Looking forward to joining the first of these #YOPD teabreaks (YOPTea?!) tomorrow morning with @parkinsons.org.uk. Details on the link below if you want to get involved or join the mailing list. Maybe see some of you there. localsupport.parkinsons.org.uk/activity/you...

Half of life with #Parkinsons is undoing the full stops from accidentally double tapping the space bar.

"I am blessed to still lead a wonderful active life filled with family and friends and work and travel and so, so much hope. "I have #Parkinsons. But, by God, it doesn’t have me." Recommended reading: www.latimes.com/sports/story...

I'm about nine months late with this, but I just did my first PD Warrior workout. Surprisingly difficult, but definitely targeted the right areas. Does anyone else use this program regularly? #YOPD #Parkinsons

#WorldParkinsonsDay 2025 in Westminster, London. #Parkinsons #YOPD @parkinsons.org.uk

On my way to Westminster for our #WorldParkinsonsDay event the Big Sing and my local station has this Quote of the Day

This #WorldParkinsonsDay, we’re proud to be supporting the Movers & Shakers in presenting their ‘Parky Charter’ at Downing Street and in lending our voices at their Big Sing event 🎶. Don’t forget to sign the petition if you haven’t already and help us get to 100,000 signatures! buff.ly/iaDooff

Happy #WorldParkinsonsDay to those who participate in it. Hope everyone on here finds some joy or comfort in it at some point. It’s my first. Here’s what I’ll be doing and trying to figure out today. open.substack.com/pub/iainlidd... #Parkinsons #YOPD

Relatable content. #YOPD

cureparkinsons.org.uk/2025/03/supp... Cure Parkinson’s wants you to sign the #parkycharter petition!

New post: #Parkinsons, and a metaphor involving a bear made of ice. Reads, shares, feedback are welcomed as always. #YOPD newsletter.iainliddle.com/p/parkinsons...

New post: #Parkinsons, and a metaphor involving a bear made of ice. Reads, shares, feedback are welcomed as always. #YOPD newsletter.iainliddle.com/p/parkinsons...

Parkinson's, in my opinion, is the most complex disease in clinical medicine. Though it is nice to see these evidence-based reviews, we should keep our eye on the 'ball.' The ball is dynamic, and in Parkinson's will fluctuate over time, and especially with disease progression. Listen to the person.

World #Parkinsons Day - April 11 - is just over a month away. I’m interested in how people mark it, it at all. - What are your plans or ideas? - Is there something you do every year? - Does the day carry any meaning or significance to you? #YOPD

Two new accounts to be aware of on here: - @cureparkinsons.org.uk - @rcnneuro.bsky.social I've added both to my #PDcommunity list, which you can pin for easy access --> bsky.app/profile/did:... #Parkinsons #YOPD

Sending my first post from @surf.social! I’ve been excited to try this out and learn more about the potential of the fediverse. (I appreciate this reads like a hacked post / as though I’m typing this at gunpoint)

Sorry, it’s been a while… New post: #Parkinsons, the end of the honeymoon phase and storytelling. #YOPD newsletter.iainliddle.com/p/parkinsons...

Sorry, it’s been a while… New post: #Parkinsons, the end of the honeymoon phase and storytelling. #YOPD newsletter.iainliddle.com/p/parkinsons...

For the first time in too long, I'm sitting down to write again. It feels good.

Question for fellow Parkys, I know movement is medicine and high-intensity exercise makes us all feel a bit better, but does anyone else find their symptoms (shaking/imbalance etc) are more pronounced while actually doing it? #YOPD #Parkinsons

Being on Bluesky has (mostly) been a breath of fresh air these last few months. Good read here on why the success or otherwise of this platform is almost a test case for sustainable social networking in the future. www.404media.co/decentralize... by @jasonkoebler.bsky.social @404media.co

@carolinerassell.bsky.social thanks for the follow, Caroline. Great to see you on here!

It’s time! #GoPackGo

"Our worst, unmoderated impulses, shared by algorithm and reaffirmed by AI. Where nothing has to be true and everything is popular." Excellent edition of 'Garbage Day' today, from @ryanhatesthis.bsky.social, on the implications of Meta's latest moves. www.garbageday.email/p/zuckerberg...

Saw this comment on Brett Favre’s Instagram. Anyone know what specific #Parkinsons treatment or trial is being referred to here?

@unkaren.bsky.social thanks for sharing my blog post!

