Join on zoom! Today at 4PM ET. temple.zoom.us/j/99060976097

I'm so excited to see this Perspective with @jasonsynaptic.bsky.social out in Neuron! About 8% of our genome is made up of the remnants of LTR-containing retroelements - here, Jason and I explore the activities of retroTEs in neurological health and disease! authors.elsevier.com/c/1lzTx3BtfH...

Great meeting. Lots of work to do. #BetterTogether #EndALS #NEALS2025 #NEALSMtg

Listener effort measures clinically meaningful change of dysarthria in amyotrophic lateral sclerosis url:https://academic.oup.com/braincomms/article/doi/10.1093/braincomms/fcaf232/8161195 #BetterTogether #EndALS

we're crowd-sourcing a searchable repository of tangible benefits stemming from federally-funded research. Come enjoy the great stories; or send in an idea; or volunteer to join the team. publicusaresearchbenefits.com please share and re-share so we get more great stories in there!

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS

Nonprofit agencies that assist ALS patients and support research sent a letter to the bipartisan ALS Congressional Caucus after a leaked proposed budget memo from the Health and Human Services Department called for defunding the registry and a biorepository with thousands of lab specimens.

We own several games from www.neurdgames.com and love them all. I just ordered 2 copies of this new one and can't wait to play!

Changes to MSc, PhD and postdoc funding programs from 🇨🇦 tri councils. Harmonization across councils, more awards, and new eligibility for international PhD and postdoc applicants!

URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch

We are very concerned about the proposed budget cuts at the NIH and the DOD that could impact ALS research. Our Board of Trustees and staff are taking to Capitol Hill on Wednesday to urge Congress to continue to fund ALS research.

A vote for this legislation is a vote to cut federally funded cancer research. Please take action today to ask Congress to vote no on the CR and instead approve a full-year FY25 Defense Appropriations Act that fully funds the OCRP and CDMRP. www.votervoice.net/Shares/B0Y6T...

WOW. This is absolutely remarkable work!

Please read this if you want to understand more about how indirect rates are set, and why indirect costs are critical to research. Then, sign the petition linked in the article. #ScienceMatters #BetterTogether

Each year ALS advocates ask Congress to support the federal funding of ALS research through appropriations requests. Help these advocates supercharge their requests in YOUR district by becoming a constituent! iamals.org/action/help-...

From Everything ALS: 🔬 Join us for a free webinar with Dr. Laura P.W. Ranum! 🧠 📅 Date: February 19, 2025 ⏰ Time: 7 PM EDT | 4 PM PDT 📍 Free Online Webinar 📢 Register now and be part of the conversation: everythingals.org/events

Dear federal scientists: If you have been affected by the probationary firings and would be willing to speak with Science, please reach out to me by email ([email protected]) or on Signal. We can guarantee annonymity.

"GsMTx-4 can reverse hyperalgesia, restoring withdrawal thresholds to baseline levels." @ostrowkimber.bsky.social,

Using data from the UK Biobank, Yi et al. identify two subtypes of preclinical type 2 diabetes: one with high leptin and BMI, and a greater susceptibility to psychiatric conditions; the other with abnormal glucose metabolism and increased risk of neurodegenerative disorders. tinyurl.com/mudt44kk

A Direct Hit, by @holdenthorp.bsky.social @science.org www.science.org/doi/full/10.... "This is a moment to unite."

NYGC is organizing a number of efforts to address the changes to NIH IDCs and other changes to federal policy. If you are a US citizen, or in the US working in science, please consider signing this petition. The more signatures the stronger our hand in interacting with law makers. chng.it/kK2HMP5pGk

This is critically important. When asked to PROVE the claims that Elon is spewing on Xitter, Trump had nothing. Nothing. Until they present proof, no media outlet should repeat unsubstantiated claim this is about efficiency.

#ScienceMatters #BetterTogether

This is the end of science as we know it if it stands—15% IDCs for all NIH Grants. grants.nih.gov/grants/guide...

Tomorrow (Thursday) night at 7pm ET!

#ScienceMatters #BetterTogether

Spent day with anxious ALS patients, caregivers, and resource providers; scientists who have (had?) pride in U.S. research infrastructure; and grassroots advocates who've achieved impressive results. Money quote: "Patient needs don't change when you strike DEIA language from government websites." 😢

📣 UPDATE: OK, still working with some others to figure out the best way to present it all, but in the meantime here's the first batch of links to the most-recent archived versions of every page at the CDC prior to the Trump/Musk Purge: acasignups.net/25/02/02/whi...

🧪 If I were Canadian PM I would immediately: 1. Create a new $15B science fund 2. Offer any credentialed US scientist funding for lab startup and replacement of NIH grants if they move to Canada 3. Immediate permanent residency 4. Citizenship after 2 years Overnight a science superpower

The ALS Calendar is intended to be a one-stop shop for ALS-related events of all kinds, from all across the internet. Whether you're a person hosting a local event or an organization putting on a webinar, add it to the ALS Calendar so folks can find them in one place! www.iamals.org/als-calendar/

Anyone else keep checking to see if Pubmed is still online?

TODAY (WED Jan 22) at 4 PM PT | 7 PM ET - a free webinar featuring Molly Gale Hammell, Ph.D., Associate Professor at the Institute for Systems Genetics, NYU Langone Medical Center. www.everythingals.org/events #ALSResearch #NeurodegenerativeDiseases #FreeWebinar #Genomics #ALS

Happy Hanukkah! #Banorah

November 2024 ALS Hope Foundation Newsletter. #EndALS #BetterTogether mailchi.mp/alshopefound...

Ha! A review just published cites papers @ostrowkimber.bsky.social and I separately wrote ~20 yrs ago - right next to each other in the bibliography! I wonder if the authors know KL & LW Ostrow are different people. Not ALS, but still #BetterTogether. #IDefinitelyMarriedUP ❤️ tinyurl.com/5xz4s425

New starter pack! ALS/MND Scientists, clinicians, and nonprofits, comment to request add! go.bsky.app/Eobkvxp

If you are looking for a curated feed of the ALS/MND Community, here you go. Pin it to follow posts from this community. bsky.app/profile/did:...

The MND Association, My Name'5 Doddie Foundation and Darby Rimmer Foundation have funded our project with the Mario Negri Institute in Italy to study whether there is a link between #ALS #MND and professional football. Read about it here: www.mndassociation.org/media/latest... @ukmndri.bsky.social

If you have made it this far you probably don't need it, but this is a fantastic step-by-step how-to explainer by @kenkoonwong.bsky.social to share with friends not yet on #MedSky #IDSky www.kenkoonwong.com/blog/bluesky/

On Monday I have a very important job - hanging this incredible artwork created by Stacie Votaw with her eyes. Read more about Stacie here: tinyurl.com/42f9jkyp You can view more of her artwork in the Artistry of ALS Gallery: tinyurl.com/2j7ubh3u

No context. Just felt like posting these agate brain clocks.

Tomorrow is Day 3 of the 7th Annual ALS ONE Research Symposium - Neurotech Day, presented by EverythingALS. It is completely FREE to attend. Starts at 10AM EST. Register here: www.alsoneresearchsymposium.org #EndALS #BetterTogether

More Than Our Stories 2025 www.morethanourstories.org Registration will open in about a month. Be there or be square.

Happening Today, Tomorrow, and Friday! Its free to register and join the symposium. #BetterTogether #EndALS