Anne Marie Doyle, M.A., CCC-SLP, Director of Community Education at the Les Turner ALS Foundation, joins 'In The Passenger Seat: Hospice Conversations by ILHPCO'. Listen to the episode for insights that help providers deliver expert, compassionate care: podcasts.apple.com/us/podcast/n...

We’re honored to be recognized as one of the Centers of Care for those at risk of genetic ALS and FTD. This recognition reflects our continued commitment to providing expert, compassionate care for individuals and families navigating the challenges of genetic ALS and FTD.

Genetic testing can provide answers for you and your family — from understanding risk to exploring future health care choices. Learn more in our ALS & Genetic Counseling and Testing for Family Members Guide. Read here: lesturnerals.org/als-genetic-... #GeneticTesting #ALSSupport #ALSResearch

Ninfa is running her 8th marathon in Chicago—with Team Race for ALS. “For the last six miles you need to find your why. I think of them and how much they would love to have the opportunity to do that.” Cheer her on Oct 12 @ Grant Park, 7:30 a.m. CT Interested for 2026? [email protected]

“When it played, every single person—120 guests—was in tears.” Monica O’Callaghan gave her daughter a wedding speech in a voice that sounded like her own—thanks to AI voice technology. Read the full story here: buff.ly/SraAYD9

Join us on Monday, November 3, 2025, for the 15th Annual Les Turner Symposium on ALS featuring researchers and clinicians from UC San Diego, Université de Montréal, University College London, and Northwestern University. Register here: lesturnerals.org/research-pat...

Are you living with ALS? Do you want to make a positive difference? By joining the National ALS Registry, you can learn about clinical trials and research studies that you may be able to participate in. 20K joined, 115K+ surveys, 70+ trials. Learn more: cdc.gov/als/join/index.html

Celebrating the life of Art Eggert. Art was 69 years old when he was diagnosed with ALS in 2020. Art was a bigger than life kind of guy! “He was known for his dumb dad jokes and puns, best hugger!” – Ysabel Eggert We’re honored to share his story as part of our Celebration of Life wall 💙

Trevor Storm, a Shelbyville hospice nurse, is running the Chicago Marathon with Team Race for ALS for Gregory Dirks. "This isn’t just for Greg. It’s for every family living with ALS. And I’m proud to be running for them." Come cheer for Trevor on Oct 12, 7:30 am CT, Grant Park!

The Foundation offers ramps, wheelchairs & communication devices through our Equipment Loans Program. Available if insurance won’t cover, approval is pending, or access is out of reach. 📧 [email protected] #ALSsupport #LesTurnerALS

We are truly grateful to our 2025 ALS Walk for Life sponsors, whose generosity made this year’s event at Soldier Field possible. 💙 Your commitment helps us advance ALS research, care, and support for families every step of the way. Thank you for walking beside us!

🗓️ Medicare Open Enrollment is coming! Join the Les Turner ALS Foundation, a member of the Cures Collective powered by I AM ALS, for a free webinar: Navigating Medicare Open Enrollment: Insights for Patients & Caregivers on Oct 1. 📲 Sign up here: medicareadvocacy.org/navigating-o...

Please note: This webinar has been postponed. Keep an eye on our website and social media for the new date. Thank you for your patience!

What an unforgettable day at Soldier Field! ✨ Because of YOU, the 2025 ALS Walk for Life brought together 1,800 participants, 174 teams, and raised $640,000 (still counting) to advance ALS care and research. Your passion, stories, and commitment filled the lakefront with strength and hope.

Navigating ALS Together – Free virtual support group for people and families living with ALS. 📅 Sept 27 | ⏰10:30–11:30 AM CT RSVP: [email protected] #ALSsupport #LesTurnerALS #ALSCommunity #NavigatingALS

“Every day is Christmas because I’m here.” Jim Willard’s ALS journey is shaped by unwavering support — and by his son Alex, a Young ProfessionALS Group member, who joined the YPG team at this year’s Walk for Life. Read more: www.heraldpalladium.com/news/longfor...

