Since I can’t seem to coax Gavin over here I will direct you to his blog. The closest thing to Parky Yoda I have met #parkinsons yourmove.fitness/blog/f/up-si...

youtube.com/watch?v=_dD5... Still my favorite video on vibrotactile😆 #parkinsons

Ellen Bookman , a person with Parkinson’s,writes a beautiful letter to her daughter www.keepfngoing.com/post/a-lette...

#NIH cuts by #DOGE

A man genetically destined to develop early Alzheimer's… doesn’t. Why? A Nature study explores possible explanations: tau pathology limited to the occipital region, significant heat exposure, and a proteomic profile rich in heat shock proteins. Anything else? (1/4) 🔗 www.nature.com/articles/s41...

I can handle my own spirituality thx. Go do Health stuff plz🤨 #hhs #parkinsons

Critical:

Happy Valentine’s Day! Check out the first episode of the newest season of the Young Onst Parkinson’s Network’s Podcast “Living Well Starts Here” where Melissa Livingston and me talk about sex, intimacy & relationships with #parkinsonsdisease #yopd yopn.podbean.com/e/navigating...

Join us online next Wednesday for a webinar on Impulse Control Disorders: Understanding & Managing the Challenges. This webinar will explore what causes Impulse Control Disorders, how to manage them, & practical tools to support those impacted. Register for free: Parkinson.org/events/2025/Feb19WW

Check out our latest podcast episode, featuring Melissa Grassia Chisholm, MS, CCC-SLP. In this episode, she explains how speech & swallowing problems can develop in people with Parkinson's & discusses diagnostic procedures, therapies, and programs that can help improve speech & swallowing. (1/2)

For someone who generally has a lot to say I am at a loss for words. Here’s some flowers #parkinsonsdisease

Rebecca Wallings, PhD, is leveraging her Parkinson’s Foundation Launch Award to investigate how aging impairs a type of immune cell outside the brain — & how this impairment impacts the development of PD. 🔬 Learn more about Dr. Wallings & her research: Parkinson.org/blog/research/meet-dr-wallings

🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.

“The Good Addiction “ open.substack.com/pub/shakingi...

Here is a guide to what a + α-synuclein seed amplification assay (αSyn-SAA) means for Parkinson’s. ✅ Confirms a clinical diagnosis ❌ Cannot diagnose asymptomatic people ❌ Doesn’t define PD biologically ❌ Can’t stage, predict progression, or monitor treatment (1/2) www.prd-journal.com/article/S135...

My thoughts on Anger and Parkinson’s open.substack.com/pub/shakingi...

Thank you @drisubramanian.bsky.social for raising awareness on the stigma we face as people with Parkinson’s. As always you are a shining example of what collaboration is🌷 @alliesiggy.bsky.social as always 👏👏

All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.

#yopd folks in america - the shutdown of NIH grant reviewing is going to have a major impact on Parkinson's disease research to mention just one disease among, well, all of them. yikes. #nih #parkinsons

Let me know when Amazon acquires DHHS

If history has taught us anything it is that the sick & disabled will be targeted first

I had my Mom enrolled in a monthly flower subscription service. I cancelled it as she has passed. They sent me a free bouquet and condolences. The Bouqs is my go to flower service. Direct from growers. Highly recommend

When I was diagnosed with Young Onset Parkinson’s I was so confident I was going to try ALL the things. Find some overlooked discovery or shortcut. Now I try & focus on learning about the disease and being grateful for what I have. It’s like a weight has been lifted off my shoulders

Part of my frustration with social media rn is what I call “The Rise of the Device” the constant barage of gizmos and gadgets, jaw dropping videos of fellow Parkies dramatically freed from an array of symptoms. Is this helping? Maybe it’s just me. Good listen: search.app/pCxDK46zfDHG...

Deleted my X account. I actually live on the Southern border. The level of misinformation if crazy

Crexont Day 1 youtube.com/watch?v=-CGu... please subscribe #parkinsons

I have very good news for Parkinson's patients in El Salvador. Talks will soon begin for the creation of a foundation for Parkinson's patients, of which I will be a part. @shakinginmyboots.bsky.social

Pain in Parkinson’s. Get tired of reading studies that’s conclusion is we need more studies or personal care management. There aren’t even enough doctors to do that, especially outside major cities. I appreciate the wirk but I don’t have the luxury of time onlinelibrary.wiley.com/doi/10.1002/...

Happy New year! Took a social media break, turned 50, kids back to school Wednesday. Here’s my big Parkinson’s flex #yopd

I hope you can join us for the kickoff event to start pre-planning for a different kind of Parkinson’s Awareness Month event. 2025 we ORGANIZE! www.eventbrite.com/e/pd-womens-... #parkinsons

PSG was all I hoped it would be and more. The best part was connecting with fellow Parkinson’s advocates that I can learn from🌷😍💝#psg2024

The final #WPC Research Spotlight of 2024 is Tue 12/3 at 11AM ET w our newly minted PhD Dr Janna Jernigan to talk about Inflammation and Parkinson's! Registration is FREE at web.cvent.com/survey/c0524... You can read her blog on inflammation beforehand at www.worldpdcongress.org/home/2024/11...

on World Movement Disorders Day I claim my space to live free of stigma. The fact that I can still do the things I want is something I’m grateful for #MoveDisorder

The study of Parkinson’s disease dream content has always been of great interest to me. Interested to hear of remebrances by the birdsong community. Personal accounts please and not things like auguries or restored movement in dreams that are in our literature

What doesn’t kill me makes me stronger…and funnier 😂 #parkinsons #yopd #positivevibes

Nov 29 is World Movement Disorder Day and IMDS is finally embracing patient engagement with the theme of stigma. This is what change looks like🗣️. Share your story using #movedisorder #nothingaboutuswithoutus youtu.be/dBLGNVEaRZc?...

Been something on my mindl lately about debate and honesty in Parkinson’s circles. Why is anything outside unbridled support considered criticism? What are we afraid of? If something feels wrong why don’t we speak up? I’m just going to park this here and re-visit it in 6 months

Learn about PRODUODOPA (VYALEV) in this thread: For more information, check out our latest Science News article: https://buff.ly/40X7eLl #Parkinsons #ParkinsonsDisease

We understand that many care partners work or volunteer outside of their caregiving role. 💼 🏠 Today for Caregivers Month, explore our tips for finding balance between these responsibilities: Parkinson.org/resources-support/carepartners/caring-for-self/work

Every year, the Parkinson’s Foundation Helpline receives calls from the PD community looking for advice when it comes to navigating the holidays. So, we put our specialists’ top recommendations in this article: Parkinson.org/blogs/tips/parkinsons-holiday-guide

We love blue at the Parkinson's Foundation, so hello BLUEsky! 🩵👋 Follow us here to stay connected to the Parkinson's community, learn about research updates, receive PD resources and more! Parkinson.org

Please please complete this survey. We need you to speak up 🗣️

Sometimes the best way to heal is to immerse yourself in nature

Earlier this month, CBS Sunday Morning aired a segment about a Parkinson's Foundation Community Grant recipient, Up ENDing Parkinson's! Check it out:

Young Onset #ParkinsonsDisease is a distinct and separate condition than the one people diagnosed later in life experience. Symptoms, course of progression, medication side effects, etc. Why are we treated the same? #yopd

Let’s talk about #Parkinsons perks, i’ll go first.. -can leave early from any social gathering by spilling stuff

New article published about importance of hospital changes needed to keep #parkinsons folks safe in the hospital - great work and kudos to @parkinsondotorg.bsky.social and all their advocacy around this for the #pdcommunity www.sciencedirect.com/science/arti...