Meet Danielle Burks, LCPC, founder of Journey to Healing. Join her Thursday, April 23, at 12:00 p.m., CT. Learn about the emotional side of ALS care decisions. Register: us02web.zoom.us/webinar/regi...

Meet Matt Creen, a longtime member of the ALS community. Join him Thursday, April 23, at 12:00 p.m., CT. Hear real perspectives on ALS care decisions. Register: us02web.zoom.us/webinar/regi...

Join us this Thursday, April 23, at 12:00 p.m., CT for a live discussion on informed decision-making in ALS. Learn about the medical, emotional, and practical considerations of tracheostomy and invasive mechanical ventilation. Register: us02web.zoom.us/webinar/regi...

Learn how tissue donation supports ALS research and what the process involves. Join us Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

Meet Dr. Lyle Ostrow, Associate Professor of Neurology at Temple University and founder of the ALS Postmortem Research Core. Join him this Thursday, March 26, at 12:00 p.m., CT. Register: us02web.zoom.us/webinar/regi...

Join our Living After Loss Bereavement Group, a supportive space to connect with others who understand, share stories, and honor the memories of loved ones. RSVP: [email protected]

“We have an ongoing effort at the Pranger ALS Clinic to increase enrollment so we can get a clear picture of who is getting ALS and the magnitude of the disease, which we believe is grossly underreported.” - Dr. Steven Goutman, researcher. Learn more at cdc.gov/als. #ALS #ALSClinic

ALS affects more than just health — it affects daily life, family, and the future. Our Support Services Team is here to listen, guide, and connect you to the resources you need — from clinical education to financial assistance and end-of-life planning. Please email [email protected]

Tissue donation is one of the most powerful contributions a person living with ALS can make. Join us Thursday, March 26, at 12:00 p.m., CT to learn more about the process and its impact on research. Register: us02web.zoom.us/webinar/regi...

ALS can impact mobility in different ways over time. Planning ahead can help you stay independent and safe at home and in your community. Our ALS & Mobility Guide provides information on durable medical equipment (DME) and other tools designed to support movement: lesturnerals.org/als-mobility...

A Nat’l ALS Registry study showed that people with ALS were more likely to have engaged in vigorous physical activity from the ages of 15-44 than other adults of the same age. This data helps researchers understand the relationship between physical activity and ALS. cdc.gov/als #ALSRegistry #ALS

Through shared memories, we celebrate the lives that continue to shape us. Submit a Celebration of Life in honor of someone lost to ALS. Celebration of Life form: lesturnerals.org/get-involved...

Diane Rutledge led her community for decades. After her ALS diagnosis, she found new ways to stay connected through assistive communication technology and compassionate care. Her story is one of strength, adaptation, and community. Read more: lesturnerals.org/faces-of-als...

In a world of automated emails, a handwritten note still means something. Our Gratitude Group volunteers personally welcome and thank new donors with handwritten messages — often sharing their own stories and connection to ALS. Join the Gratitude Group: lesturnerals.org/get-involved...

Breathing changes can happen with ALS. The My ALS Decision Tool™: Breathing Support explains non-invasive ventilation (NIV) and helps you understand your options — now or in the future. Learn more and talk with your care team: lesturnerals.org/respiratory/...

Join us on April 11 for the 38th Annual Hope Through Caring Gala at the Radisson Blu Aqua Hotel in Chicago. Our annual fundraiser advances ALS care, research, and advocacy. Event details: e.givesmart.com/events/JKw/

Join us February 28 from 10:30–11:30 AM CT for Navigating ALS Together — an ongoing support group for people and families living with ALS. Facilitated by Rochelle Walwer, LCSW. RSVP: Email [email protected]

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS

Join us for the 38th Annual Hope Through Caring Gala, the Les Turner ALS Foundation’s signature fundraiser uniting leaders in ALS research, philanthropy, and people living with ALS. For more information: lesturnerals.org/events/hope-...

Smart home modifications can support mobility, comfort, and care. Explore practical guidance in our ALS & Home Modifications Guide: lesturnerals.org/als-home-mod...

Learn what hospice care really is, when it may be appropriate, and how it supports people living with ALS, families and care partners. Join us Thursday, February 12 at 12:00 p.m. CT Register: us02web.zoom.us/webinar/regi...

The ALS Better Care Act has been reintroduced in the U.S. House and Senate. Thank you to Reps. Jan Schakowsky, Brian Fitzpatrick, Jason Crow, and Mike Quigley, and Sens. Chris Coons and Lisa Murkowski for introducing this bipartisan legislation. Learn more: lesturnerals.org/get-involved...

