Rory Cellan-Jones
@rorycj.bsky.social
📤 60543
📥 358
📝 1525
Technology, Parkinson’s,
#sophiefromromania
My bike was stolen from Ealing Broadway bike racks right under a CCTV camera - understand that the police can’t look at hours of footage for every theft. But how can I get access to the footage?
about 14 hours ago
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reposted by
Rory Cellan-Jones
Hotblack
about 15 hours ago
Also available on other platforms if you’re not a Spotify fan. Here’s an Overcast link Listen and speak up (or sing!) for the people with Parkinson’s in your life
add a skeleton here at some point
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My bike got stolen yesterday and I stepped outside this morning with
#sophiefromromania
to find the foxes had emptied our food bin all over the pavement but we’re trying to keep cheerful
about 14 hours ago
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In all the kerfuffle around having my bike stolen, I didn’t get round to putting up a picture of
#sophiefromromania
but here she is this morning on a decent walk with Goncalo and Juno
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1 day ago
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Infuriating end to a great afternoon recording two episodes of
#moversandshakers
- got back to the bike racks opposite Ealing Broadway station to find my bike had been stolen. Thief obviously not put off by CCTV
1 day ago
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reposted by
Rory Cellan-Jones
Marie Le Conte
1 day ago
I know this is me still mourning a long dead world but it does feel remarkable that, not that long ago, British papers on the right would have run editorials and columns arguing that Hungary showed that only a solid, reliable centre-right party could defeat dangerous populists, but now? [crickets]
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open.substack.com/pub/rorycell...
A special edition of the Movers and Shakers podcast recorded at a great World Parkinson’s Day event in Sutton and featuring the launch of our voice campaign. Do listen, I think you’ll like it. (Click on the Spotify link at the top of the Substack post)
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Movers and Shakers: Speak Out!
A special edition for World Parkinson's Day
https://open.substack.com/pub/rorycellanjones/p/movers-and-shakers-speak-out?r=jos0j&utm_medium=ios
1 day ago
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#SophiefromRomania
and the prof having a moment in the kitchen
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2 days ago
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Gorgeous morning for our Sunday park walk with
#sophiefromromania
then home for a
#bigbreakfast
3 days ago
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Celebrated World Parkinson’s Day at a fabulous event organised by the Sutton PUK group - the Movers and Shakers recorded a podcast and did a live show promoting our voice campaign
3 days ago
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#SophiefromRomania
at 6:15 this morning having successfully woken us up
5 days ago
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The latest from the exciting innovative world of crypto.,,,
add a skeleton here at some point
6 days ago
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The prof and I have various aches and pains making the morning walk more challenging but
#sophiefromromania
was very patient with us
6 days ago
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A perky
#sophiefromromania
on this lovely morning, but I haven’t told her yet that I’m taking her to the vet
7 days ago
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www.theguardian.com/news/2026/ma...
This is such an important essay (HT
@jjn1.bsky.social
) about the dangers of blaming AI rather than humans for war crimes
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AI got the blame for the Iran school bombing. The truth is far more worrying
LLMs-gone-rogue dominated coverage, but had nothing to do with the targeting. Instead, it was choices made by human beings, over many years, that gave us this atrocity
https://www.theguardian.com/news/2026/mar/26/ai-got-the-blame-for-the-iran-school-bombing-the-truth-is-far-more-worrying?CMP=Share_iOSApp_Other
7 days ago
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Ealing Town Hall, April 7th, 1990 Oh frabjous day!!
7 days ago
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reposted by
Rory Cellan-Jones
Sam Freedman
7 days ago
It's deeply annoying that all of the people who promoted and backed Trump will blithely carry on making prouncements and grifting away without any consequences.
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open.substack.com/pub/rorycell...
Why is it taking so long to find a cure for Parkinson’s? I’ve found three things we need to improve to give us a chance.
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Parkinson's - what's holding up a cure?
Three problems needing a solution
https://open.substack.com/pub/rorycellanjones/p/parkinsons-whats-holding-up-a-cure?r=jos0j&utm_medium=ios
8 days ago
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Any interest I have in the moon mission fades the moment I hear Trump‘s voice celebrating it. It’s the ultimate irony that the craft is named Integrity.
8 days ago
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Steven Beschloss wrote: “This is an actual post. This is not funny. This is beyond desperate. This is a deeply unwell man who doesn’t belong anywhere near the levers of power. Every member of his cabinet and Congress is complicit in not demanding his removal now.”
open.substack.com/pub/heatherc...
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April 5, 2026
At 8:03 this morning, Easter Sunday, President Donald J.
https://open.substack.com/pub/heathercoxrichardson/p/april-5-2026?r=jos0j&utm_medium=ios
9 days ago
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Our park walk with
#sophiefromromania
was like a nature documentary - first a fox trolling a green keeper’s dog from the other side of a stream then we ran into Shuggy who’s terrified of Sophie - but Shuggy’s kinda owner handed over treats
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9 days ago
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Imagine you’re a Hollywood producer or a TV executive in 2015 and a screenwriter pitches you a future where a President issues this message on Easter Sunday. The writer would never work again
9 days ago
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Back from lovely relaxing family break in
#whitstable
-
#sophiefromromania
got on fine with the gorgeous grandkids but remains terrified of crowds and big open spaces like beaches
9 days ago
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#SophiefromRomania
is still pretty nervous outside the holiday home but got quite cuddly with grandkid 1 last night
11 days ago
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Who says nobody reads any more?
