#womeninsport #womensrugby #rugby #thisgirlcan www.facebook.com/share/p/1NAM...

On the back of the haemostasis community being really engaged this week during #ISTH2025 I'm resharing the @wfhemophilia #nurses committee global #tattoo survey link for anyone interested in participating vm.tiktok.com/ZNdyDVavx/

Fancy a new venture in #nursing? Why not come take a look at joining the @SheffieldHosp #haemostasis team as a #TTP & #BleedingDisorders specialist nurses? Give us a call, come meet the team. Lots of opportunities for development in this exciting field www.sth.nhs.uk/work-for-us/...

#nurses are ensuring physical & psychological safety of people across the world with all different conditions. Have you done something you think others should know about? Anything you want to share? Is your team outstanding? Nominate for a @nursingtimes.bsky.social award today

#Nurses are doing amazing things across the UK every day. Why not consider nominating an individual or team for one of the @nursingtimes.bsky.social awards & give them the recognition they deserve #IWD2025

This year's #IWD theme is “For ALL Women and Girls: Rights. Equality. Empowerment.” This year's theme calls for accelerated action. www.linkedin.com/posts/cathy-...

The @wfhemophilia #nurses committee would be very grateful for participation in this global tattoo survey for people living with #bleedingdisorders please share too. Thank you #RareDiseaseDay2025 forms.office.com/e/p97n65AExs

If you are a #bleedingdisorders #nurse in #Europe please respond to this survey in the next few days. It will take you 2 minutes, Adapted for some European languages too but had a limit to amount so apologies if not covered forms.office.com/pages/respon...

Been watching the #sixnations & fancy giving #rugby a go? Why not come join @WathRugby? With a new growing #girlsrugby #WathWildcats we can accommodate all girls ages too. Want something a bit slower #WathWarriers walking might be for you. #Yorkshire @RFU #Rotherham

Looking for a #Haemophilia #nurse post in Wales. Check out this fabulous opportunity www.healthjobsuk.com/job/Bodelwyd...

Nursing Times Awards 2024: Critical and Emergency Care Nursing winner and shortlist Find out more about the winner and shortlisted entries in the Critical and Emergency Care Nursing category at the 2024 Nursing Times Awards. #nursing #A&E #NTAwards #nurses #nhs www.nursingtimes.net/emergency-an...

Just watching the latest series of #Hacks and they asked if Debra has #VonWillebrandDisease #VWD amazing to hear it in a main stream show #bleedingdisorders

This is really good news. Its concerning that in the UK anyone can call themselves a nurse and offer nursing services even if they have no qualifications, have been struck off or convicted Fully support this bill

Grab your virtual copy of the #EAHAD2025 Book of #Abstracts now! 📕 It contains all speaker, oral & poster abstracts presented at this year’s #EAHAD congress in Milan 🇮🇹 https://buff.ly/40BYFUs

@sawherry.bsky.social is presenting findings on the intergenerational impact of the contaminated blood scandal at the #EAHAD2025 AHP Day Nurses Slam session, 15.30 local time. Read her article in The Journal of Haemophilia Practice: doi.org/10.2478/jhp-... #HemeSky #MedSky #BloodSky

Looking forward to seeing updates from the #AHP #Nursing sessions today at #EAHAD2025 #FOMO but currently reviewing @isth.org abstracts and they look awesome so looking forward to attending #ISTH2025 in June.

#VWDday2025 Recognise abnormal bleeding signs; get a diagnosis to specialist care. Periods >7 days, change sanitary wear 2hourly+, pass clots >£1 Prolonged bleeding after cuts, dental extractions, surgery, giving birth Nose bleeds Bruising+ Oral bleeding haemophilia.org.uk/vwd-not-haem...

Safety and efficacy shown in paediatric congenital #TTP cohort (n=9) RWD treated with rADAMTS13. Normalisation of baseline bloods & fewer admissions with complications www.jthjournal.org/article/S153...

Absolutely love this! Thanks for sharing with me @physiopaul.bsky.social

During the @NursesHna AGM we launched our survey evaluating current levels of practice, their correspondence to both our competency framework & the RCN levels of practice. If you are a #nurse working with #bleedingdisorders in the UK please participate forms.gle/aF7F6GQikev4...

Really great to meet amazing #nurses working with people with bleeding disorders. Such knowledge and enthusiasm for their work moving practice forward

Great job from @NursesHna on the annual UK #bleedingdisorders #nurses meeting. A fantastic session from @alisonleary1.bsky.social with her call to arms articulating the physical & psychological safety we provide as CNSs. Thought provoking debate, case studies & workshop. Even a salsa 💃 class

New leaflet available from World Federation of #Hemophilia for #women & #girls with #haemophilia elearning.wfh.org/resource/wom...

