Never been to the ALS Walk for Life? This is your year. Expect an inspiring community, an unforgettable walk along Chicago's lakefront, and hundreds of people coming together for something bigger than themselves. Register here: p2p.onecause.com/alswalkforlife

Les Turner ALS Foundation joined 34 patient advocacy organizations in urging the federal Office of Management and Budget to withdraw a proposed rule that could weaken the biomedical research infrastructure supporting people living with neuromuscular diseases. Read: lesturnerals.org/neuromuscula...

Travel didn't stop after Craig's ALS diagnosis. Hear Craig & Emily Mandell share their experiences and practical advice for traveling with ALS. Register: us02web.zoom.us/webinar/regi...

Meet Kari Brouwer, OTR/L, an Occupational Therapist at Northwestern Medicine. Join Kari on July 23 for practical tips on planning and traveling with ALS. Register: us02web.zoom.us/webinar/regi...

Learn how the ALS Turbocharged Living Scale offers a new way to measure quality of life and focus on what matters most. Join us Thursday, June 25, at 12pm CT. Register: us02web.zoom.us/webinar/regi...

Meet Peggy Plews-Ogan, MD, physician, educator, and ALS advocate. Learn how the ALS Turbocharged Living Scale was developed and the impact it can have on people living with ALS. Register: us02web.zoom.us/webinar/regi...

Join us Thursday, June 25, at 12pm CT for a live webinar with Peggy Plews-Ogan, MD. Learn how the ALS Turbocharged Living Scale offers a new way to think about quality of life beyond physical function. Register: us02web.zoom.us/webinar/regi...

Support for ALS families across Illinois is growing. Thanks to $300,000 in newly approved state funding for ALS care and research, more people will have access to the care, services, and support they need throughout their ALS journey. Read more: lesturnerals.org/together-we-...

Thank you for being part of the 2026 Lew Blond Memorial Run/Walk. From the 5K and 1-Mile Walk to the Little Lew Dash, it was incredible to see the community come together in support of the Les Turner ALS Foundation and in memory of former Maple School teacher Lew Blond.

Tomorrow’s the day! We’re excited to gather with the ALS community for Lou Gehrig Day with the Chicago Cubs at Wrigley Field. Check if there are still tickets available: e.givesmart.com/events/OQR/

Meet Juan Reyes and Kelly McGinn. Juan is involved with I AM ALS and Kelly is an active member of Her ALS Story. Learn how advocacy, resilience, and community can shape life after diagnosis. Register: us02web.zoom.us/webinar/regi...

Meet Rob Akins and Tina Cascio. Learn how advocacy, outreach, and service helped shape their ALS journeys. Register: us02web.zoom.us/webinar/regi...

Join us Thursday, May 28, at 12 pm CT for a live ALS panel with Juan Reyes and Kelly McGinn. Learn how support and advocacy can create strength after diagnosis. Register: us02web.zoom.us/webinar/regi...

Join us Thursday, May 28, at 12 pm CT for a live ALS panel with Rob Akins and Tina Cascio. Learn how connection, advocacy, and community support can make an impact after an ALS diagnosis. Register: us02web.zoom.us/webinar/regi...

Join us as we gather with the White Sox and Cubs for two special games in support of the ALS community. Chicago White Sox vs. Detroit Tigers – Sunday, May 31 at 1:10 p.m. CT Chicago Cubs vs. Athletics – Tuesday, June 2 at 7:00 p.m. CT Tickets: lesturnerals.org/events/lou-g...

Meet Melissa Diaz-Viera, LCSW, advocate and research contributor in the ALS community. Join her Thursday, April 23, at 12:00 p.m., CT. Learn how lived experience shapes ALS decisions. Register: us02web.zoom.us/webinar/regi...

Meet Danielle Burks, LCPC, founder of Journey to Healing. Join her Thursday, April 23, at 12:00 p.m., CT. Learn about the emotional side of ALS care decisions. Register: us02web.zoom.us/webinar/regi...

Meet Matt Creen, a longtime member of the ALS community. Join him Thursday, April 23, at 12:00 p.m., CT. Hear real perspectives on ALS care decisions. Register: us02web.zoom.us/webinar/regi...

Join us this Thursday, April 23, at 12:00 p.m., CT for a live discussion on informed decision-making in ALS. Learn about the medical, emotional, and practical considerations of tracheostomy and invasive mechanical ventilation. Register: us02web.zoom.us/webinar/regi...

Learn how tissue donation supports ALS research and what the process involves. Join us Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

Meet Dr. Lyle Ostrow, Associate Professor of Neurology at Temple University and founder of the ALS Postmortem Research Core. Join him this Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

Join our Living After Loss Bereavement Group, a supportive space to connect with others who understand, share stories, and honor the memories of loved ones. RSVP: [email protected]

“We have an ongoing effort at the Pranger ALS Clinic to increase enrollment so we can get a clear picture of who is getting ALS and the magnitude of the disease, which we believe is grossly underreported.” - Dr. Steven Goutman, researcher. Learn more at cdc.gov/als. #ALS #ALSClinic

ALS affects more than just health — it affects daily life, family, and the future. Our Support Services Team is here to listen, guide, and connect you to the resources you need — from clinical education to financial assistance and end-of-life planning. Please email [email protected]

Tissue donation is one of the most powerful contributions a person living with ALS can make. Join us Thursday, March 26, at 12:00 p.m., CT to learn more about the process and its impact on research. Register: us02web.zoom.us/webinar/regi...