11 days ago
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A more civilised 0615 start with the grandkids and
#sophiefromromania
giving us an undisturbed night. Munchkins munching toast while the prof prepares to take the dog out
12 days ago
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0644 Whitstable.
#SophiefromRomania
woke us at 1 and 5, the grandkids at 6 - “the seagulls woke us”. But having a nice holiday…
13 days ago
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We’re off to the Kent coast for a few days with
#sophiefromromania
plus the grandkids and their parents - should be fun shouldn’t it Sophie?
14 days ago
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After a walk with Juno
#sophiefromromania
was keen to show off Zoomies to her pal in our back garden
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15 days ago
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open.substack.com/pub/rorycell...
It’s becoming ever clearer that the NHS and pharma companies have failed to give clear warnings about the risk posed by dopamine agonists - drugs which can cause impulsive behaviour
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Impulsive drugs - warning needed
NHS and pharma companies must do better in telling people about side effects
https://open.substack.com/pub/rorycellanjones/p/impulsive-drugs-warning-needed?r=jos0j&utm_medium=ios
16 days ago
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#SophiefromRomania
was delighted to accept a treat from a friend on this morning’s walk
16 days ago
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youtu.be/uTOld91Ax9c
This
@parkinsons.org.uk
ad hasn’t pleased everyone but I thought it packed a tremendous emotional punch
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Parkinson’s UK “Socks” Film | Don’t Panic
YouTube video by THE GOODS
https://youtu.be/uTOld91Ax9c
16 days ago
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Going on Times Radio to talk about Matt Brittin, new BBC DG
16 days ago
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Are we the only ones who put our clocks forward? A lovely peaceful trip to the park with
#sophiefromromania
and then a
#bigbreakfast
17 days ago
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Good morning
#sophiefromromania
- this morning we woke you rather than vice versa and that’s good
18 days ago
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#SophiefromRomania
is shedding her winter coat and there are white clumps of fur all over the house
18 days ago
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reposted by
Rory Cellan-Jones
Trudy Gonzales
19 days ago
Got this from Twitter It's the truth I could not have said it better
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A quick trip to Cambridge for the prof’s
@bennettschool.cam.ac.uk
conference where I realised yet again what high esteem my brilliant wife is held in
#proudoftheprof
19 days ago
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A perky
#sophiefromromania
this morning - me not so much
20 days ago
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It’s the way she tells them - you’ve got to hand it to Karoline Leavitt, she has a fabulous sense of humour
20 days ago
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Another eventful bin day walk with
#sophiefromromania
- a street sweeping machine pursued us onto the pavement, there were dogs across the road to be barked at, and my bad back played up again
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21 days ago
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On patrol this morning
#sophiefromromania
had several leads to follow up
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22 days ago
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On my Substack soon -forget the politics, is the Palantir deal any good for the NHS? Or is it, as one insider says, just “a very overpriced data warehouse”? Subscribe here to get it in your inbox
open.substack.com/pub/rorycell...
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Rory’s Always On Newsletter | Substack
A tech notebook with a focus on health - and occasional glimpses of a dog called #sophiefromromania. Click to read Rory’s Always On Newsletter, by Rory Cellan-Jones, a Substack publication with tens o...
https://open.substack.com/pub/rorycellanjones
22 days ago
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reposted by
Rory Cellan-Jones
El
23 days ago
Thank you Ann, I usually speak everyday to Sophie on the phone. I will pass your message on, she will be delighted. Her Dad is going to Scotland to talk about the book with her Uncle
#sociabledog
next month at a book fair. I am sure it will be really interesting and I hope lots of people go.
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#SophiefromRomania
soon after waking us at 4.45 - even though the prof’s Monday alarm goes off at 5:15 we were not amused
23 days ago
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An eventful trip to the park with
#sophiefromromania
- Shuggy zoomed past, scared of Sophie, Shuggy’s owner was graciously allowed to hand over a treat, Sophie did some backseat parking and we all had a
#bigbreakfast
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23 days ago
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Robert Mueller, ex-FBI chief who led Trump-Russia investigation, dies at 81
www.bbc.co.uk/news/article...
What a truly disgusting individual Trump is (see quote). He brings shame on all those who elected him
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Robert Mueller, ex-FBI chief who led Trump-Russia investigation, dies at 81
A former FBI director, Mueller led the high-profile inquiry into alleged Russian interference in the 2016 US election
https://www.bbc.co.uk/news/articles/c8dlj6gv0q6o
24 days ago
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Big moment turned into a comedy moment last night as I began a three year
#parkinsons
drug trial - my Parky fingers couldn’t open the tamper proof container and the Prof had to come to my aid
25 days ago
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A shorter walk this morning with
#sophiefromromania
as my back is playing up but she’s enjoying hanging out in the garden
26 days ago
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#Sophiefromromania
was in snuggle mode this morning
27 days ago
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