#PhysioNews 🎉 We welcome Marie Katzerova as the new Chair, and introduce @jesshedden.bsky.social 🇬🇧 and Dimitrios Syrengelas 🇬🇷 as new committee members of the EAHAD Physiotherapists Committee. 📸 Here’s a glimpse of some of the Committee members during EAHAD 2026!

Congratulations to @paulaloughnane.bsky.social for her winning oral presentation at the #EAHAD2026 Physiotherapy SLAM session 👏🥳 @eahad.bsky.social @hcpa.bsky.social

🗣️We're excited to kick off the #Ageing session at #EAHAD2026! Looking forward to exploring how we can optimise care for our ageing #BleedingDisorders population & address the unique challenges they face. 🩸

Great UK nursing and #AHP representation on the opening session of #EAHAD2026 discussing ageing well with bleeding disorders @hcpa.bsky.social @cathyah1980.bsky.social @belfasttrust.bsky.social

Physiotherapists from the UK and Ireland sharing research and clinical practice at the AHP Day of #EAHAD2026 @physiopaul.bsky.social @paulaloughnane.bsky.social @thuvia25.bsky.social

The Arosenius Lecture commemorates 100 years of progress in Von Willebrand Disease, reflecting on key breakthroughs, advancing knowledge, and what this history means for patient care today: eahadcongress.com/scientific-p...

🎙️ Kickstart 2026 with a new Podcast! Get ready for an insightful conversation in our latest Meet the Author interview with Claire Forde, a specialist Occupational Therapist working in bleeding disorders, and @physiopaul.bsky.social Tune in now 🎧 open.spotify.com/episode/6Zu5...

🚨 EXCLUSIVE: English hospitals that cut registered nurses saw more deaths while those hiring nurses saw more patients survive. Even when hospitals tried to fill gaps with non-nurses, deaths still went up. Major new study exposes dangerous NHS variation: www.thetimes.com/article/7eed...

📣 Are you a physiotherapist active in the field of #haemophilia and bleeding disorders? 🩸 The EAHAD Physiotherapists Committee is looking for up to 2 new members to join for a three-year term starting February 2026!🔗 Apply today: www.eahad.org/call-for-app... #EAHADVacancy

An NDORMS study has found that a tailored exercise programme for people aged 80 years + with osteoarthritis is practical and acceptable, leading the way to a large clinical trial. https://www.ndorms.ox.ac.uk/news/study-finds-tailored-exercise-programme-feasible-for-adults-over-80-with-osteoarthritis

The EAHAD 2026 AHP Day programme is live! Explore the sessions and prepare for the latest in haemophilia science and care: eahadcongress.com/allied-healt...

📰 Check the recently published article “Gap Analysis Investigating Healthcare Professionals’ Skills and Knowledge for Pain Management in Haemophilia - A Qualitative Study”. 🔗 onlinelibrary.wiley.com/doi/10.1111/... @haemophilia.bsky.social

#WorldPTDay we highlight the importance of physiotherapy for those living with a #bleedingdisorder #haemophilia Specialized, personalised and supported care from childhood through to later in life, promoting and enabling participation and physical activity for all.

Calling all physiotherapists with experience in inherited bleeding disorders! The #EMPOWER study, led by 2024 Research Grant recipient Megan Kennedy, highlights the often-overlooked experiences of PTs caring for women and girls with BD. Take the survey tcdhealthsciences.qualtrics.com/jfe/form/SV_...

🩸Abstract submissions for EAHAD 2026 will open soon! Get organised and start compiling your latest findings ahead of time: eahadcongress.com/abstract-sub...

🚨 New in @rpth.bsky.social: “Gene-based therapies for hemophilia” offers a clear, visual overview of gene therapy for hemophilia A and B, now available #openaccess. 🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext

🩸 Join the EAHAD community and play an active role in advancing care for #haemophilia and allied disorders. Gain access to exclusive benefits, including discounted registration for #EAHAD2026 in Dublin! 🔗 Sign up today: www.eahad.org/become-a-mem...

Scoping review highlighting lack of #rehabilitation research in POEMS syndrome, Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social journals.sagepub.com/doi/10.1177/... @uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social

🎥 Prof. Niamh O’Connell, President of #EAHAD2026, welcomes you to the journey toward Dublin. Watch her short message to the haemophilia community: 🔗 eahadcongress.com

The 19th Annual Congress of EAHAD is taking place in Dublin from 3 - 6 February 2026. Join experts in #haemophilia and allied disorders for four days of science, connection, and impact. Explore the website: eahadcongress.com #EAHAD2026

@hcpa.bsky.social www.linkedin.com/posts/deciph...

Every single person is a heart beat, a car crash or an infection away from acquiring a lifelong disability and needing support. Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight

👏 A truly encouraging session today at the #ISTHCongress on the ISTH haemophilia guidelines. The open and constructive dialogue reflects the progress we’ve made collectively as a global community. This evolving landscape highlights the value of collaboration and mutual respect among all stakeholders

🤝 We are pleased to announce that EAHAD has signed an MoU with @isth.org reaffirming our commitment to supporting the bleeding disorders community. This is the result of early efforts and continued dialogue from our side, supported with enthusiasm by our ISTH colleagues!

🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...