Federal funding plays a critical role in advancing ALS research and care. The budget includes investments across NIH, ACT for ALS, DoD research programs, ARPA-H, and the National ALS Registry. Thank you to our ALS advocates for helping drive this progress. Read: lesturnerals.org/congress-app...

ALS researchers and scientists are working to better understand the causes of the disease. When more people living with ALS sign up for the National ALS Registry, the more accurate the picture will be. Let’s do more and end ALS. cdc.gov/als/ALSJoinALSRegistry.html #ALS #ALSRegistry #endALS

Research led by Vladimir Gelfand, PhD, at the Les Turner ALS Center shows that a mutation in Ataxin-2 (ATXN2) disrupts microtubule stability, affecting neuron growth and function and advancing understanding of microtubule dynamics in ALS. Read full story: lesturnerals.org/discovering-...

Meet Katie Lord, RN, BSN, Hospice Nurse and Education Coordinator at ILHPCO. Join her Thursday, February 12 at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

ALS Awareness Night with the Chicago Blackhawks was one to remember. Grateful to Dan Payne, his family, and the ALS community for showing up strong at the United Center — and to Diane Duffy and Response Management Services for making this night possible.

Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners. Register: us02web.zoom.us/webinar/regi...

Access to the right equipment matters. We offer equipment loans—like ramps, wheelchairs, and communication devices—for needs not covered by insurance. Questions? [email protected]

Northwestern Medicine researchers have identified a protein involved in how cells manage misfolded proteins — a process disrupted in ALS and other neurodegenerative diseases. Read more: lesturnerals.org/targeting-ke...

Learn how palliative care can support people living with ALS and their families. Join us Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

Looking for a way to make a difference? Volunteer with us at events like the ALS Walk for Life or community fundraisers. No special skills needed—just a willingness to help. Learn more: lesturnerals.org/get-involved...

Meet Dr. Kara Bischoff, a palliative care expert at UCSF, specializing in ALS care. Join her Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi... #ALS #PalliativeCare #LesTurnerALS

Turn what you love into impact - From birthdays to races to community events, 'Fundraise Your Way' helps support people living with ALS. Learn more: lesturnerals.org/get-involved...

“To all the people living with ALS, I don’t care what happens, never give up, never quit.” Watch more of Brad Dusek’s inspiring ALS story and why he joined the National ALS Registry. youtube.com/watch?v=m8NOodx7GYg #ALS #BradDusek #ALSRegistry

Memories shared by loved ones become lasting tributes. To honor someone special who was lost to ALS, we invite you to submit a Celebration of Life. Celebration of Life form: lesturnerals.org/get-involved...

Eating and drinking can become more difficult with ALS. My ALS Decision Tool™ can help you understand feeding tube options and plan for your care — on your terms. Learn more: lesturnerals.org/nutrition/ab...

Join us Thursday, January 29, at 12:00 p.m. CT for a live webinar on how palliative care can support people living with ALS and their loved ones. Register: us02web.zoom.us/webinar/regi... #ALS #PalliativeCare #LesTurnerALS

ALS Caregivers Support Group: Thursday, January 15 from 3:30 to 4:30 p.m. CT (Virtual) A non-judgmental space for caregivers to connect, share challenges, and gain strength through guided support. RSVP: [email protected]

We are now accepting runners for our Team Race for ALS waitlist. Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago. Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...

ALS can change how we communicate - but technology offers options. Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...

Persons living with ALS today, and those who will live with it tomorrow, seek answers to the unknowns of the disease. Research is the way forward. Learn more at cdc.gov/als #ALS

Memories shared by loved ones help keep legacies alive. Submit a Celebration of Life to honor someone special. Celebration of Life form: lesturnerals.org/get-involved...

Small changes can help make daily life easier. Our ALS & Activities of Daily Living guide offers practical support you can use now—or later. Learn more: lesturnerals.org/als-activiti...

As the year comes to a close, your support helps families affected by ALS access care, guidance, and connection. Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...

New ALS research reveals a breakdown in the cell’s RNA quality control system—offering fresh insight into disease mechanisms and potential treatments. Read the full article: lesturnerals.org/rna-quality-...

Looking for thoughtful, last-minute gift ideas this season? Explore our Holiday Gift Guide for meaningful options. View the full guide on our website: lesturnerals.org/2025-gift-gu...

As the year ends, your support helps ensure families affected by ALS receive care, guidance, and resources when they need them most. Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...

Grief can feel isolating, but you don’t have to carry it alone. This space offers connection, understanding, and shared reflection with others who have experienced loss. RSVP via email to join.

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS