Had a great time chatting with Jamie-Lynn Sigler and Christina Applegate. Check it out here or wherever you listen to pods. open.spotify.com/episode/2QGi...

I am doing a fellowship in journalism to raise the voices in #parkinsons #healthcare my first publication on #stigma #neurology #mentalhealth #movement-disorders @parkinsondotorg.bsky.social @parkinsoncanada.bsky.social @shakinginmyboots.bsky.social @alliesiggy.bsky.social @michaelokun.bsky.social

This Netflix movie where Pentatonix is dragging themselves is amazing 😂 Meet Me Next Christmas for those who need a cute movie tonight! 🎄

Have added tinnitus to my list of Parkinson’s symptoms which sounds like a baby goat screaming inside my ears - especially at night. Slightly less than enjoyable, though not as bad as a screeching monkey would be, I think. Hard to say really.

This show 😭 I am him. He is me. Just the best. #shrinking #parkinsons

@katiecouric.bsky.social welcome! People are nicer here (so far 😂)

TONIGHT!! See ya at 6 pm ET to learn more about what Ai-jen and @caringacrossgen.bsky.social are doing for caregivers everywhere. See ya soon!

Calling all caregivers…and those that love them! Join me and @aijenpoo.bsky.social tomorrow for a conversation all about caregiving. 6pm ET on @imstillallie on Instagram. See ya then!💕 @caringacrossgen.bsky.social

The life of the caregiver is a hard one and I am so grateful to all caregivers.

I don’t know the difference between lists, hashtags, starter packs, pack animals or animal crackers at this point. But here we are… #parkinsons

Are people actually nicer here than they are on Twitter or have I just not found the meanies yet? (And did I just summon the meanies?)

My convo with Katie Couric about what it’s like to live with YOPD and the importance of advocacy

This! 👏

Any other of my Parkie friends on here wake up with pain in one spot every day? My right foot really hurts and burns every morning when I wake up. Any advice on how to deal - other than acting out stretching or yoga in my dreams? 😝

Very proud to be part of this amazing climbing group!!

Got all dressed up and went to the Michael J. Fox Foundation Gala last night! Heard Stevie Nicks sing Landslide and cried. So good!

My tremor has been less active since I stopped watching the news. Could this be the Parkinson’s cure we’ve all been waiting for? 😂

Here we go! I’m working on finding every pro sports team on Bluesky. Comment if you find one I missed, and feel free to share this with the sports fans in your life. (My first job in journalism was as a Division I football reporter, and my second was as a Division I basketball color commentator.)

Read my newest Substack article on why Parkinson’s went viral this summer…but for all the wrong reasons. 👇🏻 #parkinsons

Just passed by the cemetery where one of my besties is buried. She was 38 and didn’t beat breast cancer. When people ask me why I have a good outlook despite having Parkinson’s, I always think of her and how’d she’d literally give anything to still be here with her girls. I appreciate every damn day

Late night packing for a trip used to be shoes….

The National Parkinson’s Plan (NPP) must not be forgotten in the transition. If you haven’t contacted your MOC about it, check in and see if the can provide an update. We can’t afford to lose any more time. #nationalparkinsonsplan #npp #parkinsons

Leaving Twitter was hard for me and I had 600 followers. It is a leap of faith for many of you with much bigger communities. Just want to say thank you to those who did. I hope the leaders of this platform take bullying and harassment seriously & keep it a positive and productive place 🦋 @bsky.app

Wohooooo!!! The party on BlueSky keeps getting better and better!!!!

it's official — 1,000,000 people have joined Bluesky in just the last day!!! welcome and thank you for being here 🥳

You can find me on Instagram too! #parkinsons #pdcommunity #yopd

This feels a bit like joining a new school doesn’t it? Here’s a little about me for my new friends here. Totally open to sitting with you at lunch today! 😉 #parkinsons #pd #yopd

Hello #PDCommunity I created a starter pack for PD - let me know if you want to be added. Looking for fellow PD baddies on this new app 😊 go.bsky.app/UVSff6j

There are lots of new people on Bluesky over the last few days. I wonder if this is a platform where we can build a healthy, supportive Parkinson's community. Like or comment if #Parkinsons or #YOPD is relevant to you I'll build a list to help people find each other. Shares welcome. #PDcommunity

Getting out of a cozy bed on a cold morning when you have Parkinson’s takes the same courage as bungee jumping. Not that I’d ever bungee jump.

Hello! I’m a Young Onset Parkinson’s patient and advocate looking to do my part to end this disease and leave the world a slightly better place for my kids. Looking for fellow neurodegenerative warriors to battle with while having some laughs and sharing a few tears along the way! #parkinsons