#METAvivor #MetastaticBreastCancer #Transparency #ThankYou #DonorPolicy

THIS‼️ 🔺brain mets occur in 15 - 30% of MBC pts; ⬆️ in #TNBC & #HER2+ 🔺delayed MRI=⬆️ adv disease, req. ⬆️WBR & ⬆️ dx LMD 🔺earlier det=earlier intervention = better outcomes for pts ”.. maybe we should be routinely performing brain MRIs in those patients”💡 #bcsm #BCBM www.medpagetoday.com/hematologyon...

Spent the past 5 days with an incredible group of #advocates @ the 2025 Bag It Cancer #EscapeToThrive2025 leadership conference in Tucson, AZ. Miraval Resort & Spa was the ideal spot to #restore, #refresh, & #rejuvenate!

Thanks to the patient advocates who serve on our @ascocancer.bsky.social CDK study advisory group and data safety monitoring committee. @janicetnbcmets.bsky.social @paspears88.bsky.social connection.asco.org/do/empowerin...

www.nytimes.com/2025/01/08/p... Amazing story from a stage IV inflammatory breast cancer patient about finding love. #IBC #oncsky #cansky

Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session! #bcsm #PatientAdvocate

#OncoSky #CanSky Listen up!! For those who used to enjoy Tumor Board Tuesday #TBT. We have been speaking to the wonderful Dr. P @mpishvaian.bsky.social and we will be starting some Tumor Board Tuesday “Sky Chats” over here soon! Stay tuned! #TBT is a wonderful learning/CME resource!!! #bcsm

Hello all, wanted to let you know about a fantastic interactive learning opportunity! This Tuesday the 14th my lovely fellow and I will be presenting Tumor board Tuesday #TBT about new developments in HR+ MBC! It will be 5pm pacific, 8pm eastern! #bcsm #OncSky #CanSky #MedSky #breastcancer #MBC

Especially important for our #oncosky community due to weakened immunity to infections. Please read this excellent educational public health tgread by @tmprowell.bsky.social

📑 benefits of P2P online support, “..most reported was being better informed…a predominant aspect of group participation is the exchange of info, the sharing of knowledge related to the disease, tx methods, or rec.”https://link.springer.com/content/pdf/10.1007/s00520-024-09119-5.pdf #bcsm #cancer

Lori Carey lived long on Enhertu. She was a wealth of knowledge about getting thru its rough start and the photographer of some of the most beautiful landscapes I’ve seen. I hope she got to say goodbye to those she loved and that Rebel was by her side too💔 #cansky #cancer #Stage4NeedsMore

Happy New Year from OncoAlert @doublewhammied.bsky.social @janicetnbcmets.bsky.social @kjankovic.bsky.social @seanmmcbride.bsky.social @icromeattini.bsky.social @jdmunter.bsky.social @achoud72.bsky.social @jesusanampa.bsky.social @weoncologists.bsky.social

Reg for METAvivor Ground Swell is open. Share your story/exp, educate lawmakers who serve you in DC, make an impact, 👊 change advocating for policies that benefit all dx w/ & impacted by #metastaticbreastcancer, & 📣 need to ⬆️ 💲for MBC #research! #bcsm donate.metavivor.org/event/2025-g...

Taking a SoMe break for the holidays, spending time with family! Wishing everyone a holiday season filled with love, light, joy, & cherished moments with those you hold dear. See you in 2025! Thankful for the #bcsm community! #HappyHolidays  #Gratitude

#2SLGBTQIA young adult #cancer study in Canada #oncosky #cansky

It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL

Loving tumor heterogeneity session at #SABCS24! Talk by Nick Navin w/ cool implications for #lobular BrCa tumorigenesis. In healthy breast cells, 16q/CDH1 loss common (~8% of cells from 49 patients), led to luminal clonal outgrowth... earliest precursors of ILC??? pubmed.ncbi.nlm.nih.gov/39567687/

Kicking off #SABCS24 w/ imp topics, communicating a MBC dx with pts, disease progression & prognosis, about #clinicaltrials. The Do’s & Don’ts. #metastaticbreastcancer #AdvancedBC #bcsm @sabcs.bsky.social @mbcalliance @ABCGlobalAll

View from the Marriott Rivercenter! All is calm, all is bright ~ the action begins tomorrow! Excited for another fabulous week of education, information, & connection at #SABCS24! Let’s do this! #bcsm @oncoalert.bsky.social #metastaticbreastcancer #PatientAdvocates @sabcs.bsky.social

✈️ Tampa —>Houston for BCM researcher/lab visits today, now 🚌 Houston—>San Antonio via Vonlane (fancy bus) w/ @amybeumer.bsky.social See you soon @sabcs.bsky.social!! #bcsm @oncoalert.bsky.social #SABCS24

If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty #Cansky #SuppOnc #hpm #SurvOnc

This is the best explanation of breast cancer in men published to date. www.mdanderson.org/cancerwise/m... #Cansky #Oncosky #CancerBS

Unfortunately relatable in so many areas - alkaline water, sugar, special diets, alternative, unproven “therapeutic” protocols, & let’s not forget coffee enemas 😳 All the 🤬 😡😤 feels about charlatans who promote these (incl other #cancer patients) #Oncosky #Cansky #bcsm #metastaticbreastcancer

@janicetnbcmets.bsky.social pointed out how helpful having oncology tweetorials were on Twitter & the oncology health care community here is large & active so I'm sure they'll participate but we'll also need patients experts to do some, too. Any other ideas? #oncosky

The breast cancer community on Twitter was historically strong & proactive. @janicetnbcmets.bsky.social & i are discussing wsys to bring some of the most helpful aspects from Twitter to bsky such as tweetorials Would you participate & what topics interest you? (continued)

The Patient Centered Dosing Initiative does incredibly important work!

