Politicians claim to want to get kids back to school and adults back to work but fail to grasp the health impacts of the pandemic. Chronic illness is devastating families and costing the UK billions. Germany invests half a billion but the UK closes all the long covid services and ignores the crisis

Can you spare one minute to support children with Long Covid today? Use our template to write to your MP. longcovidkids.eaction.org.uk/awarenessday #LongCovidAwareness #ChildrensRights @lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

A massive thank you to @tessamunt.bsky.social for tabling this debate on #ME - for listening to patients & advocates and representing the community so well. Also to @joplatt.bsky.social and every other MP who showed up and talked so compassionately about their constituents. youtu.be/wZFEUnjWgOA?...

Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?

Voices of children with Long Covid.. "I can't climb the stairs" "I've been sleeping in my kitchen" "I haven't seen anyone my own age in person for 5 years" "after school, I watch teenagers my own age pass by my window, talking and walking. I envy them" youtu.be/Jwk8TS5S0TA?...

A govt response after almost 15,000 signed our petition/letter. Albeit a predictable one. Well done to all those that signed & spread the message. Hopefully today's Long Covid & M.E. Joint APPG meeting will pick this up & fight for services & treatments @joplatt.bsky.social @binitakane.bsky.social

As part of Long Covid Awareness Month, and to mark the fifth anniversary of the first UK lockdown, we have sent an open letter and petition to @wesstreeting.bsky.social & @ashleydaltonmp.bsky.social #LCandME #FundOurFuture #FundThePlan www.longcovidkids.org/post/open-le...

5 years this weekend since lockdown. My son is amongst the 100,000 kids that is still locked down by Long Covid. Bedbound in a darkened room by M.E. Millions of all ages affected. The new government must not brush them under the carpet like the previous one did. Invest in medical treatments & care

📺 1/2 Thanks to @drdavidgk.bsky.social & BBC Midlands Today for covering our #LongCovid clinics report & our Trustee @margaretohara.bsky.social for speaking: “These people could work but they need medical help, they don’t need a life coach” Report link⬇️ #ClosingClinics @longcovidkids.bsky.social

"Thank you for making us kids seen" you.38degrees.org.uk/p/LCME

This is incredible - let's keep it going? Keep sharing with your networks, we can do this! you.38degrees.org.uk/petitions/in... @ashleydaltonmp.bsky.social Wes Streeting please hear us! #LCandME #FundOurFuture #FundThePlan

Dear Department of Education, in response to your blog on school attendance, which reports Since COVID-19, absence rates have surged: 2018/19: 4.7% 2021/22: 7.6% 2022/23: 7.4% I've made a slide to help The absence of #LongCovid in discussions is LOUD. Both #LongCovid & infection

Kindly sign and share with your networks to help us. Thank you. you.38degrees.org.uk/petitions/in... #LCandME #FundOurFuture #FundThePlan

The BBC covered this as LOCAL news again 🙄 When will the press & government join the dots and acknowledge the cause of the rise in physical disability? Thousands now signing the petition calling for funding for biomedical treatment research and care for Long Covid & M.E. you.38degrees.org.uk/p/LCME

You won't get us working if you don't get us well (we desperately want both). The government needs to fund treatment research and stop closing clinics. Sign and share the petition: you.38degrees.org.uk/petitions/in...

“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...

@georgemonbiot.bsky.social Please help further amplify our call for M.E. and Long Covid treatment research and care. The legacy of post-pandemic PHYSICAL disability is missing from the conversation on welfare cuts and disability support. Millions being brushed under carpet bsky.app/profile/long...

Please sign and share to help our future generation, so many need help and support. #longcovidkids ⬇️

5 years of Covid has left millions chronically PHYSICALLY ill, disabled and in perpetual "lockdown". The government needs to acknowledge and address this crisis with research into treatment and improved care. Closing clinics and cutting benefits is shortsighted and cruel you.38degrees.org.uk/p/LCME

2 years is a long time in the life of a child. While the study reassures us that most participants in this study recovered within this period, the 30% of children and young people still affected highlights that #LongCovid remains a significant childhood illness. www.independent.co.uk/news/health/...

Journalist @emmabatha.bsky.social is writing an article about the financial impact of long covid on individuals and families. As part of her research, Emma would like to interview a parent who has had to give up work/cut back on work to care for a child with long covid. @longcovidkids.bsky.social