The more active you are, the easier it is to manage your Parkinson's symptoms. But some symptoms - like rigidity, anxiety and risk of falls - can make exercise daunting. 👉 Read our top tips on how to exercise safely with Parkinson's: buff.ly/5BHF8QB #Parkinsons #Parkinson

🚨 NEW: we're proud to launch our new Parkinson's Passport! Planning a holiday? ✈️ The Parkinson's Passport gives you a handy record of your important medical info, making travel with #Parkinsons less stressful. 👉 Download in French, English, Italian or German: buff.ly/8IbHN0Z #Parkinson

A new important lens on demoralization in Parkinson’s disease. Do you have a plan if you encounter demoralization? Spoiler alert: Demoralization affects about 1 in 5 w/ Parkinson's. This is a must-read article. Demoralization is tragically under-recognized. #parkinson @parkinsondotorg.bsky.social

Is it time to tame the brain’s fire? Neuroinflammation is emerging across Parkinson's, Alzheimer's, neurodegeneration and beyond. An important new Science article from Shi and colleagues pulls back the curtain on neuroinflammation. Could be a silent driver of destruction in Parkinson’s and beyond?

We have the guidelines, so why aren’t we referring to PT and other therapies for Parkinson’s? Let me say this clearly: There are strong evidence-based guidance to refer people w/ Parkinson’s to physical therapy early and regularly. Yet, it’s not happening. Why? #parkinson #physicaltherapy

Constipation in Parkinson's is a huge unmet challenge. We must unclog the pipeline. Great article in HealthCentral this week shining light on this topic by Cheyenne Buckingham. She interviewed a few of us in the field and summarized approaches to treatment. #parkinson #constipation

Disabled people should be involved from the outset in developing digital tools and services that are fundamental to work, life and play to maximise the transformative benefits they can bring says our new report on #DisabilityTechnology, released today.

The most complex disease in medicine is Parkinson's? YES. - Multiple organ systems. - Not a single disease. - A single biomarker or diagnostic test exists: no - Disease course is highly variable. - Complicated regimens. - Lot's of different symptoms, dopamine awakening, DBS and beyond.

#WorldParkinsonDay! Collaboration is key. Let's take a moment to reaffirm that we will double our efforts for a cure to #Parkinsons in this moment!

Check out the amazing Bas Bloem discussing: Citius, Fortius, Altius—Understanding Which Components Drive Exercise Benefits in Parkinson Disease https://ja.ma/3H4JzMG via @JAMANeuro part of @JAMANetwork @basbloem @DrISubramanian

Today is #InternationalWomensDay ❤️ We're proud to mark the day with @salsbergmathews.bsky.social, who has released new illustrations of the Five Stages of Parkinson's (which typically depict older white men) featuring a diverse range of women. Find out more: buff.ly/VPYHHFw #IWD2025 #Parkinsons

Parkinson's, in my opinion, is the most complex disease in clinical medicine. Though it is nice to see these evidence-based reviews, we should keep our eye on the 'ball.' The ball is dynamic, and in Parkinson's will fluctuate over time, and especially with disease progression. Listen to the person.

📋 If you've taken part in clinical trials, you'll probably have completed questionnaires (or PROMS - Patient-Reported Outcome Measures) about how you perceive your trial experience. Our Strategic Director Amelia has co-authored a paper about how to improve this process: https://buff.ly/41hdMTG

In case you need this today 💙

The idea that manipulating peripheral nerve afferents as a treatment for tremor is not crazy, however it needed to be tested. For this device, a highly controlled study revealed to us that vibrotactile stimulation failed to improve tremor.

We’re thrilled to hear from Dr. Andreas Horn, this year’s Brain Stimulation Early Career Award winner, at #BrainStimConf today! Congratulations on this well-deserved recognition @andreashorn.org #BrainStim2025 @braistimjournal.bsky.social @braincircuits.bsky.social

I've been living in a hot spot for 20 years

Should you get a continuous glucose monitoring device to prevent dementia in diabetes, Parkinson's, Alzheimer's and beyond? There is rising evidence. Historia vero testis temporum – history is the the witness of the ages – and it is thus time for researchers to put this to to the test.

