11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact. Contact [email protected] to learn more.

Learn how ALS financial burden research is evolving — and how it compares to oncology. Join us Thursday, December 11 at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.” Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...

We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week. Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.

Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT. Register here: us02web.zoom.us/webinar/regi...

Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments. Read more: www.neurologylive.com/view/explori...

Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases. Register: us02web.zoom.us/webinar/regi...

ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.

Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation. Read more: lesturnerals.org/a-chefs-touc...

Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435

Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research. Read: www.neurologylive.com/view/buildin...

Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS. Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...

Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb... We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.

“I’d do it all over again just to have those moments back.” — Tina Cascio Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors. #NationalFamilyCaregiversMonth

Young people feel the impact of ALS more than we often realize. Our ALS & Children/Youth Guide helps families support children and teens who take on caregiving roles or navigate life with a loved one living with ALS. Read the guide: lesturnerals.org/als-children... #NationalFamilyCaregiversMonth

By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als #ALSRegistry #ALS

“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.” A moment of strength and love in their ALS journey. #NationalFamilyCaregiversMonth

Catch every moment from the Les Turner Symposium on ALS — now live on YouTube. Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event. Watch now: www.youtube.com/watch?v=W7zb...

Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered! Register now: us02web.zoom.us/webinar/regi...

This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez. “Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”

Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016. Register for her webinar on November 20: us02web.zoom.us/webinar/regi...

Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020. Register for her webinar on November 20: us02web.zoom.us/webinar/regi...

For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.” Read more: www.chicagotribune.com/2025/11/07/v...

Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health. Register: us02web.zoom.us/webinar/regi... #ALS #DigestiveHealth #LesTurnerALS

Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile. #Celebrationoflife #LesTurner #HonorAndRemember

The 2025 Les Turner Symposium on ALS brought together Northwestern scientists, clinicians, and people living with ALS to share discoveries, explore research, and celebrate progress in patient care. Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...

Clinical decisions in ALS are complex—but the My ALS Decision Tool™ helps bring clarity. Co-developed with neurologists, genetic counselors, and people living with ALS, this free online resource helps your patients make informed choices: buff.ly/PYGHMy4

Veterans face a higher risk of ALS—and the VA is leading the way in care. Join Dr. Ileana Howard this Thursday, November 13 at 12:00 p.m. CT to learn how the VA is transforming ALS care. Register: us02web.zoom.us/webinar/regi... #ALS #Veterans #LesTurnerALS

This Veterans Day, we honor those who served — and recognize that U.S. military veterans are twice as likely to develop ALS as non-veterans. Hear from veteran Bob Ives, diagnosed with ALS in 2014, who shares how his relationship with the VA has supported his journey: www.youtube.com/watch?v=7lFj...

Dehydration can affect your energy, focus, and overall well-being. Recognizing the signs early can help you stay hydrated and feel your best. Learn more in our ALS & Nutrition Guide here: lesturnerals.org/als-nutritio...

Meet Dr. Ileana Howard, National Associate Director of Neurology for ALS, Veterans Health Administration. Join her this Thursday, November 13 at 12:00 p.m. CT to hear how the VA is improving care for Veterans with ALS. Register: us02web.zoom.us/webinar/regi... #ALS #Veterans #LesTurnerALS

The Dan Nelson Respite Grant Program promotes well-being for both the caregiver and person with ALS and helps prevent caregiver burnout. Participants in the program also receive a visit from one of our Support Services coordinators. For more info, please contact: [email protected]

Join us Thursday, November 13 at 12:00 p.m. CT for a live webinar on how the VA is transforming ALS care for Veterans with Dr. Ileana Howard. Register: us02web.zoom.us/webinar/regi... #ALS #Veterans #LesTurnerALS

Why do nerve cells overfire in #ALS? In a new study supported by the Les Turner ALS Foundation, Dr. Evangelos Kiskinis uncovers how a key disease protein, TDP-43, drives overactive nerve cells — and highlights a promising new drug to slow or prevent progression. lesturnerals.org/a-new-clue-t...

