-...

www.newscientist.com/article/2491... #MEcfs #MEscience #pwME #DecodeME

Twenty-nine years ago right now this was broadcast in the UK... #myalgicencephalomyelitis #myalgice #mecfs youtu.be/TncbadR41NE

A photo I took in 2018 of an Australian Tawny frogmouth. #OwlAwarenessDay

Good evening. Here's my recent drawing of a Little Owl in celebration of #InternationalOwlAwarenessDay they really are wonderful little characters! 🤎 🪶 🌿 #Art #BirdArt #SciArt #OwlAwarenessDay #Owls #drawing #nature #EastCoastKin

The AI That’s Finally Making Sense of #ME/CFS www.biorxiv.org/content/10.1...

LOL 😂

I really want to help awareness advocacy for Severe ME Day (August 8), but I have very limited energy. If you know of some good campaigns to back or stories to share, please reply below 👇 #SevereME #SevereMEAwareness

The response of @thereforme.bsky.social is spot on. Over the past 3 years I've photographed dozens of #pwME who are trapped in bedrooms desperate for appropriate treatment. In Sept Oxo Tower Gallery is showing the work,info tinyurl.com/58khuv8z #MECFS #ChronicIllnessAwareness #millionsmissing

They should call it what it is… gaslighting theory. Gaslight the patients until they believe it’s their own fault for still being sick.

I’m weeping for Americans today. I even feel sorry for those too stupid to realise what they voted for.

OMF: 'Update: A Muscle Biopsy Study to Understand the Molecular Mechanisms of PEM' 'Dr. Systrom..and his team are studying the relationship between poor oxygen extraction, vascular abnormalities & mitochondrial dysfunction and how they might relate to PEM' www.youtube.com/watch?v=U_78...

as tee, hoodie, pin, sticker, magnet, or mug www.etsy.com/shop/Chronic...

Long COVID - a critical disruption of cholinergic neurotransmission? #nAChR #LDTN bioelecmed.biomedcentral.com/articles/10.... This paper reviews the current literature on the effects of blocked nicotinic acetylcholine receptors (nAChRs) on the main affected organ and cell systems and contrasts this

I’m tired of being punished for wanting to be alive. It’s the least punishable offense in human history. And we face one of the worst punishments for it in human history. #MECFS #LongCovid

This is troubling. If government support systems enable some quality of life & they take that away from those with no other options but assisted dying, that in itself is coercion to end one’s life. I’d like the option of assisted dying, but not at the cost of vulnerable people’s lives.

The so-called Science Media Centre called in PACE "truther" Alan Carson to weigh in on the new Edinburgh study about blood-based biomarkers for ME/CFS. Here's my interview from last year with Guardian columnist George Monbiot on the SMC's shady history: www.youtube.com/watch?v=N1W4...