Miss Gwen so much. Was just thinking of her yesterday and our chat.

It's that time of the month again! Do you love mail...fun mail?! Sign ups are open TODAY for our September Sunshine & Rainbows. 🌈 RSVP through the link in our bio 💌 #mbc #stage4needsmore #bcsm #busylivingwithmets #bccww

non-Governmental research funding is becoming more important every day. @metavivor.bsky.social received almost double the usual number of letters of intent last week. We need our supporters to be generous this year so we can fund promising research!

Very concerned. And with the removal of information on health disparities and anything on health of the LGBTQ community.

REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy

Tumor board Tuesday!! HR+ MBC! Looking forward to it @dr-rshatsky.bsky.social! #bcsm

“Men with breast cancer are often left to fight the disease in silence. This silence has led to psychological and emotional distress in conjunction with illness-related stigmas.” www.oncnursingnews.com/view/looking...

It’s a privilege to be part of this meaningful work! The ASCO CDK Dosing Study has the potential to reshape clinical practice for older adults w/ #metastaticbreastcancer. Thnx to PCORI for funding this impactful project. @therightdose.bsky.social @oncoalert.bsky.social #bcsm #DoseOptimization #QoL

Home sweet home and an awesome sunset in flight.

To build on the progress shared at #SABCS24 for triple-positive MBC ( #PATINA), when treatments stop working, is it the HER2 or HR component driving resistance? Need a biomarker! Patients want the most mileage from every treatment! PS: Finally, +++ is being treated differently from HER2+/HR–.

Was great to talk to @janicetnbcmets.bsky.social about this a couple days ago —> higher doses are not always better ✨ figuring out the best fit for our pts benefits those who experience a cancer diagnosis, oncologists, as well as pharma companies. Everyone wins with this knowledge! #bcsm #SABCS24

Hot of the press from @proteuspros - an infographic explaining the value of PROs! Note - they need to start as parr of the clinical encounter to benefit patients and society. tinyurl.com/3m594fhk

Spent 90 mins on the #SABCS24 stage, interjecting the advocacy perspective in "From the Trenches" yesterday. It was these voices, and so many others not pictured, that I channeled. Grateful to have them by my side literally & figuratively 💗

Love when MBC, the kind of breast cancer that kills, gets 12 minutes in a 90 minute presentation on what to bring back to the clinic. We’re flying and skipping audience questions. #bcsm #SABCS24

There is no “good risk” only lower risk. There is no good DCIS. Need to talk about absolute risk as well. @coffeemommy.bsky.social #bcsm

This! Also coffee…..

Here’s another impactful session about health disparities #systemic #structuralracism #global #healthequityforall #bcsm #oncoalert #SABCS24 @sabcs.bsky.social @oncoalert.bsky.social @swog.org @yabdoumd.bsky.social

@coffeemommy.bsky.social giving nuance to a conversation about patient treatment on Monday morning. Patients do not live in a utopia and we are not a monolith! #bcsm #sabcs24

View from the trenches at #SABCS24 with the amazing @coffeemommy.bsky.social We need to “right size” treatment (NOT “deescalate”) with discussions on risk, benefit and impact of treatment. YES! #oncsky #bcsm

This is great! Maybe add in ET alone in first line for select patients (SONIA). Great presentation by Dr. Danso. #bcsn #SABCS24

One year ago, on a sunny afternoon before the last session of #SABCS23, I stood on this balcony chatting with patient and advocate Gwen Manchion, who was stolen by MBC in the interim. This is why we do what we do.

Congratulations to DR Steffi Oesterreichs @oesterreichs on her AACR Award. She has done sooooo much for people with ILC, not just through her brilliant research, but through her embrace of and collaboration with advocates. @metavivor is so proud to have funded her! #SABCS24

Dr @cittellylab.bsky.social’s conclusions on brain mets in ER+ (MICE), and once again proud that @metavivor has funded her research! #SABCS24

P-Verify is retrospx RWE look at OS in all 3 CDK4/6i w/Flatiron data, funded by Pfizer ▫️RWE is only way we’ll see this comparison -yet- ▫️RWE can have bias & limits -still- ▫️Reassuring to see NO DIFFERENCE in OS across 3 approved agents ▫️Needs longer F/U #SABCS24 @oncoalert.bsky.social

For those wanting to optimize their care of premenopausal HR+ early breast cancer I highly recommend watching the #SABCS24 Educational Session “Mind the Gap Breast cancer in the young.” It really reinforces the importance of ovarian suppression! Tam is not enough in so many! #bcsm #OncSky #CanSky

