theredtreeandme.substack.com/p/red-leaves... Huge thanks to all the ME/CFS scientists & clinicians from around the world for the messages of hope given to #TheRedTreeandME for people with ME @chestercathedral.bsky.social @cgatist.bsky.social

Are there many #pwME still active on here? I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙 Would love to know who's around! 😊

#DecodeME A brilliant interview with Chris Ponting by @davetuller1.bsky.social Chris gave new details, including: - They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript. 1/ youtu.be/CGUmcB_YIaA?...

Nominate now for the 2025 ME/CFS & Long COVID Media Awards! Help honor journalism that correctly depicts these conditions and fights stigma. Open to all mediums, both Australian and international. More info: vist.ly/3y6q7

It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!? Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s... If you need help, email us at [email protected]. #pwME #SevereME

Great post here from @tinakatsaros.bsky.social on what she learned about research communication and awareness raising through the 3 Minute Thesis and Visualise Your Thesis competitions #3MT #VYT #resdev redalert.blogs.latrobe.edu.au/2025/05/me-a...

If you are on campus in Bundoora @latrobeuni.bsky.social on Wednesday 2nd of April come and help research 😉👍

I hear you. I see you. I care. #LongCovidAwarenessDay #LongCovidAwarenessDay2025

Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9 #5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025 #LongCovid #MECFS #pwME

Happy #IWD2025 to all the wonderful women in STEM, and to our male colleagues that support us 👩‍🔬 Diversity is so important in science and I'm very lucky to be part of a group that celebrates this! @helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social

Mid-candidature talk ✅ Now onto the final stretch of the PhD 😎 #MECFS

⚠️Attention #pwME Scoping survey for Australian Clinical Practice Guidelines for ME/CFS consultations.nhmrc.gov.au/clinical-pra... Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able! #MyalgicEncephalomyelitis #MECFS **Please repost**

Yesterday I managed to go to our living room and I photographed our Christmas tree, which is a tradition of mine. Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3 #photography

3/ some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social

Mum just dropped by with my presents, so I have something to open in the morning. Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness. It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟 #pwME #MECFS #Chronicillness

I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is: Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop) 1/4 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

Hans has fallen. Happy Holidays.

As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”. 1/3 #SpendChristmasWithME #pwME

Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all! #SpendChristmasWithME #MECFS #LongCovid

Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️ I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼 #SpendChristmasWithME

Day #5 of #SpendChristmasWithME 🎄 Today's movie recommendations: - The Nightmare Before Christmas 💀🎄 - Home Alone 🏠 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas Eve together from home 🫶🏼 #MECFS #LongCovid

The Holiday 🏠 Been a few years since I last saw this one. Forgot how much I liked it. Snack of choice is Christmas Tree Cookies from Aldi. 🎄 Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend. #SpendChristmasWithME

I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is: Various Artists - Stax Christmas (2023) (funk, soul) 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

"If you look for it, I've got a sneaky feeling you'll find that love actually is all around". Love actually ❤️ Watching from my bed tonight. #SpendChristmasWithME

Day #4 of #SpendChristmasWithME 🎄 Today's movie recommendations: - Love Actually ❤️ - The Holiday 🏠 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is: Jimmy Smith - Christmas Cookin’ (1964) (jazz) 1/4 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

Yippee ki yay… well we all know how that phrase ends 😂 Die Hard is without a doubt one of my top 3 favourite Christmas movies! And I don’t care what anyone says, Die Hard IS a Christmas movie, and a fantastic one at that🎄💥 #SpendChristmasWithME

Watching How The Grinch Stole Christmas 💚 Rainy night in Melbourne calls for a hot chocolate ☕️ and some of the the gingerbread men that I did remember to put a timer on for when baking in the oven 😂 #SpendChristmasWithME

Note to self: Don’t forget to put a timer 🤦🏼‍♀️ At least it was only a small batch I guess. 🍪 #SpendChristmasWithME

Day #3 of #SpendChristmasWithME 🎄 Today's movie recommendations: - Die Hard 🧨💥 - How The Grinch Stole Christmas 💚 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

