Nice seasonal story www.wimbledonguardian.co.uk/news/2480650...

Laid in the pre-op anaesthetic suite with a team of people connecting various tubes and wires to me, all of who looked very professional and experienced - realising I was the only one in the room who had never done this before; then thinking "will I still be me when (if) I wake up?" (brain surgery)

‘At least you’re still here …’ Were the words uttered as I stretched out while talking to someone after a carol service who asked me why I suffer from pain. People don’t say insensitive things like that, doesn’t help. #cancer #lateeffects

AND... I had Stage 4a colon cancer at diagnosis. I've been NED for 4.8 years...and NO DOCTOR will say that it won't recur...so I'd like, at least, annual scans for many years to come. Let's catch the recurrences EARLY. It's called being PROACTIVE...not fearful.

Another 5🌟 review for Stories of Cancer and Hope. Our book is helping people directly and indirectly affected by cancer. All royalties go to Maggies cancer centres. #cansky storiesofcancerandhope.co.uk#nav_about

Toxic thoughts and stress do NOT cause cancer, despite what functional+naturopathic doctors might say. I explain this in more detail in my next book - ‘The Cancer Roadmap’ Being happy and smiling more CANNOT cure you Pre-order The Cancer Roadmap HERE lnkd.in/eshzcwvU

I travelled from London to Ipswich today to watch my brilliantly talented brother Liam Bull in #RedRoseChainTheatre #Pinnochio What a great panto, the cast were fantastic & all the kids (& adults like me!) absolutely loved it! ❤️#DelaneyGreyManagement

I’m always the most amazed by parents who don’t bat an eye consenting their children for transfusion, chemotherapy, stem cell transplant and then decline vaccinations.

Do you know what #Lymphoedema is, Dr Katherine Wang from our lab at UCL Mechanical Eng has explained this for bbcfuture www.bbc.com/future/artic... @uclnews.bsky.social @raeng.org.uk

Thank you, Dr Wang. This is a great piece. #Lymphoedema #Lymphedema #bcsm #bccww #lwabc #BreastCancer #oncsky #cansky

My girl is five years down the road and new effects popping up. The struggle is real.

Message from Mand 👇 She lifted it from another social account; not sure of its origin but we love the message. #IamStillHere #MetastaticCancer #Cansky Mand is a #CancerDinosaur

When did cancer feel “real” to you? Throughout chemo, I could pretend it was happening to someone else or it was nbd like a bad hangover. But as soon as my boob was cut off, I had a huge fucking daily reminder that cancer leaves scars. #cansky #oncosky #oncsky

Did you miss #SABCS24 last week? No worries! Here's my @fredhutch.bsky.social SABCS24 wrap story w/insights into #cancer treatments & #cannabis; #ctDNA; #obesity & #epigenetics, #FES-PET & much more. #cansky #oncocsky #medsky #bcsm @thankscancer.bsky.social www.fredhutch.org/en/news/cent...

CHRISTMAS FUN - we're here for it! Enjoy our mySociety-themed playlist, games and puzzles, and a list of recommendations from our usually-private staff chat, at

They focus on the "thing" they're treating and ignore the human being. Acknowledging the person and having some sort of survivorship system is badly needed.

I can partially get why muggles don't understand that carcinomies have to deal with late effects from treatment and fear of recurrence. I just cannot understand how there are still medical professionals who just don't understand this. #Cancer #LateEffects #CanSky #ThanksCancer

Another great point! Yes, it's important 4 researchers & clinicians to know that after #cancer treatment, very few patients are "asymptomatic." We are rife w/symptoms & side effects from our treatments, surgeries, etc. It's v. hard 2 sort out what's NORMAL pain & what's potential RECURRENCE. #cansky

I can hardly think of a better example of the moral decay in modern health care than a Goldman analyst noting that biotech cures for diseases like hepatitis are cool and all, until their success diminishes the business opportunity for pharmaceutical manufacturers. www.cnbc.com/2018/04/11/g...