Blas Bolivar runs the Bank of America Chicago Marathon to honor Eric, Matt & Irma. “Run for those who cannot run and cannot walk. It’s a beautiful experience that fills your heart.” Cheer Team Race for ALS Oct 12 @ Grant Park! Want to sign up for 2026? Email [email protected]

We're less than 24 hours away from the #ALS Walk for Life! FOX 32's ChicagoLIVE went deep with our CEO, Laura Freveletti, on how Pope Leo XIV's message to the ALS community came about, and how your support is making better ALS care and research possible. www.fox32chicago.com/video/1710060

Rob's Mob will be back at the #ALS Walk for Life tomorrow, lining up alongside more than 170 teams and thousands of walkers outside Soldier Field. Will you be there? patch.com/illinois/arl...

Debi has volunteered at the Walk since 2018 in memory of her friend, who passed away from ALS in 2017. “The Les Turner Foundation makes volunteering so easy, and this event is so well organized. We drive in from the NW suburbs and are always greeted by everyone which makes us feel very welcome.”

At the ALS Walk for Life, Pope Leo will share a special message thanks to a request from Father Jim Halstead, a retired Chicago priest living with ALS. Michelle Shaker of Les Turner ALS Foundation, who works closely with him, says: "It's actually a really joyous day." Watch video: buff.ly/qySYZea

The National ALS Registry strives to learn who is at risk for ALS in the U.S., but the research counts on you to sign up and tell your story at cdc.gov/als Registry data has fueled 70+ clinical trials and studies, moving new therapies closer to reality. #ALSRegistry #ALS #research

Alyssa Poniatowski walks with George’s Generals, in memory of her dad, George, who passed from ALS in 2019. “The amount of people that show up is great… seeing all the folks gather helps generate a real sense of community.” Sign up here: p2p.onecause.com/alswalkforli...

Pope Leo XIV will share a video message of love, hope & compassion at the ALS Walk for Life on Sat, Sept 20 at Soldier Field. Walk with us to honor loved ones and raise funds for ALS care & research. Register here: buff.ly/dfGCyzk

“My favorite part of the Walk is seeing the community and knowing how much support there is… It’s empowering to know we can have that kind of impact.” Last year, Julianne Olivo walked with her mom, Leslie, and their team Run for Her Life. #ALSWalkForLife #FacesOfALS #WhyWeWalk #EndALS

Young Adult Support Group. 📅 Sept 16, 2025 | ⏰ 7–8:30 p.m. CT 💻 Virtual 🎙 Facilitated by Michelle Shaker, LCSW Free group for young adults impacted by ALS in their families. 📧 RSVP: [email protected] #ALSsupport #LesTurnerALS #YoungAdultCaregivers

Genetic testing can help uncover important information about ALS — including care options and research opportunities 🧬 Learn more in our ALS & Genetics Guide: lesturnerals.org/als-and-gene... #ALS #GeneticTesting #Research

Sue Carrel’s husband, Leo, was diagnosed with ALS in 2015. “My motor neurons don’t work, but our family’s do work.” Leo passed away in 2018, but Sue and her team—Leo’s Motor Neurons—continue to walk each year. Register for the walk here: p2p.onecause.com/alswalkforli....

Your ALS story matters. See how the National ALS Registry advances research and impacts the community. Register here: us02web.zoom.us/webinar/regi...

The Les Turner ALS Foundation is committing $500,000 to sustain ALS research at Northwestern amid a federal funding freeze. Hope can’t wait. lesturnerals.org/les-turner-a... #ALSResearch #EndALS

“Rich never let ALS get the best of him. He showed others the true meaning and importance of every minute you live.” This year marks Lisa Crane Adler’s 23rd Walk for Life—in memory of her husband, Rich, and in support of all ALS families 💙 Sign up here: p2p.onecause.com/alswalkforli....

Data collected from the National ALS Registry has been helping find the prevalence of ALS in the US. Identifying trends can highlight risk factors for ALS. Learn more at cdc.gov/als #ALSRegistry #ALS

Meet Janie Gobeli – ALS Research Ambassador for NEALS and advisory member for HEALEY ALS Platform Trial & QurAlis/CISCRP. Join her Sept 8 to hear her personal experience with the National ALS Registry: us02web.zoom.us/webinar/regi...

Lend a hand at the ALS Walk for Life on Sept. 20! 💙 Your time as a volunteer helps us create an unforgettable day for the ALS community. Volunteer registration: lesturnerals.org/get-involved...

