I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK

Will this impact any #Parkinsons research?

Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.

Join us online next Wednesday for Empowerment Through Movement! 💪 This webinar will be focused on practical, evidence-based strategies to integrate movement into your daily life. Register for free: Parkinson.org/events/2025/Jan15WW

This warms my heart, and I'm sure everyone in the Parkinson's community. An inspiration. And bonus, a Canadian :-) yes! @mjfoxfoundation.bsky.social

This is so well deserved. No one has used his or her celebrity better than Michael J. Fox has. Thank you, Michael, from all of us with #Parkinsons. We love you. ❤️❤️❤️ bsky.app/profile/moll...

Interesting #TEDtalk by a MDS about the interaction of mind and body. #Parkinsons #MovementDisorders youtu.be/XtSNBqC1z18

5th person to be cured of HIV “Today, researchers announced the Dusseldorf patient still has no detectable virus in his body, even after stopping his HIV medication four years ago.”

I've been spending time in the #Parkinsons community on #Reddit. It's a great place to ask questions and give answers. Enjoying the more active engagement. (Plus joining other communities, too, like my city and state, and TV shows I like, lol.)

Why not use cycling wheelchairs for Parkinson's and beyond? Check out this video by Okada and colleagues in the Movement Disorders Clinical Practice. No person with Parkinson's should ever be 'left behind.' Love the added exercise component. movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...

Disabled people: In case of emergency YOU SHOULD HAVE MORE THAN 1 BAG PREPARED 👝 Bedside bag - items you need if you are trapped in or near your bed. Meds, supplies, snacks, water. 🎒Carry on bag- items you need to keep on your person. Wallet, meds, med supplies.

It is such an honor to have two of my best friends in the world as literal giants in the Parkinson’s field. Jumping and with a cowboy hat I still can’t measure up to their brilliance. Here is to a new roadmap for Parkinson.

Ellie @pdmama.bsky.social just saw the video you posted to YouTube about the Beech Band. Is this for real? Do the effects persist? Pretty amazing. youtu.be/D1ck6k3mTJM?...

Is Carl Beech on here? I don’t think he is yet. I just saw this amazing video he posted to FB of the Beech Band which he is developing. It helps with dyskinesia & speech & more. #Parkinsons #ParkinsonsDisease www.facebook.com/share/r/15JX...

Why is there a crisis approaching for Parkinson's disease? Well, have a look at the formula. The number of cases is exploding and the costs are skyrocketing. Pair that with a decreasing number of available specialists. Key note this morning for the combined Parkinson Foundation/PSG meeting,

It's Older Driver Safety Awareness Week! 🚘 The ability to drive with Parkinson's depends on a one’s specific symptoms & the presence of other age-related changes. We're here to help you evaluate your driving ability: Parkinson.org/living-with-parkinsons/management/activities-daily-living/driving

Discover Your Bluesky Digital Persona – Let our AI analyze your posts, roast your takes, and reveal what your posting history says about you (spoiler: probably too much time online 🤓). Blueskyroast.com ~~~~~ I don't think one Wordle post a day is that heavy, but I'll accept the rest of my roast 😆

Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education stimulatingbrains.org/63-mark-mcau...

Mark McAuley is a successful CEO but also has Parkinson's Disease and DBS. To learn more about it, he started a research project in Susan Boehnke's course at Queens University. A fantastic journey about patient-led research and fantastic science education…! stimulatingbrains.org/63-mark-mcau...

This is a really special episode about a group of fantastic people – patient, students, educators – that carried out a really interesting research project about DBS – using fNIRS and gait measurements! Haven't heard of anything of the kind before – truly inspiring! Tune in below 👇👇

This month's issue of @naturehumbehav.bsky.social covers such an important - and under-discussed and researched - topic. For more, see the collection here: www.nature.com/collections/...

Interested in migrating over and following people who treat and study movement disorders but not sure where to start? Link (not exhaustive): http://go.bsky.app/F4ZDiMh

Love these reflections on #writing from an embodied place @lilydunn.bsky.social and what it can mean to write about one's #health or experience of #care londonlitlab.substack.com/p/writing-he... Thought-provoking on how our #stories can be non-linear, and defy strict orthodoxies on #narrative

@markahirsch.bsky.social This is interesting! We often talk about the positive benefits of exercise and movement, including dance, on symptoms of #Parkinsonsdisease. But I’ve never seen the impact on feelings such as shame, anxiety, confidence, etc. highlighted before.