“certain procedures are more likely to result in #chronicpain. They include breast #surgery with mastectomy, thoracic & spinal surgery, amputation ' knee replacement surgery": https://buff.ly/3BO5yct #MedSky #PainAwareness #surgeons

What happens when you support a group experiencing profound health inequality to build a voice and lead service change? We explore the groundbreaking work of Brighton and Hove Common Ambition ⬇️ https://buff.ly/3VPnsmu

👏🏻 #Cancer

Excellent points. #BreastCancer #CanSky

I'd really like 2 recast this whole fear of recurrence thing (#FoCR). Maybe call it LEGITIMATE DESIRE 4 DISEASE MONITORING instead? Pts aren't nec fearful, jst trying 2 figure out if they have undetected disease. If u dangle a 2K lb piano over someone's head, they're legit concernd. #SABCS24 #cansky

If you’re entitled to a free flu jab, please get it now.

*Shocked face* plus the effort to bring a judicial review shouldn’t be overlooked.

Remember, your value doesn't decrease just because someone else fails to acknowledge it.

It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL

Root canals don't cause cancer and amalgam fillings are safe. You don't need to find a holistic dentist Find out why in my latest video... Debunking Dental Myths: Cancer Claims exposed youtu.be/E7hic2liwnY?... via @YouTube

Never quite thought about it this way before but now I do #cansky #CancerBS

One of my favorite parts of co-hosting the Our MBC Life podcast (ourmbclife.org) is talking “live” with patients, researchers, docs at conferences. Here, @faceofstage4.bsky.social #cancer #SABCS24 #bcsm #CanSky

THREAD: @independentsage.bsky.social by numbers Love us or hate us, we tried something new in public communication of science and sustained it for over three years. From May 2020 - Dec 2023 we livestreamed 139 briefings, published 62 reports, 50 short statements and 7 Q&A and mythbusters. 1/13

without vaccines, measles kills children www.nytimes.com/2024/12/18/h...

Diversity is what makes our city stronger. On International Migrants Day, we proudly honour and celebrate migrant Londoners and the remarkable contribution they make. They are an essential thread in the vibrant tapestry of our capital.

My suggestion after Duncan’s good advice is once you tell your story, and you’re over the shock of diagnosis, don’t leave it there. Call out stigma (no one deserves this disease) & lack of research funding. Champion lung cancer screening for whom it’s appropriate. Try for media coverage, too. #lcsm

Suggested solutions include better paid sick leave, vaccinations and ventilation.

I love helping people that have pancreatic cancer, sharing what I've learned and what's worked for me. The dark side is that i lose a majority of the people I try to help. It's the sad reality of a disease that has such a low survival rate for those diagnosed stage 4. #cansky #thankscancer 1

This dilemma in #BreastCancer makes my heart ache. A drug approval can give priceless, precious, extra months of life to a patient who wouldn't be able to afford it otherwise. But on a systemic level, the cost *is* borne by some other group, because there are finite resources. 💔

Public Service Announcement If you see ‘floaters’ in your eye. (More than is normal for you) get thee to emergency Offsider complained of this, took him in… tear of, & partially detached, retina VERY lucky caught early You’re welcome

My friends in the Dementia world. Please read this and consider what the effects on healthcare for people with Alzheimer’s disease in England would have been if NICE had approved lecanemab and donanemab for NHS use. And, of course, they don’t have clinical efficacy, anyway!

I’m very pleased to announce that we handed a cheque to Maggies Edinburgh for £1,157.66 from sales of our book Stories of Cancer and Hope. We were joined by Ricky Nicol and Commsworld, our major sponsor.

A fascinating read from @maritahennessy.bsky.social on an issue that I think will need to be discussed more and more in the future. #PPIE

A fine & difficult line for advocates, smaller groups & patient lead charities. See attached paper.

We are on the Metro front page and in other media channels today because we have made it clear that the NHS temporary escalation spaces (TES) guide is "normalisation of what is an unacceptable and dangerous situation". 👇 Links in next post.

Shouldn’t be surprising women are concerned.

Shouldn’t be surprising women are concerned.

Survey reveals strong public desire for notification about AI use in healthcare www.news-medical.net/news/2024121... Article here: jamanetwork.com/journals/jam...

The flogging off of UK assets and property has been the sale of the century since the 1980s when M Thatcher launched her 'everything must go' national fire sale. If I was the UK monarch I would demand that 'Royal' is removed from what is left of our mail service.

Your feedback this winter has the power to change health and social care services across England. Find out how - www.healthwatch.co.uk/our-impact