ALS can impact mobility in different ways over time. Planning ahead can help you stay independent and safe at home and in your community. Our ALS & Mobility Guide provides information on durable medical equipment (DME) and other tools designed to support movement: lesturnerals.org/als-mobility...

A Nat’l ALS Registry study showed that people with ALS were more likely to have engaged in vigorous physical activity from the ages of 15-44 than other adults of the same age. This data helps researchers understand the relationship between physical activity and ALS. cdc.gov/als #ALSRegistry #ALS

Through shared memories, we celebrate the lives that continue to shape us. Submit a Celebration of Life in honor of someone lost to ALS. Celebration of Life form: lesturnerals.org/get-involved...

Diane Rutledge led her community for decades. After her ALS diagnosis, she found new ways to stay connected through assistive communication technology and compassionate care. Her story is one of strength, adaptation, and community. Read more: lesturnerals.org/faces-of-als...

In a world of automated emails, a handwritten note still means something. Our Gratitude Group volunteers personally welcome and thank new donors with handwritten messages — often sharing their own stories and connection to ALS. Join the Gratitude Group: lesturnerals.org/get-involved...

Breathing changes can happen with ALS. The My ALS Decision Tool™: Breathing Support explains non-invasive ventilation (NIV) and helps you understand your options — now or in the future. Learn more and talk with your care team: lesturnerals.org/respiratory/...

Join us on April 11 for the 38th Annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our annual fundraiser advances ALS care, research, and advocacy. Event details: e.givesmart.com/events/JKw/

Join us February 28 from 10:30–11:30 AM CT for Navigating ALS Together — an ongoing support group for people and families living with ALS. Facilitated by Rochelle Walwer, LCSW. RSVP: Email [email protected]

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS

Join us for the 38th Annual Hope Through Caring Gala, the Les Turner ALS Foundation’s signature fundraiser uniting leaders in ALS research, philanthropy, and people living with ALS. For more information: lesturnerals.org/events/hope-...

Smart home modifications can support mobility, comfort, and care. Explore practical guidance in our ALS & Home Modifications Guide: lesturnerals.org/als-home-mod...

Learn what hospice care really is, when it may be appropriate, and how it supports people living with ALS, families and care partners. Join us Thursday, February 12 at 12:00 p.m. CT Register: us02web.zoom.us/webinar/regi...

The ALS Better Care Act has been reintroduced in the U.S. House and Senate. Thank you to Reps. Jan Schakowsky, Brian Fitzpatrick, Jason Crow, and Mike Quigley, and Sens. Chris Coons and Lisa Murkowski for introducing this bipartisan legislation. Learn more: lesturnerals.org/get-involved...

Federal funding plays a critical role in advancing ALS research and care. The budget includes investments across NIH, ACT for ALS, DoD research programs, ARPA-H, and the National ALS Registry. Thank you to our ALS advocates for helping drive this progress. Read: lesturnerals.org/congress-app...

ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html #ALS #ALSRegistry #endALS

Research led by Vladimir Gelfand, PhD, at the Les Turner ALS Center shows that a mutation in Ataxin-2 (ATXN2) disrupts microtubule stability, affecting neuron growth and function and advancing understanding of microtubule dynamics in ALS. Read full story: lesturnerals.org/discovering-...

Meet Katie Lord, RN, BSN, Hospice Nurse and Education Coordinator at ILHPCO. Join her Thursday, February 12 at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

ALS Awareness Night with the Chicago Blackhawks was one to remember. Grateful to Dan Payne, his family, and the ALS community for showing up strong at the United Center — and to Diane Duffy and Response Management Services for making this night possible.

Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners. Register: us02web.zoom.us/webinar/regi...

Access to the right equipment matters. We offer equipment loans—like ramps, wheelchairs, and communication devices—for needs not covered by insurance. Questions? [email protected]

Northwestern Medicine researchers have identified a protein involved in how cells manage misfolded proteins — a process disrupted in ALS and other neurodegenerative diseases. Read more: lesturnerals.org/targeting-ke...

Learn how palliative care can support people living with ALS and their families. Join us Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

Looking for a way to make a difference? Volunteer with us at events like the ALS Walk for Life or community fundraisers. No special skills needed—just a willingness to help. Learn more: lesturnerals.org/get-involved...

Meet Dr. Kara Bischoff, a palliative care expert at UCSF, specializing in ALS care. Join her Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi... #ALS #PalliativeCare #LesTurnerALS

Turn what you love into impact - From birthdays to races to community events, 'Fundraise Your Way' helps support people living with ALS. Learn more: lesturnerals.org/get-involved...