Great discussion yesterday morning and exciting work in mTNBC! #bcsm

Sobering data on 7-year IBC outcome from @mdanderson.bsky.social presented by superstar Dr. Azadeh Nasrazadani. 7-year OS % 7, 24, 50, 55 in TNBC, ER+ HER2-, ER- HER2+ and ER+HER2+. CDK4/6i benefit low compared with historic cohorts. @naborala.bsky.social we need better Rx. #SABCS24 #bcsm

At #SABCS24 LBA session - @dradityabardia on Efficacy and Safety of T-DXd by Pace of Disease Progression on Prior Endocrine-Based Therapy in DESTINY-Breast06 T-DXd ⬆️PFS regardless of time to progression on 1st line CDK4/6i+ET or type of endocrine resistance @oncoalert.bsky.social

100% #bcsm

#SABCS24 #bcsm #OncSky We need to ask all patients on endocrine therapy for #breastcancer about vaginal dryness & sexual dysfunction. Here’s a useful stepwise approach to managing these issues from @JenniShengMD. #MedSky @oncoalert.bsky.social

Take Away from Keynote 522 biomarker analysis. We still don’t know why people benefit from pembro. Even people we expect not to benefit (LAR) surprisingly do… . Unfortunately this biomarker analysis did not help us narrow down the groups that don’t need it. #bcsm #SABCS24

So happy to support my friend @itsnotpink.bsky.social as she brings the @The_Right_Dose patient expert perspective on dose optimization to #SABCS24

This was a super informative talk including what works and what to avoid. Need more cannabis research!

What are some ways to get to the right dose? Sequential trials, more than 2 arms, re-randomization are potential solutions for dose optimization. @The_Right_Dose #SABCS24

Thank you for this work @drdonsdizon.bsky.social and all authors. A clear lack of evidence for transgender individuals with cancer that needs to be remedied AND some great recs for physicians that in many cases could apply to advocacy as well. Well worth a read. #oncsky #bcsm

Yes! So exciting! #bcsm

Male breast cancer posters at #SABCS24 from @malefitness.bsky.social !

Re: SONIA results (CDK 4/6i 1st or 2nd line). Post-hoc analysis of lobular v. ductal stuck out for almost favoring 1st line in lobular. Small numbers, tight line in the forest plot --> even more intriguing. Follow up needed and/or consider this in decision making? Thoughts? #lobmob #oncsky #bcsm

$15 to METAvivor for our 15th year funding research and providing support 💚🩵🩷 #givingtuesday

Can confirm top time burden themes (1) outside home (travel, appts etc.) (2) inside home (insurance, med bills etc) (3) caregiver work (thnx caregivers <3) (4) demoralization of all time spent on these things (5) helpful, hopeful visits w/ healthcare workers (oncs, nurses, PAs, all y'all). #bcsm

Great work on gut microbe efx on tamoxifen (1) It's not what microbes are there, but what they are doing (enzymes/metablomics) 👏 (2) Diversity in metabolism of tam. exists & it's not just human genetics - its their microbes too! Mechanism(s): changing bioavailability of tam. & SCFAs #oncsky #bcsm

Those dying of BC in the US, and therefore the MBC population, is increasingly made up of those with distant recurrence from Stage 1-2 (49% in 2000 to 63% in 2017). Last paragraph is gold. We must educate. #bcsm From an amazing team @coffeemommy.bsky.social @drsgraff.bsky.social & Kevin Kalinsky

The Patient Centered Dosing Initiative has made it to bluer skies :-) follow us here and find us at therightdose.org

@ibcresearch1.bsky.social and others! #IBC Program highlights at #SABCS24

go.bsky.app/582Y1Av Anyone else to be added to this #PalliativeCare starter pack? Just let me know. Hope this is helpful. #hpm #hapc

Glad to see this as I've had some success with this (can't believe I'm sharing that with the world). No unnecessary suffering & sexual health is important! #bcsm

Excited for the SNO Annual Conference this weekend where I will be discussing "Systemic Therapies for Breast Cancer LMD: A Paradigm for Multidisciplinary Coordination" Intrathecal Chemo is OUT. Systemic Therapies with CNS Bioactivity Are In. More to come Sunday! #oncsky #bcsm

Could ⬆️ the diversity of gut microbes pre-chmeotherapy lead to fewer GI symptoms? Study found ⬇️ diversity & + specific microbes in the gut predicts GI symptoms. Possible mechanisms suggested: short chain fatty acids and/or gut "leakiness". #bcsm #oncsky #cansky www.nature.com/articles/s41...

As a patient clinical trials are so hard to identify. This new algorithm could help physicians but also patients! We need easy to use, reliable clinical trial matching.