Does anyone know if there’s a setting on post sharing that only allows those you follow to share your posts? Is it under post interaction settings?

Wish that I could be at ISLB!! Visionary liquid biopsy expert @christianrolfo.bsky.social gives master class lectures on translational potential for innovative LB technologies & approaches 💯💯 @osucccjames.bsky.social @osuwexmed.bsky.social

Does anyone have the 🦋 version of this list?? @tmprowell.bsky.social @erikahamilton9.bsky.social @drsgraff.bsky.social @maryamlustberg.bsky.social @drteplinsky.bsky.social @ptarantinomd.bsky.social

Between now & the end of #GivingTuesday, I’ll mostly be posting about Healthcare Workers vs. Hunger #HCWvsHunger. Please support our multidisciplinary oncology team #DiagnoseAndTreats by donating to a food bank or hunger org this holiday season & logging for our team! /1

#Oncologysky did you already vote once this month? Please make it twice and vote ✍️ 🗳️ in the #ASCO election if you are a member of ASCO!!! I'm lucky enough to be on the ballot 🗳️ this year for an undesignated spot on the Nomination Committee. society.asco.org/about-asco/a... Vote here ⬆️!

SONIA trial - Pts with ER+ breast cancer beginning treatment in the metastatic setting randomized to 1st line vs 2nd line use of CDK4/6 inhibitor (+ endocrine therapy). No sig difference in PFS. www.nature.com/articles/s41...

10 days to #SABCS24. Excited to present at the conference the results of 4 studies, made possible by collaborations with brilliant Dana-Farber colleagues and with multiple external partners (RevealGenomics, Yale, Novartis). Come meet me at the posters on December 11th and 12th!

Come join me Thursday morning Dec 12 as I discuss these wonderful 4 poster highlights #sabcs24 #survonc #bcsm @sabcs.bsky.social

Another great starter pack to follow: go.bsky.app/PowhjKD #CanSky #MedSky #OncoSky #advocates

Love where I live. #Gratitude

Attending @SABCSSanAntonio 2024 for the latest in #breastcancer & #metastaticbreastcancer research news? #SABCS24 schedule ~ done ✅ ‼️Be sure to note sessions featuring #patientadvocate voices‼️ #bcsm @OncoAlert

Happy Thanksgiving to all, especially to my #oncsky family & fellow #cancersurvivors. While we may have challenges ahead in cancer research, I believe our community is so strong, dedicated and talented that we will weather whatever storms may come our way. Grateful to work alongside you all.

The results of SONIA are out on @Nature. 1L use of palbo did not improve PFS over 2L use, but led to more AEs & costs. An evolving treatment landscape challenges its interpretation— yet it shows that sequencing trials are possible. Congrats to the authors! www.nature.com/articles/s41...

Another great org has found its way to #BlueSky. Welcome @graspcancer.bsky.social!! See you @ #SABCS24 (@sabcs.bsky.social)! #research #bcsm

The Patient Centered Dosing Initiative has made it to bluer skies :-) follow us here and find us at therightdose.org

Those dying of BC in the US, and therefore the MBC population, is increasingly made up of those with distant recurrence from Stage 1-2 (49% in 2000 to 63% in 2017). Last paragraph is gold. We must educate. #bcsm From an amazing team @coffeemommy.bsky.social @drsgraff.bsky.social & Kevin Kalinsky

Looking forward to #SABCS24 - there is a lot of important research being presented, some to highlight: 🔑 Biomarker analysis of KN522 🔑 EMBER-3 🔑 MARGOT 🔑 SONIA 🔑 EUROPA 🔑 SOLTI VALENTINE 🔑 GeparDouze

@therightdose.bsky.social look who’s arrived on #BlueSky ~ PCDI (Patient Centered Dosing Initiative)! 💊 *Follow us here* @itsnotpink.bsky.social @amybeumer.bsky.social @marthacarlson.bsky.social @stage4kelly.bsky.social @faceofstage4.bsky.social @jolynn2019mbc.bsky.social

#bcsm #patientadvocates @focr.bsky.social #Oncobsky

YES, please‼️ #bcsm 👇🏻👇🏻👇🏻

Yesterday we said goodbye to the matriarch of my husband’s family, my 94+ y/o mother-in-law, who lived a full & wonderful life. An hour later, we celebrated a new life, the birth of her 11th great grandchild, a sweet, perfect baby boy, our great nephew. The circle of life ♥️

Last week was perfect! My ♥️ is full, spending time w. family (esp our grandjoys💖🩵💙) on DCL, completely disconnected- a much needed break from reality. Until seeing the inbox this am 🫣

“We have confirmed an ongoing system outage that may cause issues such as (but not limited to) login difficulties, “Invalid Handle” error messages, & search functionality problems. Our team is actively working to resolve the issue, and we appreciate your patience &understanding during this time.”

Anyone know why it’s showing “invalid handle” on accounts? (Not just mine!)