A 😎 Long Covid and MECFS Billboards (DM for free merch!)
@aaronca11.bsky.social
📤 978
📥 289
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Billboard campaign/fundraiser here
https://www.notrecovereduk.org
We were trending on Twitter/X earlier! Thanks everyone for supporting the
#WhereIsIt
campaign! Some pics of the van below!
#LongCovid
11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
11 months ago
TWITTER INSTRUCTIONS 7PM TONIGHT
#LongCovid
#Covid
#MECFS
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#LongCovid
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11 months ago
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LONDON VOLUNTEERS NEEDED
#LongCovid
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11 months ago
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An incredible group of people I met today! Everyone was so nice and even though the public weren’t the most receptive to the leaflets (to be fair I think any leaflet campaign is tough) none of the volunteers complained! Hope to meet everyone again! ❤️❤️
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11 months ago
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We handed out leaflets for
@longcovidkids.bsky.social
and a clean air petition as well as testimonials of those with
#LongCovid
too!
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11 months ago
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Some pics from the Edinburgh
#LongCovid
leaflet handout today!!!
11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Long Covid SOS
11 months ago
Thanks to our amazing @LongCovidSOS volunteer
@sarahbarleymc.bsky.social
as well as peerless
#LongCovid
advocates
@aaronca11.bsky.social
& Margaret O’Hara for sharing their stories and calling for change in this excellent article for
#LongCovidAwarenessDay
👏 🩵🩶🖤
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#LongCovid
anyone in North West of England willing to be interviewed on camera for ITV News?
11 months ago
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#LongCovid
PLEASE SHARE @DeniseColliver (Twitter) will be holding up a banner and placards this Saturday for
#LongCovidAwarenessDay
and anyone who can go along and show support and solidarity would be appreciated! Details next post -
11 months ago
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Final graphic of the four leaflet drops for
#LongCovid
awareness! Volunteers welcomed! EDINBURGG WARWICKSHIRE CHISWICK LONDON CENTRAL LONDON
11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
11 months ago
And another leaflet group!! Anyone in Kenilworth?!
#LongCovid
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VOLUNTEERS NEEDED IN CHISWICK AND KENILWORTH UK!!
11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
11 months ago
Thank you @BFWoodburn for making this for us! If anyone wants to share this graphic across social media (if someone could post on Reddit it would be amazing) or if they want to print it out and leave in a doctors office, hospital waiting area, library etc then feel free!
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
11 months ago
LONDON VOLUNTEERS NEEDED Due to the demand for home delivered leaflets and the number of responses to our Edinburgh campaign we have decided to run another leaflet campaign in London!
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Raoul Schendel
11 months ago
A new phase II RCT for
#LongCOVID
/
#PostCOVID
in the US by the company BioVie with their drug Bezisterim.
clinicaltrials.gov/study/NCT068...
Bezisterim is currently also being studied in Alzheimer’s and Parkinson’s. This is what it says on BioVie’s website about their LC trial.
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Long Covid SOS
11 months ago
Excellent article encompassing individual stories, input from Dr Heightman @uclh with insights from their
#LongCovid
clinic & Stimulate-ICP research, @LaylaMoran speaking up for
#pwLC
& health workers, the lack of treatment & support, &
#LongCovidKids
www.theguardian.com/society/2025...
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‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten
Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic neve...
https://www.theguardian.com/society/2025/mar/02/were-losing-decades-of-our-life-to-this-illness-long-covid-patients-on-the-fear-of-being-forgotten
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Paul Garner and his
#LongCovid
story being quoted for the 50th time in mainstream media. The same Paul Garner who attended a panel in October where the subject was researchers being ‘silenced’ by the media.
www.theguardian.com/society/2025...
11 months ago
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#LongCovid
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11 months ago
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The Lightning Process is back! ‘This study suggests that the lightning process is a promising and safe intervention for symptoms of long COVID’
journals.lww.com/jfmpc/fullte...
11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
says the people behind these beauties
www.longcovidsos.org/merch
11 months ago
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Keep the photos/stories coming.
#LongCovid
#MECFS
March 15th main leaflet distribution in London and Edinburgh. You can also order leaflets for free if you want to do your own handout in your local town/city. Let us know! More to come from
@lcmebillboards.bsky.social
regarding a Digivan too
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11 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
11 months ago
The Ship Builders at Port Glasgow will be lighting up on March 15th for Long Covid Awareness Day too. Thank you @vickuk2000vicky on Twitter for this!
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
12 months ago
Hey guys, Could you please let me know if you would be happy to have your photo printed out on a basic A4 piece of paper with a short summary of your life with
#LongCovid
or
#MECFS
and a plea to the public to help? I can staple them to leaflets and hand them out next month.
