Would this have happened to a white resident? Asking for the First Nations.

Have you wondered how you can help a caregiver in your life? If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank? Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support... #Caregiver

I dag sa KrFU-lederen på #dax18 at hun selv ikke ville tatt en angrepille. Så da tar vi litt folkeopplysning. Nødprevensjon virker ved å utsette eggløsning, har ingen effekt hvis eggløsning allerede har vært. Nødprevensjon avbryter ikke svangerskap. Angrepille er ikke en tidlig abort. Si det videre.

"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...

ok, først litt fakta: 1. syke har rett til og behov for hjelp 2. BPA er rimeligere og mer effektivt enn andre løsninger Men kommunen nekter. Resultat? 1. Den syke blir sykere 2. Pårørende faller ut av jobb 3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger

1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS. ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.

Ny artikkel fra Tjenesten og MEg. Fafo/Sintef ser på pårørende til ME-syke. Økonomi og helse link.springer.com/article/10.1...

puh.

Det er lite jeg er enig med Anne-Kari Bratten om, men her treffer hun spikeren på hodet. Noe sier meg at «gutta» kommer til å slite når de får sånne som meg som leder. www.dn.no/ledelse/lede...

Biomedisinsk forskning på ME gjorde Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering. www.nrk.no/nordland/xl/...

Late singer Kara Jane's family has released her album "In Limbo" posthumously on #SevereMEday 💙. Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org. thesicktimes.org/2025/08/08/p...

1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome. The Manhattan plot below shows the genes and chromosomes involved. Let’s unpack the results 🧵

Science magazine’s coverage of the DecodeME initial results : www.science.org/content/arti...

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more. These findings reflect the lived experience of thousands of #pwME. Thanks to all our participants & supporters who made this possible! Read a summary of our results: shorturl.at/pgsjk

Scientists find link between genes and ME/chronic fatigue syndrome www.theguardian.com/society/2025...

People with ME have key genetic differences to other people, study finds The DecodeME study is described the largest of its kind in the world. #MECFS www.standard.co.uk/news/health/...

de har funnet noe genetisk! www.research.ed.ac.uk/en/publicati...

Younger har faktisk funnet betennelse i hjernen til ME-syke. youtu.be/wuzmYJxM-r0

Six months later: What their response on ME/CFS tells us about the Cochrane Collaboration. New post at Absolutely Maybe .... 1/2 absolutelymaybe.plos.org/2025/07/31/s... #MECFS

🧵 Extract from a new short blogpost of mine: "3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness" #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 1/

Huge congrats to everyone who’s been advocating for support for the NIH’s ME/CFS Research Roadmap!! 🥳🥳 Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥

1) Interesting letter in The Lancet Rheumatology by Brittany Adler. "Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."

Snodig følelse å ta på langbukse etter et par uker med nesten ingen klær.

BBC: 'Woman with ME criticises health plan for condition' A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients. www.bbc.co.uk/news/article...

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/

Facebook-innlegget mitt om at arbeidslivet må endres for at flere uføre skal kunne jobbe, er blitt til innlegg i Aftenposten. De har strøket en "drit og dra!", men har beholdt "Herre milde Josef og Maria", så det er da noe. Lik og del, som dem sier.

Nå har jeg skrytt så mange dager på facebook at jeg må spre det litt. Har kjøp kajakk, så jeg kommer meg ut på vannet selv om jeg er aleine på hytta. Veldig moro!

1) The pilot results (n = 10) for the Daratumumab trial on ME/CFS have been published and they look quite encouraging. Tolerability and feasibility were good and some patients had substantial improvements.

Problemet med å være aleine på hytta i fantastisk sommervær er at det alltid er en flekk midt bak på ryggen jeg ikke klarer å smøre med solkrem. Ellers er det relativt fredelig uten mye drama.

Personer med #MEcfs er nødt til å finansiere legemiddelforskningen selv. Ikke rart det tar lang tid å komme noen vei….

Dutch doctors using questionable treatment on kids with chronic fatigue syndrome nltimes.nl/2025/05/31/d... Critical article #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Imponerende av Yama Wolasmal å holde maska i intervjuet med Bismuth. Hersketeknikker og avbrytelser på løpende bånd. #nrk

Just back from a wonderful week in Norway for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different. Fantastic to meet @putrinolab.bsky.social @bmhughes.bsky.social in person along with others who I can't find to tag ...1/3

TLDR: This is an SOS. If you don’t have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! 🙏🏻💙 #MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal #MyalgicEncephalomyelitis #MECFS #LongCovid

ME-syke og sikkert endel pårørende gjennomførte liggende demonstrasjon i Berlin i dag. Lignende demonstrasjoner over hele Tyskland de neste dagene. #MECFS

🧵 It would be great if friends of people with ME/CFS or long COVID would take the time to read this. These conditions are very socially isolating and lonely and patients would love to maintain friendships www.emerge.org.au/how-to-suppo... #LongCovid #MEcfs 1/

1) What it's like to become an adult with ME/CFS? I think this Australian study captures the most important themes quite well.

Ny studie i Storbritannia med funn som stemmer godt med det FAFO/Sintef fant i Norge. #ME www.thetimes.com/uk/healthcar...

Så var bjørkepollensesongen i gang. Tar pille.

Also, a woman was handcuffed at a subway station in NYC (Franklin Ave) when she intervened asking why a delivery man was asked to show work permit by undercover agents. There is a video of that.

Prinsipielt viktig ME-sak til lagmannsretten. Støtt med en slant til advokatutgifter. ME-syk trenger hjelp til ankesak. spleis.no/413131

Children are developing Long COVID every day. With each new infection, more kids face lasting health struggles, impacting their education and daily lives. Yet, research and support remain far behind. We can’t ignore this crisis. Kids deserve protection, care, and a chance to heal. #LongCOVID

NEW: Family of Mahmoud Khalil just released footage of his arrest “Stop resisting” “He’s not resisting” Agents seen continuing to ignore Mahmoud’s wife as she asks basic questions

Jeg ler så jeg gråter, snakk om å treffe spikeren midt på hodet 😂 agendamagasin.no/debatt/ta-al...

De fleste blir altså ikke friske. www.forskning.no/helse-samfun...

Unge menn i KrFU som ikke aner hva de snakker om forsøker å bestemme over foreldre og kvinner gjennom politikk, en tråd.

Replikerte resultater bekrefter at ME/CFS er en kompleks sykdom med nevrologiske, immunologiske og metabolske dysfunksjoner. Diskusjonen handler ikke lenger om hvorvidt disse fysiske avvikene finnes i kroppen. www.aftenposten.no/meninger/deb...

«Sånn er jeg skrudd sammen», sier vi. Alt i verden fungerte som mekanikken i en klokke, tenkte opplysningsfilosofene. Blindsonene merker vi fortsatt. Når vi blir gamle, er det barna som gir mye av hjelpen. Men dette telles i helt andre statistikker. www.dagsavisen.no/debatt/komme...