New post: #Parkinsons, a preemptive 2025 'Wrapped', and attempting to find balance Some day one thoughts on the year ahead and adding up the things I hope will start to count. #YOPD #PDcommunity newsletter.iainliddle.com/p/parkinsons...

New post: #Parkinsons, a preemptive 2025 'Wrapped', and attempting to find balance Some day one thoughts on the year ahead and adding up the things I hope will start to count. #YOPD #PDcommunity newsletter.iainliddle.com/p/parkinsons...

Final presents wrapped, takeaway curry devoured and The Office Christmas specials on. Merry Christmas, Happy Holidays and all other festive greetings to the #PDcommunity. Wishing everyone as happy, stress-free and easy a time as as possible. #YOPD #Parkinsons

Even as a journalist you’re sometimes surprised by the headline that emerges from a chat with a reporter but pleased if my visit to the Palace has shone a light on Parkinson’s www.independent.co.uk/news/uk/bbc-...

New post: #Parkinsons, reflections on the first six months, and recommendations. Some thoughts on what I've learned, gained and lost since hearing a #YOPD diagnosis. newsletter.iainliddle.com/p/parkinsons... (ft shout-outs to @whostolemydopamine.bsky.social and @shakinginmyboots.bsky.social)

New post: #Parkinsons, reflections on the first six months, and recommendations. Some thoughts on what I've learned, gained and lost since hearing a #YOPD diagnosis. newsletter.iainliddle.com/p/parkinsons... (ft shout-outs to @whostolemydopamine.bsky.social and @shakinginmyboots.bsky.social)

@kevinmcfarthing.bsky.social Hi Kevin, thanks for the follow. I've just seen your hope list and it looks fascinating. I'll be bookmarking that and coming back to it in more detail.

Back on Bluesky after a couple of weeks away traveling, working, house renovating and Christmas prepping. Plus, everything seemingly moves a little slower on these cold winter mornings when you have #Parkinsons. Hope everyone is well. #PDcommunity

Tip for those new to #Bluesky, starter packs and lists are both valuable but not the same thing. They serve different purposes. 🧵 (1/8)

Made it to Green Bay. This is why I’m here: newsletter.iainliddle.com/p/parkinsons...

@tylerherrick.bsky.social @aaronnagler.bsky.social great to meet you both this evening and the entire @chtv.bsky.social crew! Entirely surreal but very fun. Thanks for the hospitality. GPG! 🇬🇧

Iain this is excellent - I wonder if a PD org might publish it more broadly. You break it down so clearly and it’s so helpful for people who I know are in each of our lives and want to help but are not sure how.

Some thoughts from the departure lounge at Heathrow Airport, but sent from the sky. New post: #Parkinsons, #Packers, people and purpose. Read and subscribe here, if you like: newsletter.iainliddle.com/p/parkinsons... #PDcommunity #YOPD

One more sleep 🙏

Anyone else noticing a bug on here where you're no longer following people you've previously followed? I'm noticing the same with accounts I've added to Lists no longer being included on them.

Less than a week into making an effort on Bluesky and I’ve passed 100 followers. Given that the majority of those seem like real people with similar interests, that feels like a good return! The community feel of the platform also makes me more inclined to take a chance on following new people.

Still struggling to believe this was an actual email I received from a professional company 😂 😂 I wrote about it more here: open.substack.com/pub/iainlidd... #Parkinsons #YOPD

New post: #Parkinsons, Bluesky, community and [heavy-handed emails] It's early, but I think we might have something here. Read: newsletter.iainliddle.com/p/parkinsons...

New post: #Parkinsons, Bluesky, community and [heavy-handed emails] It's early, but I think we might have something here. Read: newsletter.iainliddle.com/p/parkinsons...

Our first post on Bluesky - hello! We're looking for the #Parkinson's community here. 👋 We've been the leading voice for #Parkinsons in Europe for over 30 years. Our team is small, but mighty! Let's grow a strong voice on Bluesky to share our experiences of living with Parkinson's. ❤️🌷

Amazing response and enthusiasm towards this post. I'm hopeful. A feed of people from the #Parkinsons community sharing thoughts and ideas and celebrating their passions would be great. A living, breathing reminder that life goes on and it doesn't need to define who you are. #YOPD

There are lots of new people on Bluesky over the last few days. I wonder if this is a platform where we can build a healthy, supportive Parkinson's community. Like or comment if #Parkinsons or #YOPD is relevant to you I'll build a list to help people find each other. Shares welcome. #PDcommunity