Rory Cellan-Jones
@rorycj.bsky.social
📤 61299
📥 365
📝 1691
Technology, Parkinson’s,
#sophiefromromania
open.substack.com/pub/rorycell...
Your daily reminder to get behind the
@parkinsons.org.uk
nurse appeal
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Raising funds for Parkinson's Nurses
Right at the top of the demands in the Parky Charter, the manifesto for better Parkinson’s care put together by the Movers and Shakers podcast, was a call for “Speedy Specialists”.
https://open.substack.com/pub/rorycellanjones/p/raising-funds-for-parkinsons-nurses?r=jos0j&utm_medium=ios
about 2 hours ago
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Good morning from
#Sophiefromromania
who was very patient when I took my usual little breather on the church wall halfway through our walk
about 4 hours ago
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Got to stress I wrote this watching Tom Cruise before kickoff. But it proved quite prophetic
add a skeleton here at some point
about 14 hours ago
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So far this is the worst World Cup Final ever
about 16 hours ago
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It’s a big day, start of a week of fundraising for
@parkinsons.org.uk
Listen to BBC R4 at 0754 to learn more
1 day ago
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Had no interest in the third place game. Thought I'd just watch the first 10 minutes... and here we are. Absolutely amazing.
1 day ago
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My lovely Piano teacher Theo has been barked at furiously by
#Sophiefromromania
every time he’s come over the last 3.5 years. But gradually he has won her trust with the odd treat and today it was very gratifying to see her sit and allow him to scratch her around the ears and even give him the paw
2 days ago
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Gary Sobers and George Best, the sporting superstars of my childhood. My mum, not a great sports fan, adored them both
add a skeleton here at some point
2 days ago
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www.bbc.co.uk/news/article...
Maybe now the UK right will realise that Trump is not our ally
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White House defends Argentina team over Falklands banner
The comments could further fuel the row over the incident, which has seen Downing Street back calls for Fifa to investigate.
https://www.bbc.co.uk/news/articles/cx2rmjk0740o
2 days ago
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#Sophiefromromania
has been having a very chillaxed day
3 days ago
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A regime built on a monstrous lie
add a skeleton here at some point
4 days ago
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That moment right at the end when the ball bounced in the Argentine penalty area, why didn’t one of our brave boys just punch it into the net?
5 days ago
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#Sophiefromromania
taking her neighbourhood watch duties very seriously this morning
5 days ago
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#SophiefromRomania
has had a very relaxing and uneventful day - and from Cambridge, the prof has complained that there’s been no picture
6 days ago
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A big day for
#Sophiefromromania
as she got her first paddling lesson from her pal Juno
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7 days ago
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What a moving interview on R4 BH with Peter Hennessey - says he’s retiring because his Parkinson’s means he can longer think clearly, but he sounded far clearer and made more sense than most people you hear on the radio
8 days ago
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While I didn’t get to bed until 1am,
#sophiefromromania
and the prof had an early night so before 7 we were heading for the park. A decent walk, a brief flurry of barking at the speeding collie, then home to a
#bigbreakfast
8 days ago
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open.substack.com/pub/rorycell...
how soon after a
#parkinsons
diagnosis should you start to take levodopa? We debate this contentious issue on the latest episode of
#MoversandShakers
the hit podcast about living with Parkinson’s
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Movers & Shakers:When Should I Start on Drugs?
Everyone who receives a diagnosis of Parkinson’s is likely to face one difficult question - how soon should I start on levodopa and other drugs?
https://open.substack.com/pub/rorycellanjones/p/movers-and-shakerswhen-should-i-start?r=jos0j&utm_medium=ios
9 days ago
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reposted by
Rory Cellan-Jones
Diane Coyle
9 days ago
A close encounter for
#sophiefromromania
this morning
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reposted by
Rory Cellan-Jones
Diane Coyle
10 days ago
There was a (missed) chance to do this in 2009 with Project Kangaroo - blocked by the then-Competition Commission. Thinking has moved on a lot so maybe this will happen now:
www.ft.com/content/1318...
BBC and Channel 4 in talks to create British streaming champion
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BBC and Channel 4 in talks to create British streaming champion
Broadcaster’s new director-general Matt Brittin says UK needs platform to compete with Netflix
https://www.ft.com/content/1318da1e-0061-4fe0-9839-e9ce7086c525?shareType=nongift
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Another brutally hot night, even at 6:30 it's already 24C outside and hotter indoors. Still, a good early walk with
#Sophiefromromania
as long as we kept a safe distance from the dog ahead
10 days ago
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www.ft.com/content/1344...
This is genius - finally the FT gets Elon Musk “utilising radiative cooling, quantum disassembly, cold fusion, square circles, tartan paint, and the metaverse.”
