ALS Awareness Night with the Chicago Blackhawks was one to remember. Grateful to Dan Payne, his family, and the ALS community for showing up strong at the United Center — and to Diane Duffy and Response Management Services for making this night possible.

Join us Thursday, February 12 at 12:00 p.m. CT for a live webinar on hospice care and how it supports people living with ALS, families and care partners. Register: us02web.zoom.us/webinar/regi...

Access to the right equipment matters. We offer equipment loans—like ramps, wheelchairs, and communication devices—for needs not covered by insurance. Questions? [email protected]

Northwestern Medicine researchers have identified a protein involved in how cells manage misfolded proteins — a process disrupted in ALS and other neurodegenerative diseases. Read more: lesturnerals.org/targeting-ke...

Learn how palliative care can support people living with ALS and their families. Join us Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

Looking for a way to make a difference? Volunteer with us at events like the ALS Walk for Life or community fundraisers. No special skills needed—just a willingness to help. Learn more: lesturnerals.org/get-involved...

Meet Dr. Kara Bischoff, a palliative care expert at UCSF, specializing in ALS care. Join her Thursday, January 29, at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi... #ALS #PalliativeCare #LesTurnerALS

Turn what you love into impact - From birthdays to races to community events, 'Fundraise Your Way' helps support people living with ALS. Learn more: lesturnerals.org/get-involved...

“To all the people living with ALS, I don’t care what happens, never give up, never quit.” Watch more of Brad Dusek’s inspiring ALS story and why he joined the National ALS Registry. youtube.com/watch?v=m8NOodx7GYg #ALS #BradDusek #ALSRegistry

Memories shared by loved ones become lasting tributes. To honor someone special who was lost to ALS, we invite you to submit a Celebration of Life. Celebration of Life form: lesturnerals.org/get-involved...

Eating and drinking can become more difficult with ALS. My ALS Decision Tool™ can help you understand feeding tube options and plan for your care — on your terms. Learn more: lesturnerals.org/nutrition/ab...

Join us Thursday, January 29, at 12:00 p.m. CT for a live webinar on how palliative care can support people living with ALS and their loved ones. Register: us02web.zoom.us/webinar/regi... #ALS #PalliativeCare #LesTurnerALS

ALS Caregivers Support Group: Thursday, January 15 from 3:30 to 4:30 p.m. CT (Virtual) A non-judgmental space for caregivers to connect, share challenges, and gain strength through guided support. RSVP: [email protected]

We are now accepting runners for our Team Race for ALS waitlist. Be part of our team at the 2026 Bank of America Chicago Marathon on October 11 in Grant Park, Chicago. Details on runner benefits and fundraising commitments available here: lesturnerals.org/events/team-...

ALS can change how we communicate - but technology offers options. Learn more in our ALS & Communication Guide: lesturnerals.org/als-communic...

Persons living with ALS today, and those who will live with it tomorrow, seek answers to the unknowns of the disease. Research is the way forward. Learn more at cdc.gov/als #ALS

Memories shared by loved ones help keep legacies alive. Submit a Celebration of Life to honor someone special. Celebration of Life form: lesturnerals.org/get-involved...

Small changes can help make daily life easier. Our ALS & Activities of Daily Living guide offers practical support you can use now—or later. Learn more: lesturnerals.org/als-activiti...

As the year comes to a close, your support helps families affected by ALS access care, guidance, and connection. Please consider a year-end donation by Dec. 31: lesturnerals.org/the-heart-do...

New ALS research reveals a breakdown in the cell’s RNA quality control system—offering fresh insight into disease mechanisms and potential treatments. Read the full article: lesturnerals.org/rna-quality-...

Looking for thoughtful, last-minute gift ideas this season? Explore our Holiday Gift Guide for meaningful options. View the full guide on our website: lesturnerals.org/2025-gift-gu...

As the year ends, your support helps ensure families affected by ALS receive care, guidance, and resources when they need them most. Please consider a year-end gift by Dec. 31: lesturnerals.org/the-heart-do...

Grief can feel isolating, but you don’t have to carry it alone. This space offers connection, understanding, and shared reflection with others who have experienced loss. RSVP via email to join.

When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way for people with ALS to help in the search for answers. For more information visit cdc.gov/als #ALSRegistry #ALSBiorepository #ALS

11 charity spots left for Team Race for ALS at the 2026 Chicago Marathon. Turn your miles into impact. Contact [email protected] to learn more.

Learn how ALS financial burden research is evolving — and how it compares to oncology. Join us Thursday, December 11 at 12:00 p.m. CT. Register: us02web.zoom.us/webinar/regi...

Cecil and Grace’s story reflects the strength of so many families living with ALS. Grace shares a powerful saying in their video: “The heart does the giving—the fingers just let go.” Your support fuels care coordination, support groups, and trusted guidance: lesturnerals.org/the-heart-do...

We were honored to host Dr. Ginny Sargent from MND Australia during her visit to Chicago last week. Together, we discussed opportunities to strengthen global collaboration, exchange insights, and continue centering every person affected by ALS in our work.