Tango Argentino and experience of shame in #Parkinson’s "In general, participants described reduced body fatigue, anxiety, shame and frustration and increase in joy, pride, curiosity as well as reinforcement of partnership" pubmed.ncbi.nlm.nih.gov/31987239/

Do you know the forgotten drugs that block dopamine receptors and worsen Parkinson's? Amisulpride (Barhemsys) Metoclopramide (Reglan, Gimoti) Droperidol (Inapsine) Chlorpromazine (Thorazine) Prochlorperazine (Compazine, Compro). pubs.acs.org/doi/10.1021/...

Where you live could be important for breathing particulate matter and later coming down with Parkinson's? Mississippi-Ohio River Valley? State-of-the-art geographic analytic techniques showed association between PM2.5 and PD that varied in strength by region. n.neurology.org/content/earl...

Can deep brain stimulation (DBS) applied during sleep modify memory consolidation in Parkinson's? YES. It has long been pondered that low frequency stimulation could be a 'key' to improving cognition and thinking. Setting the device to be on at 4 Hz for 25 minutes in NREM? Wow!

It’s the International Day to End Violence against Women and Girls! 1 in 3 girls and women around the world experience physical and/or sexual violence by: A husband A boyfriend An intimate partner A lover A parent A relative A colleague A boss A stranger bit.ly/3gy8pfq #NoExcuse

Can DBS improve memory in PD? ✅18 Patients randomized (1:1 ratio) to either 4 Hz or 130 Hz DBS during early NREM sleep ✅4 Hz DBS improved overnight memory retention ✅Stronger memory improvement correlated with ⬆️ cortical low frequency...

New to #BlueSky and interested in following people who treat and study movement disorders? #NeuroSky #MedSky #AcademicSky Link (not exhaustive): go.bsky.app/F4ZDiMh

Dr Laurie Mischley is the only one I know who is actively researching prevention and communicating about it to the #Parkinsons #PDcommunity. Who else is doing this? There must be others.

Stress and inflammation may help trigger Parkinson’s disease: study

I just caught up to his four-ep Parkinson’s arc on my #ERbinge. My dude has done it all!

This week's AI Healthcare Roundup: • Parkinson’s Disease Hidden Clues Found in a Simple Walk • Why Gen Z Doctors Are Breaking the Rules of Medicine • AI Regulation Faces Uncertainty in the Trump Administration #AI #AINews #AIHealthcare www.aiinlabcoat.com/p/parkinson-...

I’ve been gaining a lot of followers here on Bluesky lately, especially from the Parkinson’s community (👋🏽), and I thought I’d share this blog post with everyone #fwiw … wp.me/p5KNFc-qC. 🔭✌🏻👍🙂

Del Amitri star Justin Currie has spoken about his 'scary' Parkinson's diagnosis 🗣️'When you have Parkinson’s it’s like someone else taking control ... you have to let that guy do some of the writing' Read the full interview ⬇️

In 2018, actor and author Alan Alda spoke publicly about his diagnosis of Parkinson’s disease. In today’s episode, we revisit a conversation with him about how being an advocate for science changes his perspective on his condition. Listen here 🎧: https://buff.ly/3Mut28J

open.substack.com/pub/rorycell... congrats to Parkinson’s UK on launching its Tech Guide to Parky gadgets -here’s my review

Was hoping to get a thread going here, but no bites yet. Trying again. Anybody have ideas for gifts for people with #Parkinsonsdisease? #Parkinsons #PDCommunity

We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.

This graphic is shocking. Almost double the number of #Parkinsons cases in 9 years? Our world is awash in environmental toxins.

Today is world #MoveDisorder day! In my PhD, we found impairments in numerical cognition for Parkinson's patients without cognitive impairment (multi-digit arithmetic) and with cognitive impairment ((non-) symbolic magnitude comparison), while transcoding and number line estimation were spared.

Nov 29 is World Movement Disorder Day and IMDS is finally embracing patient engagement with the theme of stigma. This is what change looks like🗣️. Share your story using #movedisorder #nothingaboutuswithoutus youtu.be/dBLGNVEaRZc?...