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Alphaville LLC initiates coverage of SpaceX with Buy recommendation
Good heavens
https://www.ft.com/content/1344d22b-ee64-488d-bd02-170fe0c9de2b?syn-25a6b1a6=1
11 days ago
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22C at 07:00 - a tropical night. So
#Sophiefromromania
and I had a nice gentle walk, met a friend who gave her a treat then home to breakfast on the terrace
11 days ago
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reposted by
Rory Cellan-Jones
David Rothkopf
12 days ago
I wish just one NATO leader (or all of them) would say, "This is unacceptable. The US president has lost his mind. America come get your boy. He's broken and needs to be under a doctor's care back home." I wish someone would tell the damn truth about what's happening.
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No
#Sophiefromromania
it’s too hot to play with that cat this morning
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12 days ago
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open.substack.com/pub/rorycell...
coming this morning - the obscure clinical drug trial for a sleep disorder that could unlock the Parkinson’s puzzle. Subscribe here to get it in your inbox
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Rory’s Always On Newsletter | Substack
A tech notebook with a focus on health - and occasional glimpses of a dog called #sophiefromromania. Click to read Rory’s Always On Newsletter, by Rory Cellan-Jones, a Substack publication with tens o...
https://open.substack.com/pub/rorycellanjones
12 days ago
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#SophiefromRomania
has spent a lot of the day in the garden just hanging out and making sure nobody steals the apricots
13 days ago
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Got Parkinson’s?Live in West London? Join our Ealing group’s monthly get-together in a cocktail bar! For location details email addresses in the leaflet - or just DM me!
13 days ago
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www.bbc.co.uk/sport/footba...
Poor old USA team was widely popular before Trump’s intervention-now their defeat is being celebrated. Everything Trump touches turns to 💩
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USA 1-4 Belgium: Romelu Lukaku scores as co-hosts exit World Cup
Mauricio Pochettino's United States exit the World Cup as they are well-beaten by Belgium, who set up a quarter-final tie with Spain.
https://www.bbc.co.uk/sport/football/live/c24y8ded80vt
13 days ago
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An early walk and a midmorning outing with her friend Juno for
#sophiefromromania
who is certainly looking a lot livelier than me today
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14 days ago
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What an excellent initiative by FIFA to replace VAR with TAR
14 days ago
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Oh what a night!!!
14 days ago
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For
#Sophiefromromania
it’s now the highlight of her week when our friends come round
15 days ago
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#Sophiefromromania
enjoys our Sunday jaunt to the park and even though her behaviour wasn’t perfect we thought she deserved a
#bigbreakfast
15 days ago
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Your regular reminder that cryptocurrency does in fact have a use case and that use case is crime
15 days ago
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reposted by
Rory Cellan-Jones
Diane Coyle
16 days ago
First batch of apricot jam - it’s a huge crop this year
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This week’s episode of Movers and Shakers was inspired by an email from a listener. We’ve called it ‘My parent’s got Parkinson’s - What Should I Know?’ Do listen - I think you’ll enjoy it
open.substack.com/pub/rorycell...
16 days ago
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0615 and the grandkids have got us up for breakfast. A nervous
#SophiefromRomania
is keeping a safe distance
16 days ago
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reposted by
Rory Cellan-Jones
Diane Coyle
17 days ago
Friday evening, footie on indoors, visiting grandkids in bed and *possibly* asleep -
#sophiefromromania
and I are chilling in the garden
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Hurrah! Looks like apricot harvest in our garden this weekend
18 days ago
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reposted by
Rory Cellan-Jones
Hetan Shah
18 days ago
Good analysis from
@richardaljones.bsky.social
on
@andyburnham.bsky.social
’s economic and innovation policy agenda including this lovely reference to
@dianecoyle1859.bsky.social
softmachines.org?p=3324
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Last night
#Sophiefromromania
and I sat on the sofa watching football (l France look good, we agreed) when I happened to mention that the Prof was coming home late from a short trip to Germany. Cue 20 minutes of pure hysteria
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19 days ago
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There needs to be a public inquiry into how Michael Olisé, born White City, was allowed to end up playing for France
20 days ago
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#Sophiefromromania
and I had a late night watching football but she had a chirpy morning walk with lots of sniffing, pursuit of a squirrel who cheated by climbing a tree, accepting a treat from a fan, and a brief moment of terror when she spotted a toddler in a pushchair
20 days ago
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Were you still up to see Germany lose on penalties?!
20 days ago
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The prof left for Berlin at 0515 and
#Sophiefromromania
and I were out before 7 for a walk where she actually listened to me when I called for calm when we saw other dogs
21 days ago
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A cooler morning at last and
#Sophiefromromania
is quite chilled - apart from one unfortunate lunging and barking incident. So we all get a
#bigbreakfast
22 days ago
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The queue at 5pm for paid entry to our local for a game which doesn’t kick off until 10pm. If England go any distance in the World Cup I predict a massive consumer boom!
23 days ago
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Honoured to be a presenter at the fabulous Maggie Philbin’s
#teentech
awards - always a highlight of the year
24 days ago
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0610. 24C outside, 27C indoors. No wonder nobody in this house had much sleep last night.
24 days ago
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