Need help getting to ALS clinic appointments? The Stuart Rosen ALS Transportation Grant Program offers reliable rides to and from the Lois Insolia ALS Clinic. Contact: [email protected] | (847) 679-3311 #LesTurnerALS #ALSsupport

Submissions are now open for March of Faces. Honor a loved one by including them on a powerful pictorial display of those who have had or have ALS. 🗓️ Submit by September 1, 2025 🔗 Visit our website to apply: buff.ly/wz6vnYO

Meet Reshma Punjani, MPH – CDC/ATSDR Health Scientist Epidemiologist with 8+ years at the National ALS Registry. She’ll discuss how the Registry advances ALS research on Sept 8: us02web.zoom.us/webinar/regi...

Ninfa Queyquep has walked every year since her husband Eric was diagnosed with ALS in 2009. “Because of what ALS does… I hope that people have the same support we did.” She and her team will join the ALS Walk for Life on Sept 20 💙 #ALSWalkForLife #WhyWeWalk #EndALS

Every ALS story matters. Join our live webinar on Sept 8 to learn how the National ALS Registry advances research. No-cost. Register here: us02web.zoom.us/webinar/regi...

ALS can change the way you communicate - but connection is still possible. Discover tools and tips in our ALS & Communication Guide: lesturnerals.org/als-communic... #ALS #CommunicationSupport

Volunteer Spotlight: Mary McGovern 💙 Mary honors the memory of her friend Tina Natali by volunteering with the Foundation. Her favorite event? The ALS Walk for Life at Soldier Field. Learn more about how you can get involved ➡️ buff.ly/ULXq4Lk

Share your EAP experience! 📝 A consortium of ALS organizations is gathering feedback to secure future ACT for ALS funding for Expanded Access Programs. If you’ve participated in an EAP, complete this brief survey by August 22 to help the ALS community: forms.office.com/pages/respon...

Kali Rasala was diagnosed with ALS in May 2024. “Anything I can do to help support anyone who gets diagnosed… means everything to me.” She’s leading Team Kali in the ALS Walk for Life on Sept 20. 💙 #ALSWalkForLife #FacesOfALS #WhyWeWalk #TeamKali #EndALS

Join Becca Schroeder, an Occupational Therapist, for a no-cost webinar on August 21 at 12pm CT to discover practical strategies and adaptive tools for people living with ALS. 🔗 Register here: us02web.zoom.us/webinar/regi... #ALS #OccupationalTherapy #Independence #LiveWithALS

Researchers are searching for the possibility of air pollution as an environmental risk factor for ALS that could help advance prevention efforts. To learn more about ALS Registry funded research, visit www.cdc.gov/als/ #researchers #ALS #ALSRegistry

Celebration of Life: Mario E. Hernandez Diagnosed with ALS in 2020 at age 53, Mario was a man of strength and faith. He loved the outdoors and never gave up, even while facing ALS. Shared with love by his daughter, Jenny 💙 #CelebrationOfLife #ALSCommunity #InMemory

Submissions for the March of Faces are open. Honor a loved one with ALS by including them on our banner, displayed at the ALS Walk for Life. 🗓️ Submit by Sept 1, 2025 📧 Questions? Email [email protected] 🔗 lesturnerals.org/get-involved... #ALSWalkForLife #MarchOfFaces

Alex Willard is walking the ALS Walk for Life for the first time this year—for his dad, Jim, who was diagnosed with ALS in April 2023. “Our story isn’t a sad one, it's about how life is for us and how we’re going to make the most of it.” #ALSWalkForLife #FacesOfALS #WhyWeWalk #EndALS

Breath stacking can help improve lung health for people living with ALS. Sit tall, breathe in 3–5 times slowly without exhaling. Try it twice a day. Visit our site to read the full ALS & Breathing Guide: lesturnerals.org/als-breathin... #ALS #BreathingTips #Wellness

Trevor Storm, a hospice nurse from Shelbyville, is running the Chicago Marathon on Oct 12 as part of Team Race for ALS—in honor of his patient and friend, Gregory Dirks. “He doesn’t have the choice to stop fighting. So, I don’t either.” 💙 #FacesOfALS #TeamRaceForALS #WhyWeRun #EndALS