We have guest writer Dr Elke Hausmann examining the controversial Levinovitz WIRED article which has sparked significant concern for its portrayal of Long Covid, recovery narratives, and brain retraining approaches. 🎙️Audio available open.substack.com/pub/longcovi...

Aotearoa/New Zealand travel view #2 on Thursday, 4 June: pink skies and fog shrouded valleys below. (I’ve replaced the engine noise and cabin announcements with music) Kia pai tō ra / Have a good day

Sunrise, 4 June, from Te Whanganui-a-Tara / Wellington, as seen on approach to WEL R34. Ata mārie / Good Morning ☀️

Long Covid is not "baffling". It's the most studied condition in living memory. It just doesn't, yet, have a cure. Given it doesn't, six years in, patients are coping remarkably, they have a wealth of learning, their communities deserve to be listened to, certainly not to be patronised or exploited.

There are hundreds of thousands of publications on SARS-CoV-2 infection. They demonstrate multi-system pathology in acute and Long Covid through some of the most sophisticated scientific approaches in medical history. These are irrefutable facts. #LongCovid

A powerful response to the Wired article on Long Covid from Todd Davenport @sunsopeningband.bsky.social

Huge thanks to @sunsopeningband.bsky.social for this powerful piece. “Misperceiving Long COVID as a problem of misperception has real consequences…it distracts the narrative away from help and toward additional marginalization.” #LongCOVID likeannopeningbandforthesun.substack.com/p/revisiting...

Paywall now lifted: The Government has dismantled a New Plymouth research and development centre set up by Labour to investigate new energy sources and help Taranaki transition away from oil and gas. newsroom.co.nz/2026/06/02/t...

Sunrise, Wednesday, 3 JUNE, from Wainui Beach, Aotearoa / New Zealand. Thought I’d go portrait style this time. Ata mārie / Good Morning ☀️

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Long Covid is not "baffling" at all. There are thousands of publications which show multi-system pathology across all body systems, including extensive evidence of organ damage. The scientific and clinical evidence is undeniable and should be reported about accurately #LongCovid

What happens when you write a letter to an ethics board about concerns over a Long COVID trial? The ethics committee sends a response to an entirely different group of people and tells you to contact them to get a response! My commentary for @thesicktimes.org thesicktimes.org/2026/06/02/r... 1/n

Long Covid Advocacy doing great work. Excellent 🧵 of key concerns RE: The Painful Truth About Long Covid article in WIRED by Alan Levinovitz

Today @thesicktimes.org: Research ethics boards urgently need training on Long COVID and ME, @spichaksimon.bsky.social argues. Better training could help prevent studies that may harm patients, like those trialing exercise. thesicktimes.org/2026/06/02/r...

Positive thinking can’t cure disability. You can’t “try harder” to be better. You aren’t “failing” because you got sick. People who believe they will never become disabled or that they will “try harder” than us are denying reality. Disability can and does come for almost everyone.

This cause is close to my heart - please sign this petition

🧵OF KEY CONCERNS We've now read Alan Levinovitz's WIRED piece on Long Covid. Our concern isn't that it discusses psychological theories. Our concern is that it repeatedly conflates criticism of evidence with creating a "climate of fear". Those are not the same thing. /1

Fatigue is the symptom Invisibility is the disease The cost of what's list in translation "There is a specific exhaustion that comes not from the condition itself but from being unseen inside it. " @onelifelivedwell.bsky.social #LongCovid #ME/CFS

Cloudy morning, Tuesday, 2 May, from Wainui Beach, Aotearoa / New Zealand. Ata mārie / Good Morning ☀️

Non-paywalled copy for anyone wanting to read (go careful, it's long & well,words fail). We will comment soon. smry.ai/www.wired.co...

Are you enrolled to vote, NZ? Check (or double, triple check) here: vote.nz/enrolling/en...

Sunrise, Monday, 1 June, from Wainui Beach Aotearoa / New Zealand. It’s still aloe blooming season, and the birds and the bees are eating their fill. Ata mārie / Good Morning ☀️

#MEAwarenessMonth 2026 has marked a distinct move toward understanding severe and very severe #ME as the way to understand this illness. Some learning from #LongCovid is beginning to reveal the complete dirth in longitudinal studies has not helped. #pwME this: link.springer.com/article/10.1...

An interview with Professor Chris Ponting, a geneticist at the University of Edinburgh, about the recently announced follow-up to DecodeME called Sequence ME & Long Covid. virology.ws/2026/05/31/t...