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
12 months ago
Hey guys Is there anyone who would like to come along to a
#LongCovid
leaflet handout on March 15th at Waverly Station in Edinburgh? We can provide hundreds of leaflets and are trying to get merch to represent the LC charities while we’re there too.
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Twitter Space with Dr Rae Duncan discussing all things
#LongCovid
NOW
x.com/aaronca11/st...
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A 😎 Long Covid + MECFS Billboards on X: "https://t.co/FYZSVelV6S" / X
https://t.co/FYZSVelV6S
https://x.com/aaronca11/status/1894520474408735194?s=46
12 months ago
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Lets get Mike to 100K 👀
#MECFS
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12 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Long Covid Support
12 months ago
📣 We’re coming together on
#LongCovidAwareness
Day to reflect on progress and shape what’s next. We’d love you to join us - in person or online! When: 15th March 2025, 2pm GMT Where: Lyric Theatre, Hammersmith, W6 0QL Sign up now! Link below ⬇️
#LongCovid
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
ThereForME
12 months ago
New
#ThereForME
blog out today highlighting some of the community campaigning work going on for
#ME
and
#LongCovid
- from
#FundThePlan
to Long Covid Awareness Day. Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
COVID-19 Longhauler Advocacy Project
12 months ago
Calling all International
#LongCOVID
orgs & groups! Contribute to an international calendar for
#LongCOVIDAwareness2025
Day | Week | Month! -Add Events:
bit.ly/LCAD2025AE
-Sign on:
bit.ly/LCAD2025SO
#UnitedForLongCovid
#PreventandCureLongCOVID
#COVID
#PublicHealth
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#MECFS
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12 months ago
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#LongCovid
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12 months ago
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Very severe
#MECFS
patient in Poland desperately needs help Please share or reach out if you can help.
x.com/interestingd...
12 months ago
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Please share if you can guys :)
#LongCovid
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12 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Long Covid SOS
12 months ago
Calling
#pwLC
in Cheshire & Merseyside - please share your feedback about the closure of the NHS Cheshire & Merseyside
#LongCovid
clinic via their survey here:
www.cheshireandmerseyside.nhs.uk//your-health...
@longcovidsupport.bsky.social
@longcovidphysio.bsky.social
@longcovidkids.bsky.social
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#LongCovid
#MECFS
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12 months ago
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#MECFS
please share and get involved if you can :)
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12 months ago
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#LongCovid
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12 months ago
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HAPPENING NOW
#LongCovid
#MECFS
x.com/lcmebillboar...
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12 months ago
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Tonight!
#LongCovid
#MECFS
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12 months ago
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Reminder that along with having children with
#MECFS
thrown in swimming pools, obstructing biomedical research for decades (leaving millions chronically and debilitatingly ill) Simon Wessely also fabricated claims that the community sent him death threats.
retractionwatch.com/2016/08/17/u...
12 months ago
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Twitter Space 7pm tomorrow for
#LongCovidAwarenessDay
!
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12 months ago
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LCMEBillboards are back! Please spread the word and come along to this Space if you can. If you’re unable to join in for any reason feel free to comment or DM suggestions and we can raise them for you! Hoping to do another big campaign like last year!
#LongCovid
#MECFS
x.com/lcmebillboar...
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x.com
https://x.com/lcmebillboards/status/1891833954526802092?s=46
12 months ago
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A 😎 Long Covid and MECFS Billboards (DM for free merch!)
Long Covid Kids
12 months ago
Our Long Covid Awareness Month newsletter will drop very soon Sign up to get yours & find out how you can get involved. Scroll down to find the sign up form on our website.
www.longcovidkids.org
🙏 share & join our community
#LongCovidKids
#LongCovid
#Newsletter
#Charity
#LongCovidAwareness
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Now that i’m progressing with agoraphobia I’d like to do a
#LongCovid
#MECFS
leaflet handout session somewhere local on a weekly basis. Anyone wanna join? Could do Glasgow/Edinburgh city centre? I have tons of leaflets and would be cool to meet others in the community too!
12 months ago
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From our Facebook page! Keep the orders coming.
#LongCovid
and
#MECFS
leaflets are still free!
about 1 year ago
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www.peterboroughtoday.co.uk/news/people/...
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My life is on hold and I don't know if I will ever get it back. Long Covid has stolen my identity".
They criticise a lack of funding from Government and a lack of research
https://www.peterboroughtoday.co.uk/news/people/my-life-is-on-hold-and-i-dont-know-if-i-will-ever-get-it-back-long-covid-has-stolen-my-identity-billboard-placed-in-peterborough-highlighting-plight-of-long-covid-4829551
over 1 year ago
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#LongCovid
#MECFS
follow to get involved and get more billboards up! GofundMe -
www.gofundme.com/f/billboards...
Website -
www.notrecovereduk.org
over 1 year ago
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