Our ALS & Mobility Guide is here to help you navigate mobility changes and learn about durable medical equipment (DME) that can support your independence at home and in the community. Learn more: lesturnerals.org/als-mobility...

2026 registrations are now open! Run with us on October 11, 2026 in Grant Park. Sign up: buff.ly/zXqgcBk

With a grant from the Les Turner ALS Foundation, a Northwestern Medicine study has revealed a key mechanism underlying the development of ALS and other motor neuron diseases — offering new insights into potential treatment options. Learn more: news.feinberg.northwestern.edu/2025/10/16/u...

Learn about mobility changes in ALS and how to partner with your healthcare team. Topics include transfers, walking aids, wheelchair evaluations, and caregiver training. Join us Thursday, Oct 30 at 12 p.m. CT Register: us02web.zoom.us/webinar/regi... #ALS #FunctionalMobility #LesTurnerALS

Meet Hannah Redd, PT, DPT, NCS, neuromuscular specialist at Shirley Ryan AbilityLab. She’ll discuss functional mobility changes with ALS in our Oct 30 live webinar. Register: us02web.zoom.us/webinar/regi... #ALS #PhysicalTherapy #LesTurnerALS

Whether you’re adding a ramp, remodeling, or moving, planning ahead can make your home safer and more accessible. The right home modifications can help reduce costs and create a space that truly works for your needs. Learn more: lesturnerals.org/als-home-mod...

In October, we sponsored the annual meeting of the ALS/MND Natural History Consortium. The Les Turner ALS Center at Northwestern Medicine is one of 17 sites collecting data to help better understand ALS. For more information, contact [email protected]

Archie was 70 years old when he was diagnosed with ALS in 2023. “There was never a day in 24 years that he didn’t say, ‘I love you.’ He gave a little piece of himself to everyone he loved.” - Anne Wood We’re honored to share his story as part of our Celebration of Life wall 💙

The data that has been captured from the 2021 and 2023 surveys has been valuable in understanding the global landscape of the Fundamental Rights of people living with ALS/MND. This year the Alliance wants to hear from blood relatives. Survey link: survey.alchemer-ca.com/s3/50360855/...

Clinic visits can feel overwhelming, and it can be difficult to remember specific questions for your care team. We encourage you to prepare in advance by making lists of the different ways ALS is impacting you and writing down specific questions. More info: lesturnerals.org/research-pat...

October 15 is right around the corner, which means Medicare Open Enrollment is almost here. This is your chance to review and compare health and drug plans for the year ahead. Click here for more info: www.medicare.gov

Drs. John Coleman and Lisa Wolfe from the Les Turner ALS Center at Northwestern Medicine helped lead the NEALS Respiratory Care and Ventilation Committee Workshop, sharing ideas and advancing standards to improve respiratory care and quality of life for people living with ALS.

Congratulations to every member of Team Race for ALS who took on the Bank of America Chicago Marathon this weekend! We’re so grateful for your dedication, compassion, and determination. Each mile you ran helps raise awareness and support for ALS care and research.

Learn about functional mobility changes with ALS and how to partner with your healthcare team. Join our live, no-cost webinar on Thursday, Oct 30 at 12 p.m. CT. Register: us02web.zoom.us/webinar/regi... #ALS #FunctionalMobility #LesTurnerALS

Dr. Hande Ozdinler, a member of the Les Turner ALS Center at Northwestern Medicine, is leading research on upper motor neurons in ALS—aiming to better understand the disease and guide future treatment approaches. Read more: alsnewstoday.com/news/northwe...

Join us for the 19th Annual All In For ALS Casino Night on Saturday, November 15th, 7–10 p.m. CT at the East Bank Club. Experience a night of live casino games—blackjack, roulette—along with exclusive auction items, delicious appetizers, and a lively photo booth. Book tickets: buff.ly/c9IojY0