I've been living in a hot spot for 20 years

Parkinson's disease progresses however levodopa does not stop working. There are long-term benefits. Levodopa response over time was documented in this study. Response to levodopa did not weaken after a 4-year follow-up in 63 fluctuators. Axial symptoms worsen. prd-journal.com/article/S135...

Do you know the forgotten drugs that block dopamine receptors and worsen Parkinson's? Amisulpride (Barhemsys) Metoclopramide (Reglan, Gimoti) Droperidol (Inapsine) Chlorpromazine (Thorazine) Prochlorperazine (Compazine, Compro). pubs.acs.org/doi/10.1021/...

Tango Argentino and experience of shame in #Parkinson’s "In general, participants described reduced body fatigue, anxiety, shame and frustration and increase in joy, pride, curiosity as well as reinforcement of partnership" pubmed.ncbi.nlm.nih.gov/31987239/

Do you know how many people hide their diagnosis of Parkinson's disease? HALF (50%). Can you believe it? Read this month's blog: everything you need to know about stigma and Parkinson's by Indu Subramanian with assist from Brad McDaniels and Soania Mathur. www.parkinsonsecrets.com/blog/what-yo...

Do you know where the future of deep brain stimulation will take us? Andres Lozano in Singapore today and in nature reviews neurology. Great read!

Where you live could be important for breathing particulate matter and later coming down with Parkinson's? Mississippi-Ohio River Valley? State-of-the-art geographic analytic techniques showed association between PM2.5 and PD that varied in strength by region. n.neurology.org/content/earl...

I love the 'pivot' of regenerative medicine in Parkinson's disease toward the unmet need of treatment of cognition. I also love the picture of the two approaches 1- ‘ectopic placement' of cells. 2- the alternative implant into the substantia innominata and nucleus basalis of Meynert region.

Did you know that half (50%) of persons with Parkinson's do not discuss the impact of Parkinson's on their driving ability w/ their healthcare teams? WOW! Why are we not continuously engaging folks from the time of diagnosis?

Our first post on Bluesky - hello! We're looking for the #Parkinson's community here. 👋 We've been the leading voice for #Parkinsons in Europe for over 30 years. Our team is small, but mighty! Let's grow a strong voice on Bluesky to share our experiences of living with Parkinson's. ❤️🌷

BREAKING NEW: Food and Drug Administration to be headed by the Late, Great, Hannibal Lecter.

We're not going to Mars anytime soon. Efforts in primary prevention, research, and environnental clean-up of our blue planet to eliminate #trichloroethylene (#TCE) and other toxicants linked to #Parkinson disease. Act now and together. pubmed.ncbi.nlm.nih.gov/38988230/

We are already at ~12 million cases worldwide w/ Parkinson's which is approaching where we thought we would be in 2040. Can we double down and spend some money and time on preventing cases and lifting the living? Only a few pennies on the dollar go to prevention research.

Why is Parkinson's disease a pandemic? Easy, just look to the 'Greek' derivation of the words and open the dictionary My take: The growth, according to the latest numbers, is much faster than we estimated in 2018. Will we act or will we passively be swallowed? pmc.ncbi.nlm.nih.gov/articles/PMC...

Forscherin über #Glyphosat: „Die EU hat #Parkinson nicht auf dem Schirm – und das sorgt mich“ www.riffreporter.de/de/umwelt/wi... @riffreporter.bsky.social

Michael Okun: There will be a 150% increase in Parkinson after COVID like we saw in 1918 flu says expert researcher Richard Smeyne #mdscongress today. If he is right, we better prepare for this growth and redouble efforts in prevention, research and care! #parkinson