"It is a profound change in how you run an energy market. ...if you can make rooftop solar happen, you can make a number of other changes really easily. And storing energy just opens up so much more flexibility in the system" Why not NZ next? www.theguardian.com/environment/...

The extraordinary rise of batteries in Australia www.theguardian.com/environment/...

#nzpol Not nearly good enough @nzlabourparty.bsky.social. Make it very clear that you will not be punching down and you will reverse the National/NZ First/ACT govt's attacks on the disabled, their carers, and the many thousands of other beneficiaries their austerity policies have created. ⬇️🤬🧵

Sign @greens.org.nz petition to tell Govt the people of Aotearoa don't agree with their budget. NZ Govt must - Acknowledge the huge financial risk of climate change - Put people first, not corporate profit - Give effect to Te Tiriti o Waitangi across their budget action.greens.org.nz/oppose_the_2...

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Sunrise, Sunday, 31 May, from Wainui Beach, Aotearoa / New Zealand. Ata mārie / Good Morning ☀️

At what point does information become propaganda? And if you were a listener, would you have wanted to know about the deep connection to the Minister’s office?

slip in some poetry this weekend - loved the poetry uplift nzpoetryshelf.com/2026/05/30/p...

Sunrise, Saturday, 30 May from Okitu Beach, Aotearoa / New Zealand. Ata mārie / Good Morning ☀️

Today @thesicktimes.org: Our roundup of last week's @polybiorf.bsky.social Spring 2026 Symposium! A team effort by me and @mileswgriffis.bsky.social, covering overarching themes and a few specific talks we found notable. thesicktimes.org/2026/05/29/p...

The utter rejection of information, evidence and science by this Government is astoundingly reckless. They didn't even want to see, let alone understand, the risks to the critical work of the Ministry for the Environment that would result from its disestablishment ☠️☠️

An important read. As well as allowing MSD to automate decisions about benefits, yesterday’s hastily passed bill places extra requirements on disabled people and allows MSD significantly greater access to medical info. The implications are frightening. #nzpol

Breaking: The Ministry of Social Development will receive broad powers to let computers make decisions as part of a bill being rushed through Parliament. newsroom.co.nz/2026/05/29/5...

Poetry Shelf toasts nz music month with 23 poems nzpoetryshelf.com/2026/05/29/p...

Our statement on the 2026 Budget is now live on our website. Read it here: tinyurl.com/mr3sw8em

Join a letter writing session to oppose the Disability Support Bills and more An event tonight in Te Whanganui-a-Tara at two/fiftyseven Willis Street 6-7pm, and another in Tauranga next Wednesday at 5.30-7pm Or host your own!! Links for the events in and submission writing guides in the post below

Mōrena e te whanāu I told Rangitoto there was nothing in yesterday's Budget about the environment. She's not happy. (Neither should any of us).

Sunrise (panorama), FRIDAY, 29 May from Wainui Beach, Aotearoa / New Zealand. Ata mārie / Good Morning ☀️

Important Long Covid findings suggesting "that approx 1 in 6 [US] patients with COVID-19 develops postacute sequelae, predominantly chronic conditions currently invisible to surveillance systems, representing an accumulating rather than resolving health care burden" jamanetwork.com/journals/jam...

Mount Sinai Scientists Validate a Link Between Autoimmunity in a Subset of People With #LongCOVID Study results could lead to new therapeutic solutions @virusesimmunity.bsky.social @putrinolab.bsky.social et al. A Mount Sinai-led research team has demonstrated that autoimmunity, where the body’s

Housing, education, and healthcare are the basic 'bread and butter' of a functioning, cohesive society. They are not the icing on top, or a lolly scramble at a birthday party - they are the meat and veg of society. Read more: #nzpol open.substack.com/pub/drbex/p/...

Sign the petition: Oppose the 2026 budget

3/3 Hockey said the absence of visible targeted funding risks leaving patients without timely care. “Long Covid is not niche - it is now a mainstream health problem... We need urgency and a clear national strategy for Long Covid so people are not left to manage this life-altering condition alone.”

2/3 “For too many New Zealanders, Long Covid means losing health, work, financial security and quality of life - but there is still no sign of healthcare funding or support to match the scale of the problem.”

The Budget is out, and there is no allocation for Long Covid, despite the National Health Survey revealing that 4.3% of New Zealanders have Long Covid. Read our media release below. www.scoop.co.nz/stories/GE26...

📺 NZ Green Party #nzpol 📢 We are building a future where we do more, faster, to protect our planet and make sure everyone is treated equally. 👉more news/weather bots