Meet Dr. Astrid Grouls, palliative care physician & ALS researcher at Baylor College of Medicine. Join her Thursday, December 11 at 12:00 p.m. CT. Register here: us02web.zoom.us/webinar/regi...

Robert Kalb, MD, director of the Les Turner ALS Center, shares how his lab is studying genetic targets and mutations like SOD1, TDP-43, and C9ORF72 to inform future ALS and FTD treatments. Read more: www.neurologylive.com/view/explori...

Join us Thursday, December 11 at 12:00 p.m. CT for a live webinar on the financial burden of ALS and how research compares to other diseases. Register: us02web.zoom.us/webinar/regi...

ALS carries a heavy financial toll on families and caregivers. Look out for our December ALS Learning Series, where we explore the cost of ALS and where research stands today.

Chef Kate Milashus spent 15 years in Chicago’s kitchens before ALS changed her life. Her creativity remains—guiding Sean through recipes and staying connected through assistive tech supported by the Les Turner ALS Foundation. Read more: lesturnerals.org/a-chefs-touc...

Nat’l ALS Registry data can be used to help scientists understand common symptoms. The most frequently reported symptoms were cramps (56.7%), twitching (56.3%), and speech problems (33.0%). This data is made public to advance ALS research: tandfonline.com/doi/full/10.1080/21678421.2019.1612435

Dr. Ryan Donaghy from our Lois Insolia ALS Clinic at Northwestern Medicine explains how biomarkers, genetics, and modern trial networks are reshaping ALS research. Read: www.neurologylive.com/view/buildin...

Every day, families like Cecil and Grace show us what true strength looks like. Their short video reminds us why your support matters for people facing ALS. Please watch their story—and consider making a gift: lesturnerals.org/the-heart-do...

Missed the Les Turner Symposium on ALS? The full session videos are now on YouTube: www.youtube.com/watch?v=W7zb... We are grateful to Mitsubishi Tanabe Pharma America for supporting this year’s program.

“I’d do it all over again just to have those moments back.” — Tina Cascio Tina cared for her mom through ALS and now gives back as part of our Support Services Committee and Board of Directors. #NationalFamilyCaregiversMonth

Young people feel the impact of ALS more than we often realize. Our ALS & Children/Youth Guide helps families support children and teens who take on caregiving roles or navigate life with a loved one living with ALS. Read the guide: lesturnerals.org/als-children... #NationalFamilyCaregiversMonth

By joining the National ALS Registry and taking the risk factor surveys, individuals living with ALS can help provide a better picture of who gets ALS and the risk factors associated with this disease. Join today! cdc.gov/als #ALSRegistry #ALS

“It is ok to cross the rainbow,” Michael Margelewski-Hall told their mother, Pam. “She had more than earned her wings.” A moment of strength and love in their ALS journey. #NationalFamilyCaregiversMonth

Catch every moment from the Les Turner Symposium on ALS — now live on YouTube. Thank you, to Mitsubishi Tanabe Pharma America, Biogen and Numotion for supporting this event. Watch now: www.youtube.com/watch?v=W7zb...

Our no-cost webinar on Thursday, November 20 at 12 pm CT will provide you with expert tips and strategies to navigate ALS and digestive health challenges. Whether it's fiber, hydration, or daily wellness routines, we’ve got you covered! Register now: us02web.zoom.us/webinar/regi...

This National Family Caregivers Month, we honor the strength and heart of ALS caregivers like Jenny Hernandez. “Caregiving is a lot to balance, and every day can bring it's challenges... Being a caregiver for my dad will forever be the greatest accomplishment for me.”

Meet Dominique Kosk, Advanced Dietitian at Northwestern Memorial Hospital and the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been supporting people living with ALS since 2016. Register for her webinar on November 20: us02web.zoom.us/webinar/regi...

Meet Brittany M. Hitson, an Advanced Dietitian at Northwestern Memorial Hospital and Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’s been supporting people living with ALS since 2020. Register for her webinar on November 20: us02web.zoom.us/webinar/regi...

For the Rooney and Creen families, ALS is personal — affecting both sides of their family. Still, they “choose to rally around hope…and live life with joy and love.” Read more: www.chicagotribune.com/2025/11/07/v...

Join our no-cost webinar on Thursday, November 20 at 12:00 pm CT about managing constipation in ALS. Learn about fiber, hydration, and strategies to improve bowel health. Register: us02web.zoom.us/webinar/regi... #ALS #DigestiveHealth #LesTurnerALS

Honoring Sharon Miller, who loved the ocean deeply. Her daughter brought her to the beach one last time — toes in the sand, joy in her smile. #Celebrationoflife #LesTurner #HonorAndRemember

The 2025 Les Turner Symposium on ALS brought together Northwestern scientists, clinicians, and people living with ALS to share discoveries, explore research, and celebrate progress in patient care. Read the full story here: news.feinberg.northwestern.edu/2025/11/07/l...