A great opportunity for a #haemophilia #bleedingdisorders clinical #nurse specialist post in #London. I'm slightly biased that this is a great speciality to work in, a great engaged patient group & at the cutting edge of scientific developments. www.bartshealth.nhs.uk/jobs#!/job/U...

Iron deficiency starts early after menstruation and is often undiagnosed, dismissed, or inadequately treated. Our study found almost 40% of 12-21 yo females are affected. Who in your life could benefit from this information?! jamanetwork.com/journals/jam...

Congratulations to Prof Ajay Vora on his MBE for services to #Paediatric #Leukaemia #haematology @greatormondst.bsky.social @sheffielduni.bsky.social @sheffieldchildrens.bsky.social thelimbic.com/uk/haematolo...

Fancying a fresh start in 2025, why not apply for this #haemostasis focused #haematology consultant post @SheffieldHosp. Closing date for applications this Sunday, 29th Dec 23:59. Come join the team 😊

A critical appraisal of the @isth-official.bsky.social guidelines for #haemophilia treatment. For me the main issues relate to the methodology used & the out dated nature of the evidence, leading to the risk of pwh being unable to access best treatment onlinelibrary.wiley.com/doi/full/10....

In our last issue of 2024, we interview our Nurse of the Year, Cathy Harrison, an advanced nurse practitioner at the Sheffield Haemophilia and Thrombosis Centre. Passionate about haematology, she also wants to raise the profile of specialist nurses generally. www.nursingtimes.net/digital-edit...

Are you looking for a Consultant post specialising in #haemostasis & #thrombosis? We're looking for a new team member to join us @Sheffieldhosp. I might be biased but I think is an excellent opportunity #haematology beta.jobs.nhs.uk/candidate/jo...

Another year, another great Sobi #CATCH meeting. Always great to attend a meeting where all disciplines come together with affected individuals to discuss evidence, practice & themes relating to #haemophilia care. onlinelibrary.wiley.com/doi/10.1111/ha…

The evolving role of the specialist #nurse in #chronichealth conditions still involves engaged, proactive approach to care, signposting, navigating & coordinating care provision #haemophilia #bleedingdisorders Identifying gaps in the evidence.

Lovely comment from @adamrobertjones that #bleedingdisorder #MDT members are the affected person's cheerleaders, supporting achieving their goals in life. #haemophilia

The BBC have kindly shared the video of the breakfast show this morning. I've already had a few patients say how lovely it is to see something about their conditions, and their multiple generations of families in the wider media. #bleedingdisorders youtube.com/watch?v=Et74...

Interesting read reflecting on different levels of #nursing practice - enhanced, advanced & consultant level. @NursesHna this will be handy when reflecting on our evaluation of UK advanced practice in #bleedingdisorder #nurses www.rcn.org.uk/Professional...

With the introduction of #GeneTherapy for #haemophilia in the UK, new guidance to support MDT models, shared decision making discussions & therapy pathways has been necessary onlinelibrary.wiley.com/doi/10.1111/...

Most families, 58%, were dissatisfied with the outcome of #haemophilia testing of young #girls in Canada. Families sought for testing as early as possible to prevent harm to their children through trauma related #bleeding, #HMB or delayed diagnosis onlinelibrary.wiley.com/doi/full/10....

Fabulous to be able to share my experience of #bleedingdisorders #nursing with the teams from the South West #haemophilia network region & participate in some great discussion about evidence based practice, sharing our real world evidence & what care provision needs to look like

Having this #transition database really aids the capacity to support adolescents with mild #bleedingdisorders to ready to move safely to adult services if they are only seeing children's services annually

Dawn Jenner from #Southampton #haemophilia service talks about #transition. Using #ReadySteadyGo & the #NHD to split registered cohorts into appropriate groups age 11-18years. Enables easy prep for transition clinics, supports early referrals to youth workers & other AHPs

Really interesting discussion paper on the ongoing debate about diagnosis of T1 #VWD Vs Low #VWF, raising the possible should we return to possible VWD diagnoses. What is clear is, the #bleeding phenotype & access to care is the most important issue www.jthjournal.org/article/S153...

Lots of gaps in knowledge around how to support surgical episodes in pw #bleedingdisordersofunknowncause #BDUC www.rpthjournal.org/article/S247...

HealthETalks podcast exploring my career & experiences in #nursing, #bleedingdisorders & #raredisease. Made my mum cry but it doesn't take much when proud mama kicks in 😊 music.youtube.com/watch?v=DQJzBx… via @YouTubeMusic

Significant & frequent bleeding & bruising reported in the largest #GlanzmannThrombasthenia cohort study, affecting capacity to participate in social activities & impacting in mental health. #raredisease #bleedingdisorders www.rpthjournal.org/article/S247...

Early start this morning, de-icing the car before 6am... Off to #Taunton for the South West Network Meeting, talking about #haemophilia #bleedingdisorders #nursing. Thanks for the invite guys, looking forward to the day ahead.