Late breaking at #ASCO25: A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL @ascocancer.bsky.social

🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of @wfhemophilia @isth and #EAHAD 📺: academy.eahad.org/eahad/2025/n...

In light of recent decisions by several pharmaceutical companies to pause, scale back, or discontinue their haemophilia gene therapy programs, the International Society on @isth.org #WFH and #EAHAD have issued a formal Call-to-Action.📄 Read the full statement here: www.isth.org/news/699516/

#PhysiotherapyNews 📚 The Clinical Practice Guideline for Physiotherapy in Haemophilia is now available in Italian 🇮🇹 in addition to English, French and Dutch! 🔗 www.eahad.org/eahad-projec... 🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts

At #wfhccs in Dubai one of our UK physiotherapists Melanie Bladen speaking on the international expert panel discussing the importance of periodic visits for people with #BleedingDisorders #physiotherapy #mskcare #medsky

#wfhccs UK and Ireland physiotherapists Richard Davis & Mark McGowan share their work in the poster hall #physiotherapy #bleedingdisorders Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia

Professor David Stephensen, UK physiotherapist sharing his work at #wfhccs on identifying performance based outcome measures of physical function in #haemophilia #physiotherapy moving towards core outcomes in #BleedingDisorders

Fancy a new venture in #nursing? Why not come take a look at joining the @SheffieldHosp #haemostasis team as a #TTP & #BleedingDisorders specialist nurses? Give us a call, come meet the team. Lots of opportunities for development in this exciting field www.sth.nhs.uk/work-for-us/...

www.bmj.com/content/389/... Oh dear me What @mgtmccartney.bsky.social said, basically.......

I presented findings from my PhD at a workshop supported by materials co- produced with @designscience.bsky.social. Inspired conversations captured with @sanjamaretic.bsky.social we share our editorial 👇🏾👇🏾👇🏾⭐️https://painandrehabilitation.co.uk/index.php/par/article/view/18 ⭐️

#PhysioNews 🎙️ Get ready for an insightful conversation with @physiopaul.bsky.social on his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia"! Tune in now 🎧 on Spotify: open.spotify.com/episode/2B8j...

Discover the latest advancements in Acquired Haemophilia A with the latest e-learning module on the EAHAD Academy! Join expert Rebecca Kruse-Jarres as she explores current practices and future directions in this comprehensive session. 🎥 academy.eahad.org/eahad/2025/e... #HaemophiliaA

Link to final version now available 50 days free access, no sign up 🙂 kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...

Didn’t quite get the memo on piping down about equity and diverse voices…@diarmuiddenneny.bsky.social and I tread these waters and offer our contribution to this special issue on Pain in Current Opinions in Psychology www.sciencedirect.com/science/arti... (institution access required, sorry)

How could #rehabilitation practice be improved for patients hospitalized with #acquired #haemophilia A? An original article in @haemophilia_jnl discusses current treatment strategies in Japan 🇯🇵 👉 https://buff.ly/41T0O0k #OpenAccess 🟢

📢 The 2025 EAHAD Research Grants cycle is now open! Apply before March 7 for a chance to advance your career in #haemophilia and allied disorders. This year, EAHAD is offering up to 6 grants, including a new category for researchers! www.eahad.org/2025-eahad-r...

Our paper on the impact of living with multiple long-term conditions on everyday life: a qualitative evidence synthesis. The 'work' is not only around medications and healthcare use, it is also emotional & financial with lots of learning & adaptation bmcpublichealth.biomedcentral.com/articles/10....

Exciting news to finish up 2024 #myeloma #survivorship #research www.myeloma.org.uk/news/myeloma...

Are you a physician, student, researcher or allied health professional from a low- or middle-income country? Do not miss the opportunity to attend virtually the upcoming #EAHADCongress and apply for the #EAHAD2025 Virtual Access Grants! ✍️ forms.gle/9rp9tzajXr3N... Deadline 17 January 2024.

🎄Before the holidays, the EAHAD Physiotherapists Committee is excited to share the latest episode of the "Meet the Author Series". This time, Johan Blokzijl presents the project "A Clinical Practice Guideline for Primary Care Physiotherapy in PwH" 🎥 Watch it now academy.eahad.org/eahad/2024/m...

If something affected ~40% of men & was associated with fatigue, poor sleep, anxiety, depression, decreased cognition, hair loss, and so much more We would >screen for it >believe and diagnose patients >have better treatments But if it’s women & children… jamanetwork.com/journals/jam...

🤖🩺 AI + ultrasound could revolutionize hemophilia care! Tyrell et al report a new algorithm that detects joint bleeds with 97% accuracy, aiding early intervention and preventing damage. This could be a gamechanger in managing hemarthritis! https://buff.ly/4fX091P

A critical appraisal of the @isth-official.bsky.social guidelines for #haemophilia treatment. For me the main issues relate to the methodology used & the out dated nature of the evidence, leading to the risk of pwh being unable to access best treatment onlinelibrary.wiley.com/doi/full/10....

🌟 Do you know a #haemophilia nurse who goes above and beyond for their patients? Nominate them for the Star European Haemophilia Nurse Award! 📩 Send a 1-page nomination detailing their contributions to [email protected] by Monday, 13th January 2025.