I’ll listen to and share one Christmas themed album every day until Christmas. Today I’m also sharing a photo of me, as a bonus, listening to music, this is how it is for me! 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

I remember watching this every Christmas Eve growing up with the family. A true Christmas classic 🚂💺🎄 #SpendChristmasWithME

Honestly, feels #SpendChristmasWithME

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Kelly Finnigan - A Joyful Sound (2020) (soul, R&B, funk) Kelly Finnigan’s, the frontman of Monophonics, Xmas album is very soulful. 1/3 #SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

For anyone who needs to hear this today. "What I most want is for all of those who are in those dark rooms and in pain and struggling to access nutrition and so very alone- to feel our love. We are sending it to you every day." Thread. #PwME #SevereME #MyalgicEncephalomyelitis #LongCovid

Calling fellow MEeps! Emerge Australia, the national patient organisation for #mecfs and #longCOVID in Australia, recently joined Bsky, but the account is looking a bit sad with only 14 followers. Help me out by following the account! TIA! https://bsky.app/profile/emergeaustralia.bsky.social

#SpendChristmasWithME #LongCovidIsReal #CovidIsNotOver #CovidSafeChristmas

Day #2 of #SpendChristmasWithME 🎄 Today's movie recommendations: - The Polar Express 🚂💺🔔 - Elf 🧝🎅🏼 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

Who else is a subtitle watcher? 👀 I refuse to watch things at home without them, although I know this is definitely a controversial opinion. 😬 Enjoying Movie #2 tonight: The Santa Clause 🎅🏼 #SpendChristmasWithME

Watching Jingle All The Way with my nieces tonight ❤️ First time watching this one. Love Arnie so far in this role. #SpendChristmasWithME

One of my favourite Xmas songs 🎶🎄 Doesn't matter how many times I listen to this song, I can never get sick of it. Mum used to play this every day in December growing up, so nostalgia definitely plays a part in that ❤️ What's your go-to Xmas song? #SpendChristmasWithME

Shoutout to @nikosuvisto.bsky.social for a great Christmas themed album recommendation 🎶 Niko shared this album as part of the #SpendChristmasWithME campaign here on BlueSky, but thought I would also share it since it’s been on repeat at work last few days 🎷🎄 open.spotify.com/album/2qecyn...

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Vince Guaraldi Trio - A Charlie Brown Christmas (2022 Mix) (1965) (jazz) 1/3 #SpendChristmasWithME #MusaSky #MusicSky

Let’s goooooo (tomorrow!) #SpendChristmasWithME

#SpendChristmasWithME campaign begins tomorrow! Starting with our first 2 movies: - The Santa Clause 🎅🏼 - Jingle All The Way 🎄🧸 Remember to use #SpendChristmasWithME in any of your posts and interact with other posts! Let's spend Xmas together from home 🫶🏼 #MECFS #LongCovid

I’ll listen to and share one Christmas themed album every day until Christmas. Today’s album is: Sharon Jones & The Dap-Kings - It’s A Holiday Soul Party (2015) (soul, funk) 1/3 #SpendChristmasWithME #MusaSky #MusicSky

I’ve made a lot of new friends this past year. I’m very thankful for an online community. So, I thought about sharing something here, to give something for others. I also saw this social media campaign for Christmas time. It hasn’t started yet, but I’m still participating already. 3/5

And just like that, the MAPP HDR Student Society wraps up 2024 with our final event - a Wellness Retreat! See the highlights below! 📸 A huge thanks to our incredible committee for their hard work in organising events that HDR students loved this year👏 Here’s to 2025! 🫶🏼

4 days until the #SpendChristmasWithME campaign begins! 🎄 Please join in however you can! Whether that's joining in on our movie nights or just sharing a message/photo using #SpendChristmasWithME. Let's bring together #pwME and #pwLC and share how you #SpendChristmasWithME

Bring together #pwME and/or #pwLC this Christmas 🎄 Share a photo of your Xmas with #MECFS or #LongCovid and enjoy suggested movies knowing that you are not alone and others are watching with you. See my pinned post to see how you can get involved. #SpendChristmasWithME @meresearchuk.bsky.social